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Failed on Piqray... off to xeloda I go....
hi friends... so looks like my time piqray is coming to an end... latest pet scan showed a few more spots on liver! I only got 4 months out of it which I guess anytime is better than nothing' o to xeloda I go..... has anyone been on this med and can anyone give me some advice or any side effects they
hi friends... so looks like my time piqray is coming to an end... latest pet scan showed a few more spots on liver! I only got 4 months out of it which I guess anytime is better than nothing' o to xeloda I go..... has anyone been on this med and can anyone give me some advice or any side effects they
DianaSav
in
SHARE Metastatic Breast Cancer
7 months ago
Treatment for life?
Hello. First time posting here. Diagnosed with CLL in July by flow test and Fish test. Although still technically in lymphocytosis. My chart says diagnosis: CLL. During the discussion in July my Dr told me of things they will be keeping an eye on. Then he said he won't discuss particular treatment plans
Hello. First time posting here. Diagnosed with CLL in July by flow test and Fish test. Although still technically in lymphocytosis. My chart says diagnosis: CLL. During the discussion in July my Dr told me of things they will be keeping an eye on. Then he said he won't discuss particular treatment plans
Quiltingone
in
CLL Support
9 months ago
Xeloda
I’m only on second round of six total. So far, labs are looking good except LDH is slightly higher than normal. I, like you, ask my oncologist for info. Mostly, I focus on how am I doing today…. What’s my energy level, status of my hands and feet (hand and foot syndrome for which I use Voltaren
I’m only on second round of six total. So far, labs are looking good except LDH is slightly higher than normal. I, like you, ask my oncologist for info. Mostly, I focus on how am I doing today…. What’s my energy level, status of my hands and feet (hand and foot syndrome for which I use Voltaren
YogaGRL52
in
SHARE Metastatic Breast Cancer
7 months ago
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Adding Kisqali to Letrozale treatment
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
It was just suggested to me to add Kisqali to my treatment of Letrozole. I am "cancer free" since I had a masectomy and everything was taken out. Are there any others on this chat with the same experience?
mimosa412
in
SHARE Metastatic Breast Cancer
7 months ago
Alk phos on Xeloda
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Moms just started her 3 cycle today of xeloda. So she’s been on it 6 weeks. Her T bili is normal her ast and alt are normal . But her Alk phos is up. Her doctor said they would continue to monitor it. Anyone else have this elevate on Xeloda ? Thanks so much!
Flower1513
in
SHARE Metastatic Breast Cancer
7 months ago
Reconstruction after Mastectomy
Happy Holidays!!! I was wondering if there's anyone who's had a mastectomy with reconstruction and regretted it. I'm 43 MBC and there's a mass in tge same breast they've been watching but I think it's time to have the mastectomy as a preventative measure. Anyone willing to share their experiences?
Happy Holidays!!! I was wondering if there's anyone who's had a mastectomy with reconstruction and regretted it. I'm 43 MBC and there's a mass in tge same breast they've been watching but I think it's time to have the mastectomy as a preventative measure. Anyone willing to share their experiences?
KimberlyB40
in
SHARE Metastatic Breast Cancer
7 months ago
Merry Christmas Despite Progression
Hello all! Today I’m supposed to be with my family in my hometown but found out Monday I have progression in my spine, ribs, pelvis and liver so spent this week in the hospital getting bone cement injection to repair a compound fracture in my spine and begin radiation. Thankfully I was released yesterday
Hello all! Today I’m supposed to be with my family in my hometown but found out Monday I have progression in my spine, ribs, pelvis and liver so spent this week in the hospital getting bone cement injection to repair a compound fracture in my spine and begin radiation. Thankfully I was released yesterday
Saltandlight
in
SHARE Metastatic Breast Cancer
7 months ago
Still here & BRCA elective Mastectomy
Hi all! Just thought I’d pop my head up and say hello and that I’m still here. 🎉 As I’m now 6 years 😱 post OC treatment I’ve taken the plunge and am having the operation to remove my potentially life threatening boobs! (I found out post OC that I’m BRCA 1 so have a ridiculously high chance of getting
Hi all! Just thought I’d pop my head up and say hello and that I’m still here. 🎉 As I’m now 6 years 😱 post OC treatment I’ve taken the plunge and am having the operation to remove my potentially life threatening boobs! (I found out post OC that I’m BRCA 1 so have a ridiculously high chance of getting
Emsymits
in
My Ovacome
9 months ago
New Normal
Good morning beautiful ladies 😀 This week I started my Taxol and Herceptin cocktail. Being my cancer mutated from HER2 low to HER2 positive with progression to liver this seems like the most head on approach. This is certainly a drastic change from what I was experiencing on Ibrance and Letrozole
Good morning beautiful ladies 😀 This week I started my Taxol and Herceptin cocktail. Being my cancer mutated from HER2 low to HER2 positive with progression to liver this seems like the most head on approach. This is certainly a drastic change from what I was experiencing on Ibrance and Letrozole
Kcap430
in
SHARE Metastatic Breast Cancer
7 months ago
Abemaciclib
Hi, I’ve just commenced Abemaciclib as part of my adjuvant treatment for high risk breast cancer (grade 3, stage 2a, 2 lymph nodes involved). I’ve already had lumpectomy, lymph node clearance, 6 rounds of chemotherapy, having IV bisophates 6 monthly for 3 years and I’m currently taking Letrozole and
Hi, I’ve just commenced Abemaciclib as part of my adjuvant treatment for high risk breast cancer (grade 3, stage 2a, 2 lymph nodes involved). I’ve already had lumpectomy, lymph node clearance, 6 rounds of chemotherapy, having IV bisophates 6 monthly for 3 years and I’m currently taking Letrozole and
Multigravida1956
in
SHARE Breast Cancer Support
10 months ago
Results on Cervix
PRAISE GOD NEGATIVE!!! My gynecologist/oncologist said that we will see what the next Petscan looks like. If it still lights up then we will do a biopsy. Not sure why it is showing up on Petscan. She said some times urine can back up in the cervix 🤔🤔🤔. And this will cause it to show up. Otherwise
PRAISE GOD NEGATIVE!!! My gynecologist/oncologist said that we will see what the next Petscan looks like. If it still lights up then we will do a biopsy. Not sure why it is showing up on Petscan. She said some times urine can back up in the cervix 🤔🤔🤔. And this will cause it to show up. Otherwise
Gentelforce
in
SHARE Metastatic Breast Cancer
10 months ago
side effects on Anastrazole
I was diagnosed with stage 1 breast cancer in 2019 and I'm still feeling very tired and breathless and can't do much at all without a rest, is this the norm?
