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Biliary atresia
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another pharma update
It is being used for treatment in PBC,
biliary
atresia
(in children) , PSC, Alagille Syndrome, and Primary Familial Cholestasis. With patients taking Urso, often up to 40% do not see improvement. 3-5% of patients can't take it for various reasons.
It is being used for treatment in PBC,
biliary
atresia
(in children) , PSC, Alagille Syndrome, and Primary Familial Cholestasis. With patients taking Urso, often up to 40% do not see improvement. 3-5% of patients can't take it for various reasons.
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
biliary atresia post kasai at 102 days after born
my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 cycle of steroids with prednisolone, before the surgery it was T bilirubin 7,4 and D bilirubin 5,6 , after one week of surgery it decreased to t bilirubin 4,2 d bilirrubin 3,2 . Then in one week got t bilirubin 4,5 and d
my baby is now 50 days post kasai, in Japan Juntendo hospital shizuoka, is on 4 cycle of steroids with prednisolone, before the surgery it was T bilirubin 7,4 and D bilirubin 5,6 , after one week of surgery it decreased to t bilirubin 4,2 d bilirrubin 3,2 . Then in one week got t bilirubin 4,5 and d
Babyjunten
in
Children's Liver Disease Foundation
11 months ago
Chances of not Biliary Atresia
Hi! I am a mother of a 3 month old boy. we found out that his direct bilirubin was high ( GGT normal) when he was 3 weeks old. Since then several repeat labs were done specifically Liver enzymes. US looks normal. But his liver e zymes are high. BUT then it started to decrease, direct bilirubin from
Hi! I am a mother of a 3 month old boy. we found out that his direct bilirubin was high ( GGT normal) when he was 3 weeks old. Since then several repeat labs were done specifically Liver enzymes. US looks normal. But his liver e zymes are high. BUT then it started to decrease, direct bilirubin from
Hope1222
in
Children's Liver Disease Foundation
1 year ago
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Daughter was born with
Biliary
atresia
and had a liver transplant a year and a half ago.
Daughter was born with
Biliary
atresia
and had a liver transplant a year and a half ago.
Ducks123
in
Children's Liver Disease Foundation
2 years ago
Biliary Atresia
My daughter had a Kasai procedure a little over a month ago. We noticed today her stool went from bright yellow to pale cream. No temperature, normal appetite and very active. GGT levels fluctuate from 252 to 180 to 352. Could GGT be a factor? Anybody else have experienced a similar case? Did you require
My daughter had a Kasai procedure a little over a month ago. We noticed today her stool went from bright yellow to pale cream. No temperature, normal appetite and very active. GGT levels fluctuate from 252 to 180 to 352. Could GGT be a factor? Anybody else have experienced a similar case? Did you require
Gotita0505
in
Children's Liver Disease Foundation
2 years ago
Which enzyme is more elevated in biliary atresia?
Which enzyme is more elevated in
biliary
atresia
?
Which enzyme is more elevated in
biliary
atresia
?
duck554
in
Children's Liver Disease Foundation
3 years ago
New to the site
Hi, I'm new to this site although registered for the CLL site. I'm a 72 yr old male with a history of high blood glucose and on metformin 500mg x2. In May of 2020 I began treatment for CLL which included both infusion (obinutuzumab) and oral (venetoclax) meds. Just after starting the infusions which
Hi, I'm new to this site although registered for the CLL site. I'm a 72 yr old male with a history of high blood glucose and on metformin 500mg x2. In May of 2020 I began treatment for CLL which included both infusion (obinutuzumab) and oral (venetoclax) meds. Just after starting the infusions which
marrix
in
Diabetes Support
3 years ago
How long it is safe to use prednisone for children of 6 month weighing 3.6 kg
My son undergone surgery for
biliary
atresia
. After surgery his direct bilirubin reached up to 3 but then fluctuated back to 6.5 . My doctor has prescribed him omnacortil 5 mg / 5 ml syrup from last 2 month maximum dose being 7 ml per day and reducing slowly at ten days interval .
My son undergone surgery for
biliary
atresia
. After surgery his direct bilirubin reached up to 3 but then fluctuated back to 6.5 . My doctor has prescribed him omnacortil 5 mg / 5 ml syrup from last 2 month maximum dose being 7 ml per day and reducing slowly at ten days interval .
Brahmatv
in
Children's Liver Disease Foundation
3 years ago
Reflux cholangitis
My daughter was diagnosed with
Biliary
atresia
and had the Kasai producer. At the age 2 she had a liver transplant at Birmingham Children’s hospital.
My daughter was diagnosed with
Biliary
atresia
and had the Kasai producer. At the age 2 she had a liver transplant at Birmingham Children’s hospital.
Passion123456
in
Children's Liver Disease Foundation
3 years ago
NHS Organ Donation - Erin’s story
She was diagnosed with
biliary
atresia
, a rare liver disease requiring specialist surgery. “Erin had the surgery and recovered but we were told it would be six months before we would know if it had been completely successful.
She was diagnosed with
biliary
atresia
, a rare liver disease requiring specialist surgery. “Erin had the surgery and recovered but we were told it would be six months before we would know if it had been completely successful.
