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MF high risk Mutations
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
This has been covered in some form before. But I came across this report that summarizes misc info from Cornell in a nice clean manner. See link, it's easy reading. A specific takeaway is with the high risk (HMR) mutations in yellow here they lean toward SCT (stem cell transplant) if possible rather
EPguy
in
MPN Voice
2 years ago
Apixaban monitoring
Has anyone else in the UK been summoned by their GP for weight and blood tests for Apixaban monitoring, it does appear to be NICE guidelines but first for me.
Has anyone else in the UK been summoned by their GP for weight and blood tests for Apixaban monitoring, it does appear to be NICE guidelines but first for me.
Linkj
in
AF Association
2 years ago
Meds after spinal fusion
My fusion was 11 weeks ago and I still need an occasional dose of my prescription medication. I have heard that otc meds such as aleve and ibuprofen can interfere with bone grafting, so I have been avoiding them. Surgeon said the otc's were okay to take at this point but I would rather wait until I
My fusion was 11 weeks ago and I still need an occasional dose of my prescription medication. I have heard that otc meds such as aleve and ibuprofen can interfere with bone grafting, so I have been avoiding them. Surgeon said the otc's were okay to take at this point but I would rather wait until I
Jeaniem130
in
Pain Concern
2 years ago
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migraine after stopping aspirin
My son had heart surgery in May & stopped taking daily aspirin a week ago. He has had a lot of migraines ever since. Has anyone else had this problem?
My son had heart surgery in May & stopped taking daily aspirin a week ago. He has had a lot of migraines ever since. Has anyone else had this problem?
Littleeak
in
British Heart Foundation
2 years ago
Can anyone give me some info please?
I have been waiting for a heart monitor since February, and when I enquired about it, apparently the GP had forgotten to ask about it. I now have an appointment to get one on 22nd August. I was feeling that I was going to faint, so she cut my atenolol from 50mg to 25 mg, which has helped, but heart still
I have been waiting for a heart monitor since February, and when I enquired about it, apparently the GP had forgotten to ask about it. I now have an appointment to get one on 22nd August. I was feeling that I was going to faint, so she cut my atenolol from 50mg to 25 mg, which has helped, but heart still
Cha275rL
in
AF Association
2 years ago
Echocardiogram Report - Bizarre as simply added to my NHS record.
I had heart surgery in February, 2020 to replace a bicuspid aortic valve with severe aortic stenosis and a dilated aortic root. Follow up as been a little lacking since discharge from the surgical team to my local hospital cardiology. I refused to accept telephone reviews, got a new consultant but
I had heart surgery in February, 2020 to replace a bicuspid aortic valve with severe aortic stenosis and a dilated aortic root. Follow up as been a little lacking since discharge from the surgical team to my local hospital cardiology. I refused to accept telephone reviews, got a new consultant but
Adhtz21
in
British Heart Foundation
2 years ago
trapped nerves
my husband had open heart surgery 9 weeks ago which went well, the operation was over 8 hours. Since then he has numbness in his one hand. In the last few weeks he’s had pains in his hip and upper leg. Wondering if anyone else has experienced this. Thank you
my husband had open heart surgery 9 weeks ago which went well, the operation was over 8 hours. Since then he has numbness in his one hand. In the last few weeks he’s had pains in his hip and upper leg. Wondering if anyone else has experienced this. Thank you
Cowans
in
British Heart Foundation
2 years ago
How am I still anemic?
hi folks. I’m hoping for some advice. I had open heart surgery in sept 21 and then again in Jan 22. I had a blood transfusion after the second one (1 bag). I’ve been anemic ever since. They started giving me on iron tablets 3 months ago , after dietary changes didn’t improve things , but my iron stores
hi folks. I’m hoping for some advice. I had open heart surgery in sept 21 and then again in Jan 22. I had a blood transfusion after the second one (1 bag). I’ve been anemic ever since. They started giving me on iron tablets 3 months ago , after dietary changes didn’t improve things , but my iron stores
Anon2023
in
British Heart Foundation
2 years ago
psychological problems since heart bypass
hi all, please can anyone offer me any advice on how best to support my 70yr old father following triple bypass surgery. He is having frequent nightmares and panic attacks following surgery. He has never suffered with his mental health before. Is this normal?what shall I do?how can I support him?
hi all, please can anyone offer me any advice on how best to support my 70yr old father following triple bypass surgery. He is having frequent nightmares and panic attacks following surgery. He has never suffered with his mental health before. Is this normal?what shall I do?how can I support him?
