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Treatment Recommendation for father with advanced PCA to regional lymph nodes
Hi All, I was hoping for some feedback on the treatment schedule advised for my father. All the details for his diagnosis are in my bio. We met with the radio oncologist last week and he suggested the following 1. Start cosudex tablets now for 28 days and then stop 2. Start Zoladex injection within
Hi All, I was hoping for some feedback on the treatment schedule advised for my father. All the details for his diagnosis are in my bio. We met with the radio oncologist last week and he suggested the following 1. Start cosudex tablets now for 28 days and then stop 2. Start Zoladex injection within
MissMel2024
in
Advanced Prostate Cancer
4 months ago
Unusual case
Short summary. 79 years old. Surgery 12 years ago on G4+3. Recurrence 3 years later. IMRT and second recurrence 3 years later. No ADT. PSADT 1.5 years and now it's 2.3. Two PSMA scans. First showed nothing. Second showed ill defined area in prostate bed that might be positive. Never had ADT.
Short summary. 79 years old. Surgery 12 years ago on G4+3. Recurrence 3 years later. IMRT and second recurrence 3 years later. No ADT. PSADT 1.5 years and now it's 2.3. Two PSMA scans. First showed nothing. Second showed ill defined area in prostate bed that might be positive. Never had ADT.
npac
in
Advanced Prostate Cancer
2 months ago
Advice Please
Hi everyone. I have had 16 gynaecological operations starting at aged 13 and ending 23 years ago a day before my 40th birthday when I had an emergency hysterectomy where for some reason they left my cervix. Following my op they tried HRT but my BP shot up so I was taken off it. Urinary incontinence
Hi everyone. I have had 16 gynaecological operations starting at aged 13 and ending 23 years ago a day before my 40th birthday when I had an emergency hysterectomy where for some reason they left my cervix. Following my op they tried HRT but my BP shot up so I was taken off it. Urinary incontinence
CecilyParsley
in
Pelvic Pain Support Network
4 months ago
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Experiencing possible neuropathy in my trunk
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
I had had 10 rounds of radiation to treat two spinal bone mets back in March. I am on Lupron (first shot was in March) and abiraterone and prednisone daily. PSA has plummeted and doing good. Prepping for chemo in May. This past Wednesday I started feeling some discomfort in my front and back. It's hard
4tunate1
in
Advanced Prostate Cancer
4 months ago
Update on Treatment
In June 2023, a routine PSA test value turned out to be 4.6, did an MRI; Diagnosed with Prostate Cancer, Gleason Score 7 (3+4), biopsy said one core. (Details in my profile). Opted for Active Surveillance. But in Oct 2023, PSA level went to 6.1 and in Jan 2024 PSA went to 9.2 In March 2024, did another
In June 2023, a routine PSA test value turned out to be 4.6, did an MRI; Diagnosed with Prostate Cancer, Gleason Score 7 (3+4), biopsy said one core. (Details in my profile). Opted for Active Surveillance. But in Oct 2023, PSA level went to 6.1 and in Jan 2024 PSA went to 9.2 In March 2024, did another
Sushupthi
in
Advanced Prostate Cancer
2 months ago
Stopping Zoladex & HRT
I just wondered if anyone has had any negative experiences when stopping zoladex injections and HRT? I've been on zoladex for around 8 months now but my moods have become so extreme on them and I've still been bleeding severe on them I've decided to stop to see how I get on. I had my last injection
I just wondered if anyone has had any negative experiences when stopping zoladex injections and HRT? I've been on zoladex for around 8 months now but my moods have become so extreme on them and I've still been bleeding severe on them I've decided to stop to see how I get on. I had my last injection
x_b_x
in
Endometriosis UK
4 months ago
Why is this so hard, someone to talk to
Hi everyone. I had treatment resistant depression for my entire adult life, I've been on pretty much every med, hospitalized, ECT tms and ketamine. Nothings helped. I've gone the DBT and cbt route. I've been suicidal. Can anyone out there relate? I'm married with a 13 year old which makes it harder.
