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CLL, Alcalabrutinib, Low Testosterone
“Hi Thanks everyone who responded to my last post “CLL, Alcalabrutinib, Gout & Steroids” it really does help. Usually i find myself on this site when i’m at my lowest, usually when a new side effect takes hold. My haematologist has never once accepted that what im experiencing is a side effect
“Hi Thanks everyone who responded to my last post “CLL, Alcalabrutinib, Gout & Steroids” it really does help. Usually i find myself on this site when i’m at my lowest, usually when a new side effect takes hold. My haematologist has never once accepted that what im experiencing is a side effect
Tomaljoe69
in
CLL Support
2 months ago
Calquence. No energy, not eating, not drinking. Delayed side effects or something else?
Hello, everyone. We are new here, family support and looking for some answers. Sorry, this may be a long post. tl;dr at the bottom. Brief background. Patient is a male in his late 70s. About 7 years ago was originally diagnosed with CLL and treated and put into remission. Around July of 2023 the CLL
Hello, everyone. We are new here, family support and looking for some answers. Sorry, this may be a long post. tl;dr at the bottom. Brief background. Patient is a male in his late 70s. About 7 years ago was originally diagnosed with CLL and treated and put into remission. Around July of 2023 the CLL
CuriousFamily
in
CLL Support
2 months ago
Prostate cancer treatment and sexual mutilation
Well well. In the midst of the club no one wants to be a part of and just wanted to add my input. It seems that the treatment of prostate cancer often glazes over the fact that you will be sexually impacted severely. Depending on treatment outcome that could be a 0 to 7. Seems like the topic isn’t really
Well well. In the midst of the club no one wants to be a part of and just wanted to add my input. It seems that the treatment of prostate cancer often glazes over the fact that you will be sexually impacted severely. Depending on treatment outcome that could be a 0 to 7. Seems like the topic isn’t really
Yokohama2023
in
Advanced Prostate Cancer
6 months ago
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Help sourcing t3 online please
Hi folks. New here. I realise that nobody can post links etc but I'm hoping someone out there can message me some info. I'm post menopausal and blood tests show I have hypothyroidism (tsh 9.8). For the past almost 10 years I've been so tired, hair falling out, gaining weight etc. I've been unable
Hi folks. New here. I realise that nobody can post links etc but I'm hoping someone out there can message me some info. I'm post menopausal and blood tests show I have hypothyroidism (tsh 9.8). For the past almost 10 years I've been so tired, hair falling out, gaining weight etc. I've been unable
Johnprinefan
in
Thyroid UK
2 months ago
Truqap update
I persuaded my onc to start me on this new drug in April. Since starting I have had great results. My first set of labs was great, so we backed off the amount of drug due to diarrhea. I had one set back on my 2nd blood tests but adjusted my meds and am back to lower values on tumor markers. My
I persuaded my onc to start me on this new drug in April. Since starting I have had great results. My first set of labs was great, so we backed off the amount of drug due to diarrhea. I had one set back on my 2nd blood tests but adjusted my meds and am back to lower values on tumor markers. My
Bonnie1942
in
SHARE Metastatic Breast Cancer
1 month ago
Is this subclinical hyperthyroidism?
I recently had a blood test which showed that my TSH was 0.27mU/L (0.35.5.5) and T4 was 11.3pmol (10-20). I'm waiting to hear back from my doctor, but does this show that there's potentially an issue with my thyroid? This is all new to me so I would appreciate some help, thank you.
I recently had a blood test which showed that my TSH was 0.27mU/L (0.35.5.5) and T4 was 11.3pmol (10-20). I'm waiting to hear back from my doctor, but does this show that there's potentially an issue with my thyroid? This is all new to me so I would appreciate some help, thank you.
16yearsofpainsofar
in
Thyroid UK
2 months ago
Help understanding recent blood test results.. next steps?
Hello, I am looking for some help interpreting my recent thyroid bloods. TSH 3.04 (range 0.40-2.50 high FT4 9.01 range 7.86-14.41 FT3 3.4 range 3.8-6.0 low RT3 0.30 range 0.14-0.54 TT4 74.10 range 78.38-157.40 low FT4:FT3 ratio 2.7 Anti TG <0.9 Anti TPO <1 How do I interpret these results
Hello, I am looking for some help interpreting my recent thyroid bloods. TSH 3.04 (range 0.40-2.50 high FT4 9.01 range 7.86-14.41 FT3 3.4 range 3.8-6.0 low RT3 0.30 range 0.14-0.54 TT4 74.10 range 78.38-157.40 low FT4:FT3 ratio 2.7 Anti TG <0.9 Anti TPO <1 How do I interpret these results
PaleoGirl
in
Thyroid UK
2 months ago
Hypocellular bone marrow. Can anyone tell me more?
