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Brain tumours (low-grade/mixed)
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New Challenge!
Hi, I haven’t been on here for a while as was diagnosed with stage 2 breast cancer following a mammogram in late September. I underwent surgery for a mastectomy with a reconstruction on 15 th December and now starting my recovery! So going to be tricky managing my PMR symptoms as well as deal with this
Hi, I haven’t been on here for a while as was diagnosed with stage 2 breast cancer following a mammogram in late September. I underwent surgery for a mastectomy with a reconstruction on 15 th December and now starting my recovery! So going to be tricky managing my PMR symptoms as well as deal with this
GwenTheHen16
in
PMRGCAuk
6 months ago
4 emergency hospital trips since February
I've had asthma since I was 6. Was seen at Great Ormond Street and also the Royal Brompton when I nearly died when I was 18. Recently, it really flared up after a nasty respiratory virus that started about the 15th December. Had a steriods and antibiotics. Things didn't improve. January I had a call
I've had asthma since I was 6. Was seen at Great Ormond Street and also the Royal Brompton when I nearly died when I was 18. Recently, it really flared up after a nasty respiratory virus that started about the 15th December. Had a steriods and antibiotics. Things didn't improve. January I had a call
EJS87
in
Asthma Community Forum
3 months ago
Anyone Know About Silent Reflux
Following on from my experience of asthma flare up I'm wondering if like Cade in his post about breathing problems whilst exercising, if I could have silent reflux. It was shortness of breath that led me to seek medical treatment, and even though I had no wheezing or cough the hospital concluded it was
Following on from my experience of asthma flare up I'm wondering if like Cade in his post about breathing problems whilst exercising, if I could have silent reflux. It was shortness of breath that led me to seek medical treatment, and even though I had no wheezing or cough the hospital concluded it was
Sparklingsunshine
in
Thyroid UK
3 months ago
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Scans
Had my first Cat and bone scan since starting Enhertu.All was good.Blood work greatly improved.Tumor markers better Stable with slight improvement overall in bones and liver.Very pleased with Enhertu as I am having no side effects whatsoever 👍
Had my first Cat and bone scan since starting Enhertu.All was good.Blood work greatly improved.Tumor markers better Stable with slight improvement overall in bones and liver.Very pleased with Enhertu as I am having no side effects whatsoever 👍
Figletf
in
SHARE Metastatic Breast Cancer
6 months ago
New Med: Abraxane!!!!
Yep, another change. Enhertu was tolerable but did not see any improvement as expected. Now on round one (3 infusions) of Abraxane. So far ok. A great deal of tummy issues diarrhea etc and definitely hair loss!!! I cut my hair today ; tired of seeing it all over the house. lol I feel ok better than expected
Yep, another change. Enhertu was tolerable but did not see any improvement as expected. Now on round one (3 infusions) of Abraxane. So far ok. A great deal of tummy issues diarrhea etc and definitely hair loss!!! I cut my hair today ; tired of seeing it all over the house. lol I feel ok better than expected
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
6 months ago
New to T3, advice please
Hello there, help please! Results listed below....I have always been symptomatic with Hashimoto's, diagnosed 2019. Was on just levo for years but after DIO2 testing and conversion rate of t4 to t3 being low I was started on a trial of T3 in march 2023. I always have blood testing between 8am and 9am.
Hello there, help please! Results listed below....I have always been symptomatic with Hashimoto's, diagnosed 2019. Was on just levo for years but after DIO2 testing and conversion rate of t4 to t3 being low I was started on a trial of T3 in march 2023. I always have blood testing between 8am and 9am.