I was diagnosed with stage 1 breast cancer in 2019 and I'm still feeling very tired and breathless and can't do much at all without a rest, is this the norm?
Ca1amity
in
My Breast Cancer Community
10 months ago
anyone else feel wierd after discontinuing Piqray / Faslodex?
Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had worse night sweats and diarrhea then when I was on the drugs! Plus a lingering headache and overall yucky feeling. I assumed it would resolve after a couple days but it’s been a full week. Has anyone else experienced that
Hi all, my docs took me off Piqray and Faslodex a week ago. Since then I’ve had worse night sweats and diarrhea then when I was on the drugs! Plus a lingering headache and overall yucky feeling. I assumed it would resolve after a couple days but it’s been a full week. Has anyone else experienced that
LDR1
in
SHARE Metastatic Breast Cancer
7 months ago
Reacting to piqray.
Don’t want to worry anyone, but just wanting to know if anyone has had this reaction to Piqray. I’m into my second week. On Piqray and Fulvestrant. At first I thought it was only my bottom, (left side) near site of injection, that was itchy. Then I started feeling a prickly feeling all over my body.
Don’t want to worry anyone, but just wanting to know if anyone has had this reaction to Piqray. I’m into my second week. On Piqray and Fulvestrant. At first I thought it was only my bottom, (left side) near site of injection, that was itchy. Then I started feeling a prickly feeling all over my body.
Timtam56
in
SHARE Metastatic Breast Cancer
7 months ago
tamoxifen and thyroxine
if you started tamoxifen, how much did thyroid bloods/ dose need to change? I know tamoxifen causes fatigue and foggineess but also wondering if it’s thyroid too as I know it can interfere with things. I do have a blood tests in a couple of weeks.
if you started tamoxifen, how much did thyroid bloods/ dose need to change? I know tamoxifen causes fatigue and foggineess but also wondering if it’s thyroid too as I know it can interfere with things. I do have a blood tests in a couple of weeks.
haggisplant
in
Thyroid UK
10 months ago
Update: post-radiation and New meds
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Hello Friends and warriors! Dragonfly is updating the latestest treatment... Radiation to the sacrum and L5 (10 treatments) ended on Dec 4th but since then I've had a rollercoaster of side effects...mostly stiffness and muscle spasms that catch me unawares when I get up or sit down. I truly thought
Dragonfly2
in
SHARE Metastatic Breast Cancer
7 months ago
brain mets
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
My mom had a 13 mm brain met in July . She had the single beam one day radiation treatment and it continues to shrink. She started on evermolimus I know that’s misspelled . It didn’t work so she started xeloda. But only one cycle so not long enough to tell if it’s working . Today she a had a repeat
Flower1513
in
SHARE Metastatic Breast Cancer
7 months ago
Need to Change Treatment
So I have progression after two years on Ibrance and Letrozole. I have an opportunity to participate in a clinical trial in my town in which I would be randomly assigned to Giredestrant, a promising oral SERD (monotherapy) or both Giredestrant with a new Pikc3a drug. My standard of care option would
So I have progression after two years on Ibrance and Letrozole. I have an opportunity to participate in a clinical trial in my town in which I would be randomly assigned to Giredestrant, a promising oral SERD (monotherapy) or both Giredestrant with a new Pikc3a drug. My standard of care option would
Trissh
in
SHARE Metastatic Breast Cancer
8 months ago
Lump on buttocks due to FULVESTRANT injection
My mom is diagnosed with stage 4 breast cancer .. currently she is on her hormonal therapy ..FULVESTRANT injection are injected ....the injections are injected on buttocks ..due to this there is lump on her buttocks, but its not going away , even after all the cold , hot compress..so what should i do
My mom is diagnosed with stage 4 breast cancer .. currently she is on her hormonal therapy ..FULVESTRANT injection are injected ....the injections are injected on buttocks ..due to this there is lump on her buttocks, but its not going away , even after all the cold , hot compress..so what should i do
Hidden
in
Breast Cancer India
8 months ago
Newbie Here with CA 27.29 Question
I live in Humboldt County, Ca., which is far northern area - almost Oregon. Our Medical Community lacks continuity in care, especially Oncology. I’ve “seen” 8 different doctors in the 3 1/2 years of diagnosis. I say “seen” because some appointments have only been phone calls. Doctors come and leave,
I live in Humboldt County, Ca., which is far northern area - almost Oregon. Our Medical Community lacks continuity in care, especially Oncology. I’ve “seen” 8 different doctors in the 3 1/2 years of diagnosis. I say “seen” because some appointments have only been phone calls. Doctors come and leave,
RedwoodLady
in
SHARE Metastatic Breast Cancer
10 months ago
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