Lynss
in
British Heart Foundation
2 years ago
Recently diagnosed
Hi to you all. I have had a couple of trips to A&E end of June 2022 and beginning of July 2022 as an ECG at my GP surgery showed narrow complex regular tachycardia. I was seen by a Cardiologist who said I had Paroxysmal Atrial Flutter. I had bloods taken which were unremarkable" . I was prescribed
Hi to you all. I have had a couple of trips to A&E end of June 2022 and beginning of July 2022 as an ECG at my GP surgery showed narrow complex regular tachycardia. I was seen by a Cardiologist who said I had Paroxysmal Atrial Flutter. I had bloods taken which were unremarkable" . I was prescribed
fairyfeathers
in
Atrial Fibrillation Support
2 years ago
15mg Bisoprolol
I am in a dose of 15mg plus Amiodarine I have AF is comes amd goes my question is it seems a high dose as I have a thinner and calcium channel blockers My general gear condition is mild Mitral regurgitation a mildly dilated left atrium amd my ejection fraction is 50 I’m told lots of different things
I am in a dose of 15mg plus Amiodarine I have AF is comes amd goes my question is it seems a high dose as I have a thinner and calcium channel blockers My general gear condition is mild Mitral regurgitation a mildly dilated left atrium amd my ejection fraction is 50 I’m told lots of different things
NLGA
in
Atrial Fibrillation Support
2 years ago
Ablation update and some good news re our NHS
Thought I would give an update on my ablation and subsequent treatment. As already posted, on 5th July I had a long awaited ablation in effect this was a second ablation in a period of about 7 years. This time it was s cryo ablation so just isolated the pulmonary veins. After an initially good 2 weeks
Thought I would give an update on my ablation and subsequent treatment. As already posted, on 5th July I had a long awaited ablation in effect this was a second ablation in a period of about 7 years. This time it was s cryo ablation so just isolated the pulmonary veins. After an initially good 2 weeks
dedeottie
in
AF Association
2 years ago
Hi Everyone, help with test results?
good afternoon from America some of you might remember me...I joined the group looking for comfort and the outpouring of kindness still amazes me! To be honest, i wasn't sure I would get so many helpful responses so . Thank you all again for that ... lwanted to post these notes from test results
good afternoon from America some of you might remember me...I joined the group looking for comfort and the outpouring of kindness still amazes me! To be honest, i wasn't sure I would get so many helpful responses so . Thank you all again for that ... lwanted to post these notes from test results
MishaKitty
in
AF Association
2 years ago
open heart surgery
Hi guys Just wondered if anyone has had surgery for either replacing or repairing a mitral valve and atrium valve? How were you after surgery and how long until you felt fairly ‘normal’ Thanks in advance.
Hi guys Just wondered if anyone has had surgery for either replacing or repairing a mitral valve and atrium valve? How were you after surgery and how long until you felt fairly ‘normal’ Thanks in advance.
Sally_Scott
in
Atrial Fibrillation Support
2 years ago
My father has Peripheral t cell lymphoma
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
NikhilSantosh
in
CLL Support
2 years ago
CRTD and pacing
hi everyone, I had a CRTD pacemaker with defib inserted about 18 days ago as I had a cardiac arrest in hospital after being given a loading dose of digoxin whilst on Dronederone, following a cardioversion that initially worked but then put me into afib with high heart rate. I’ve heart failure now with
hi everyone, I had a CRTD pacemaker with defib inserted about 18 days ago as I had a cardiac arrest in hospital after being given a loading dose of digoxin whilst on Dronederone, following a cardioversion that initially worked but then put me into afib with high heart rate. I’ve heart failure now with
Mollykin
in
AF Association
2 years ago
Eating After Heart Bypass
Hi I am two weeks post triple bypass surgery. so far everything is healing well. However,I am struggling with food. my appetite is slowly returning although taste is an issue. My biggest problem is that after I eat, I struggle. I sweat and I just feel off.i find myself needing to lie down or
Hi I am two weeks post triple bypass surgery. so far everything is healing well. However,I am struggling with food. my appetite is slowly returning although taste is an issue. My biggest problem is that after I eat, I struggle. I sweat and I just feel off.i find myself needing to lie down or
Carlg
in
British Heart Foundation
2 years ago
Anticoagulants and PPIs
Hi everyone, I have just had an annual medication review over the phone with a pharmacist. I am taking Apixaban 5mg twice daily together with low dose Flecainide (50mg x 2 daily) and Bisoprolol (2.5mg daily). The latter to offset any possible side effects from Flecainide!! I have been in sinus rhythm
Hi everyone, I have just had an annual medication review over the phone with a pharmacist. I am taking Apixaban 5mg twice daily together with low dose Flecainide (50mg x 2 daily) and Bisoprolol (2.5mg daily). The latter to offset any possible side effects from Flecainide!! I have been in sinus rhythm
Snookersteve
in
AF Association
2 years ago
Pacemaker with a leaky valve?
I have a slow heart rate...getting slower. Used to be in the 60's now commonly in the 50's and in the 40's when I sleep. I have a leaky heart valve which I believe is the cause of the slow heart rate. At my age of 78 and diabetes I do not think I am a good candidate for a valve replacement. Question
I have a slow heart rate...getting slower. Used to be in the 60's now commonly in the 50's and in the 40's when I sleep. I have a leaky heart valve which I believe is the cause of the slow heart rate. At my age of 78 and diabetes I do not think I am a good candidate for a valve replacement. Question
BainaiThai_1_2
in
Advanced Prostate Cancer
2 years ago
Ablation a major disappointment
Good morning. I am a 66 year old male have always been very healthy no health problems active, outdoors, gym etc. people still think I’m iin my 50’s and until ablation a year and half ago was in better shape than a lot of 30 something out there. I had mild afib and was on 1/2 a motroplol twice a day
Good morning. I am a 66 year old male have always been very healthy no health problems active, outdoors, gym etc. people still think I’m iin my 50’s and until ablation a year and half ago was in better shape than a lot of 30 something out there. I had mild afib and was on 1/2 a motroplol twice a day
Afibjohn
in
AF Association
2 years ago
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