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Levo pre blood test?
Hi I’m after some advice please. I was diagnosed with UAT 20+ years & have been fortunate to have not had many problems during that time. I’m due a blood test on Thursday as my thyroid results have been all over the place since being diagnosed with GCA & PMR last June. I’ve never been told not to take
Hi I’m after some advice please. I was diagnosed with UAT 20+ years & have been fortunate to have not had many problems during that time. I’m due a blood test on Thursday as my thyroid results have been all over the place since being diagnosed with GCA & PMR last June. I’ve never been told not to take
LucieDoodle
in
Thyroid UK
3 months ago
Hi everyone. Im GC1906. Im desperate for validation. Because i think im going crazy.
Hi Everyone. Im new to this community. But im not new to Hypothyroidism. Its taken over my life. Ive put on 4 st. Im taking a very low dose of Levothyroxine. 50 mg. Taking one pill a day for nearly 3 years. No matter what I say my doctor hasn't helped. I am now having another blood test. Its been 1
Hi Everyone. Im new to this community. But im not new to Hypothyroidism. Its taken over my life. Ive put on 4 st. Im taking a very low dose of Levothyroxine. 50 mg. Taking one pill a day for nearly 3 years. No matter what I say my doctor hasn't helped. I am now having another blood test. Its been 1
GC1906
in
Thyroid UK
3 months ago
Update on my CLL diagnosis
Hello, I was diagnosed with CLL in Oct 2022 and was told I had # CLL/SLL with extensive bone marrow involvement, trisomy 12, p53 wild-type, IgHV-mutated, Rai stage 3. My oncologist at the Cancer Center put me on the O and V treatment which started in Dec 2022. I finished the O in May 2023 and the
Hello, I was diagnosed with CLL in Oct 2022 and was told I had # CLL/SLL with extensive bone marrow involvement, trisomy 12, p53 wild-type, IgHV-mutated, Rai stage 3. My oncologist at the Cancer Center put me on the O and V treatment which started in Dec 2022. I finished the O in May 2023 and the
tenniselbowz
in
CLL Support
3 months ago
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A&E VIst
Afternoon all Just got back after 6 hours at Hospital to give them credit l was seen straight away . Have spent a month on 9 mg Pred and was going to reduce to 8.5 tomorrow but for now it’s on hold. For the last few days Have had random symptoms Tender scalp which l do have. Now and then even before
Afternoon all Just got back after 6 hours at Hospital to give them credit l was seen straight away . Have spent a month on 9 mg Pred and was going to reduce to 8.5 tomorrow but for now it’s on hold. For the last few days Have had random symptoms Tender scalp which l do have. Now and then even before
Rose54
in
PMRGCAuk
3 months ago
Just need some advice on self injecting.
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Just need to come up with a safe plan for what to do about my B12 injections. After several years of symptoms like chronic fatigue, brain fog, dizziness, pins and needles, sore lips, dry skin, breathlessness etc I was finally diagnosed with a B12 deficiency in 2011. My B12 level was 154. By this
Hayley31
in
Pernicious Anaemia Society
3 months ago
Am I on enough thyroid medication for my weight
My weight is: 13st 2 lbs - have recently lost 3 stones in weight unintentionally which is believed to be a gluten intolerance problem not yet identified as celiac. At aged 50 I was only 8.5 stones in weight could eat anything and was a size 10/12 - menopause suddenly I started to put on weight and
