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How's Remission?
Hi friends, it's been awhile since I've posted here. I've been in remission for 3 and a half years. First treatment was Ibrutinib for one year then Obintuzimab and Veneteclax for 2 years. Just to give you an idea of what my treatment was. So my question is, if you too have been in remission, besides
Hi friends, it's been awhile since I've posted here. I've been in remission for 3 and a half years. First treatment was Ibrutinib for one year then Obintuzimab and Veneteclax for 2 years. Just to give you an idea of what my treatment was. So my question is, if you too have been in remission, besides
lorna222
in
CLL Support
2 days ago
pleural effusion
hi all you very supportive ladies . 4 years since my diagnosis with stage 3 ovarian cancer I have had all the chemo combinations available plus Avastin and PARP inhibitors . I was then in a clinical trial for a year which had a small effect and finished in March. a couple of weeks ago , I was admitted
hi all you very supportive ladies . 4 years since my diagnosis with stage 3 ovarian cancer I have had all the chemo combinations available plus Avastin and PARP inhibitors . I was then in a clinical trial for a year which had a small effect and finished in March. a couple of weeks ago , I was admitted
Lookingahead
in
My Ovacome
3 days ago
update on switching to digoxin from lopressor
Stopped digoxin this am and starting back on lopressor. bad heartburn and nausea just kept getting worse. Lots of hydrating and will explore ablation. Really felt sick on digoxin. Although don't feel generally great this was really not a good experience.
Stopped digoxin this am and starting back on lopressor. bad heartburn and nausea just kept getting worse. Lots of hydrating and will explore ablation. Really felt sick on digoxin. Although don't feel generally great this was really not a good experience.
farewelltoarms
in
Atrial Fibrillation Support
5 days ago
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Happy holiday post!
Quick catch up to give a boost if you're struggling right now starting your journey 😘 Basics Stage4b hgsc hrd+ brca negative with lymph nodes next to my heart and pelvis, started carbo/taxol June 2021 had 4 rounds then paid private for operation then 2 rounds. Finished 22 infusions of avastin in April
Quick catch up to give a boost if you're struggling right now starting your journey 😘 Basics Stage4b hgsc hrd+ brca negative with lymph nodes next to my heart and pelvis, started carbo/taxol June 2021 had 4 rounds then paid private for operation then 2 rounds. Finished 22 infusions of avastin in April
Newbery3
in
My Ovacome
8 days ago
Invasive Breast Cancer her 2 P+ E+1 lymph node Metastatic spread after chemo & Mastectomy
I was diagnosed with Invasive
Breast
Cancer
her 2 , P+ E+ positive. I had docetaxel carboplatin and ohesgo and straight in for a single mastectomy and a couple of lymph nodes out. 1 came back with a 4mm Metastatic spread after chemo and 3 weeks ago I had a full clearance.
I was diagnosed with Invasive
Breast
Cancer
her 2 , P+ E+ positive. I had docetaxel carboplatin and ohesgo and straight in for a single mastectomy and a couple of lymph nodes out. 1 came back with a 4mm Metastatic spread after chemo and 3 weeks ago I had a full clearance.
