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post stem cell transplant covid question
I am now approaching 21 months post transplant (MF) and feeling well. My last consultation and bloods was about 3 months ago. I've only had phone consultations since March last year and so I'm hoping my next appointment, due in June, will be face to face at the QE B'ham where I had the transplant. I'm
I am now approaching 21 months post transplant (MF) and feeling well. My last consultation and bloods was about 3 months ago. I've only had phone consultations since March last year and so I'm hoping my next appointment, due in June, will be face to face at the QE B'ham where I had the transplant. I'm
Dodders
in
MPN Voice
3 years ago
Stem cell replacement
Has anyone traveled down the road of having stem cell/bone marrow transplant? I have MF It looks like it maybe a possibility for me.
Has anyone traveled down the road of having stem cell/bone marrow transplant? I have MF It looks like it maybe a possibility for me.
Grizly
in
MPN Voice
3 years ago
😴 Online course to retrain mind & body to improve sleep
Hi everyone. Just sharing this link as we have previously discussed problems sleeping post CABG. Its an online course to retrain yourself to sleep and I was referred by my GP after discussing with her difficulties sleeping. Have started to keep sleep diary for 7 days... if you have not come across this
Hi everyone. Just sharing this link as we have previously discussed problems sleeping post CABG. Its an online course to retrain yourself to sleep and I was referred by my GP after discussing with her difficulties sleeping. Have started to keep sleep diary for 7 days... if you have not come across this
QuadroVEINia
in
British Heart Foundation
3 years ago
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Nobody Wants Cancer. But a ‘Big C’ Label Has Surprising Upsides.
« “The cancer designation did open up significant new funding opportunities, for example from the National Cancer Institute,” said Barbara Van Husen, board chair of the MPN Research Foundation. “It has definitely accelerated research.” There are more than 200 clinical trials underway for various MPNs
« “The cancer designation did open up significant new funding opportunities, for example from the National Cancer Institute,” said Barbara Van Husen, board chair of the MPN Research Foundation. “It has definitely accelerated research.” There are more than 200 clinical trials underway for various MPNs
Manouche
in
MPN Voice
3 years ago
Update after BMB
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
It's been awhile since my first BMB, but have been recovering & processing the results. I had a hard time with sedation & took me some time to reset myself from that ordeal (getting sick, having two veins blow out with blood draws & iv). I lost weight & only weighed at 104 lbs that day! I was diagnosed
Androg
in
MPN Voice
3 years ago
Questions about stents and support
Update and questions I haven't posted on here for a while for many reasons (including the whole COVID thing) but as I'm still trying to get my head round stuff and had questions, I'm hoping there are some of you out there who can offer me some ideas/support. I'm currently seen at the Brompton, where
Update and questions I haven't posted on here for a while for many reasons (including the whole COVID thing) but as I'm still trying to get my head round stuff and had questions, I'm hoping there are some of you out there who can offer me some ideas/support. I'm currently seen at the Brompton, where
SomersetJo
in
British Heart Foundation
3 years ago
Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective immune response to Covid-19
Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among cancer patients DPA, Mar 03, 2021, Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective
Just read this and felt it might be of interest, especially to those in the UK (you could take part). "Study launched into Covid-19 vaccine response among cancer patients DPA, Mar 03, 2021, Britain is launching a study to examine whether patients with immunosuppressed conditions have a less effective
Iupiter
in
CLL Support
3 years ago
It's exactly a year since my quadruple heart bypass...what a year!
I haven't posted apart from the odd reply for quite some time but now I've reached a milestone, 1 year since my operation which is also pretty much 1 year in lockdown. When I left hospital it was barely 2 weeks before we went into national lockdown and from that point onward there were just 4 weeks in
I haven't posted apart from the odd reply for quite some time but now I've reached a milestone, 1 year since my operation which is also pretty much 1 year in lockdown. When I left hospital it was barely 2 weeks before we went into national lockdown and from that point onward there were just 4 weeks in
Tillymint1971
in
British Heart Foundation
3 years ago
Re: WARWICK's ASCT Journey Begins Today...
