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IS ANYONE TAKING MORE THAN 8 L-DOPA TABLES WITH A DBS ? yours EXPORT .
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in
Cure Parkinson's
11 years ago
The video link to my DBS story
http://www.wusa9.com/news/local/story.aspx?storyid=243474
http://www.wusa9.com/news/local/story.aspx?storyid=243474
SuKas
in
Cure Parkinson's
11 years ago
HI has any ever had an infection which has effected there Parkinson's
I have gone down hill in less than one hour,r I think its my DBS the Pd nurse thinks it could be an infection . your EXPORT .
I have gone down hill in less than one hour,r I think its my DBS the Pd nurse thinks it could be an infection . your EXPORT .
export
in
Cure Parkinson's
11 years ago
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New DBS Electrodes
Fighting Disease Deep Inside the Brain Feb. 17, 2013 — Some 90,000 patients per year are treated for Parkinson's disease, a number that is expected to rise by 25 percent annually. Deep Brain Stimulation (DBS), which consists of electrically stimulating the central or peripheral nervous system, is currently
Fighting Disease Deep Inside the Brain Feb. 17, 2013 — Some 90,000 patients per year are treated for Parkinson's disease, a number that is expected to rise by 25 percent annually. Deep Brain Stimulation (DBS), which consists of electrically stimulating the central or peripheral nervous system, is currently
Hidden
in
Cure Parkinson's
12 years ago
Deep Brain Surgery for R.L.S.
Do any of the administrators or members know if Doctors are considering D.B.S yet for R.L.S? I bullied my Doctor into giving me a referral 12 mths ago but at the time it was thought that there was not enough information regarding the part of the brain to be worked on and a bit risky if it would work
Do any of the administrators or members know if Doctors are considering D.B.S yet for R.L.S? I bullied my Doctor into giving me a referral 12 mths ago but at the time it was thought that there was not enough information regarding the part of the brain to be worked on and a bit risky if it would work
Patsy11011
in
Restless Legs Syndrome
12 years ago
How many DBS recipients did not have tremors before surgery?
What are the main factors that have improved with DBS?
What are the main factors that have improved with DBS?
etterus
in
Cure Parkinson's
12 years ago
Has anyone had success with Botox treatment for chronic headaches after viral meningitis?
My daughter (age 15) had viral meningitis in September and has suffered from chronic headaches ever since. We are with pediatric headache neurologist and Botox was just approved by our insurance company. We have tried 5 different medications and none have provided relief.
My daughter (age 15) had viral meningitis in September and has suffered from chronic headaches ever since. We are with pediatric headache neurologist and Botox was just approved by our insurance company. We have tried 5 different medications and none have provided relief.
Rgymom
in
Meningitis Now
12 years ago
Low Dose Naltrexone (LDN), good, bad or useless?
I know it has been asked before but has anyone got experiences with LDN (Low dose naltrexone)? I know it's a controversial subject but I would like to try to take LDN and see if I can titrate down the amount of stalevo I need. I currently take Stalevo (3x125 + 5x100), Azilect and Amantadine (3x100mg
I know it has been asked before but has anyone got experiences with LDN (Low dose naltrexone)? I know it's a controversial subject but I would like to try to take LDN and see if I can titrate down the amount of stalevo I need. I currently take Stalevo (3x125 + 5x100), Azilect and Amantadine (3x100mg
rons
in
Cure Parkinson's
12 years ago
MY DBS surgery covered by local news:)
My appearance on local TV news has been set for Feb 14th,2013 (yup Valentine's day::) for the 5 pm(EDT) news slot and I have been told will repeat at 11pm news as also the morning news, the next day. The channel calll letters for local broadcast as in the DC region is on WUSA9....Please check and see
My appearance on local TV news has been set for Feb 14th,2013 (yup Valentine's day::) for the 5 pm(EDT) news slot and I have been told will repeat at 11pm news as also the morning news, the next day. The channel calll letters for local broadcast as in the DC region is on WUSA9....Please check and see
SuKas
in
Cure Parkinson's
12 years ago
Am considering DBS using the ClearPoint system. Anyone had the procedure, where abouts, cost and any advice?. Thanks CharlieMadge
CharlieMadge
in
Cure Parkinson's
12 years ago
see below
I have had Parkinson's for 14 years and take SInamet 7-8 times a day, Mirapex, and amantadine,I have never had a tremor or balance issue. My main symptoms are stiffness of neck , shoulders, fatigue, illegible handwriting and clumsiness, and panic attacks. I wonder if DBS would help these symptoms
I have had Parkinson's for 14 years and take SInamet 7-8 times a day, Mirapex, and amantadine,I have never had a tremor or balance issue. My main symptoms are stiffness of neck , shoulders, fatigue, illegible handwriting and clumsiness, and panic attacks. I wonder if DBS would help these symptoms
Karen3
in
Cure Parkinson's
12 years ago
Car accident after DBS surgery
I had a very successful DBS surgery in June. Most if my dysekinesia disappeared. The rigidity subsided and I was moving much better. My face no longer had that Parkie look. I still had my meds but not as much. Then came Jan 16, 2013. My wife was driving a 2997 Geo Metro and hit an SUV that pulled out
I had a very successful DBS surgery in June. Most if my dysekinesia disappeared. The rigidity subsided and I was moving much better. My face no longer had that Parkie look. I still had my meds but not as much. Then came Jan 16, 2013. My wife was driving a 2997 Geo Metro and hit an SUV that pulled out
jonroberts
in
Cure Parkinson's
12 years ago
I'm considering Deep Brain Stimulation. Anyone out there have this procedure? Good results or not?