GillyGangGong
in
SHARE Metastatic Breast Cancer
5 months ago
New DX
I am a 76 yo woman. I was DX in 2016 and was in a trial at MD Anderson from 2017-2019. I achieved UMRD at the end of the trial of Ibrutinib and Venetoclax. I remained in total remission until my first visit after my husband died from Alzheimer’s in Oct 2021. Since then it’s been downhill. Dr Wierda
I am a 76 yo woman. I was DX in 2016 and was in a trial at MD Anderson from 2017-2019. I achieved UMRD at the end of the trial of Ibrutinib and Venetoclax. I remained in total remission until my first visit after my husband died from Alzheimer’s in Oct 2021. Since then it’s been downhill. Dr Wierda
pkpayne
in
CLL Support
19 days ago
hypothyroidism+long covid +immune d/o +breast cancer
Greetings everyone, I’m [i][edited by admin] [/i]in the U.S. and have had the universal experience at having my hypothyroid symptoms ignored and dismissed by doctors. I was on levothyroxine therapy to no good effect. I have a whole basketful of hypo symptoms that none of my doctors connected dots and
Greetings everyone, I’m [i][edited by admin] [/i]in the U.S. and have had the universal experience at having my hypothyroid symptoms ignored and dismissed by doctors. I was on levothyroxine therapy to no good effect. I have a whole basketful of hypo symptoms that none of my doctors connected dots and
BlueGreenWordyDoc
in
Thyroid UK
2 months ago
Digoxin
Can I start Digoxin while still weaning off of Lopressor? Doc said stop lopressor and start dig no weaning needed I am a little nervous after all I read Thanks for Comments
Can I start Digoxin while still weaning off of Lopressor? Doc said stop lopressor and start dig no weaning needed I am a little nervous after all I read Thanks for Comments
farewelltoarms
in
Atrial Fibrillation Support
29 days ago
mastectomy now tamoxifen
I’m 48 and just had a double mastectomy almost 4 weeks ago. My bc tumor was 1.2 cm and ER/PR positive and HER 2 negative with an onco type score of 21 and nymph nodes were negative. I was hoping I was done with treatment, but was told I need to take tamoxifen. I read a lot of horrible stories about
I’m 48 and just had a double mastectomy almost 4 weeks ago. My bc tumor was 1.2 cm and ER/PR positive and HER 2 negative with an onco type score of 21 and nymph nodes were negative. I was hoping I was done with treatment, but was told I need to take tamoxifen. I read a lot of horrible stories about
Lulu427
in
SHARE Breast Cancer Support
29 days ago
Hay fever medicines
I continue to have badly blocked ears and a runny nose for several weeks. I’ve only managed to see paramedics rather than a GP about it. I haven’t used any nasal sprays (other than saline) but would like to try anti-allergy medication such as antihistamine. Yet I’ve read that “A few common stimulating
I continue to have badly blocked ears and a runny nose for several weeks. I’ve only managed to see paramedics rather than a GP about it. I haven’t used any nasal sprays (other than saline) but would like to try anti-allergy medication such as antihistamine. Yet I’ve read that “A few common stimulating
Samazeuilh2
in
Atrial Fibrillation Support
1 month ago
What next? re maintenance for HGS recurrence
Would love to know if any ladies who has also been unsuccessful with Olaparib, what has been a successful maintenance for you? I’ve just got 2 cycles more of Carbo/Caelyx, min scan showed slight reduction not as good as hoped for. Only maintenance mentioned by oncologist is to go on Letrozole. I
Would love to know if any ladies who has also been unsuccessful with Olaparib, what has been a successful maintenance for you? I’ve just got 2 cycles more of Carbo/Caelyx, min scan showed slight reduction not as good as hoped for. Only maintenance mentioned by oncologist is to go on Letrozole. I
Towergirl
in
My Ovacome
1 month ago
Breast cancer
Has anyone been told they can't have biological medicine after radiation and chemo?
Has anyone been told they can't have biological medicine after radiation and chemo?
