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Stress--patience--tapering going well...
I've been reading the forum almost daily but haven't posted, so I thought I'd update. After getting down to 1 mg after four years, in the fall of 2023, I had to go back to 60 mg...mostly other health issues and not really a typical GCA flare. Now, after just three months, I am at 4mg, along with my weekly
I've been reading the forum almost daily but haven't posted, so I thought I'd update. After getting down to 1 mg after four years, in the fall of 2023, I had to go back to 60 mg...mostly other health issues and not really a typical GCA flare. Now, after just three months, I am at 4mg, along with my weekly
Grammy80
in
PMRGCAuk
3 months ago
first time post
Hello all, my tinnitus started around 6 years ago with a few days of pulsatile, which then ended but progressed onto very distant sshhh tinnitus. I have had two bad bouts of bppv ( managed by the figure of 8 manoeuvre) before the tinnitus and no recurrence since the tinnitus arrived. My brother has
Hello all, my tinnitus started around 6 years ago with a few days of pulsatile, which then ended but progressed onto very distant sshhh tinnitus. I have had two bad bouts of bppv ( managed by the figure of 8 manoeuvre) before the tinnitus and no recurrence since the tinnitus arrived. My brother has
Bridiecat
in
Tinnitus UK
3 months ago
Clear Cell Trial Update
Hi everyone, hope you’ve all had better start to the new year than me. In November I completed the first leg of a trial. Beginning of December I developed a blood clot in my heart. For this reason I wasn’t able to continue on the trial because it wasn’t clear if the trial drug caused the clot or the
Hi everyone, hope you’ve all had better start to the new year than me. In November I completed the first leg of a trial. Beginning of December I developed a blood clot in my heart. For this reason I wasn’t able to continue on the trial because it wasn’t clear if the trial drug caused the clot or the
Hidden
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My Ovacome
3 months ago
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Trabeculectomy
(1) On 17th February 2017 I had an operation on my left eye for a cataract extraction with intraocular lens implantation and aqvesys, also known as xen. The operation did not work. (2) On 9th August 2017 (with another surgeon) I had a trabeculectomy op on my left eye. (3) At the end of the month I
(1) On 17th February 2017 I had an operation on my left eye for a cataract extraction with intraocular lens implantation and aqvesys, also known as xen. The operation did not work. (2) On 9th August 2017 (with another surgeon) I had a trabeculectomy op on my left eye. (3) At the end of the month I
Julunder
in
Glaucoma UK
3 months ago
t3 blood test at gp
hi my gp practice has been kindly filling my medichecks container for t3 test when I get my tsh/t4 nhs test done. However now they’ve decided it’s not possible to do private tests. Has anyone taken their gp on over this. It seems crazy that for the 10 seconds it takes to fill one more container I now
hi my gp practice has been kindly filling my medichecks container for t3 test when I get my tsh/t4 nhs test done. However now they’ve decided it’s not possible to do private tests. Has anyone taken their gp on over this. It seems crazy that for the 10 seconds it takes to fill one more container I now
Mag999
in
Thyroid UK
4 months ago
The RLS nightmare
My name is Tim and RLS sucks!!!!! In 2013 i was put on disability because I have flat back syndrome and it has caused chronic pain for over 20 years non stop 24/7 and I am addicted to opioids. On June 20th of this yr I received a dbl laminectomy on my l4 and l5 vertebra and the knife was removed. Now
My name is Tim and RLS sucks!!!!! In 2013 i was put on disability because I have flat back syndrome and it has caused chronic pain for over 20 years non stop 24/7 and I am addicted to opioids. On June 20th of this yr I received a dbl laminectomy on my l4 and l5 vertebra and the knife was removed. Now
Miloboy23
in
Restless Legs Syndrome
4 months ago
Advice on where to get blood tests done privately
Hi all, I hope you can help with my query. I've always had issues with T4 but after a good few years of a boost on dessicated thyroid (Erfa) the weight is piling on again. My private doctor has recommended I get the following tested but I'm struggling to find a company that can test my fasting glucose
Hi all, I hope you can help with my query. I've always had issues with T4 but after a good few years of a boost on dessicated thyroid (Erfa) the weight is piling on again. My private doctor has recommended I get the following tested but I'm struggling to find a company that can test my fasting glucose
Tiredofthis77
in
Thyroid UK
4 months ago
Leflunomide, Mycophenolate, Azathioprine instead of TCZ, that was the question
Thanks for your help in answering this question. It seems Leflunomide is the only real contender. So much so that my cynical self wonders if the other two are only there to give the illusion of choice! Any more info about your experience of Leflunomide is very welcome. Not rushing into anything, and
Thanks for your help in answering this question. It seems Leflunomide is the only real contender. So much so that my cynical self wonders if the other two are only there to give the illusion of choice! Any more info about your experience of Leflunomide is very welcome. Not rushing into anything, and
Japsquar
in
PMRGCAuk
4 months ago
Living with Long Covid but now Tinnitus too!