shaky
in
Cure Parkinson's
12 years ago
Has anyone had their DBS performed at Oregon Health Science University in Portland with Dr Kim Burchiel?
etterus
in
Cure Parkinson's
12 years ago
Just one of those days
I feel like every time I take one step forward, it's really two steps backwards. I'm so confused with my thoughts and emotions. I'm physically and emotionally exhausted. Is it my Parkinson's, my meds, lack of sufficient sleep, hormones (i am only 39). I need answers but feel the medical community
I feel like every time I take one step forward, it's really two steps backwards. I'm so confused with my thoughts and emotions. I'm physically and emotionally exhausted. Is it my Parkinson's, my meds, lack of sufficient sleep, hormones (i am only 39). I need answers but feel the medical community
Jbcourcy
in
Cure Parkinson's
12 years ago
Has anyone had a Lymes disease problem along with the Parkinson?
I was told by my doctors that I had severe Lymes disease for several years .Causing nerve damage, enter Parkinson stage right.........I had IV Antibotics for almost two yrs and the Lymes is gone, but what a world of PD to exsist with. Yes I have been missing here for awhile , 1st I had problems signing
I was told by my doctors that I had severe Lymes disease for several years .Causing nerve damage, enter Parkinson stage right.........I had IV Antibotics for almost two yrs and the Lymes is gone, but what a world of PD to exsist with. Yes I have been missing here for awhile , 1st I had problems signing
Kadie57
in
Cure Parkinson's
12 years ago
Good news!
I had a brain tumour removed on March 31st 2010, I recovered quite quickly and felt ready for work by November 2011. It took me a year but I finally started work last November. I still have a few problems with my memory and my cognitive ability has decreased considerably but I am happy to be alive and
I had a brain tumour removed on March 31st 2010, I recovered quite quickly and felt ready for work by November 2011. It took me a year but I finally started work last November. I still have a few problems with my memory and my cognitive ability has decreased considerably but I am happy to be alive and
Mikesghost
in
Headway
12 years ago
Can anyone tell me if Naproxen makes you feel drowsy? Have just started taking it and am at work and could fall asleep at my desk!!
Have read the patient information leaftlet but gave up after reading that I will probably die of a heart attack, stroke, yellowfever, rabies etc etc etc lol.
Have read the patient information leaftlet but gave up after reading that I will probably die of a heart attack, stroke, yellowfever, rabies etc etc etc lol.
sandie2255
in
NRAS
12 years ago
Claim: Tetanus Vaccine Causes a New Disease Known as Antiphospholipid Syndrome
I came across this article today. http://healthimpactnews.com/2013/tetanus-vaccine-causes-a-new-disease-known-as-antiphospholipid-syndrome/ First I've heard of such a claim. Make of it what you will. The first thing that springs to my mind is why are sufferers predominantly women , isn't the incidence
I came across this article today. http://healthimpactnews.com/2013/tetanus-vaccine-causes-a-new-disease-known-as-antiphospholipid-syndrome/ First I've heard of such a claim. Make of it what you will. The first thing that springs to my mind is why are sufferers predominantly women , isn't the incidence
tim47
in
Hughes Syndrome APS Forum
12 years ago
Clear Point Surgery
My Dr's at a major hospital where I was approved for DBS surgery last fall called to see when I wanted to schedule the surgery. After explaining the research we've done on why I want the Clearpoint Surgery ~ it takes half the time of DBS, half the cost of DBS, less invasive, and you are asleep for
My Dr's at a major hospital where I was approved for DBS surgery last fall called to see when I wanted to schedule the surgery. After explaining the research we've done on why I want the Clearpoint Surgery ~ it takes half the time of DBS, half the cost of DBS, less invasive, and you are asleep for
wynn7
in
Cure Parkinson's
12 years ago
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