My weight is: 13st 2 lbs - have recently lost 3 stones in weight unintentionally which is believed to be a gluten intolerance problem not yet identified as celiac. At aged 50 I was only 8.5 stones in weight could eat anything and was a size 10/12 - menopause suddenly I started to put on weight and
posthinking01
in
Thyroid UK
3 months ago
Any advice appreciated
Good Morning Thank you for allowing me to join the community. Thank you for helping us all. I have been going to my gp for sometime with low thyroid symptoms but they say the blood test is normal. My mother had a parathyroid tumour removed in her forties and my brothers and mother have underactive thyroids
Good Morning Thank you for allowing me to join the community. Thank you for helping us all. I have been going to my gp for sometime with low thyroid symptoms but they say the blood test is normal. My mother had a parathyroid tumour removed in her forties and my brothers and mother have underactive thyroids
lovedoncebefore
in
Thyroid UK
3 months ago
Advice
Good Morning Thank you for allowing me to join the community. Thank you for helping us all. I have been going to my gp for sometime with low thyroid symptoms but they say the blood test is normal. My mother had a parathyroid tumour removed in her forties and my brothers and mother have underactive thyroids
Good Morning Thank you for allowing me to join the community. Thank you for helping us all. I have been going to my gp for sometime with low thyroid symptoms but they say the blood test is normal. My mother had a parathyroid tumour removed in her forties and my brothers and mother have underactive thyroids
lovedoncebefore
in
Thyroid UK
3 months ago
Can IVF meds affect AMH / FSH levels
Wondering if anyone can help. I had my first failed round of IVF last month and am planning to move straight on to a second round later this month. I decided to do a Hertility postal blood test to check where my hormone levels were. I was really shocked as my AMH had more than halved since August and
Wondering if anyone can help. I had my first failed round of IVF last month and am planning to move straight on to a second round later this month. I decided to do a Hertility postal blood test to check where my hormone levels were. I was really shocked as my AMH had more than halved since August and
BlahBlah55
in
Fertility Network UK
3 months ago
Thyroid, Depression & Anxiety
Hello My latest thyroid blood test results were: TSH <0.01; FT3 4.2; T4 9.8. My symptoms point to hypothyroidism. I also have long term Generalised Anxiety Disorder & Depression. My drugs are: Thyroid S 3.5 grains. Pregabalin 350mg, Quetiapine 500mg, Sertraline 200mg, Methylphenidate XL 36mg &
Hello My latest thyroid blood test results were: TSH <0.01; FT3 4.2; T4 9.8. My symptoms point to hypothyroidism. I also have long term Generalised Anxiety Disorder & Depression. My drugs are: Thyroid S 3.5 grains. Pregabalin 350mg, Quetiapine 500mg, Sertraline 200mg, Methylphenidate XL 36mg &
PillJunkie
in
Thyroid UK
3 months ago
Anagrelide success 😃
hi everyone, just wanted to share some positive news this weekend 😃, I have ET with MPL mutation. After persisting with weekly peg interferon alpha injections for 12 months at the highest dose with minimal platelet reduction (1400 - 1180), my count has been over 1000 for 2 years. I have successfully
hi everyone, just wanted to share some positive news this weekend 😃, I have ET with MPL mutation. After persisting with weekly peg interferon alpha injections for 12 months at the highest dose with minimal platelet reduction (1400 - 1180), my count has been over 1000 for 2 years. I have successfully
Maxamber
in
MPN Voice
3 months ago
Lynparza - warning!
