How many DBS recipients did not have tremors before surgery?

[etterus]

What are the main factors that have improved with DBS?

[froggatt55]

I have NOT had surgery but I was told that the one thing guaranteed to be fixed by DBS was the Tremor - I even watched U-Tube and there was a banjo player in Tennessee who had a Tremor (not Parkinson's) geting DBS with his banjo on his lap during surgery and when the electrodes were turned to a certain level, he burst into a bluegrass lick - fantastic example of DBS curing Tremor

[Kadie57]

I had DBS surgery April 2012, it was a long process then the day came for surgery---it wasn't easy but in the long run I got my life back. THE SHAKING stopped on the operating table, I felt the effect when the 1st feed was in place, the right arm relaxed and felt normal which it hadn't for 9 yrs.(Yes I was awake for surgery) The 2nd feed did not go as well, but I m not shaking. Yes I have medicine still but reduced. THE DBS did as it was designed to do-----stop my shaking, It is not a cure all and yes it takes up to 18 months I was told to get the program as needed for some people. Mine is doing great now I just had problems with medicine-- generic.I would never want to go back to the way I was!! EVER!! Hope this helps. Kadie

[export]

hi i am very interested in why you ask . i had a DBS since 2008

I was going to ask if any one had a DBS without tremars, who can switch them self off. what happens ?

yours EXPORT.

[etterus]

export.... I do not have tremors unless I am extremely stressed. An example is performing an emergency maneuver while driving or getting very angry. The tremors will go away in 15-20 minutes. I do have dystonia and bradykinesia as welll as dyskinesia as my dopamine wears off. I am not rigid nor do I freeze... yet.

I wonder what dbs will do for me. Hence I asked to see if others like me had success with dbs.

[export]

efferus you sound just like myself . My DBS which I had in 2008 got rid of all my abnormal movements that was 4 years ago . NOW THERE BACK .AS I CAN'T GET TO SEE ANYONE WHO KNOWS ANY THING ABOUT DBS its hard to say if it the DBS or me.

IF your like me all over. THEN I WOULD SAY GO FOR IT. You may only get 3 or 4 years .

WHAT WOULD YOU GIVE FOR 3 MOUTHS OF YOUR LIFE BACK.

yours EXPORT .

[etterus]

Are you saying that you did not have tremors before DBS?

[export]

THAT RITE NOR DO I HAVE THEM NOW. Why I wanted to know is I don't have them . I have gone down hill in less than one hour . I think its the DBS THE PD nurse thing it could be a infection.She said if she shows it working would I be happy. when she phone me . I am going to ask her to switch it off if I don't feel it going off or when it comes back on its the DBS.

yours EXPORT.

[etterus]

So sorry to here that you're having tough times. Bets of luck

[mag2908]

Only some internal vibrations main symptoms were stiffness & slowness used to take 30 minutes to dress now 2-3 minutes. Am able to again shuffle & deal a deck of cards and many other small things i always took for granted. I experienced no pain even though semi awake. I would not hesitate.