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Newbie on PCa, coping on PCa
Hi, bump into this forum and in general trying to reach out to learn on any restriction on sugar, dairy . eggs and generally what sort of food should be taking. putting on weight - with ADT and how best to manage this...feeling so tired on ADT, even while typing this. must appreciated.
Hi, bump into this forum and in general trying to reach out to learn on any restriction on sugar, dairy . eggs and generally what sort of food should be taking. putting on weight - with ADT and how best to manage this...feeling so tired on ADT, even while typing this. must appreciated.
ahmadyusriyahaya
in
Advanced Prostate Cancer
11 days ago
Thyroid or menopause - which to sort first?
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
I've just checked the app, and the last of my blood tests are back. I definitely have started perimenopause and as per my last post I have high TPOab, high TSH (7.5 with high ref being 4.26), and lowish T4 (14.2 of a 12—22 range). I have symptoms that overlap the two conditions, but also symptoms that
Heappestre
in
Thyroid UK
11 days ago
PC drug with least side effects
After 2 years on ADT I must go to a stronger medicine. I am castrate resistant with one small met by the pelvis. Doc suggests Xthandi but I would appreciate any suggestions on anything easier. The SE scare the hell out of me
After 2 years on ADT I must go to a stronger medicine. I am castrate resistant with one small met by the pelvis. Doc suggests Xthandi but I would appreciate any suggestions on anything easier. The SE scare the hell out of me
Stevegr
in
Advanced Prostate Cancer
11 days ago
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Exercise on ADT? You’ll want to hear this.
skip to 2:16:00 https://youtu.be/AVOKWvYJM-c?si=BdUZ0Rc5yULvTfgX
skip to 2:16:00 https://youtu.be/AVOKWvYJM-c?si=BdUZ0Rc5yULvTfgX
No_stone_unturned
in
Advanced Prostate Cancer
12 days ago
Almost 3 years on ADT + Erleada
I am almost 3 years on ADT I was diagnosed as stage 4 with a bone biopsy on a lesion.My MO started me with monthly firmagon injections and zytiga in 2021 july then switched to lupron and Erleada after a few months since I had a reaction to Abi after a couple of months .Erleada also gave me rash in
I am almost 3 years on ADT I was diagnosed as stage 4 with a bone biopsy on a lesion.My MO started me with monthly firmagon injections and zytiga in 2021 july then switched to lupron and Erleada after a few months since I had a reaction to Abi after a couple of months .Erleada also gave me rash in
mynacho
in
Advanced Prostate Cancer
12 days ago
Brachyboost and PSA progression free survival question
We just received our appointment summary from the radiation oncologist and there is a comment in it that is confusing me. It’s not how I remember the conversation, so I am wondering if someone can clarify ( Tall_Allen ?). ”We can proceed with EBRT followed by LDR brachytherapy boost and minimum 6 months
We just received our appointment summary from the radiation oncologist and there is a comment in it that is confusing me. It’s not how I remember the conversation, so I am wondering if someone can clarify ( Tall_Allen ?). ”We can proceed with EBRT followed by LDR brachytherapy boost and minimum 6 months
EvFC
in
Advanced Prostate Cancer
12 days ago
ADT and bone loss lost opportunity !?
there is /was so much to think about when I got the Gleason 9 diagnosis after 18 months of being told don’t worry it not high risk and so had failed HIFU. Stupid of me ! I got, with great difficulty a DEXA scan one month after starting LHRH agonist goserelin. No one told me I needed it, and given
there is /was so much to think about when I got the Gleason 9 diagnosis after 18 months of being told don’t worry it not high risk and so had failed HIFU. Stupid of me ! I got, with great difficulty a DEXA scan one month after starting LHRH agonist goserelin. No one told me I needed it, and given
SimMartin
in
Advanced Prostate Cancer
12 days ago
Gasoline?
A question for anyone who has found an answer... From 2018, when diagnosed, I have been told by doctors, urologists and oncologists that; "Testosterone, in prostate cancer, is like gasoline on a fire!" When I first heard this it seemed dubious since what I "knew" about PCa was that young men with
A question for anyone who has found an answer... From 2018, when diagnosed, I have been told by doctors, urologists and oncologists that; "Testosterone, in prostate cancer, is like gasoline on a fire!" When I first heard this it seemed dubious since what I "knew" about PCa was that young men with
VoxHope
in
Advanced Prostate Cancer
12 days ago
Long Term ADT HT
Edit to question...I failed to add that 3 months ago his MO prescribed Gabapentin 300mg for his hot flashes. He takes one pill at night. Thank you, and thank you for the tremendous responses Can anyone tell me if the SE from ADT HT plateau at some point??My husband is in year four of Lupron, Abi+Pred
Edit to question...I failed to add that 3 months ago his MO prescribed Gabapentin 300mg for his hot flashes. He takes one pill at night. Thank you, and thank you for the tremendous responses Can anyone tell me if the SE from ADT HT plateau at some point??My husband is in year four of Lupron, Abi+Pred
JWPMP
in
Advanced Prostate Cancer
13 days ago
Prostap
Hi, I've had one prostap injection. Things were going great, I thought they might be the best thing ever.However my anxiety has crept in. My second injection was due today but I cancelled it. I've had one heavy bleed last week. I didn't have hrt with it, it was there waiting for me if I needed it.
