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My Condition and OP - Update.
Hello all. Was having a lie-in this morning - The phone rang and it was the urology waiting list people. I was informed my op to see if the BCG treatment had worked or not, is scheduled for the 8th of October. I doubt very much the BCG will have worked - I think my urology/oncology nurse thinks
Hello all. Was having a lie-in this morning - The phone rang and it was the urology waiting list people. I was informed my op to see if the BCG treatment had worked or not, is scheduled for the 8th of October. I doubt very much the BCG will have worked - I think my urology/oncology nurse thinks
Ern007
in
Lung Conditions Community Forum
9 months ago
Radiotherapy for pelvic lymph node
Hi all hope you're doing as well s can be! Just wanted to know if anyone has had radiotherapy for pelvic lymph node. I've just had radiotherapy for superclavicular Fosse lymph node near collar bone and in two weeks start radiotherapy on the pelvic node. Im goi g in Wednesday to have the pre radiotherapy
Hi all hope you're doing as well s can be! Just wanted to know if anyone has had radiotherapy for pelvic lymph node. I've just had radiotherapy for superclavicular Fosse lymph node near collar bone and in two weeks start radiotherapy on the pelvic node. Im goi g in Wednesday to have the pre radiotherapy
win_56
in
My Ovacome
9 months ago
Why am I afraid to go to the bathroom?
I’ve been dealing with constipation issues for the past year. I can only attribute it to gettin older - never had any problems before that. I won’t go into the details of what I have tried - I’ve taken lots of great hints from videos and forums; a lot of it seems to work - and then it doesn’t.
I’ve been dealing with constipation issues for the past year. I can only attribute it to gettin older - never had any problems before that. I won’t go into the details of what I have tried - I’ve taken lots of great hints from videos and forums; a lot of it seems to work - and then it doesn’t.
Trudijane
in
IBS Network
9 months ago
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Update after tests,etc
We are at decision time. Since my first posting - all tests completed ( MRI, CT, full body bone, PSMA Pet- they have came back that it hadn’t spread). GL 7 Grade 3 Husband young 58 and active. QofL is high on list. We were all set to go with radiation and went to discuss treatment options and Dr recommended
We are at decision time. Since my first posting - all tests completed ( MRI, CT, full body bone, PSMA Pet- they have came back that it hadn’t spread). GL 7 Grade 3 Husband young 58 and active. QofL is high on list. We were all set to go with radiation and went to discuss treatment options and Dr recommended
Dimples76
in
Advanced Prostate Cancer
9 months ago
PSADT question...plus Xofigo and comorbidities
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
WeatherLook
in
Advanced Prostate Cancer
9 months ago
Kidney Stones
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
Parlorman
in
Advanced Prostate Cancer
9 months ago
Cystitis post endometriosis surgery
Hi, I had stage 3 endometriosis surgery just over 4 months ago. Endo was removed from bowel, bladder, ovaries etc. Prior to my surgery I used to get cystitis only after intercourse which would go away after a course of antibiotics. However, since my surgery I keep on getting cystitis(mostly constantly
Hi, I had stage 3 endometriosis surgery just over 4 months ago. Endo was removed from bowel, bladder, ovaries etc. Prior to my surgery I used to get cystitis only after intercourse which would go away after a course of antibiotics. However, since my surgery I keep on getting cystitis(mostly constantly
Ayesfreen
in
Endometriosis UK
9 months ago
MAJOR CANCER CURE! (yeah, I know it's not PD)
Somehow (and i watch, listen, and skim DOZENS of health videos weekly) i missed this one from a YEAR ago! Even though it is a miracle treatment for "cancer" and not "PD" -- the point is that SCIENCE is working VERY HARD to cure, stop, prevent, slow down ... PD! SO DON'T GIVE UP! ------------------
Somehow (and i watch, listen, and skim DOZENS of health videos weekly) i missed this one from a YEAR ago! Even though it is a miracle treatment for "cancer" and not "PD" -- the point is that SCIENCE is working VERY HARD to cure, stop, prevent, slow down ... PD! SO DON'T GIVE UP! ------------------
PDWarrior1900
in
Cure Parkinson's
9 months ago
cystitisy like feelings
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Hello , I wondered whether anyone has experienced feelings in the bladder and on urination as if they had cystitis , but received a normal urine test ? I have been having this feeling for about a week now , urine sample given at GP’s was normal . I am currently having Avastin 3 weekly and have been
Norelo8
in
My Ovacome
9 months ago
Update on Nuclear Scan and where I am at now.
First: thank you all for the kind support I have received since - Much appreciated. To the Nuclear Scan ordered by my GP for suspect spread from bladder cancer to the bones. I got a call from my GP surgery today telling me Dr wanted to let me know, NO bone cancer found. Thant's one worry gone.
First: thank you all for the kind support I have received since - Much appreciated. To the Nuclear Scan ordered by my GP for suspect spread from bladder cancer to the bones. I got a call from my GP surgery today telling me Dr wanted to let me know, NO bone cancer found. Thant's one worry gone.
