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Cranioplasty
Hi all. in September 2019 I suffered a catastrophic ABI during surgery to coil an anuerysm resulting in craniotomy I have been waiting since then for my cranioplasty I have now got a proposed date for my cranioplasty Obviously petrified of having further surgery due to my last one not going to plan.
Hi all. in September 2019 I suffered a catastrophic ABI during surgery to coil an anuerysm resulting in craniotomy I have been waiting since then for my cranioplasty I have now got a proposed date for my cranioplasty Obviously petrified of having further surgery due to my last one not going to plan.
Charlie90
in
Headway
3 years ago
Head sensations constantly
Head pressure and brain jerks, jolts, tremors and zaps and feeling like I could have a seizure or aneurism any second. I had a CT scan a couple months ago and it came back normal. I cannot have an MRI because I have a magnetic implant in my ear. I’ve tried to explain these symptoms to my doctor and neurologist
Head pressure and brain jerks, jolts, tremors and zaps and feeling like I could have a seizure or aneurism any second. I had a CT scan a couple months ago and it came back normal. I cannot have an MRI because I have a magnetic implant in my ear. I’ve tried to explain these symptoms to my doctor and neurologist
Hidden
in
Anxiety Support
3 years ago
Update to "Feeling Terrible Lately".
Hello all, Well the reason I felt so terrible was because I ended up having Lyme disease.. I ended up seeing my family Dr. as I was starting to feel bad again. I was on antibiotics for 15 days and am doing well now. It got me behind my knee, so I didn't notice it at first. They are areal problem in our
Hello all, Well the reason I felt so terrible was because I ended up having Lyme disease.. I ended up seeing my family Dr. as I was starting to feel bad again. I was on antibiotics for 15 days and am doing well now. It got me behind my knee, so I didn't notice it at first. They are areal problem in our
fxdx1
in
CLL Support
3 years ago
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Shingrix OK For Immunocompromised Adults
This article was posted today on CLLSLL groups.io and is reposted here with permission from Dr. Furman https://groups.io/g/CLLSLL/message/31608?reply=1 [i] Re: Shingrix OK For Immunocompromised Adults [/i] [i]From: Rick Furman Date: Fri, 30 Jul 2021 08:43:32 EDT[/i] [i]-[/i] [i]Shingles is the result
This article was posted today on CLLSLL groups.io and is reposted here with permission from Dr. Furman https://groups.io/g/CLLSLL/message/31608?reply=1 [i] Re: Shingrix OK For Immunocompromised Adults [/i] [i]From: Rick Furman Date: Fri, 30 Jul 2021 08:43:32 EDT[/i] [i]-[/i] [i]Shingles is the result
lankisterguy
Volunteer
in
CLL Support
3 years ago
I think l have shingles & l have GPA & can’t get to a doctor..
Anyone know what’s needed?
Anyone know what’s needed?
Chamad
in
Vasculitis UK
3 years ago
Gigi's 2nd Birthday
Gigi celebrated her 2nd Birthday on Saturday! She is working to open one of her presents which by the way was a pink football that she loves. When we first rescued her she had lyme disease and was treated, but at her appoinment last week, she tested positive again with a higher titer. They think she
Gigi celebrated her 2nd Birthday on Saturday! She is working to open one of her presents which by the way was a pink football that she loves. When we first rescued her she had lyme disease and was treated, but at her appoinment last week, she tested positive again with a higher titer. They think she
Pumpkin2009
in
LUPUS UK
3 years ago
Take part in our Improving Brain Tumour Care Surveys today!
“As my family and I have been through this experience, we have learnt so much and now understand more. So I think it’s really important to share this knowledge with others in order to make progress. It will improve the lives of others who are either directly or indirectly affected by a brain tumour both
“As my family and I have been through this experience, we have learnt so much and now understand more. So I think it’s really important to share this knowledge with others in order to make progress. It will improve the lives of others who are either directly or indirectly affected by a brain tumour both
Jane_TBTC
Volunteer
in
Acoustic Neuroma Support
3 years ago
Shingles vaccineM
Many thanks to all who answered my queries about having the shingles vaccine. I had the jab last week with absolutely. NO side effects not even a sore arm !! I know we all different and react differently but hope that my experience helps . Many thanks for all your help and support
Many thanks to all who answered my queries about having the shingles vaccine. I had the jab last week with absolutely. NO side effects not even a sore arm !! I know we all different and react differently but hope that my experience helps . Many thanks for all your help and support
CAROL-R
in
Hughes Syndrome APS Forum
3 years ago
Cranioplasty date has been set, any advice gratefully received
So my husbands cranioplasty date has come through for the beginning of August. He is 13 months post his aneurysm surgery which resulted in a massive stroke and craniotomy. He has been home 2 months and is pretty much bedbound. He struggles with sitting balance, in fact I think he would just topple
So my husbands cranioplasty date has come through for the beginning of August. He is 13 months post his aneurysm surgery which resulted in a massive stroke and craniotomy. He has been home 2 months and is pretty much bedbound. He struggles with sitting balance, in fact I think he would just topple
pozza40
in
Headway
3 years ago
Botox success for dystonia; how long did it last ?… and other ?’s
It’s been a long time since I approached this site. I just got overwhelmed with the summation of the pandemic, the environment, the degradation of our political leadership and my own 20+ years of declining success with living the life of PIGD pd. However I’m faced with an acceleration of the decline
It’s been a long time since I approached this site. I just got overwhelmed with the summation of the pandemic, the environment, the degradation of our political leadership and my own 20+ years of declining success with living the life of PIGD pd. However I’m faced with an acceleration of the decline
etterus
in
Cure Parkinson's
3 years ago
FUS PTT Surgery. 6 months update
After 6 months things look bit more stable. I still have some issues, and sometimes it is still hard to accept that i still have Parkinson’s. 6 months gone, and gone all my dyskinesia. Still have some tremor, 90% solved on my treated side, about 80% on my untreated side, slowness it is still one of the
After 6 months things look bit more stable. I still have some issues, and sometimes it is still hard to accept that i still have Parkinson’s. 6 months gone, and gone all my dyskinesia. Still have some tremor, 90% solved on my treated side, about 80% on my untreated side, slowness it is still one of the
Markbit
in
Cure Parkinson's
3 years ago
Shingles Vaccine
I have just been offered the Shingles Vaccine and have concerns about having it as it's alive vaccine as I understand people with APS should avoid live vaccines. Has anyone had this vaccine and was there any side effects .