I was diagnosed with B12 deficiency ("low serum B12") over 15 years ago when debilitating exhaustion was putting my job at risk. Doctors assumed diet related because I was usually vegan at home but still ate meat and fish two or three times a week. I am diary intolerant with eczema (but crave custard
I was diagnosed with B12 deficiency ("low serum B12") over 15 years ago when debilitating exhaustion was putting my job at risk. Doctors assumed diet related because I was usually vegan at home but still ate meat and fish two or three times a week. I am diary intolerant with eczema (but crave custard
newlandvale
in
Pernicious Anaemia Society
2 months ago
Should I stop Ferrous Fumarate before Blood Test?
Hi, I was prescribed Ferrous Fumarate after my last bloods showed very low in ferritin levels (I'm Hashi's). I'm due my follow up routine blood test for thyroid levels and ferritin / iron next week. Do I need to stop taking the Ferrous Fumarate ahead of the blood test? Thanks so much
Hi, I was prescribed Ferrous Fumarate after my last bloods showed very low in ferritin levels (I'm Hashi's). I'm due my follow up routine blood test for thyroid levels and ferritin / iron next week. Do I need to stop taking the Ferrous Fumarate ahead of the blood test? Thanks so much
SleepingDisco
in
Thyroid UK
2 months ago
Advice needed please
Please help, my levo was upped to 125 in January as my symptoms were not easing. My TSH after my blood test last week is now 0.146 mIu/L I saw my dr monday he said carry on with the same meds?? Despite the fact 4 of my nails have lifted from the nail plate, I am exhausted, my joints and muscles ache
Please help, my levo was upped to 125 in January as my symptoms were not easing. My TSH after my blood test last week is now 0.146 mIu/L I saw my dr monday he said carry on with the same meds?? Despite the fact 4 of my nails have lifted from the nail plate, I am exhausted, my joints and muscles ache
Vorney
in
Thyroid UK
2 months ago
Medicheck results – help please
Today I received my results from Medichecks in preparation for my consultation with Roseway Labs next week. I wondered if you kind people could shed some light on the results, I’m a bit confused, especially with my ferritin which is now 429 (30-332) which was 43 (10 – 291) less than a year ago. I’ve
Today I received my results from Medichecks in preparation for my consultation with Roseway Labs next week. I wondered if you kind people could shed some light on the results, I’m a bit confused, especially with my ferritin which is now 429 (30-332) which was 43 (10 – 291) less than a year ago. I’ve
Watamu
in
Thyroid UK
2 months ago
Jevtana
Once again I am asking for any information that can be provided from this great group. Would appreciate any information for Jevtana treatment. At doctor's appt yesterday, my husband's hemoglobin had decreased to 7.6 and he had to have a blood transfusion. His Alkaline Phosphatase went up again. He
Once again I am asking for any information that can be provided from this great group. Would appreciate any information for Jevtana treatment. At doctor's appt yesterday, my husband's hemoglobin had decreased to 7.6 and he had to have a blood transfusion. His Alkaline Phosphatase went up again. He
MsHope
in
Advanced Prostate Cancer
2 months ago
Macrocytic Anemia?
