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Experiences with
Bile acid malabsorption
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Affect of Alendronic acid if needing dental work?
This aspect bothers me as well as the implications of taking Alendronic acid. At age 81 after taking AA for about 18 months, I stopped it after I was prescribed HRT patches for another problem . Whilst HRT protects bones to a certain extent , I believe it doesn't increase bone density as does AA.
This aspect bothers me as well as the implications of taking Alendronic acid. At age 81 after taking AA for about 18 months, I stopped it after I was prescribed HRT patches for another problem . Whilst HRT protects bones to a certain extent , I believe it doesn't increase bone density as does AA.
moconnolly
in
PMRGCAuk
5 months ago
Alendronic acid query
I’m being pressured to take Alendronic Acid for Osteoporosis but Dad died of AF related issue. Has anyone else had experience of refusing this drug?
I’m being pressured to take Alendronic Acid for Osteoporosis but Dad died of AF related issue. Has anyone else had experience of refusing this drug?
PatriMac
in
PMRGCAuk
5 months ago
Am I right to suspect endometriosis and ask to see a private specialist?
I’m worrying I was wrong, asking to see an endometriosis specialist. What if I’m being dramatic or I’m just really sensitive to completely normal period pain. I have to take naproxen on the first day of my period cause when I used to not take it, my pain would get severe and I kept vomiting or feeling
I’m worrying I was wrong, asking to see an endometriosis specialist. What if I’m being dramatic or I’m just really sensitive to completely normal period pain. I have to take naproxen on the first day of my period cause when I used to not take it, my pain would get severe and I kept vomiting or feeling
pinkie25
in
Endometriosis UK
5 months ago
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Following on from Margaret’s post about a month ago, I’m writing on her behalf today because she is still very unwell from a virus that she picked up 3 weeks ago and since two days ago has had the added pain and shock to her system from 2 extractions ready for her much delayed Zoledronic acid infusion
Following on from Margaret’s post about a month ago, I’m writing on her behalf today because she is still very unwell from a virus that she picked up 3 weeks ago and since two days ago has had the added pain and shock to her system from 2 extractions ready for her much delayed Zoledronic acid infusion
Angelicspirit
in
Bone Health and Osteoporosis UK
5 months ago
Tranexamic Acid
Hi Everyone, Has anyone been prescribed tranexamic acid and found it has really helped with the pain side of things? I know its to help with bleeding but i just wondered if anyone else has experienced this?
Hi Everyone, Has anyone been prescribed tranexamic acid and found it has really helped with the pain side of things? I know its to help with bleeding but i just wondered if anyone else has experienced this?
Bk27
in
Endometriosis UK
5 months ago
confused re meds
Hi all, can anyone give me advice about timing all these wonderful medications? I have just been prescribed Calium and Vit D supplement as well as Alendronic acid. I have already decided to give the Alendronic a miss honest however, the calcium and vit d need to be taken twice a day and this is where
Hi all, can anyone give me advice about timing all these wonderful medications? I have just been prescribed Calium and Vit D supplement as well as Alendronic acid. I have already decided to give the Alendronic a miss honest however, the calcium and vit d need to be taken twice a day and this is where
Cooper02
in
PMRGCAuk
5 months ago
Bone Density
Since I last posted six months ago, I have tapered down to 2.5mg a day. The occasional mild discomfort in my arm remains - to remind me that PMR has not gone away - but my quality of life is fine. I will continue with a very slow taper. A few weeks ago I had a bone density scan L1-L4 is 2.7 Hip is
Since I last posted six months ago, I have tapered down to 2.5mg a day. The occasional mild discomfort in my arm remains - to remind me that PMR has not gone away - but my quality of life is fine. I will continue with a very slow taper. A few weeks ago I had a bone density scan L1-L4 is 2.7 Hip is
Glassbox
in
PMRGCAuk
5 months ago
Any idea what is going on?
My consultant hasn't tested for
bile
acid
malabsorption
yet as he has gone down the IBD route. Does this sound similar to anyone? Thank you for reading.
My consultant hasn't tested for
bile
acid
malabsorption
yet as he has gone down the IBD route. Does this sound similar to anyone? Thank you for reading.
Sunita77
in
Crohn's and Colitis Support
1 year ago
soft, sticky stool which is hard to pass - any advice?
In July this year, I had another colonoscopy (with microscopic colitis biopsies) and have recently had a
bile
acid
malabsorption
scan. All back ok. Despite avoiding my known food triggers (diary, high fat, eggs, chicken…), eating low fodmap, only drink water etc.
In July this year, I had another colonoscopy (with microscopic colitis biopsies) and have recently had a
bile
acid
malabsorption
scan. All back ok. Despite avoiding my known food triggers (diary, high fat, eggs, chicken…), eating low fodmap, only drink water etc.
rustydog
in
IBS Network
11 months ago
Vitamins/supplement balance 2ww and TTC. SO CONFUSING!
How do you manage preparing for an IVF cycle with suplements if you are also trying naturally? I am in a 2ww and might be pregnant if you believe in miracles. I have been taking the list below before, but learnt this is too much and can be detrimental in a two week wait so swapped for a pregnancy
How do you manage preparing for an IVF cycle with suplements if you are also trying naturally? I am in a 2ww and might be pregnant if you believe in miracles. I have been taking the list below before, but learnt this is too much and can be detrimental in a two week wait so swapped for a pregnancy
Cuppppatea
in
Fertility Network UK
5 months ago
Can I stop taking Ibandronic Acid?
