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Brain tumours (low-grade/mixed)
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Genetic Testing?
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
janebob99
in
Prostate Cancer Network
6 months ago
New therapies for RLS!! New research finally!
I have had RLS for 30 years, but when prescribed pramaprexole, of course, it made the monster worse. I did some research and there are two new therapies coming out. One is a new drug discovered by professor Dr. Stefan Clemens at Brody school of medicine...he discovered why augmentation happens...
I have had RLS for 30 years, but when prescribed pramaprexole, of course, it made the monster worse. I did some research and there are two new therapies coming out. One is a new drug discovered by professor Dr. Stefan Clemens at Brody school of medicine...he discovered why augmentation happens...
beartoothgirl406
in
Restless Legs Syndrome
7 months ago
Shingles jab
I may be the last person to know this, but.......having been told to avoid the shingles jab as it contained a live virus, I've just been told that the NHS no longer use live virus vaccines, so it's safe for MPN patients. I have now had my first shotđź‘Ť
I may be the last person to know this, but.......having been told to avoid the shingles jab as it contained a live virus, I've just been told that the NHS no longer use live virus vaccines, so it's safe for MPN patients. I have now had my first shotđź‘Ť
Ovingite
in
MPN Voice
9 months ago
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lung nodule / proposed surgery / scared and confused
Hello, thank you for this site. My best to all on this site for health and happiness. I’m not even sure where I may be at on this journey but am certainly scared and confused . In March of 2022 I had a kidney stone and a lung nodule was detected on right lower lobe and suggested follow up in 3 -6 months
Hello, thank you for this site. My best to all on this site for health and happiness. I’m not even sure where I may be at on this journey but am certainly scared and confused . In March of 2022 I had a kidney stone and a lung nodule was detected on right lower lobe and suggested follow up in 3 -6 months
ghostyinmass
in
Lung Cancer Support
6 months ago
Update finally on treatment
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
monkeygirl62
in
SHARE Metastatic Breast Cancer
6 months ago
getting better but anxiety over future
Hi, I was diagnosed with asthma last September after being in hospital for ten days with a bad exacerbation. All out of the blue. I was on oxygen for most of it and coughing up thick green stuff after a chest infection. Could hardly breathe and almost in ICU. After recovering from that I picked up more
Hi, I was diagnosed with asthma last September after being in hospital for ten days with a bad exacerbation. All out of the blue. I was on oxygen for most of it and coughing up thick green stuff after a chest infection. Could hardly breathe and almost in ICU. After recovering from that I picked up more
Particle32
in
Asthma Community Forum
2 months ago
Update following meeting with MO
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
Benkaymel
in
Advanced Prostate Cancer
6 months ago
How bad are these PSMA Pet Scan Results?
My second post. Just got my PSMA results back. 48 years old. PSA is 100. 12 Biopsies all show cancer. Mostly 4+3's two of them 4+4's.What do you think ? My appointment with MO is not till Wednesday. What do think he will offer as treatment method ? I'm just worried and concerned.
My second post. Just got my PSMA results back. 48 years old. PSA is 100. 12 Biopsies all show cancer. Mostly 4+3's two of them 4+4's.What do you think ? My appointment with MO is not till Wednesday. What do think he will offer as treatment method ? I'm just worried and concerned.
hiker75
in
Advanced Prostate Cancer
6 months ago
HCCsurgery
I am interested in the pros and cons of liver surgery for a small single primary HCC versus chemotherapy.
I am interested in the pros and cons of liver surgery for a small single primary HCC versus chemotherapy.
LittleMeadow
in
British Liver Trust
6 months ago
possible recurrence…
Hi ladies, I am stage 4 and have had 2 lines of carbo/taxol/avastin I am having an MRI scan today and have had a CT scan, my symptoms are a little bit of bloating and pain in my tummy and other areas since September last year when my ca-125 started increasing from 66, going up and up and now at 650
Hi ladies, I am stage 4 and have had 2 lines of carbo/taxol/avastin I am having an MRI scan today and have had a CT scan, my symptoms are a little bit of bloating and pain in my tummy and other areas since September last year when my ca-125 started increasing from 66, going up and up and now at 650
sarah040866
in
My Ovacome
6 months ago
A Bladder Cancer Update.
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
Ern007
in
Lung Conditions Community Forum
6 months ago
Failed on Piqray... off to xeloda I go....
hi friends... so looks like my time piqray is coming to an end... latest pet scan showed a few more spots on liver! I only got 4 months out of it which I guess anytime is better than nothing' o to xeloda I go..... has anyone been on this med and can anyone give me some advice or any side effects they
hi friends... so looks like my time piqray is coming to an end... latest pet scan showed a few more spots on liver! I only got 4 months out of it which I guess anytime is better than nothing' o to xeloda I go..... has anyone been on this med and can anyone give me some advice or any side effects they
DianaSav
in
SHARE Metastatic Breast Cancer
6 months ago
Mother diagnosed with HG Ovarian cancer. Current Chemo not fully responding (reocurrence). Need suggestions/Guidance - Alternate treatments
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
My Mother was diagnosed with Ovarian Cancer (high grade Serous Carcinoma) in January 2022. Started Chemo in Feb, 2022(medicine used- Inj Paclitaxel (80 mg/ m2) (D1, D8 q 21 days) + Inj Carboplatin (AUC 5)(D1q3) and by April 2022 CA 125 was 9. Got a Full Hysterectomy surgery and received Hipec chemotherapy
akhilsalwan
in
My Ovacome
6 months ago
What is Melanoma?