Hi, I am posting here for my Mom. She had blood work every year with perfect results until last year in September when the Hemoglobin/RBC/Hemocrit started dropping. She never had anemia before. In March of this year MCV and MCH started going up and be higher then normal. I took her to a hematologist
Hi, I am posting here for my Mom. She had blood work every year with perfect results until last year in September when the Hemoglobin/RBC/Hemocrit started dropping. She never had anemia before. In March of this year MCV and MCH started going up and be higher then normal. I took her to a hematologist
Simonapo
in
Pernicious Anaemia Society
2 months ago
options after Docetaxel
Hi- I have posted before concerning my brother’s prostate treatment. To give a brief overview- my brother was diagnosed in March 2021. He responded well to Abiraterone for 18 months. Once his PSA starting trending upwards he was put on several sessions of Docetaxel. Unfortunately at this time, he
Hi- I have posted before concerning my brother’s prostate treatment. To give a brief overview- my brother was diagnosed in March 2021. He responded well to Abiraterone for 18 months. Once his PSA starting trending upwards he was put on several sessions of Docetaxel. Unfortunately at this time, he
TerryR123
in
Advanced Prostate Cancer
6 months ago
Advice re first blood tests after adding in T3
How long should I wait before taking my first blood test after adding in T3 and reducing thyroxine? What timings should I follow re taking my meds? I'm currently 5/6 weeks in of adding 5mcg of Roma T3 in hard capsule, which I take at 7am. I take my thyroxine at 11pm. I was taking 6 x125/1x100. Endo
How long should I wait before taking my first blood test after adding in T3 and reducing thyroxine? What timings should I follow re taking my meds? I'm currently 5/6 weeks in of adding 5mcg of Roma T3 in hard capsule, which I take at 7am. I take my thyroxine at 11pm. I was taking 6 x125/1x100. Endo
JUUJOO
in
Thyroid UK
2 months ago
Low Red Blood Cell count and GFR kidney count blamed on PMR. Is this true?
I have just had some blood test results. There are several results which need looking at but someone has added "Normal for this patient". When I have asked before PMR or Pred have been blamed. I took your advice once over breathlessness for example and the GP did further tests. Now the Red Blood
I have just had some blood test results. There are several results which need looking at but someone has added "Normal for this patient". When I have asked before PMR or Pred have been blamed. I took your advice once over breathlessness for example and the GP did further tests. Now the Red Blood
Motida
in
PMRGCAuk
2 months ago
Hobsons
I am at my wits end my ex partner who we are still very close was diagnosed with cerousis of the liver stage 1 he has or had gorndus he was admitted to hospital 4weeks ago and his stomach needed draining because his stomach and feet we very swollen because it was over the weekend they wouldn't do it
I am at my wits end my ex partner who we are still very close was diagnosed with cerousis of the liver stage 1 he has or had gorndus he was admitted to hospital 4weeks ago and his stomach needed draining because his stomach and feet we very swollen because it was over the weekend they wouldn't do it
Hobsons
in
British Liver Trust
2 months ago
My MO suspects that I am non-metastatic, castration resistant but will not approve any treatment until metastases develop.
Gleason 9 at diagnosis, BRACA 2 germline and somatic. RP five years ago but cancer escaped the capsule; PSA of around 2.5 after surgery. Had radiation to pelvic area a few months later along with Eligard injection. Renewed Eligard after 3 months and PSA went down to undetectable. T was close to zero
Gleason 9 at diagnosis, BRACA 2 germline and somatic. RP five years ago but cancer escaped the capsule; PSA of around 2.5 after surgery. Had radiation to pelvic area a few months later along with Eligard injection. Renewed Eligard after 3 months and PSA went down to undetectable. T was close to zero
Balsam01
in
Advanced Prostate Cancer
6 months ago
Supplementing Ferritin/ Folate advice.Hello friends. I have been supplementing B12 for some time. But since
advice.Hello friends. I have been supplementing B12 for some time. But since getting a recent blood test done. I noticed that my Ferritin and Folate were a bit low in range.Ferritin. 166ng/ml [30-26] Folate >20ng/ml [>3.9]. Do you think it would be ok to supplement
advice.Hello friends. I have been supplementing B12 for some time. But since getting a recent blood test done. I noticed that my Ferritin and Folate were a bit low in range.Ferritin. 166ng/ml [30-26] Folate >20ng/ml [>3.9]. Do you think it would be ok to supplement
Everdean
in
Pernicious Anaemia Society
2 months ago
Could increasing Levothyroxine push me into hyperthyroidism
Hello, my TSH level is 2.35, up from 1.49 two years ago. I asked my GP for an increase in Levothyroxine as I felt better when my TSH level was lower. He said I was in the range and if he increased the medication from 100 to 125 he risked pushing me into hyper. Is this correct? I assumed the blood test
Hello, my TSH level is 2.35, up from 1.49 two years ago. I asked my GP for an increase in Levothyroxine as I felt better when my TSH level was lower. He said I was in the range and if he increased the medication from 100 to 125 he risked pushing me into hyper. Is this correct? I assumed the blood test
sabby-c
in
Thyroid UK
2 months ago
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