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
Hello everybody, I am new to this site today and have spoken to a very helpful gentleman on the helpline. I have had Long Covid subsequent to catching Covid in April and November 2020 and January 2022. One of the major problems for me is fatigue which is very debilitating. I usually have nausea with
santosha72
in
Tinnitus UK
4 months ago
GI BLEED
Had small gi bleed 16mths ago increased omoprazole for 8wks & had repeat endoscopy everything ok.Had stomach bug 2 wks ago & stool was partly black which got less over 2days & now ok, so think i may have had another bleed even with omeprazole 20mg morning & night. Also seem to be having loose stools
Had small gi bleed 16mths ago increased omoprazole for 8wks & had repeat endoscopy everything ok.Had stomach bug 2 wks ago & stool was partly black which got less over 2days & now ok, so think i may have had another bleed even with omeprazole 20mg morning & night. Also seem to be having loose stools
Fybo
in
IBS Network
4 months ago
omeprazole at night
I take 20 mg of Omeprazole before breakfast under instruction from my GP although I have not suffered from acid reflux/ heartburn. I do however suffer from a hoarse voice which I was told by others who have the same that it may be “silent reflux” which is where the stomach acid is pushed up into the
I take 20 mg of Omeprazole before breakfast under instruction from my GP although I have not suffered from acid reflux/ heartburn. I do however suffer from a hoarse voice which I was told by others who have the same that it may be “silent reflux” which is where the stomach acid is pushed up into the
Nanatoo
in
PMRGCAuk
4 months ago
Advice on statins and vascular atheroma please
Story so far.... Had a recent hospitalisation in Cyprus for a problem unconnected to the thyroid (acute diverticular episode after 30 years of no major issues) which resulted in me having to have a CT scan when I returned from holiday. The scan was OK on the original issue, nothing sinister revealed
Story so far.... Had a recent hospitalisation in Cyprus for a problem unconnected to the thyroid (acute diverticular episode after 30 years of no major issues) which resulted in me having to have a CT scan when I returned from holiday. The scan was OK on the original issue, nothing sinister revealed
ATVMWF
in
Thyroid UK
4 months ago
Post nasal drip
Greetings from VERY COLD Ohio. Does anyone have issues with chronic post nasal drip due to CLL? I do t know if I'm just hyper aware now or what..I know I've had this issue prior to be diagnosed and my pcp just said it was due to vasomotor rhinitis...but it seems like it never gets better..no infections
Greetings from VERY COLD Ohio. Does anyone have issues with chronic post nasal drip due to CLL? I do t know if I'm just hyper aware now or what..I know I've had this issue prior to be diagnosed and my pcp just said it was due to vasomotor rhinitis...but it seems like it never gets better..no infections
ANewMe2024
in
CLL Support
4 months ago
ra associated eye ulcers
hi everyone, I posted in this community quite a while ago about an ulcer in my eye which the rheumatologist said was caused by the ra. At the time, I was given some very helpful advice and information by Kags1068. Since then, I have had 4 more ulcers (my eyes take it in turns), and am currently in week
hi everyone, I posted in this community quite a while ago about an ulcer in my eye which the rheumatologist said was caused by the ra. At the time, I was given some very helpful advice and information by Kags1068. Since then, I have had 4 more ulcers (my eyes take it in turns), and am currently in week
Emye343
in
NRAS
4 months ago
Mr Alan M
I have been missed diagnosed with liver disease for years I believe that I am still around because I do not drink and I am quite strict with my diet etc. I have also taken a lot of over the counter medication for liver disease. I believe that the disease has been caused by DILI / prescribed medication
I have been missed diagnosed with liver disease for years I believe that I am still around because I do not drink and I am quite strict with my diet etc. I have also taken a lot of over the counter medication for liver disease. I believe that the disease has been caused by DILI / prescribed medication
TillySyd
in
British Liver Trust
4 months ago
Devices to wear in case I fall.
