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BCG Finished - CT SCAN - UPDATE.
First the good news - My CT scan result I was told in clinic today shows the 6mm growth has not moved - Further scan in 6 months. So one thing for now off my mind.. So I had my last BCG of the course today, glad in a way but hope I may get back on it despite the warts with it. So in six weeks
First the good news - My CT scan result I was told in clinic today shows the 6mm growth has not moved - Further scan in 6 months. So one thing for now off my mind.. So I had my last BCG of the course today, glad in a way but hope I may get back on it despite the warts with it. So in six weeks
Ern007
in
Lung Conditions Community Forum
9 months ago
Thoughts please
I hope this post is not too long but it's hard to fully explain. I have had severe RLS for 30 years - it started during pregnancy but unfortunately never left and has only worsened over the years. I feel like I have been on every drug with minimal help. I take 0.5 which I went through augmentation
I hope this post is not too long but it's hard to fully explain. I have had severe RLS for 30 years - it started during pregnancy but unfortunately never left and has only worsened over the years. I feel like I have been on every drug with minimal help. I take 0.5 which I went through augmentation
AnnMB
in
Restless Legs Syndrome
9 months ago
How do you take a double dose of desogestrel?
Hello, my gynaecologist has recommended I double the dose of my mini pill to try and reduce pain and stop my constant bleeding. I've struggled to find information on the best way of doing this - am I best taking one every 12 hours (eg. One at 9am and one at 9pm) or am I better off taking 2 at the same
Hello, my gynaecologist has recommended I double the dose of my mini pill to try and reduce pain and stop my constant bleeding. I've struggled to find information on the best way of doing this - am I best taking one every 12 hours (eg. One at 9am and one at 9pm) or am I better off taking 2 at the same
hangod
in
Endometriosis UK
4 months ago
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Advice needed
I am just getting over a bout of cystitis l which I was prescribed antibiotics for. I had the usual symptoms, urge to urinate and burning/ stinging sensation when I went. I started the 3 day course on Tuesday afternoon and was feeling a whole lot better last night, but today I am feeling very sore
I am just getting over a bout of cystitis l which I was prescribed antibiotics for. I had the usual symptoms, urge to urinate and burning/ stinging sensation when I went. I started the 3 day course on Tuesday afternoon and was feeling a whole lot better last night, but today I am feeling very sore
MudefordBabe
in
BASHH
9 months ago
Side effects of nefopam sweats
Recently been put on nefopam due to night pains because of hip and back pain. Does anyone else suffer sweats from nefopam? I'm trying to rule them out as on other meds too.
Recently been put on nefopam due to night pains because of hip and back pain. Does anyone else suffer sweats from nefopam? I'm trying to rule them out as on other meds too.
Jackieginger44
in
Pain Concern
2 months ago
Aha - Highs & Lows
Hello peeps. I have recently between 1&2 months ago increased my levothyroxine from 75mg to 100mg.Thing is I've started having days where I'm extremely high and very excitable (euphoric) followed by very low days (feel sad & tearful) and exhaustion. The low mood days take me by surprise almost and it's
Hello peeps. I have recently between 1&2 months ago increased my levothyroxine from 75mg to 100mg.Thing is I've started having days where I'm extremely high and very excitable (euphoric) followed by very low days (feel sad & tearful) and exhaustion. The low mood days take me by surprise almost and it's
Totoro25
in
Thyroid UK
9 months ago
A update on treatment/ and more.
I went for number two of a short three BCG course for my BC. The liquid BCG is inserted into bladder from a huge syringe into a catheter. A student nurse was present and my Urology Nurse a=said to het I had Muscle Invasive Bladder Cancer. news to me, I said and don't know why - I will now
I went for number two of a short three BCG course for my BC. The liquid BCG is inserted into bladder from a huge syringe into a catheter. A student nurse was present and my Urology Nurse a=said to het I had Muscle Invasive Bladder Cancer. news to me, I said and don't know why - I will now
Ern007
in
Lung Conditions Community Forum
9 months ago
Gemzar Side Effects
Does anyone else experience any extreme back pain and/or pain under the breast bone with Gemzar?
Does anyone else experience any extreme back pain and/or pain under the breast bone with Gemzar?
TealBlooms
in
My Ovacome
9 months ago
Potential Endo
Hey everyone!! This is a long post so i apologise. So I’ve only just discovered this page exists and i’m so glad because nobody around me understands this horrible pain i’m in!! So this has been on going for me since November last year. I was at work , needed the toilet all of a sudden so urgently
Hey everyone!! This is a long post so i apologise. So I’ve only just discovered this page exists and i’m so glad because nobody around me understands this horrible pain i’m in!! So this has been on going for me since November last year. I was at work , needed the toilet all of a sudden so urgently
emeraldlove
in
Endometriosis UK
9 months ago
Medication check
Hi everyone, I have a question for Sue and Jools as just left Doctors and wanted to check if the meds she's given me will be OK to take with RLS. I have had no choice but to go back on some tablets nd increase one, but have told her I did not want Statins again, she has given me Fenofibrate 200mg daily
Hi everyone, I have a question for Sue and Jools as just left Doctors and wanted to check if the meds she's given me will be OK to take with RLS. I have had no choice but to go back on some tablets nd increase one, but have told her I did not want Statins again, she has given me Fenofibrate 200mg daily
Cobobay
in
Restless Legs Syndrome
4 months ago
LDN and Primary Sclerosing Cholangitis?