Derek70
in
LUPUS UK
10 months ago
Don't think I can cope anymore
No one seems to understand I have one sister who doesn't want to understand mental health and lung and
breast
cancer
and just one friend who struggles with his own issues I'm not eating much and sleeping badly plus I've got the stress of selling my house I really don't know who to turn to just scared
No one seems to understand I have one sister who doesn't want to understand mental health and lung and
breast
cancer
and just one friend who struggles with his own issues I'm not eating much and sleeping badly plus I've got the stress of selling my house I really don't know who to turn to just scared
Iamhealthy123
in
Lung Conditions Community Forum
9 months ago
Clinical trial update
Trial Drugs: Inavolisib and Giredestrant. Today was my second set of scans (every 8 weeks) and the results of the chest CT and Bone scans were great, nothing new, all stable and NED in lungs. The abdomen CT showed slight increase in the size of my liver lesions. I am ER+, HER2 low +1, PR-, AR+, with
Trial Drugs: Inavolisib and Giredestrant. Today was my second set of scans (every 8 weeks) and the results of the chest CT and Bone scans were great, nothing new, all stable and NED in lungs. The abdomen CT showed slight increase in the size of my liver lesions. I am ER+, HER2 low +1, PR-, AR+, with
Trissh
in
SHARE Metastatic Breast Cancer
2 months ago
Letrozole
I saw the oncologist yesterday to discuss radiotherapy and hormone therapy.The plan for radiotherapy is on hold ATM because I have an ongoing issue with a seroma on the breast and underarm. During the meeting she said she would give me a prescription for Letrozole, I told her I wasn't happy to start
I saw the oncologist yesterday to discuss radiotherapy and hormone therapy.The plan for radiotherapy is on hold ATM because I have an ongoing issue with a seroma on the breast and underarm. During the meeting she said she would give me a prescription for Letrozole, I told her I wasn't happy to start
LindaLittleBear
in
My Breast Cancer Community
2 months ago
Breast Cancer Awareness Month
October is BC Awareness Month. October 13 is MBC awareness day. A good time to wear pink! I've acquired various pink accessories over the 19+ years since being diagnosed with denovo MBC. This month can be a good time to get pink "stuff" and wear it. I bought a pink beret a few weeks ago and plan
October is BC Awareness Month. October 13 is MBC awareness day. A good time to wear pink! I've acquired various pink accessories over the 19+ years since being diagnosed with denovo MBC. This month can be a good time to get pink "stuff" and wear it. I bought a pink beret a few weeks ago and plan
PJBinMI
in
SHARE Metastatic Breast Cancer
8 months ago
Oil of Evening Primrose
I had a lumpectomy last May. It was a small ductal carcinoma which was invasive. I went on to have Radiotherapy and started a five year course of Letrozole. I developed bad joint pain and I had a month off to see if the Letrozole was the culprit. It was better but not gone. The oncology nurse suggested
I had a lumpectomy last May. It was a small ductal carcinoma which was invasive. I went on to have Radiotherapy and started a five year course of Letrozole. I developed bad joint pain and I had a month off to see if the Letrozole was the culprit. It was better but not gone. The oncology nurse suggested
Tabbycat64
in
My Breast Cancer Community
2 months ago
Question about tumor markers
Hi there, happy spring to all!! My Mom’s been doing well with trial med in combination with Faslodex monthly. Her blood work has been normal with good liver function. Her tumor marker test (the CA 15-3) test showed in the 350 range. I’m not sure it’s ever been that high but it was in the 150 range
Hi there, happy spring to all!! My Mom’s been doing well with trial med in combination with Faslodex monthly. Her blood work has been normal with good liver function. Her tumor marker test (the CA 15-3) test showed in the 350 range. I’m not sure it’s ever been that high but it was in the 150 range
Pups2Cute
in
SHARE Metastatic Breast Cancer
2 months ago
Biopsy
It looks like metastatic
breast
cancer
with a couple more questionable sites. Maybe I'll get a couple of meals on Tues. Otherwise it's 4 days of liquid diet! I've been trying for weight loss but ...
It looks like metastatic
breast
cancer
with a couple more questionable sites. Maybe I'll get a couple of meals on Tues. Otherwise it's 4 days of liquid diet! I've been trying for weight loss but ...
nonna70
in
Kidney Disease
6 months ago
Exemestane and Afinitor
Hi everyone I just completed 1 month of Truqap. I had to stop treatment due to a cough and a horrible rash. I had to stay in the ER for 24 hours due to the rash. I am now moving on to Exemestane and Afinitor. I would so appreciate any experience that anyone has had on these 2 meds. I’m mostly interested
Hi everyone I just completed 1 month of Truqap. I had to stop treatment due to a cough and a horrible rash. I had to stay in the ER for 24 hours due to the rash. I am now moving on to Exemestane and Afinitor. I would so appreciate any experience that anyone has had on these 2 meds. I’m mostly interested
Jhshl512
in
SHARE Metastatic Breast Cancer
2 months ago
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