Richard-Allen
in
British Liver Trust
3 years ago
High blood sugars
Hi, I have had type 1 diabetes for a couple of years I am now on insulin tresiba 18 units, since Xmas my levels have been high 19/20 constantly the diabetic nurse has also put me on novarapid 4 units 3 times a day which didn't help, im now on 10 units and my blood sugar readings are still very high
Hi, I have had type 1 diabetes for a couple of years I am now on insulin tresiba 18 units, since Xmas my levels have been high 19/20 constantly the diabetic nurse has also put me on novarapid 4 units 3 times a day which didn't help, im now on 10 units and my blood sugar readings are still very high
kazzy22
in
Diabetes Research & Wellness Foundation
4 years ago
Bilirubin levels not declining after Kasai procedure for Biliary Atresia procedure 1 week ago
Bilirubin levels not declining after Kasai procedure for
Biliary
Atresia
procedure 1 week ago. The liver continues to be damaged and another surgery may be needed. Has anyone else successfully gone through this???
Bilirubin levels not declining after Kasai procedure for
Biliary
Atresia
procedure 1 week ago. The liver continues to be damaged and another surgery may be needed. Has anyone else successfully gone through this???
hil5usa
in
Children's Liver Disease Foundation
4 years ago
What’s the recovery after post kasai surgery
Surgeon said that if we were to catch her
biliary
atresia
early when she was 6-8 weeks there would’ve been a different treatment instead of the Kasai. But unfortunately she needed the Kasai. So they did the Kasia a week after we been hospitalized. Everything went great I thought.
Surgeon said that if we were to catch her
biliary
atresia
early when she was 6-8 weeks there would’ve been a different treatment instead of the Kasai. But unfortunately she needed the Kasai. So they did the Kasia a week after we been hospitalized. Everything went great I thought.
tia_80
in
Children's Liver Disease Foundation
4 years ago
How is my baby's chances of Biliary Atresia
How is my baby's chances of
Biliary
Atresia
Hi can any one comment on these results? Results taken on 5th week My baby GGT went down to 150 last week (6th week), but doctors still dun want to rule out BA. And want to proceed with HIDA scan.
How is my baby's chances of
Biliary
Atresia
Hi can any one comment on these results? Results taken on 5th week My baby GGT went down to 150 last week (6th week), but doctors still dun want to rule out BA. And want to proceed with HIDA scan.
zergju
in
Children's Liver Disease Foundation
4 years ago
Itching problem
Hi my son 6 years old with
biliary
atresia
operated with kasai procedure and he has terrible itching problem. He wakes up during the night because of the problems please any help!!!
Hi my son 6 years old with
biliary
atresia
operated with kasai procedure and he has terrible itching problem. He wakes up during the night because of the problems please any help!!!
Blue2211
in
Children's Liver Disease Foundation
4 years ago
Olivia’s Liver
I’m 29 and was born with
Biliary
Atresia
so had liver disease for 27yrs. I started to become unwell and listed for a liver at 23, transplant at 27. I’m a nurse for the NHS in ITU at QEHB Birmingham in the area where some of you may have been post transplant.
I’m 29 and was born with
Biliary
Atresia
so had liver disease for 27yrs. I started to become unwell and listed for a liver at 23, transplant at 27. I’m a nurse for the NHS in ITU at QEHB Birmingham in the area where some of you may have been post transplant.
Oliviaamyprice
in
British Liver Trust
4 years ago
Introducing myself
I am a Nigerian Am the mother to Eliana She was diagnosed with
biliary
atresia
Had her surgery 3 months ago My experience so far is... She's eating well but not gaining much weight (⁴months at 4.7kg) Should I be worried
I am a Nigerian Am the mother to Eliana She was diagnosed with
biliary
atresia
Had her surgery 3 months ago My experience so far is... She's eating well but not gaining much weight (⁴months at 4.7kg) Should I be worried
Onafowokan
in
Children's Liver Disease Foundation
4 years ago
Sharing My Experience: Lean, Mean, Fighting Machine to Obese Individual With Full Blown Live Cirrhosis
I will be 64 years old this May. I was a born a male and weighed 9 lbs, 6 ounces at birth, the first of seven sons to Irish Catholic parents. For most of my life I was lean and reached 5 feet, 11 inches, 143 lbs when I entered college. Throughout 4 years of college and 2 years of grad school, I never
I will be 64 years old this May. I was a born a male and weighed 9 lbs, 6 ounces at birth, the first of seven sons to Irish Catholic parents. For most of my life I was lean and reached 5 feet, 11 inches, 143 lbs when I entered college. Throughout 4 years of college and 2 years of grad school, I never
Hidden
in
Living with Fatty Liver and NASH
4 years ago
My baby gone through with the KASAI procedure. She was only 10weeks and 1day old.can anybody tell me was a KASAI be successful for years?
BILIARY
ATRESIA
BILIARY
ATRESIA
Rhinzs
in
Children's Liver Disease Foundation
5 years ago
My Son after 3 weeks of Kasai procedure, please help with my below query
My son got diagnosed on 56th day of life for Kasai procedure due to
Biliary
Atresia
, first 2 weeks, he improved a lot, pop color was light yellow, eyes were becoming white, but on 3rd week after operation, noticed that pale stool and his eyes becoming yellowish, can someone help
My son got diagnosed on 56th day of life for Kasai procedure due to
Biliary
Atresia
, first 2 weeks, he improved a lot, pop color was light yellow, eyes were becoming white, but on 3rd week after operation, noticed that pale stool and his eyes becoming yellowish, can someone help
Sandipmoredw
in
Children's Liver Disease Foundation
5 years ago
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