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My Recovery so far post Stem cell Transplant
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Sorry I've been absent for so long, my stem cell transplant journey has been a difficult one to be honest and only now do I feel able to be able to tell the story so far. Thank you to everyone who kindly messaged me to see how I was and apologies for asking so long to respond. I really appreciated
Jm954
Administrator
in
CLL Support
11 months ago
Negative effects from heart surgery 7 months on.
Hello. As anyone had negative effects following mitral valve repair? even years down the line? Surgeon repaired my leaky valve in April and I felt amazing once healed around July time. Now fast forward a few months and i feel worse than I did before she repaired my valve. Health / fitness has declined
Hello. As anyone had negative effects following mitral valve repair? even years down the line? Surgeon repaired my leaky valve in April and I felt amazing once healed around July time. Now fast forward a few months and i feel worse than I did before she repaired my valve. Health / fitness has declined
Heart4life1988
in
British Heart Foundation
10 months ago
Acupuncture and AF Post Heart Surgery
Good morning I came across this study in one of my newsfeeds this morning. I recall someone had recently asked about acupuncture for treating AF, so thought it worth posting here. Whilst this was only a small study specifically aimed at patients recovering from open heart surgery, I thought it interesting
Good morning I came across this study in one of my newsfeeds this morning. I recall someone had recently asked about acupuncture for treating AF, so thought it worth posting here. Whilst this was only a small study specifically aimed at patients recovering from open heart surgery, I thought it interesting
Threecats
in
AF Association
10 months ago
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The LVR Journey Continues
hi all friendly people, went for my follow up Pulmonary appointment with consultant, LFT 40% Gained more weight and she was very happy advised to stay at 55.7kg or increase to 60kg much safer for surgery Have to go do Pulmonary Rehab for 6 weeks and then if all goes well will be deterred to multi
hi all friendly people, went for my follow up Pulmonary appointment with consultant, LFT 40% Gained more weight and she was very happy advised to stay at 55.7kg or increase to 60kg much safer for surgery Have to go do Pulmonary Rehab for 6 weeks and then if all goes well will be deterred to multi
Trevor6
in
Lung Conditions Community Forum
8 months ago
Heart rate 214bpm
Hi, should I be worried? This afternoon went into a AF episode after my last one 3 weeks ago, currently on waiting list for my second ablation, now 17 months in.usually when I’m in an episode my heart rate tops is 140 bpm. Suddenly whilst in AF my heart went up 214 bpm, felt faint and very hot. Phoned
Hi, should I be worried? This afternoon went into a AF episode after my last one 3 weeks ago, currently on waiting list for my second ablation, now 17 months in.usually when I’m in an episode my heart rate tops is 140 bpm. Suddenly whilst in AF my heart went up 214 bpm, felt faint and very hot. Phoned
Lesleyray
in
AF Association
10 months ago
Lp(a) results are in ….
I’ve recently had bloods taken to test for FH and Lp(a) levels. I had a heart attack in 2022 at aged 51 and was started on a whole ton of medications afterwards including Atorvastatin 80mg and then a bit later adding in 10mg Ezetimibe. My LDL cholesterol has not been able to reach the target of 1.4
I’ve recently had bloods taken to test for FH and Lp(a) levels. I had a heart attack in 2022 at aged 51 and was started on a whole ton of medications afterwards including Atorvastatin 80mg and then a bit later adding in 10mg Ezetimibe. My LDL cholesterol has not been able to reach the target of 1.4
EU95PTM
in
Cholesterol Support
10 months ago
Living alone after open heart surgery
When discharged from hospital after open heart surgery are you able to look after yourself such as reaching up and down, carrying out laundry basket, lifting pots and pans, cooking, getting in and out of bath. Or is it expected you will have someone who can assist you. If you didn't have anyone what
When discharged from hospital after open heart surgery are you able to look after yourself such as reaching up and down, carrying out laundry basket, lifting pots and pans, cooking, getting in and out of bath. Or is it expected you will have someone who can assist you. If you didn't have anyone what
carer999
in
British Heart Foundation
10 months ago
Technology question
We went away for the weekend . I was aware of tachycardia in the night ( only lasted few minutes) I always try to capture any palpitations if I can. This was the wee small hours so all electrical equipment was switched off . A tv , two phones and chargers, several lamps. I was about 22 feet away from
We went away for the weekend . I was aware of tachycardia in the night ( only lasted few minutes) I always try to capture any palpitations if I can. This was the wee small hours so all electrical equipment was switched off . A tv , two phones and chargers, several lamps. I was about 22 feet away from
Peony4575
in
AF Association
10 months ago
Calf Pain and PAD
Hi, I wasn't sure if this should be posted in a Diabetes forum or on here, after thinking about it I think that this BHF site is the better option. So Peripheral Arterial Disease. I had both Iliac Arteries 'bored' out with balloon angioplasty in May of this year (Left leg fully occulted and Right leg
Hi, I wasn't sure if this should be posted in a Diabetes forum or on here, after thinking about it I think that this BHF site is the better option. So Peripheral Arterial Disease. I had both Iliac Arteries 'bored' out with balloon angioplasty in May of this year (Left leg fully occulted and Right leg
GoldfishPond
in
British Heart Foundation
8 months ago
Thorocentecis
Hi guys....a recent CT scan showed some pleural effusion but nothing else...no nodes, growths or nodules, and a blood test showed no heart failure.I have to have the fluid removed on Monday and I'm bricking it already. I don't make a very good patient; former nurse; and I'm a wuss when it comes to pain
Hi guys....a recent CT scan showed some pleural effusion but nothing else...no nodes, growths or nodules, and a blood test showed no heart failure.I have to have the fluid removed on Monday and I'm bricking it already. I don't make a very good patient; former nurse; and I'm a wuss when it comes to pain
sue32
in
Lung Conditions Community Forum
10 months ago
Yearly blood test
I take it many of you have reached the time when you are having your yearly blood test after heart bypass. I just wondered how conclusive and accurate you have found the results.