Hi everyone. I had treatment resistant depression for my entire adult life, I've been on pretty much every med, hospitalized, ECT tms and ketamine. Nothings helped. I've gone the DBT and cbt route. I've been suicidal. Can anyone out there relate? I'm married with a 13 year old which makes it harder.
Coffeeshop
in
Anxiety and Depression Support
7 months ago
Watching and waiting
My 78 year old husband was diagnosed with prostate cancer Gleason 8 two years ago. ( Urologist noticed a very slight rise in psa and located a tumor after dre. Biopsy showed cancerous cells in Only in three cores. Bone scan clean. Subsequently had 28 rounds of radiation and three rounds of CyberKnife
My 78 year old husband was diagnosed with prostate cancer Gleason 8 two years ago. ( Urologist noticed a very slight rise in psa and located a tumor after dre. Biopsy showed cancerous cells in Only in three cores. Bone scan clean. Subsequently had 28 rounds of radiation and three rounds of CyberKnife
Pastaking
in
Advanced Prostate Cancer
4 months ago
Starting Chemo in May via trial
Thanks to everyone for all of their great questions and converstions on this site. Check my bio for background. 2 months into ADT therapy after diagnosis in January. I am starting docetaxyl chemo via an NIH trial in May. M9241 - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10230972/. We are hopeful
Thanks to everyone for all of their great questions and converstions on this site. Check my bio for background. 2 months into ADT therapy after diagnosis in January. I am starting docetaxyl chemo via an NIH trial in May. M9241 - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10230972/. We are hopeful
4tunate1
in
Advanced Prostate Cancer
4 months ago
Following SOC here in BC Canada
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
Islandboy2021
in
Advanced Prostate Cancer
4 months ago
Effectiveness of ADT
Hii , I am here and posting on behalf of my father . He is 69 year old and is diagnosed with metastatic prostate cancer with mets to spinal cord . His PSA was 79.5 and Gleason 5+5. One month earlier doctors started hormone therapy (Lupron 22.5 mg along with Abiraterone and iron and calcium tablets
Hii , I am here and posting on behalf of my father . He is 69 year old and is diagnosed with metastatic prostate cancer with mets to spinal cord . His PSA was 79.5 and Gleason 5+5. One month earlier doctors started hormone therapy (Lupron 22.5 mg along with Abiraterone and iron and calcium tablets
jeetu_g27
in
Advanced Prostate Cancer
4 months ago
PGAD relief tips
Hi all, I am reaching out to see amy tips you may have for relief? Currently lasts 24 hours a day, worst is at night but never goes away. Its very distressing and I cried again today as am just so exhausted. Have seen a urogynacologist and am now trialling HRT patches (hysterectomy in 2018) plus estrogen
Hi all, I am reaching out to see amy tips you may have for relief? Currently lasts 24 hours a day, worst is at night but never goes away. Its very distressing and I cried again today as am just so exhausted. Have seen a urogynacologist and am now trialling HRT patches (hysterectomy in 2018) plus estrogen
Lolliesandcakes
in
Pelvic Pain Support Network
4 months ago
Need some guidance
2 years ago my daughter who is 6 now was diagnosed of ADHD and started with 10 mg of vyvanse but rapidly pass to 20 mg and ended up taking 40mg, one pill in the morning and at noon. And also take 1 mg of guanfacine Er to help her sleep at night which some time works or we need to give her melatonin.
2 years ago my daughter who is 6 now was diagnosed of ADHD and started with 10 mg of vyvanse but rapidly pass to 20 mg and ended up taking 40mg, one pill in the morning and at noon. And also take 1 mg of guanfacine Er to help her sleep at night which some time works or we need to give her melatonin.