I have just been offered the Shingles Vaccine and have concerns about having it as it's alive vaccine as I understand people with APS should avoid live vaccines. Has anyone had this vaccine and was there any side effects .
CAROL-R
in
Hughes Syndrome APS Forum
3 years ago
Using 7 tesla MRI power for DBS “The first time I ... showed the neurosurgeon the images, it was like turning on a light in a dark room."
They are still making dramatic improvements in DBS. "The problem with this promising therapy ... is that not every patient receives a video-worthy benefit. “There’s a big distribution of the quality of outcomes that patients actually get from DBS—in some cases, it can even cause more side effects than
They are still making dramatic improvements in DBS. "The problem with this promising therapy ... is that not every patient receives a video-worthy benefit. “There’s a big distribution of the quality of outcomes that patients actually get from DBS—in some cases, it can even cause more side effects than
MBAnderson
in
Cure Parkinson's
3 years ago
Just a reminder / why are nurses appreciated? Vent
The anxious one requiring high amounts of oxygen to prevent them from
brain
damage and
death
!
The anxious one requiring high amounts of oxygen to prevent them from
brain
damage and
death
!
Hidden
in
Anxiety Support
3 years ago
Do you continue taking B1 Thiamin HCL, High Dose Therapy (HDT)?
I’m wondering if HDT benefits after having had DBS surgery. What are you thoughts?
I’m wondering if HDT benefits after having had DBS surgery. What are you thoughts?
Kingdomcome
in
Cure Parkinson's
3 years ago
WHERE WILL I FIND DBS POSTINGS
I am assuming there are a lot of postings
I am assuming there are a lot of postings
powerfemale
in
Cure Parkinson's
3 years ago
I have both Vm and bm and I’m so confused
I’m in hospital currently with viral meningitis I came in Monday morning (4days ago) with a severe headache that sold had for two days and knew want right, day two after a lumber puncture I was told I had viral meningitis. Today I was told I also was showing in my results signs of bacterial meningitis
I’m in hospital currently with viral meningitis I came in Monday morning (4days ago) with a severe headache that sold had for two days and knew want right, day two after a lumber puncture I was told I had viral meningitis. Today I was told I also was showing in my results signs of bacterial meningitis
Mrsmoran2be
in
Meningitis Now
3 years ago
meningitis vaccine ca125
Good Afternoon Ladies - I just wanted to check in if anyone has had the meningitis vaccine and then had an increase in their CA125.
Good Afternoon Ladies - I just wanted to check in if anyone has had the meningitis vaccine and then had an increase in their CA125.
Lind58
in
My Ovacome
3 years ago
Abdomen, Severe distension and bloatingAbdomen
Abdomen, Severe distension and bloating I am not constipated, but abdomen is as tight as a drum with pain (6-7), Seems nothing helps, Have tried Bisacodyl, Miralax laxatives with no effect. Also have violent shake of L-Hand. Global neuropathy, Neuro has suggested DBS for shaking. GI doctor has
Abdomen, Severe distension and bloating I am not constipated, but abdomen is as tight as a drum with pain (6-7), Seems nothing helps, Have tried Bisacodyl, Miralax laxatives with no effect. Also have violent shake of L-Hand. Global neuropathy, Neuro has suggested DBS for shaking. GI doctor has
gl2238
in
Cure Parkinson's
3 years ago
Am I losing my mind?
Hello, I had DBS surgery about 6 weeks ago. And I have so much anxiety and panic attacks throughout the day it’s unbearable. Is this psychosis? If so, how is it manageable?? My thyroid panel doesn’t show a hyperthyroid so I’m good there but I can’t seem to be able to control my anxiety. Everything sets
Hello, I had DBS surgery about 6 weeks ago. And I have so much anxiety and panic attacks throughout the day it’s unbearable. Is this psychosis? If so, how is it manageable?? My thyroid panel doesn’t show a hyperthyroid so I’m good there but I can’t seem to be able to control my anxiety. Everything sets
fossygma
in
Cure Parkinson's
3 years ago
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