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Chemo question
Hello everyone, I was diagnosed with stage 4 ovarian cancer a couple days before last Christmas so I am early in my journey and feeling very scared and discouraged. Since my tumor is too large, I can’t have surgery yet. I had my first taxol/carboplatin treatment last week. I had an allergic reaction
Hello everyone, I was diagnosed with stage 4 ovarian cancer a couple days before last Christmas so I am early in my journey and feeling very scared and discouraged. Since my tumor is too large, I can’t have surgery yet. I had my first taxol/carboplatin treatment last week. I had an allergic reaction
Buster98
in
My Ovacome
6 months ago
Genetic Testing?
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
Does anyone have an experience to share about getting genetic testing done on your biopsy samples? I'm interested in three tests: (1) a DECIPHER test, (2) a full gene sequencing of tumor DNA and RNA (e.g., at Claris Labs), and (3) the Artera AI analysis of digitized pathology slides. Also, if anyone
janebob99
in
Prostate Cancer Network
7 months ago
Maybe an alternative to Nattokinase et al, though not yet
Free link to WSJ article https://www.wsj.com/health/pharma/blood-thinners-prevent-clots-bleeding-abd9fdae?st=ofx7h2a2im27x9c&reflink=desktopwebshare_permalink I will study later, but the chemistry is probably beyond me and, anyway, it is not yet available. Factor XI, it turns out, is crucial for
Free link to WSJ article https://www.wsj.com/health/pharma/blood-thinners-prevent-clots-bleeding-abd9fdae?st=ofx7h2a2im27x9c&reflink=desktopwebshare_permalink I will study later, but the chemistry is probably beyond me and, anyway, it is not yet available. Factor XI, it turns out, is crucial for
cigafred
in
Fight Prostate Cancer
5 months ago
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Anal fissure
Hi,just wondering if anyone had to take time off work due to pain from anal fissure?I've had incredible pain and was prescribed rectogesic for the next 6weeks...I'm wondering how I can manage work as the pain has been unbearable..thanks
Hi,just wondering if anyone had to take time off work due to pain from anal fissure?I've had incredible pain and was prescribed rectogesic for the next 6weeks...I'm wondering how I can manage work as the pain has been unbearable..thanks
Dubher
in
IBS Network
5 months ago
My Stuffy Head
Current Trial; Inject 1.5mg hydroxocobalamin, 1mg adenosylcobalamin, 1.5mg methylcobalamin 5 times a day including setting an alarm to inject at night to prevent my body from a period of time without enough B12 available for healing. 50 mg of B6 in the form of P-5-P twice a day to prevent B6 deficiency
Current Trial; Inject 1.5mg hydroxocobalamin, 1mg adenosylcobalamin, 1.5mg methylcobalamin 5 times a day including setting an alarm to inject at night to prevent my body from a period of time without enough B12 available for healing. 50 mg of B6 in the form of P-5-P twice a day to prevent B6 deficiency
WIZARD6787
in
Pernicious Anaemia Society
5 months ago
Suppression of TSH but low T4/T3 levels whilst taking Levo/Lio Combo
A few years ago, my thyroid results were looking a lot better but NHS GP over the last 2 years has told me to reduce my dosage twice (because of the 'risks' of overtreatment). I'm now on 100mcg levothyroxine (75mcg supplied by GP and topped up by myself) and 25mcg liothyronine (self-sourced). I now don't
A few years ago, my thyroid results were looking a lot better but NHS GP over the last 2 years has told me to reduce my dosage twice (because of the 'risks' of overtreatment). I'm now on 100mcg levothyroxine (75mcg supplied by GP and topped up by myself) and 25mcg liothyronine (self-sourced). I now don't
Louise1610
in
Thyroid UK
5 months ago
lung nodule / proposed surgery / scared and confused
Hello, thank you for this site. My best to all on this site for health and happiness. I’m not even sure where I may be at on this journey but am certainly scared and confused . In March of 2022 I had a kidney stone and a lung nodule was detected on right lower lobe and suggested follow up in 3 -6 months
Hello, thank you for this site. My best to all on this site for health and happiness. I’m not even sure where I may be at on this journey but am certainly scared and confused . In March of 2022 I had a kidney stone and a lung nodule was detected on right lower lobe and suggested follow up in 3 -6 months
ghostyinmass
in
Lung Cancer Support
7 months ago
Update finally on treatment
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
Hello ladies and gentlemen, I am finally on treatment, it took nearly 4 months from dx to treatment (due to moving from South Carolina to Seattle area). I am on Ibrance (Dec. 13th) and letrozole (Nov. 16th). And I am on palliative care for pain management since I have neuropathy in my left arm and hand
monkeygirl62
in
SHARE Metastatic Breast Cancer
7 months ago
Does anyone with LUPUS get reoccurring Shingles/ Herpes Zoster infections?
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
So I am waiting to be diagnosed with Lupus/ Mix Connective Tissue Disease. I have a lot of the symptoms for lupus like the face rash, other rashes on my body. Severing from fatigue, mouth ulcers really bad migraines. My body gets swollen and holds a lot of fluid. Joint pain as well as stomach issues.
Severancered9
in
LUPUS UK
4 months ago
Update following meeting with MO
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
For those following my journey, I had a face-to-face meeting with my MO today and learnt a few things I didn't know. Firstly, the genetic test of the liver tumour the NHS do only tests for BRCA - no other genes. The reason appears to be that the only treatment they would offer is a Parp inhibitor so
Benkaymel
in
Advanced Prostate Cancer
7 months ago
How bad are these PSMA Pet Scan Results?