Purple008
in
CHADD's ADHD Parents Together
1 year ago
ADT questions
I received 3 month Eligard shot April 11, pre 28 IMRT, completed May 31. Second 3 month scheduled On July 16. I have some daytime urgency after radiation and pee 3-5 times per night. On 2 tamsulosin. I have had no other symptoms, no hot flashes and no fatigue since radiation. This morning I woke with
I received 3 month Eligard shot April 11, pre 28 IMRT, completed May 31. Second 3 month scheduled On July 16. I have some daytime urgency after radiation and pee 3-5 times per night. On 2 tamsulosin. I have had no other symptoms, no hot flashes and no fatigue since radiation. This morning I woke with
SherpaT
in
Prostate Cancer Network
2 months ago
Newly Diagnosed
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Hi. Thanks for allowing me into the forum. I was diagnosed on Monday that I have 2 anterior tumours. My PSA scores were 9.92 & 10.42. Gleason score of 7 (3 + 4) T3a. No cancer seen in the Lymph nodes. 7 in 11 cores , 5 out of 6 sites with maximum 90% core involvement. It is breaking into the outer casing
Tulile
in
Prostate Cancer Network
4 months ago
Bloating - Zoladex/Tibolone
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Hi I have been on Zoladex injections for a year now and have had add back HRT (tibolone) for about 6 weeks.The add back HRT has really helped the hot flushes & muscle pain but over the past 2 weeks I have been suffering with awful bloating which increases when I eat or drink anything. Has anybody else
Bookish_Girl
in
Endometriosis UK
4 months ago
Update recent PSMA
Docs did it to me again with the usual bad news. Uptake in new lymph node locations in pelvis. the radiotherapy failed, and preclude more treatment on new nodal areas. (according to Docs.) So expect to add to ADT, abi or enza or darolutamide in a short while, with PSA going up on a fast double.
Docs did it to me again with the usual bad news. Uptake in new lymph node locations in pelvis. the radiotherapy failed, and preclude more treatment on new nodal areas. (according to Docs.) So expect to add to ADT, abi or enza or darolutamide in a short while, with PSA going up on a fast double.
kainasar
in
Advanced Prostate Cancer
4 months ago
CV and Bone Health when ADT is a treatment option.
Thought this provided a useful framework to guide discussion with my medical team when discussing whether or not and what to do about CV and bone health when starting on ADT. https://www.urotoday.com/conference-highlights/eau-2024/eau-2024-prostate-cancer/151136-eau-2024-synchronous-mhspc-what-are-the-treatment-options-and-what-are-the-goals-of-treatment-what-to-test-before-start-of-hormonal-treatment-and-what-to-monitor.html
Thought this provided a useful framework to guide discussion with my medical team when discussing whether or not and what to do about CV and bone health when starting on ADT. https://www.urotoday.com/conference-highlights/eau-2024/eau-2024-prostate-cancer/151136-eau-2024-synchronous-mhspc-what-are-the-treatment-options-and-what-are-the-goals-of-treatment-what-to-test-before-start-of-hormonal-treatment-and-what-to-monitor.html
Hawk56
in
Advanced Prostate Cancer
4 months ago
Latest thyroid test results
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Hi everyone, After being underdosed on 25mcg of Levothyroxine for almost a decade, my new GP increased my dose to 50mcg around 6 months ago. The increase was done slowly over 6 weeks, as advised by people in this group. I had some blood tests done two days ago and today I got a message from the GP saying
Gecko22
in
Thyroid UK
4 months ago
Ibs or celiac
hiya so for a few years off and on I’ve always had bloating , pains in adomin ect. But now constantly everytime I wee I always need a poo but I’m always straining . Couple of weeks ago I had bright pink blood in my sick. And for a couple of weeks I had mucus and blood in my stool. Doctors want to do
hiya so for a few years off and on I’ve always had bloating , pains in adomin ect. But now constantly everytime I wee I always need a poo but I’m always straining . Couple of weeks ago I had bright pink blood in my sick. And for a couple of weeks I had mucus and blood in my stool. Doctors want to do
Girlpower98
in
IBS Network
7 months ago
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