Melanoma begins in melanocytes – the cells that produce the pigment melanin that colours the skin, hair and eyes. Melanocytes also form moles, where melanoma often, but not always develops. These cancerous growths develop when unrepaired DNA damage to skin cells (most commonly caused by over-exposure
Melanoma begins in melanocytes – the cells that produce the pigment melanin that colours the skin, hair and eyes. Melanocytes also form moles, where melanoma often, but not always develops. These cancerous growths develop when unrepaired DNA damage to skin cells (most commonly caused by over-exposure
SkcinHQ
Partner
in
Skin Cancer UK
9 months ago
swelling around DBS battery 5 weeks after surgery
It’s been 5 weeks since my battery placement surgery and when I woke up this morning my battery site is puffy. The incision has healed and looks fine. No redness or fever either. I’m not sure what caused this. I called my surgeon and sent pictures and they are going to see me Monday morning. But they
It’s been 5 weeks since my battery placement surgery and when I woke up this morning my battery site is puffy. The incision has healed and looks fine. No redness or fever either. I’m not sure what caused this. I called my surgeon and sent pictures and they are going to see me Monday morning. But they
Nurse7
in
Cure Parkinson's
9 months ago
Happy New Year
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
I'm well and coming up to first anniversary of total hysterectomy for grade 1b ovarian cancer. No treatment just 3 monthly follow ups with CA125. I am very emotional and feeling like a bit of a fraud for not just being very grateful that I am still here.Thanks
10Ronnies
in
My Ovacome
6 months ago
Where's the fire in delaying/pausing chemo?
3 weeks ago I started chemo with the Cabazitaxel/Carboplatin combination (I'd rather not name the hospital for now) I had a bad reaction to the first infusion (it turned out that I had an undetected infection, so my immunity was rock-bottom) As a result of that experience (10 days in hospital, wiped
3 weeks ago I started chemo with the Cabazitaxel/Carboplatin combination (I'd rather not name the hospital for now) I had a bad reaction to the first infusion (it turned out that I had an undetected infection, so my immunity was rock-bottom) As a result of that experience (10 days in hospital, wiped
CrocodileShoes
in
Fight Prostate Cancer
6 months ago
Weird tingling (not just peripheral neuropathy)
Happy New Year to fellow warriors - I hope for your continued good health as we engage in common cause against our common foe. I start the New Year with an odd query: I'm now on Day 21 of a Cabazitaxel/Carboplatin combination chemo. I was due to have infusion #2 today, but because of a bad reaction,
Happy New Year to fellow warriors - I hope for your continued good health as we engage in common cause against our common foe. I start the New Year with an odd query: I'm now on Day 21 of a Cabazitaxel/Carboplatin combination chemo. I was due to have infusion #2 today, but because of a bad reaction,
CrocodileShoes
in
Fight Prostate Cancer
6 months ago
Invasive Breast Cancer her 2 P+ E+1 lymph node Metastatic spread after chemo & Mastectomy
Hi Guys, I’m struggling here. . I was diagnosed with Invasive Breast Cancer her 2 , P+ E+ positive. I had docetaxel carboplatin and ohesgo and straight in for a single mastectomy and a couple of lymph nodes out. 1 came back with a 4mm Metastatic spread after chemo and 3 weeks ago I had a full
Hi Guys, I’m struggling here. . I was diagnosed with Invasive Breast Cancer her 2 , P+ E+ positive. I had docetaxel carboplatin and ohesgo and straight in for a single mastectomy and a couple of lymph nodes out. 1 came back with a 4mm Metastatic spread after chemo and 3 weeks ago I had a full
GillyGangGong
in
SHARE Metastatic Breast Cancer
6 months ago
Progress at last
Haven’t posted for a long time. Some of you may know that after reaching my goal of a 10k continuous run I contracted COVID in September 2022. Diagnosed with Long Covid in December 2022, really struggled to even walk 400 yards but saw an improvement last Summer and got to Week 7 all be it very slowly
Haven’t posted for a long time. Some of you may know that after reaching my goal of a 10k continuous run I contracted COVID in September 2022. Diagnosed with Long Covid in December 2022, really struggled to even walk 400 yards but saw an improvement last Summer and got to Week 7 all be it very slowly
Phdgranny
Graduate
in
Couch to 5K
2 months ago
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