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
MyDad76
in
Advanced Prostate Cancer
3 months ago
PMR & Cellulitis
Hi, some of you may remember that I posted a while back asking for tips to cope with long haul flights. Well, I arrived in Australia 6 weeks ago and didn’t have any problems after the flights, I just took an extra dose of Pred as suggested. However, two weeks ago I developed cellulitis in my left leg
Hi, some of you may remember that I posted a while back asking for tips to cope with long haul flights. Well, I arrived in Australia 6 weeks ago and didn’t have any problems after the flights, I just took an extra dose of Pred as suggested. However, two weeks ago I developed cellulitis in my left leg
GreatGranny4
in
PMRGCAuk
3 months ago
PMR & Cellulitis
Hi, some of you may remember that I Tposted a while back asking for tips to cope with long haul flights. Well, I arrived in Australia 6 weeks ago and didn’t have any problems after the flights, I just took an extra dose of Pred as suggested. However, two weeks ago I developed cellulitis in my left
Hi, some of you may remember that I Tposted a while back asking for tips to cope with long haul flights. Well, I arrived in Australia 6 weeks ago and didn’t have any problems after the flights, I just took an extra dose of Pred as suggested. However, two weeks ago I developed cellulitis in my left
GreatGranny4
in
PMRGCAuk
3 months ago
Hydroxycarbamide Dose
I am just wondering if anyone else has experienced Hydroxy not working as well after a time? I have been only taking it for 2 years now and all seems to have been going well until a couple of months ago when my platelets started to rise again. I have had another visit to consultant today and they are
I am just wondering if anyone else has experienced Hydroxy not working as well after a time? I have been only taking it for 2 years now and all seems to have been going well until a couple of months ago when my platelets started to rise again. I have had another visit to consultant today and they are
Yoganana1
in
MPN Voice
3 months ago
Blood test timing
Hi all you clever folks out there, I’ve upped my medication of liquid thyroxine in the last few months from 50 to 75mcg. I did it without GP’s consent but I was feeling so hypo and tired and although my last blood test results were within range (TSH 2.35), I knew an increase would help. I was going to
Hi all you clever folks out there, I’ve upped my medication of liquid thyroxine in the last few months from 50 to 75mcg. I did it without GP’s consent but I was feeling so hypo and tired and although my last blood test results were within range (TSH 2.35), I knew an increase would help. I was going to
Bookworm63
in
Thyroid UK
3 months ago
Advice re. Churchill hospital
Can anyone who attends the Churchill hospital in Oxford give me a little guidance please. I have been referred to haematology there and have an appointment in late May. I will have to drive to get there (a round trip of about 70 miles) and I understand that parking there is pretty hellish. So if anyone
Can anyone who attends the Churchill hospital in Oxford give me a little guidance please. I have been referred to haematology there and have an appointment in late May. I will have to drive to get there (a round trip of about 70 miles) and I understand that parking there is pretty hellish. So if anyone
friendofpiglet
in
MPN Voice
3 months ago
More Challenges to Overcome!
Some of you may recall that for some years, I've frequently experienced ectopic beats. They've been calmed down with a lowish dose of a beta blocker (Propranolol) and don't usually give me too much cause for concern......until about a week ago when they re-emerged, but with a different manifestation
Some of you may recall that for some years, I've frequently experienced ectopic beats. They've been calmed down with a lowish dose of a beta blocker (Propranolol) and don't usually give me too much cause for concern......until about a week ago when they re-emerged, but with a different manifestation
Kendrew
in
PMRGCAuk
3 months ago
Looking for IVF experienced Endocrinologist
Hi lovely people, After my 6th unsuccessful transfer and 3rd with donor embryos, I have decided to include an endocrinologist who can help maintain Thyroid levels before and during transfer. In the last cycle despite increasing the dose of Levothyroxine, my TSH jumped from 2.4 to 3.4 on day of transfer
Hi lovely people, After my 6th unsuccessful transfer and 3rd with donor embryos, I have decided to include an endocrinologist who can help maintain Thyroid levels before and during transfer. In the last cycle despite increasing the dose of Levothyroxine, my TSH jumped from 2.4 to 3.4 on day of transfer
ValaI
in
Thyroid UK
3 months ago
Looking for IVF experienced Endocrinologist
Hi lovely people, After my 6th unsuccessful transfer and 3rd with donor embryos, I have decided to include an endocrinologist who can help maintain Thyroid levels before and during transfer. In the last cycle despite increasing the dose of Levothyroxine, my TSH jumped from 2.4 to 3.4 on day of transfer
Hi lovely people, After my 6th unsuccessful transfer and 3rd with donor embryos, I have decided to include an endocrinologist who can help maintain Thyroid levels before and during transfer. In the last cycle despite increasing the dose of Levothyroxine, my TSH jumped from 2.4 to 3.4 on day of transfer
ValaI
in
Fertility Network UK
3 months ago
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