Search
Search
About
Log in
Join
Experiences with
Brain arteriovenous malformation (AVM)
Posts
Communities
1,944 public posts
Filter results
AAV-GAD Gene Therapy
Did anyone hear of AAV-GAD gene therapy? I have a chance to get into a phase 1/2 trial, but information is somewhat limited. The original developing company went bankrupt, and a new company bought the rights to the therapy. The trails are being held at reputable sites like Yale, Columbia , and Cornell
Did anyone hear of AAV-GAD gene therapy? I have a chance to get into a phase 1/2 trial, but information is somewhat limited. The original developing company went bankrupt, and a new company bought the rights to the therapy. The trails are being held at reputable sites like Yale, Columbia , and Cornell
JohnP65
in
Cure Parkinson's
9 months ago
Understanding listening time at certain Db?
Hi guys, So, I'm trying to understand how things work with noise levels and HOW LONG I can listen for. I do gigs for 1 hour at a time approximately 8 times per week. These are nearly all solo gigs in care homes. For many years I did this with amplified acoustic instruments and what I thought to
Hi guys, So, I'm trying to understand how things work with noise levels and HOW LONG I can listen for. I do gigs for 1 hour at a time approximately 8 times per week. These are nearly all solo gigs in care homes. For many years I did this with amplified acoustic instruments and what I thought to
Fulltimemuso
in
Tinnitus UK
9 months ago
Shingles Vaccine Update
Well I never!! I woke to a text message from our GP's surgery to say that I am eligible for a shingles vaccination with a link to book in with a nurse. My GP's obviously looked up the guidelines & though better of her decision! I'm just hoping that after the fight to get it I don't have any adverse
Well I never!! I woke to a text message from our GP's surgery to say that I am eligible for a shingles vaccination with a link to book in with a nurse. My GP's obviously looked up the guidelines & though better of her decision! I'm just hoping that after the fight to get it I don't have any adverse
Otto11
in
NRAS
9 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Dog bite not on my Xmas list
So… today, while walking my Old English Sheepdog, three dogs escaped from their leashes and one of them bit my leg. They also tried to bite my dog but because most of her is fur they didn’t reach flesh. I, however, went home and did a cursory clean with hydrogen peroxide and went to urgent care. They
So… today, while walking my Old English Sheepdog, three dogs escaped from their leashes and one of them bit my leg. They also tried to bite my dog but because most of her is fur they didn’t reach flesh. I, however, went home and did a cursory clean with hydrogen peroxide and went to urgent care. They
CoCoLuna11
in
CLL Support
9 months ago
Shingles Vaccine
Hi just a quick question regarding the Shingles Vaccine. I spoke to a GP on the phone today & asked about having the Shingles Vaccine. She told me that she dosnt think im eligible. I told her I think I am. She said you don’t qualify just because your are on Methotrexate I told her I'm not on Methotrexate
Hi just a quick question regarding the Shingles Vaccine. I spoke to a GP on the phone today & asked about having the Shingles Vaccine. She told me that she dosnt think im eligible. I told her I think I am. She said you don’t qualify just because your are on Methotrexate I told her I'm not on Methotrexate
Otto11
in
NRAS
9 months ago
Shingles injection
Hi iam on peggasy and have p v having shingles jab soon any problems with this thank you
Hi iam on peggasy and have p v having shingles jab soon any problems with this thank you
baggies
in
MPN Voice
10 months ago
Fever for 5 weeks (viral meningitis)
Hello everyone, last week I was finally diagnosed with viral meningitis. I had been experiencing fever, headaches, and various other typical meningitis symptoms for four weeks already. I suspected it was meningitis, but the doctors didn't recognize my symptoms because they weren't severe enough and the
Hello everyone, last week I was finally diagnosed with viral meningitis. I had been experiencing fever, headaches, and various other typical meningitis symptoms for four weeks already. I suspected it was meningitis, but the doctors didn't recognize my symptoms because they weren't severe enough and the
Roosvanderv
in
Meningitis Now
10 months ago
Has anyone tried “compassionate use” or “right to try” laws?