So my husband’s Hepatologist said his MRI looks like PSC. We know he has parasites because he’s been flushing them out like crazy. So we aren’t sure which came first. Anyone know if LDN can help?
So my husband’s Hepatologist said his MRI looks like PSC. We know he has parasites because he’s been flushing them out like crazy. So we aren’t sure which came first. Anyone know if LDN can help?
TruthWillSetUFree
in
LDN Research Trust
9 months ago
PMR resurgence
I’ve just finished a course of antibiotics for a bladder infection so am going for a fresh set of bloods, urine and poo today to try to establish if PMR has returned. It certainly feels like it! Since completing a 950km bike ride in France over 11 days I have been absolutely floored. I started
I’ve just finished a course of antibiotics for a bladder infection so am going for a fresh set of bloods, urine and poo today to try to establish if PMR has returned. It certainly feels like it! Since completing a 950km bike ride in France over 11 days I have been absolutely floored. I started
Mervetheswerve
in
PMRGCAuk
10 months ago
An Update - In Part.
As you all know I have Bladder Cancer among my long standing ailments. The cancer is aggressive but not spread yet as far as I know.. It is Cancer in site - None muscle invasive but the cancer can become invasive. I have been on BCG Treatment - The last was a 6 week course direct into my bladder
As you all know I have Bladder Cancer among my long standing ailments. The cancer is aggressive but not spread yet as far as I know.. It is Cancer in site - None muscle invasive but the cancer can become invasive. I have been on BCG Treatment - The last was a 6 week course direct into my bladder
Ern007
in
Lung Conditions Community Forum
10 months ago
anismus
I have chronic constipation. I think it is casued by various muscles not relaxing as the symptoms fit what I have read online. There are vaious names for this, anismus, dysssergenic defaecation and obstruced defaecation. I looked on this site and this is one of the groups that seems appropriate to post
I have chronic constipation. I think it is casued by various muscles not relaxing as the symptoms fit what I have read online. There are vaious names for this, anismus, dysssergenic defaecation and obstruced defaecation. I looked on this site and this is one of the groups that seems appropriate to post
Grassmower
in
IBS Network
1 month ago
IBS. Possible internal bowel prolapse,inturrssusception or bowel / bladder intracele
hi, I’m new here and this is my first post( spend a lot of time on fibro & auto immune site!) I’m having an awful time of it bowel wise atm… and for som 24 months or more but so much so that I’ve actually paid and seen a private colorectal surgeon( female) I have this weird awful sensation of constantly
hi, I’m new here and this is my first post( spend a lot of time on fibro & auto immune site!) I’m having an awful time of it bowel wise atm… and for som 24 months or more but so much so that I’ve actually paid and seen a private colorectal surgeon( female) I have this weird awful sensation of constantly
Beakybird58
in
IBS Network
2 months ago
Dense adhesions after 15 surgeries, + 2 rare medical conditions
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
At the age of 25, my life changed forever. After 4 years, 2 surgeries and no diagnosis, as to what the problems was, I eventually found out I had multiple intestinal lipomatosis and Ehlers Danlos Syndrome. Ileostomy formed 1996. 13 more surgeries have performed. Due to absorption problems, + major
Eegmetem
in
Pelvic Pain Support Network
2 months ago
sectioned
hi I am new to here, my husband had a traumatic brain injury last august an has been in hospital and most recently rehab. I was told the Gp has asked for a mental health assessment and ordered a section 3 due to his agitation and aggression the rehab have told me they are not meeting his needs which
hi I am new to here, my husband had a traumatic brain injury last august an has been in hospital and most recently rehab. I was told the Gp has asked for a mental health assessment and ordered a section 3 due to his agitation and aggression the rehab have told me they are not meeting his needs which
T-88
in
Headway
10 months ago
Bad urgency with little result
Hi all, I have Proctitis and IBS.My IBS has severely flared up this week,I have not been for a poo for 5 days. ive been experiencing really bad urgency but only the size of my little finger watery poo comes out and causing pain in my bum. Im on Biscopyl and Pentasa suppositories for inflammation. Can
Hi all, I have Proctitis and IBS.My IBS has severely flared up this week,I have not been for a poo for 5 days. ive been experiencing really bad urgency but only the size of my little finger watery poo comes out and causing pain in my bum. Im on Biscopyl and Pentasa suppositories for inflammation. Can
AGB111
in
IBS Network
2 months ago
When to test?
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
3 months ago
Blood in cather
Hello everyone, I am posting today for my father who was diagnosed with advanced prosate cancer in March of 2020 with a PSA of 6700 .. He is been taking eligard every 6 months and this PSA has been stable to 0.5. He has a very enlarged prostrate but is refusing to do the TURP so he is been using the
Hello everyone, I am posting today for my father who was diagnosed with advanced prosate cancer in March of 2020 with a PSA of 6700 .. He is been taking eligard every 6 months and this PSA has been stable to 0.5. He has a very enlarged prostrate but is refusing to do the TURP so he is been using the
naples2021
in
Advanced Prostate Cancer
10 months ago
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