Sammy333
in
Thyroid UK
7 months ago
SMALL-CELL NEUROENDOCRINE CARCINOMA
Following prostate cancer first treated with low dose brachytherapy, then ten years later with high dose brachytherapy, from a biopsy following a Turp, I was diagnosed with SMALL-CELL NEUROENDOCRINE CARCINOMA. From a CT scan this was found in my prostate, bladder, and lower colon. I am told that it
Following prostate cancer first treated with low dose brachytherapy, then ten years later with high dose brachytherapy, from a biopsy following a Turp, I was diagnosed with SMALL-CELL NEUROENDOCRINE CARCINOMA. From a CT scan this was found in my prostate, bladder, and lower colon. I am told that it
gegan01
in
Prostate Cancer Network
6 months ago
Reconstruction after Mastectomy
Happy Holidays!!! I was wondering if there's anyone who's had a mastectomy with reconstruction and regretted it. I'm 43 MBC and there's a mass in tge same breast they've been watching but I think it's time to have the mastectomy as a preventative measure. Anyone willing to share their experiences?
Happy Holidays!!! I was wondering if there's anyone who's had a mastectomy with reconstruction and regretted it. I'm 43 MBC and there's a mass in tge same breast they've been watching but I think it's time to have the mastectomy as a preventative measure. Anyone willing to share their experiences?
KimberlyB40
in
SHARE Metastatic Breast Cancer
6 months ago
Foslevodopa-Foscarbidopa (Vyalev)
Sign of a new delivery system for levodopa coming down the pike? or potential to replace DBS? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
Sign of a new delivery system for levodopa coming down the pike? or potential to replace DBS? https://www.canjhealthtechnol.ca/index.php/cjht/article/download/SR0768/1444?inline=1
bcjlynne
in
Cure Parkinson's
9 months ago
anyone tried low dose naltrexone for fertility?
Hi there, I'm just come across Low Dose Naltrexone and the LDN Research Trust and it seems to work miracles on both fertility and autoimmune conditions (I have hashimoto's - auto immune underactive thyroid) and have been trying to conceive naturally for almost three years. I wondered if it's something
Hi there, I'm just come across Low Dose Naltrexone and the LDN Research Trust and it seems to work miracles on both fertility and autoimmune conditions (I have hashimoto's - auto immune underactive thyroid) and have been trying to conceive naturally for almost three years. I wondered if it's something
Becsf
in
Fertility Network UK
8 months ago
Merry Christmas Despite Progression
Hello all! Today I’m supposed to be with my family in my hometown but found out Monday I have progression in my spine, ribs, pelvis and liver so spent this week in the hospital getting bone cement injection to repair a compound fracture in my spine and begin radiation. Thankfully I was released yesterday
Hello all! Today I’m supposed to be with my family in my hometown but found out Monday I have progression in my spine, ribs, pelvis and liver so spent this week in the hospital getting bone cement injection to repair a compound fracture in my spine and begin radiation. Thankfully I was released yesterday
Saltandlight
in
SHARE Metastatic Breast Cancer
6 months ago
DBS switch on news.
So gang. I was really off when I turned up, not having had meds for 4/5 hours? Whole body dystonia, plain awful. The switch on was good in terms of removing this dystonia but I think I was expecting a brand new body! Ali noticed a big difference when they dialled everything in. . So, my bradykinesia
So gang. I was really off when I turned up, not having had meds for 4/5 hours? Whole body dystonia, plain awful. The switch on was good in terms of removing this dystonia but I think I was expecting a brand new body! Ali noticed a big difference when they dialled everything in. . So, my bradykinesia
jeeves19
in
Cure Parkinson's
9 months ago
Any thoughts please
Hello. After a 5 day stint in hospital for hypercalcemia and kidney stones and a whole host of xrays and scans which have shown nodules on my thyroid, I've now been referred to an endocrine surgeon. Any thoughts on why they've made that referral. I'm new to this and totally confused because of lack
Hello. After a 5 day stint in hospital for hypercalcemia and kidney stones and a whole host of xrays and scans which have shown nodules on my thyroid, I've now been referred to an endocrine surgeon. Any thoughts on why they've made that referral. I'm new to this and totally confused because of lack
ScubaBlue
in
Thyroid UK
6 months ago
90% of skin cancer is preventable!