I am looking at wearing a device for if I fall whilst alone. Over the last few years I have had three falls where I haven’t tripped. Tiny blackout. Also a few weeks ago I had severe dizziness/vertigo with sickness high blood pressure and tinnitus. Rang 999 and was taken to hospital. Within a few
I am looking at wearing a device for if I fall whilst alone. Over the last few years I have had three falls where I haven’t tripped. Tiny blackout. Also a few weeks ago I had severe dizziness/vertigo with sickness high blood pressure and tinnitus. Rang 999 and was taken to hospital. Within a few
5lupins
in
PMRGCAuk
4 months ago
Waiting and Wondering
Hello everyone. I'm a 61 year old male and I started experiencing tinnitus in my left ear around July of 2023. In December of 2023 I began experiencing irregular/occasional bouts of dizziness which would last an hour or so then go recede. In January 2024 the occasional bouts of dizziness continue
Hello everyone. I'm a 61 year old male and I started experiencing tinnitus in my left ear around July of 2023. In December of 2023 I began experiencing irregular/occasional bouts of dizziness which would last an hour or so then go recede. In January 2024 the occasional bouts of dizziness continue
murphyzlaw
in
Acoustic Neuroma Support
4 months ago
10k or bust
this week my daughter and I decided we will run the Rotherham 10k on May 19th. Every year we as a family raise money for the hospital special baby care unit. This is because my 2nd granddaughter died there aged 7 weeks of sepsis. Ironically the same thing that killed my wife. So today I walked 10k!
this week my daughter and I decided we will run the Rotherham 10k on May 19th. Every year we as a family raise money for the hospital special baby care unit. This is because my 2nd granddaughter died there aged 7 weeks of sepsis. Ironically the same thing that killed my wife. So today I walked 10k!
Kevin1604
in
Couch to 5K
4 months ago
Does anyone have any feedback on Wegener's Gramgranulomatosis?
I have Wegener's and it has primarily affected my eyes and lungs. I've been on rituximab and 25mg methotrexate for two years but I have a host of issues from taking the rituximab.
I have Wegener's and it has primarily affected my eyes and lungs. I've been on rituximab and 25mg methotrexate for two years but I have a host of issues from taking the rituximab.
Youelbeverly
in
NRAS
4 months ago
Diagnosis
Hello, my first post 😁 I have had Tinnitus for many years. I live with it and I cope well most of the time. No one has ever looked at my ears apart from my GP. He looked in my ears and said 'yes you just have a bit of wax' you probably have Tinnitus' I complain of pain I frequently get in my right
Hello, my first post 😁 I have had Tinnitus for many years. I live with it and I cope well most of the time. No one has ever looked at my ears apart from my GP. He looked in my ears and said 'yes you just have a bit of wax' you probably have Tinnitus' I complain of pain I frequently get in my right
Idontknow71
in
Tinnitus UK
4 months ago
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