I have been on Ibandronic Acid for 2 years after 3 years of Alendronic Acid, making it a total of 5 years this year. The last time I spoke to my doctor she said that the Osteoporosis specialist said that as I was young, I am still only 56, that I could stay on Ibandronic Acid for 10 years. My last
I have been on Ibandronic Acid for 2 years after 3 years of Alendronic Acid, making it a total of 5 years this year. The last time I spoke to my doctor she said that the Osteoporosis specialist said that as I was young, I am still only 56, that I could stay on Ibandronic Acid for 10 years. My last
Mamamia21
in
PMRGCAuk
5 months ago
Alendronic Acid - First Day
..... that's it! I took my first Alendronic Acid pill 70mg an hour ago... I am worried that things will go wrong but let's see. I have been getting a lot of aches and pains of late and it really is bothering me so - hey ho here we go! Hope you are all well David
..... that's it! I took my first Alendronic Acid pill 70mg an hour ago... I am worried that things will go wrong but let's see. I have been getting a lot of aches and pains of late and it really is bothering me so - hey ho here we go! Hope you are all well David
Hidden
in
PMRGCAuk
5 months ago
Alendronic Acid side effects
I've been on Prednisolone for PMR since October 2022, starting on 15mg and now down to 4.5. Reumatologist has told my GP I should be on a bisphosphonate and she's just prescribed Alendronic Acid. Reading the patient leaflet, the side-effects sound pretty grim. I'm going on a river cruise at the
I've been on Prednisolone for PMR since October 2022, starting on 15mg and now down to 4.5. Reumatologist has told my GP I should be on a bisphosphonate and she's just prescribed Alendronic Acid. Reading the patient leaflet, the side-effects sound pretty grim. I'm going on a river cruise at the
Hercules307
in
PMRGCAuk
5 months ago
Ferritin and Iron
I found some information below about Ferritin and Iron - it is from the Dr Mercola website. I have just had my ferritin levels and iron levels checked - The Doctor said they were a bit on the low side so I am taking some gentle iron. My ferritin was 50.9 - I never heard of ferritin before having RLS
I found some information below about Ferritin and Iron - it is from the Dr Mercola website. I have just had my ferritin levels and iron levels checked - The Doctor said they were a bit on the low side so I am taking some gentle iron. My ferritin was 50.9 - I never heard of ferritin before having RLS
Summer194
in
Restless Legs Syndrome
5 months ago
Alendronic Acid and...
Hi everyone :) I saw my lovely GP last week and we talked about my problems in a really kind manner. I said that I am in pain and aching too often these days. Paracetomol doesn't help :/ I have been on a taper from 7mg - 6mg and in achy town all the time. I told him, again, that the Rheumy ( I
Hi everyone :) I saw my lovely GP last week and we talked about my problems in a really kind manner. I said that I am in pain and aching too often these days. Paracetomol doesn't help :/ I have been on a taper from 7mg - 6mg and in achy town all the time. I told him, again, that the Rheumy ( I
Hidden
in
PMRGCAuk
5 months ago
Is what I'm experiencing Pelvic Pain? Plus Spritz for Bits?
I'm 77 years old and have been diagnosed with rectocele and cystocele by my GP and also a private consultant, who told me he could do nothing until I had done 16 weeks of pelvic floor exercises. I found a women's health physio who tells me my pelvic floor measures 5/5 on the modified Oxford scale so
I'm 77 years old and have been diagnosed with rectocele and cystocele by my GP and also a private consultant, who told me he could do nothing until I had done 16 weeks of pelvic floor exercises. I found a women's health physio who tells me my pelvic floor measures 5/5 on the modified Oxford scale so
tort100
in
Pelvic Pain Support Network
5 months ago
two week wait vitamins
We continue trying naturally this month after failed embryo transfer last month … Currently ovulating but concerned about vitamins in the two week wait. Any insights ? I am taking : Alpha lipoic acid - 500 mg Vit D - 4,000 IU COQ10 - Ubiquinone, 300mg twice a day (folic actin) methylfolate 400
We continue trying naturally this month after failed embryo transfer last month … Currently ovulating but concerned about vitamins in the two week wait. Any insights ? I am taking : Alpha lipoic acid - 500 mg Vit D - 4,000 IU COQ10 - Ubiquinone, 300mg twice a day (folic actin) methylfolate 400
Cuppppatea
in
Fertility Network UK
5 months ago
Second opinion Dr implies no Endo!
Hi Everyone! So I work abroad on and off and in the UK, I was ‘kinda’ diagnosed with endometriosis, based on a teeny tiny left side ovary cyst they found and the fact that my womb or something was stuck to the back wall of something (uterus?) 🙈🙈 so in the country where I am working, I finally managed
Hi Everyone! So I work abroad on and off and in the UK, I was ‘kinda’ diagnosed with endometriosis, based on a teeny tiny left side ovary cyst they found and the fact that my womb or something was stuck to the back wall of something (uterus?) 🙈🙈 so in the country where I am working, I finally managed
SunSeaNoSex
in
Endometriosis UK
5 months ago
Hello everyone
I was diagnosed with PMR at the end of January after several months of aching joints with limited mobility, particularly in my shoulders. After a week of steroids the mobility in my shoulders returned to normal and my hips and knees were fine. I was able to resume doing my weekly 30 mile cycle ride.
I was diagnosed with PMR at the end of January after several months of aching joints with limited mobility, particularly in my shoulders. After a week of steroids the mobility in my shoulders returned to normal and my hips and knees were fine. I was able to resume doing my weekly 30 mile cycle ride.
AnnaColuthon
in
PMRGCAuk
5 months ago
Finally finished prednisolone.
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Amstel
in
PMRGCAuk
6 months ago
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