I’m getting pretty desperate here as hubby can no longer tolerate any dopamine therapy. He’s only 61, can barely speak or walk, and I have to help him with almost everything. There’s actually not much out there on the horizon, but considering trying it with Buntanetap or neflamapimod (for Lewy Body
I’m getting pretty desperate here as hubby can no longer tolerate any dopamine therapy. He’s only 61, can barely speak or walk, and I have to help him with almost everything. There’s actually not much out there on the horizon, but considering trying it with Buntanetap or neflamapimod (for Lewy Body
LeharLover62
in
Cure Parkinson's
10 months ago
Treatment for severe OCD
I've undergone surgery for my bad OCD. It helped quite well. I know the FDA has accepted the newer operation type, Deep Brain Stimulation, to offer us, OCD sufferers. I don't exactly know what it is said about DBS in FDA's guidelines, but they consider this surgery as an exception if no other method
I've undergone surgery for my bad OCD. It helped quite well. I know the FDA has accepted the newer operation type, Deep Brain Stimulation, to offer us, OCD sufferers. I don't exactly know what it is said about DBS in FDA's guidelines, but they consider this surgery as an exception if no other method
languageteacher
in
My OCD Community
10 months ago
Post meningitis
Hi everyone..my now 9 years old daughter had a meningitis when she was 4 n half. She struggles at school, she became a stutter and almost not willing to talk most of the time. It's killing me to see her suffer in her childhood. She doesn't want to play with other kids because of the way she speaks,
Hi everyone..my now 9 years old daughter had a meningitis when she was 4 n half. She struggles at school, she became a stutter and almost not willing to talk most of the time. It's killing me to see her suffer in her childhood. She doesn't want to play with other kids because of the way she speaks,
Lovehope2
in
Meningitis Now
10 months ago
DBS stopped working
I’m looking to see if anyone has experienced similar DBS results, I had my DBS(GPI) surgery on 7/31 and immediately had positive results before the switch on. It felt like I was cured but I knew that this was the honeymoon phase. After a week or so my symptoms returned until I had my first programming
I’m looking to see if anyone has experienced similar DBS results, I had my DBS(GPI) surgery on 7/31 and immediately had positive results before the switch on. It felt like I was cured but I knew that this was the honeymoon phase. After a week or so my symptoms returned until I had my first programming
robclem
in
Cure Parkinson's
10 months ago
DBS on the leg trial
https://parkinsonsnewstoday.com/news/noninvasive-way-deep-brain-stimulation-parkinsons-trial/
https://parkinsonsnewstoday.com/news/noninvasive-way-deep-brain-stimulation-parkinsons-trial/
MARC1
in
Cure Parkinson's
11 months ago
Am I at risk of shingles
Hello - i'm about to go and spend a weekend with my in laws and they have just announced they have shingles. Am I at risk of this having ET?
Hello - i'm about to go and spend a weekend with my in laws and they have just announced they have shingles. Am I at risk of this having ET?
Fjdjdjdjd
in
MPN Voice
11 months ago
Viral meningitis
My 17 year old daughter was diagnosed with viral meningitis last weekend and this was confirmed on Monday. Initially she was given antiviral and antibiotics because they was unsure if it was bacterial meningitis. She had been unwell for 5 or 6 weeks. Permanent headache that painkillers didn't touch
My 17 year old daughter was diagnosed with viral meningitis last weekend and this was confirmed on Monday. Initially she was given antiviral and antibiotics because they was unsure if it was bacterial meningitis. She had been unwell for 5 or 6 weeks. Permanent headache that painkillers didn't touch
Sylv1969
in
Meningitis Now
11 months ago
GCA-Lyme Disease Connection?
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
montebello
in
PMRGCAuk
11 months ago
DBS update
So gang. 3 months following DBS. I had it done because my dystonia was getting so bad and the reliability of the meds was open to question. I might thrive on a particular dose of Madopar and then the next day would be stuck whilst on a walk after having taken the same. It was very hard to plan anything
So gang. 3 months following DBS. I had it done because my dystonia was getting so bad and the reliability of the meds was open to question. I might thrive on a particular dose of Madopar and then the next day would be stuck whilst on a walk after having taken the same. It was very hard to plan anything
jeeves19
in
Cure Parkinson's
11 months ago
Shingles - to vacc or not to vacc
Morning wonderful hive mind. Wonder if I can pick your brains... I've received my first invite for a shingles vacc and while I'm "delighted' I'm on the map with local medical network I'm daunted and unsure as to whether I book one. Came on here and had a look-see in the posts regarding shingles and
Morning wonderful hive mind. Wonder if I can pick your brains... I've received my first invite for a shingles vacc and while I'm "delighted' I'm on the map with local medical network I'm daunted and unsure as to whether I book one. Came on here and had a look-see in the posts regarding shingles and
Wolfie_at_the_door
in
LUPUS UK
11 months ago
DBS should I or should I not??
I'm sure everyone goes through this question over & over again!! Ten times, or more like 100 times in our heads when trying to make a decision and be happy with the choice made. I went for my assessment for dbs this week in Southmead Hospital,Bristol. I went through the test and just kept on thinking
I'm sure everyone goes through this question over & over again!! Ten times, or more like 100 times in our heads when trying to make a decision and be happy with the choice made. I went for my assessment for dbs this week in Southmead Hospital,Bristol. I went through the test and just kept on thinking
MARC1
in
Cure Parkinson's
11 months ago
Presentation by Dr Yusuf (JP) Saleeb on LDN, Long Covid, and Chronic Lyme Disease
Plus your chance to ask your questions. on Tuesday 7th November at 4pm ET or 9pm UK. The recording will be available the following week. Register now https://form.ldnresearchtrust.org/232812335487964
Plus your chance to ask your questions. on Tuesday 7th November at 4pm ET or 9pm UK. The recording will be available the following week. Register now https://form.ldnresearchtrust.org/232812335487964
Shewulf
Administrator
in
LDN Research Trust
11 months ago
No more earwax
It sounds weird, but I noticed in last year no more earwax. Does anyone else with PD have the same issue or know why this would happen? Dx 8 years ago, DBS 1/2023, only take c/l
It sounds weird, but I noticed in last year no more earwax. Does anyone else with PD have the same issue or know why this would happen? Dx 8 years ago, DBS 1/2023, only take c/l
Lbi1608
in
Cure Parkinson's
11 months ago
1
...
4
5
6
...
98
Next page
10
20
30
40
50
60
70
80
90
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
797 results
Meningitis Now
231 results
Anxiety Support
165 results
View top 10 communities
Sort by
Most Relevant
Newest