My second post. Just got my PSMA results back. 48 years old. PSA is 100. 12 Biopsies all show cancer. Mostly 4+3's two of them 4+4's.What do you think ? My appointment with MO is not till Wednesday. What do think he will offer as treatment method ? I'm just worried and concerned.
My second post. Just got my PSMA results back. 48 years old. PSA is 100. 12 Biopsies all show cancer. Mostly 4+3's two of them 4+4's.What do you think ? My appointment with MO is not till Wednesday. What do think he will offer as treatment method ? I'm just worried and concerned.
hiker75
in
Advanced Prostate Cancer
8 months ago
Please help 🙏
Hello everyone. Same old story. I booked my 3 monthly b12 injection I've been having for past 15 years. Gp says no more & did blood tests. FBC normal apart from low WBC 1.3. B12 high but low iron. No idea why b12 injections were started in the first place just that my level was 130. I attach his
Hello everyone. Same old story. I booked my 3 monthly b12 injection I've been having for past 15 years. Gp says no more & did blood tests. FBC normal apart from low WBC 1.3. B12 high but low iron. No idea why b12 injections were started in the first place just that my level was 130. I attach his
Irismay
in
Pernicious Anaemia Society
5 months ago
HCCsurgery
I am interested in the pros and cons of liver surgery for a small single primary HCC versus chemotherapy.
I am interested in the pros and cons of liver surgery for a small single primary HCC versus chemotherapy.
LittleMeadow
in
British Liver Trust
8 months ago
Celiac disease or Endo?
Hey girls I hope yous all are well which is probably a silly thing too say when you are all living with a horrible disease. I've went down the terrible rabbit hole off googling non stop from last week and doing alot off research. Firstly if anyone suffers with recurrent UTIs are has IC then I highly
Hey girls I hope yous all are well which is probably a silly thing too say when you are all living with a horrible disease. I've went down the terrible rabbit hole off googling non stop from last week and doing alot off research. Firstly if anyone suffers with recurrent UTIs are has IC then I highly
KB1987
in
Endometriosis UK
5 months ago
Eczema
Hello! My 18-week old daughter was diagnosed with baby eczema last month. Her dad has eczema too. We have been on and off the steroid cream since :( Any tips on how to manage it and what has worked best for your little ones? I am off dairy, eggs and soy, also gluten-intolerant so no wheat and oats either
Hello! My 18-week old daughter was diagnosed with baby eczema last month. Her dad has eczema too. We have been on and off the steroid cream since :( Any tips on how to manage it and what has worked best for your little ones? I am off dairy, eggs and soy, also gluten-intolerant so no wheat and oats either
Eloquentia
in
Pregnancy and Parenting Support
8 months ago
Terrified
47 years old. I had knee surgery almost 2 weeks ago and after the surgery I took the prescribed narcotics for 4 days. Every time I take these I get constipated. I started taking stool softeners (colace) and after a week nothing. I did a Fleet enema and finally 9 days after surgery I had a BM and it was
47 years old. I had knee surgery almost 2 weeks ago and after the surgery I took the prescribed narcotics for 4 days. Every time I take these I get constipated. I started taking stool softeners (colace) and after a week nothing. I did a Fleet enema and finally 9 days after surgery I had a BM and it was
djroo
in
Colon Cancer Connected
5 months ago
potential colorectal cancer
Hi, I am 23 and currently stressing whilst awaiting my colonoscopy. About a year about I started seeing blood in my stool. It would cause the water to go red and be intertwined with the stool. I have always been told I suffer from IBS and intolerant to wheat and gluten. For over a year and a
Hi, I am 23 and currently stressing whilst awaiting my colonoscopy. About a year about I started seeing blood in my stool. It would cause the water to go red and be intertwined with the stool. I have always been told I suffer from IBS and intolerant to wheat and gluten. For over a year and a
Sheldomtheshrimp
in
Colon Cancer Connected
5 months ago
Hoping for some coping advice
Hi all, I’ve suffered with IBS for years, had colonoscopy, endoscopy and CT scan end 2021, all clear. Recently had proctitis (treated well) but now my bowels have gone crazy and new feelings I’ve never had!! Really bad bloating, gurgling, stomach cramps pain under left rib, going into back. IBS -
Hi all, I’ve suffered with IBS for years, had colonoscopy, endoscopy and CT scan end 2021, all clear. Recently had proctitis (treated well) but now my bowels have gone crazy and new feelings I’ve never had!! Really bad bloating, gurgling, stomach cramps pain under left rib, going into back. IBS -
Dh19
in
IBS Network
5 months ago
wegovy
hi has anyone used wegovy. As a weight loss drug and found it to have a negative impact on PA ? I have some atrophic gastritis and get pain from time to time and I’m tempted to try the wegovy but don’t want to further irritate my guts or compound problems.
hi has anyone used wegovy. As a weight loss drug and found it to have a negative impact on PA ? I have some atrophic gastritis and get pain from time to time and I’m tempted to try the wegovy but don’t want to further irritate my guts or compound problems.
lifegems
in
Pernicious Anaemia Society
5 months ago
A Bladder Cancer Update.
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
I got a telephone call early this morning, I was still in bed. Was a woman offering me a place in a Private Hospital for A 'FLEXY CYSTOSCOPY' Good news but the hospital was miles away in Preston, in fact the other side. So I asked her could I not get in at my local hospital - She then started talking
Ern007
in
Lung Conditions Community Forum
8 months ago
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