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
Afternoon all... Warwick has managed to POST a reply on MATES, and if any of you can, I am sure that he would love to say hi... He's not feeling terribly himself Eight (8) days into his Stem Cell Transplant, but he did manage to
[i]POST[/i]
the message below on MATES, and so I Posted here again
socrates_8
in
MPN Voice
3 years ago
Webinar 9.30am, Wednesday 3rd March - Acute promyelocytic leukaemia (APL) treatment update
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
Please join us for the 1st in our series of free treatment updates in acute leukaemia. This webinar will update on how APL is treated today and what is on the horizon: how is a therapy chosen, how is prognosis determined and what level of involvement should patients expect in their care decisions. The
HAIRBEAR_UK
in
Leukaemia Support
3 years ago
😉 omelette roll treat for WK1
Good Morning Everyone. First milestone achieved.🏃 So chuffed, had CABG <13 wks ago. Seeing as Tokyo olympics are cancelled I treated myself!😁 Bring on WK2 👊 Hope everyone is doing well! Have a great weekend... PS - I’ve also finally settled on a name for my YouTube channel after dithering for so
Good Morning Everyone. First milestone achieved.🏃 So chuffed, had CABG <13 wks ago. Seeing as Tokyo olympics are cancelled I treated myself!😁 Bring on WK2 👊 Hope everyone is doing well! Have a great weekend... PS - I’ve also finally settled on a name for my YouTube channel after dithering for so
QuadroVEINia
in
British Heart Foundation
3 years ago
Bishop 1
CABG 7 weeks ago. How much exercise should I do. Explain Mediterrian diet. Got no advise when leaving hospital. I'm feeling a bit lost and still suffering with pain in shoulders. Scar healing slowly. I would love to hear from someone insane position. Thank x
CABG 7 weeks ago. How much exercise should I do. Explain Mediterrian diet. Got no advise when leaving hospital. I'm feeling a bit lost and still suffering with pain in shoulders. Scar healing slowly. I would love to hear from someone insane position. Thank x
Bishop1
in
British Heart Foundation
3 years ago
WARWICK's ASCT Journey Begins Today...
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
Post by MPN-MATE Admin » Mon Feb 08, 2021 4:23 pm Hey everyone... :D As the subject of this Post is about Warwick's Allogenic Stem Cell Transplant journey, he will come back as he progresses through each stage of this journey to share the experience w/ ALL MPNers, who might have an interest... I met
socrates_8
in
MPN Voice
3 years ago
Cardio rehab
I would definitely recommend cardio rehab. I had CABG and Mitral valve repair done in 2017. Found motivation really difficult at home and had a delay starting rehab due to arythmia. When I finally started, although the activity did seem really slow, the fact that I had a focus for 6 weeks was very important
I would definitely recommend cardio rehab. I had CABG and Mitral valve repair done in 2017. Found motivation really difficult at home and had a delay starting rehab due to arythmia. When I finally started, although the activity did seem really slow, the fact that I had a focus for 6 weeks was very important
hombrecito
in
British Heart Foundation
3 years ago
Has anyone had more than one FISH test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
steve_canada
in
CLL Support
3 years ago
Advice, encouragement, sharing
I seemed to be a fit 60 year old cycling 20k every other day and going for 2/3 hour walks in the weekend, until climbing hills became more difficult and the chest/stomach pains started. Within 2 months I was not able to walk to the end of the road anymore. An angiogram showed 5 blockages and I had an
I seemed to be a fit 60 year old cycling 20k every other day and going for 2/3 hour walks in the weekend, until climbing hills became more difficult and the chest/stomach pains started. Within 2 months I was not able to walk to the end of the road anymore. An angiogram showed 5 blockages and I had an
fit4walks
in
British Heart Foundation
3 years ago
Short Update on Ibrutinib + Idelalisib + Venetoclax "N of 1" trial after lower dose.
A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-ibrutinib-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks. I just had a second [
A update on my very surprising results when combining Ibrutinib + Idelalisib + Venetoclax. Initial Post with more detail: https://healthunlocked.com/cllsupport/posts/145327977/my-n-of-1-trial-with-ibrutinib-idelalisib-venetoclax-that-lead-to-remission-of-richters-in-three-weeks. I just had a second [
UniversallyPersonal
in
CLL Support
3 years ago
Just placed on Entresto
Really interesting reading your replies. I have just been advised to go on to Entresto lower dose am and higher dose pm. This was due to low BP readings under 100. Will know my blood test results soon to decide whether I can tolerate higher dose twice a day. I have had a CABG and mitral valve repair
Really interesting reading your replies. I have just been advised to go on to Entresto lower dose am and higher dose pm. This was due to low BP readings under 100. Will know my blood test results soon to decide whether I can tolerate higher dose twice a day. I have had a CABG and mitral valve repair
hombrecito
in
British Heart Foundation
3 years ago
Quick Question to anyone previously shielding, over 70 and in Scotland
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Hi all, It’s been a while since I’ve posted on the site but I’ve been keeping up to date with all your posts. I hope you’re all keeping safe and as well as you can. I have a question to anyone in their 70s who was/is officially shielding and lives in Scotland. Have you received your letter inviting
Froggie70
in
LUPUS UK
3 years ago
Richter's in Remission - 11 months post transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
I've been away from HealthUnlocked for some time following my allogenic bone marrow transplant for Richter's Transformation 11 months ago at MDA Houston. I'm happy to report my transplant has been a success and I'm in complete remission from Richter's and I'm feeling great. I tolerated the transplant
SarasotaPaul
in
CLL Support
3 years ago
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