Bilirubin levels not declining after Kasai procedure for Biliary Atresia procedure 1 week ago

[hil5usa]

Bilirubin levels not declining after Kasai procedure for Biliary Atresia procedure 1 week ago. The liver continues to be damaged and another surgery may be needed. Has anyone else successfully gone through this???

[Vineyard2020]

My sons bilirubin levels never really went down. They have stayed the same for the past 4 months after Kasai. He is now beginning the process for a transplant.

[hil5usa in reply to Vineyard2020]

Thank you,

I hope that your son's transplant goes well❤.

[MichelleCLDF Partner CLDF]

Hello, lots of families have gone through this, you are not alone. If you would like to talk further please fill in our contact form. Thanks, Kate childliverdisease.org/cldf-...