I take it many of you have reached the time when you are having your yearly blood test after heart bypass. I just wondered how conclusive and accurate you have found the results.
Pollypuss
in
British Heart Foundation
10 months ago
Resting HR on Bisoprolol
Hi everyone, I was put on 1.25 Bisoprolol in March when I had a heart attack and then told to take it twice a day in July when I went into Atrial Flutter after open heart surgery, meaning I'm now on 2.5mg. My resting heart rate was mostly in the low 60s these last 6 months which I assumed was good. The
Hi everyone, I was put on 1.25 Bisoprolol in March when I had a heart attack and then told to take it twice a day in July when I went into Atrial Flutter after open heart surgery, meaning I'm now on 2.5mg. My resting heart rate was mostly in the low 60s these last 6 months which I assumed was good. The
LadyZ13
in
British Heart Foundation
10 months ago
Dysautonomia in Sjögren's - Genital Sore/dry symptoms
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Because of the shame or embarrassment sometimes involved in talking about vulvar or vaginal symptoms, I have not really gone into depth with my Rheumatologist. I am just wondering whether anyone has any tips of how to soothe:- Burning of the vagina or vulvaI Itchy vulva or vagina I am also going through
Energy14
in
LUPUS UK
10 months ago
Regular care
I was diagnosed with AF around four years ago now, by a cardiologist in a major teaching hospital. I was put on anticoagulants and referred back to my GP. The local surgery check my meds yearly and I have an annual blood test, but that’s it. I am wondering whether I should ask to be referred back to
I was diagnosed with AF around four years ago now, by a cardiologist in a major teaching hospital. I was put on anticoagulants and referred back to my GP. The local surgery check my meds yearly and I have an annual blood test, but that’s it. I am wondering whether I should ask to be referred back to
AstroFish
in
Atrial Fibrillation Support
10 months ago
How do I know if I'm fixed? Calling all runners!
Hi, I'm a 59 year old male who's been running (Half and full Marathon) for about 12 years (previously a regular swimmer and cyclist). I've always been fit and lived what I thought was a healthy lifestyle, never smoked, little alcohol, avoided fast foods, minimal red meat, mostly chicken and fish. I
Hi, I'm a 59 year old male who's been running (Half and full Marathon) for about 12 years (previously a regular swimmer and cyclist). I've always been fit and lived what I thought was a healthy lifestyle, never smoked, little alcohol, avoided fast foods, minimal red meat, mostly chicken and fish. I
Vsaway
in
British Heart Foundation
10 months ago
Anyone had a coronary sinus reducer?
I haven't been on here in a long while. My medical history is pretty complex, I'm seen locally at the Bristol Heart Institute but also under the care of the Cardio-oncology team at the Royal Brompton which a forum member told me about years ago thankfully. Basically my bone marrow transplant and other
I haven't been on here in a long while. My medical history is pretty complex, I'm seen locally at the Bristol Heart Institute but also under the care of the Cardio-oncology team at the Royal Brompton which a forum member told me about years ago thankfully. Basically my bone marrow transplant and other
SomersetJo
in
British Heart Foundation
11 months ago
Heart rate tracker anomalies
Hi everyone, I'm getting quite anxious due to my Fitbit reporting strange peaks in my heart rate. This was 4:37 this morning, and back to 70bpm 3 mins later. I slept through this so have no idea if it's accurate. Yesterday it said my heart was 187bpm while I was walking briskly to meet someone for lunch
Hi everyone, I'm getting quite anxious due to my Fitbit reporting strange peaks in my heart rate. This was 4:37 this morning, and back to 70bpm 3 mins later. I slept through this so have no idea if it's accurate. Yesterday it said my heart was 187bpm while I was walking briskly to meet someone for lunch
LadyZ13
in
AF Association
10 months ago
Dilated Cardiomyopathy/ Heart Transplant
I was diagnosed with Dilated Cardiomyopathy in November 2022 after suffering shortness of breath and always being tired and breathless. I quickly deteriorated and when I went back to see my Cardiologist in January I was told I was now critical and needed to be admitted and put on the urgent transplant
I was diagnosed with Dilated Cardiomyopathy in November 2022 after suffering shortness of breath and always being tired and breathless. I quickly deteriorated and when I went back to see my Cardiologist in January I was told I was now critical and needed to be admitted and put on the urgent transplant
Jobby85
in
British Heart Foundation
10 months ago
Personal insights into late stage PD thoughts
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
Gaslighting...(Don't gaslight yourself, dont allow others to gaslight you). (Gaslighting is a form of psychological abuse in which a person or group causes someone to question their own sanity, memories, or perception of reality. It is an insidious form of manipulation and psychological control. Victims
beehive23
in
Cure Parkinson's
10 months ago
What is a realistic fitness goal?
Hello all, this is my first post. I have had 3 previous heart operations for a repair of truncus arteriosus when I was 13 days old, 8 years old and 27 years old. What is a reasonable, sustainable long-term fitness goal given this background? I can share more details about where I am now if asked. Thank
Hello all, this is my first post. I have had 3 previous heart operations for a repair of truncus arteriosus when I was 13 days old, 8 years old and 27 years old. What is a reasonable, sustainable long-term fitness goal given this background? I can share more details about where I am now if asked. Thank
tigersburningbright
in
British Heart Foundation
10 months ago
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