1 in 4 men and 1 in 5 women will be diagnosed with skin cancer in the UK. With up to 90% of cases being preventable it seems ludicrous that the estimated annual burden on the NHS is £500 million!!!!! It’s not rocket science! It’s a no-brainer - Education is key to combatting the disease and SAVING
1 in 4 men and 1 in 5 women will be diagnosed with skin cancer in the UK. With up to 90% of cases being preventable it seems ludicrous that the estimated annual burden on the NHS is £500 million!!!!! It’s not rocket science! It’s a no-brainer - Education is key to combatting the disease and SAVING
SkcinHQ
Partner
in
Skin Cancer UK
9 months ago
Sources and experiences of LDN
Hi again, Just one more sourcing question - does anyone have any recommendations of UK sources of low dose naltrexone? I would also love to hear of anyone's experiences of taking LDN. I have hashimoto's underactive thyroid and am also trying to conceive and have read that it could be v beneficial
Hi again, Just one more sourcing question - does anyone have any recommendations of UK sources of low dose naltrexone? I would also love to hear of anyone's experiences of taking LDN. I have hashimoto's underactive thyroid and am also trying to conceive and have read that it could be v beneficial
Becsf
in
Thyroid UK
8 months ago
SMYD3 enzyme involved in metastases
From msn Fullscreen button SMYD3 loss impedes PCa progression.(A) Expression of SMYD3 mRNA from TCGA [GTEX normal (n = 105), TCGA tumor adjacent normal (n = 49), primary tumors (n = 495)], Gulzar et al. [normal (n = 35), primary tumor (n = 43)] (30), and Ross-Adams et al. [normal (n = 73), primary
From msn Fullscreen button SMYD3 loss impedes PCa progression.(A) Expression of SMYD3 mRNA from TCGA [GTEX normal (n = 105), TCGA tumor adjacent normal (n = 49), primary tumors (n = 495)], Gulzar et al. [normal (n = 35), primary tumor (n = 43)] (30), and Ross-Adams et al. [normal (n = 73), primary
Derf4223
in
Advanced Prostate Cancer
6 months ago
New Normal
Good morning beautiful ladies 😀 This week I started my Taxol and Herceptin cocktail. Being my cancer mutated from HER2 low to HER2 positive with progression to liver this seems like the most head on approach. This is certainly a drastic change from what I was experiencing on Ibrance and Letrozole
Good morning beautiful ladies 😀 This week I started my Taxol and Herceptin cocktail. Being my cancer mutated from HER2 low to HER2 positive with progression to liver this seems like the most head on approach. This is certainly a drastic change from what I was experiencing on Ibrance and Letrozole
Kcap430
in
SHARE Metastatic Breast Cancer
6 months ago
can stress anxiety cause a flare up?
mum diagnosed GCA 4 years ago totally blind due to doctor negligence and in the meantime we’ve dealt with her having lung cancer (2 years ago) the lung cancer has reared its ugly head got results from CT scan last week a week before the results she was complaining of headache so I contacted her rheumatologist
mum diagnosed GCA 4 years ago totally blind due to doctor negligence and in the meantime we’ve dealt with her having lung cancer (2 years ago) the lung cancer has reared its ugly head got results from CT scan last week a week before the results she was complaining of headache so I contacted her rheumatologist
Daughters2
in
PMRGCAuk
6 months ago
Lymphocytic infiltration
As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were
As some of you may know that for the last year I have been suffering raised lessions and skin rashes etc , which started after my 6th covid jab . At first they put it down as reaction to the jab and as recently as last mont I got a letter from MDT stating it was there opinion that my skin issues were
cartwheels
in
CLL Support
6 months ago
Almost there
Festive greetings to all and thank you for making time to reply. Bit of an early start this end, just back from dropping my daughter to the bakery!! Anyway, almost there with the final surge of activity trying to co-ordinate between the GP and Consultant. Just to share the correct information so that
Festive greetings to all and thank you for making time to reply. Bit of an early start this end, just back from dropping my daughter to the bakery!! Anyway, almost there with the final surge of activity trying to co-ordinate between the GP and Consultant. Just to share the correct information so that
Pumukkale
in
PMRGCAuk
6 months ago
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