How long it is safe to use prednison... - Children's Liver ...

Children's Liver Disease Foundation

2,003 members703 posts

How long it is safe to use prednisone for children of 6 month weighing 3.6 kg

Brahmatv profile image
2 Replies

My son undergone surgery for biliary atresia . After surgery his direct bilirubin reached up to 3 but then fluctuated back to 6.5 . My doctor has prescribed him omnacortil 5 mg / 5 ml syrup from last 2 month maximum dose being 7 ml per day and reducing slowly at ten days interval .

How long prednisone can be given without any side effect ? What might happen when it will be stopped ? Please help .

Written by
Brahmatv profile image
Brahmatv
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Cavfamily16 profile image
Cavfamily16

My son’s numbers were all over the place for a year or so as they leveled off. (Felt like forever) We did a few rounds of steroids at different times. The only side affect I may have noticed is he was slightly more irritable (but also teething). The medicine was never stopped cold either it was a nice long slow taper. Sometimes bringing down inflation was all he needed. I was nervous to about side affects but the reality was it still way better than a high billi. It sounds like you and your doctor have a great plan, best wishes ❤️

Brahmatv profile image
Brahmatv in reply to Cavfamily16

Thanks . Some times I am very worried due to thinking of side effects .but now I feel little relaxed . thanks for your kind response .

You may also like...

Advice needed regarding liver transplant and bilary atresia

kasai not successful initially? My son is 1 month 5 days post-surgery and docs are making a safety...

Looking for positive outcome stories after Kasai procedure.

... My son was diagnosed with BA at 51 days and got kasai at 53. Then he had another surgery a week...

Stool color after kasai operation

improving after kasai procedure? She did the surgery 10 days ago. Stool is the same color no change...

1 week post kasai, baby crying a lot

week old son had the kasai done for BA. He was doing perfectly for a few days after surgery so they...

Biliary Atresia 35 yr old :(

Hi! I'm an adult who survived Biliary Atresia. I'd like to meet more adults with the same condition.