Ern007
in
Lung Conditions Community Forum
9 months ago
Neurological processing disorder from bacterial meningitis
morning, I was just wondering if anyone has had any experience with neurological processing disorders please? I went to the hospital recently for an auditory processing disorder but it’s now thought that this is wider neurological processing disorder that I need to be referred to a brain trauma specialist
morning, I was just wondering if anyone has had any experience with neurological processing disorders please? I went to the hospital recently for an auditory processing disorder but it’s now thought that this is wider neurological processing disorder that I need to be referred to a brain trauma specialist
ElephantLover2023
in
Meningitis Now
9 months ago
Pregabalin and Intestinal Cramps
I came off of carbamazepine (due to fixed drug eruptions) and after a while the trigeminal pain reappeared. I started Pregabalin (Lyrica), taking 50mg (two 25mg pills hours apart) for two days and woke with very bad intestinal cramping. Bad enough for me to search and see that some have this and it remits
I came off of carbamazepine (due to fixed drug eruptions) and after a while the trigeminal pain reappeared. I started Pregabalin (Lyrica), taking 50mg (two 25mg pills hours apart) for two days and woke with very bad intestinal cramping. Bad enough for me to search and see that some have this and it remits
coldfeet7
in
Restless Legs Syndrome
9 months ago
Bleeding Prostate
My prostate has been bleeding for the past 5 months. It wasn't a real problem until I started passing sizeable clots and had difficulty starting my flow. Urologist has suggested TURP or radiation after cystoscopy. He highly recommended TURP. Anyone else have this wonderful experience?
My prostate has been bleeding for the past 5 months. It wasn't a real problem until I started passing sizeable clots and had difficulty starting my flow. Urologist has suggested TURP or radiation after cystoscopy. He highly recommended TURP. Anyone else have this wonderful experience?
Clays711
in
Advanced Prostate Cancer
7 months ago
Having Bladder or Bowel Challenges??
Medtronic Interstim Therapy (https://www.medtronic.com/us-en/patients/
conditions
/about-
bladder
-bowel-symptoms.html) Medtronic Bladder Control Therapy works with the sacral nerves, located near the tailbone. The sacral nerves control the bladder and muscles related to urinary function.
Medtronic Interstim Therapy (https://www.medtronic.com/us-en/patients/
conditions
/about-
bladder
-bowel-symptoms.html) Medtronic Bladder Control Therapy works with the sacral nerves, located near the tailbone. The sacral nerves control the bladder and muscles related to urinary function.
ByeByeMS
in
My MSAA Community
11 months ago
immunotherapy
hi there Very low. My midway scans are showing my lymph nodes that grew after my huge debulking surgery in March have not shrunk with the chemotherapy and I have some nodules on peritoneum ( nothing in any organs) So he can’t say that the chemo hasn’t worked in other type cancer but it’s not doing
hi there Very low. My midway scans are showing my lymph nodes that grew after my huge debulking surgery in March have not shrunk with the chemotherapy and I have some nodules on peritoneum ( nothing in any organs) So he can’t say that the chemo hasn’t worked in other type cancer but it’s not doing
Le-gra143
in
My Ovacome
10 months ago
Anyone who split levothyroxine?
Anyone who split their levothyroxine during the day? How do you split and did it affect your TSH and if so did tsh increase or decrease?
Anyone who split their levothyroxine during the day? How do you split and did it affect your TSH and if so did tsh increase or decrease?
lisan1
in
Thyroid UK
10 months ago
Going in for a radical Cystectomy, stopping Biologic.
Hello lovely people. My first six monthly Cystoscopy after getting the all clear from bladder cancer in January showed that the cancer was back with a vengeance. So on Monday I'll be undergoing a Radical Cystectomy. I'm OK and positive with the outlook of living without a bladder and lots of other bits
Hello lovely people. My first six monthly Cystoscopy after getting the all clear from bladder cancer in January showed that the cancer was back with a vengeance. So on Monday I'll be undergoing a Radical Cystectomy. I'm OK and positive with the outlook of living without a bladder and lots of other bits
stbernhard
in
NRAS
10 months ago
Pain around bikini line.
Looking for a possible explanation. Diagnosed Oct 2021. HG serous carcinoma stage 3c peritoneal/ovarian. I am on 4th line chemo carbo/gem ( I have found this the most challenging so far). Debulking was in March 2022 and I recovered extremely well. Since then I had some abdominal cramping just
Looking for a possible explanation. Diagnosed Oct 2021. HG serous carcinoma stage 3c peritoneal/ovarian. I am on 4th line chemo carbo/gem ( I have found this the most challenging so far). Debulking was in March 2022 and I recovered extremely well. Since then I had some abdominal cramping just
NewtonEmma1900
in
My Ovacome
8 days ago
Feeling rough!
Hi, I’m really suffering this evening with so much pain and discomfort and intermittently having to go to the loo. All I can put it down to is earlier I had a fry’s chocolate cream bar . I think it’s the richness of the dark chocolate and fondant cream. I started feeling really bloated and twinges of
Hi, I’m really suffering this evening with so much pain and discomfort and intermittently having to go to the loo. All I can put it down to is earlier I had a fry’s chocolate cream bar . I think it’s the richness of the dark chocolate and fondant cream. I started feeling really bloated and twinges of
JulieB5200
in
IBS Network
9 days ago
If it’s not one thing, it's another! Update
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Following on from the previous post, I had my appointment with the Ophthalmology Surgical Unit yesterday. Basically appeared to be a couple of pre-op tests to take measurements of my eyes. I’ve been given a contact number to call in a day or two to find out where on the waiting list I am. Hopefully
Gulfstream_Maggie
in
Fibromyalgia Action UK
10 months ago
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