Hi, I've had one prostap injection. Things were going great, I thought they might be the best thing ever.However my anxiety has crept in. My second injection was due today but I cancelled it. I've had one heavy bleed last week. I didn't have hrt with it, it was there waiting for me if I needed it.
Charl-
in
Endometriosis UK
13 days ago
PSMA scan
I spoke with RO and we are going to radiate the autocaval lymph node lit up per the above scan. My PSA was .027. I hope this knocks it out. I am also contemplating ADT but unsure which would work first or second generation.
I spoke with RO and we are going to radiate the autocaval lymph node lit up per the above scan. My PSA was .027. I hope this knocks it out. I am also contemplating ADT but unsure which would work first or second generation.
Howard53545
in
Advanced Prostate Cancer
13 days ago
Operation
Hi everybody! So I was diagnosed PMR 2 years ago and started on 25mg of pref. I am now down to 5mg. I saw my Rumy a few weeks ago who did bloods ect and seems to think my PMR is over! However I’m due to have a hip replacement on the 5th December which I’m so happy about as I’ve been in agony for a long
Hi everybody! So I was diagnosed PMR 2 years ago and started on 25mg of pref. I am now down to 5mg. I saw my Rumy a few weeks ago who did bloods ect and seems to think my PMR is over! However I’m due to have a hip replacement on the 5th December which I’m so happy about as I’ve been in agony for a long
Holycow2
in
PMRGCAuk
6 months ago
anyone else struggling with high levels on medication?
just wondering if anyone else struggling with high levels on medication? been going on for years- since diagnosed in 2019. Takes forever to get back to relative normality each time. On carbimaxole and propanolol was 10mg BD but increased to 20mg as despite taking medication , t4 now 68.9, t3 25.4.
just wondering if anyone else struggling with high levels on medication? been going on for years- since diagnosed in 2019. Takes forever to get back to relative normality each time. On carbimaxole and propanolol was 10mg BD but increased to 20mg as despite taking medication , t4 now 68.9, t3 25.4.
Carinagravesdisease
in
Thyroid UK
13 days ago
Should go into the OMAHA2a ODM-208 (MK-5684-004): phase 3 trial?
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment
LakeT
in
Advanced Prostate Cancer
13 days ago
rising PSA and 'light' advancement of mets in hip bones. Diagnosed stage 4 in March 2021.
Greetings! My husband was diagnosed with stage 4 prostate cancer in March 2021. ADT dropped the PSA quite a bit. We started seeing Dr. George at Duke March of 2023 and he had my husband on a round of docetaxel. After that the many bone mets and some on lungs 'disappeared'. Now it looks like they
Greetings! My husband was diagnosed with stage 4 prostate cancer in March 2021. ADT dropped the PSA quite a bit. We started seeing Dr. George at Duke March of 2023 and he had my husband on a round of docetaxel. After that the many bone mets and some on lungs 'disappeared'. Now it looks like they
Newdiag-NC
in
Advanced Prostate Cancer
14 days ago
estradiol cream
I know this was discussed 8 years ago but has it changed for the better regarding reducing the ADT SE? I am on ADT for 2 + years and going on Xtandti this month. I want to control the SE as best I can. Great diet and heavy exercise every day. Also stopped the Vit Cal & D.
I know this was discussed 8 years ago but has it changed for the better regarding reducing the ADT SE? I am on ADT for 2 + years and going on Xtandti this month. I want to control the SE as best I can. Great diet and heavy exercise every day. Also stopped the Vit Cal & D.
Stevegr
in
Advanced Prostate Cancer
14 days ago
Should I increase T4 or T3?
Diagnosed with paroxysmal AFib in 2021 (in A&E), was on 75mcg Levo and 10mcg Liothyronine (not converting well from T4 to T3) Was doing ok with ranges of FT4 around 15 -17(12-22), FT3 around 5.2 -5.9 (3.1-6.8) and a suppressed TSH of around 0.1 – 0.005 (0.27-4.2). Was advised to drop T3 to 5mcg after
Diagnosed with paroxysmal AFib in 2021 (in A&E), was on 75mcg Levo and 10mcg Liothyronine (not converting well from T4 to T3) Was doing ok with ranges of FT4 around 15 -17(12-22), FT3 around 5.2 -5.9 (3.1-6.8) and a suppressed TSH of around 0.1 – 0.005 (0.27-4.2). Was advised to drop T3 to 5mcg after
elkewilliams
in
Thyroid UK
14 days ago
What to expect with mets and no treatment
4 months of study everywhere online- future life reading all the suffering here on this forum with side effects, impotence, recurrence, hormone therapy, other side effects, etc. My heart goes out to all of you, and my hats off to you warriors, who have chosen to fight this battle with conventional
4 months of study everywhere online- future life reading all the suffering here on this forum with side effects, impotence, recurrence, hormone therapy, other side effects, etc. My heart goes out to all of you, and my hats off to you warriors, who have chosen to fight this battle with conventional
Nwdx
in
Advanced Prostate Cancer
14 days ago
Eliminating ADT.
Is there ANY PC Therapy that does not use ADT ? I have been on ADT implants for over 2 years and will start Xtandi due to increased PSA's. I would love to stop ADT due to SE.
Is there ANY PC Therapy that does not use ADT ? I have been on ADT implants for over 2 years and will start Xtandi due to increased PSA's. I would love to stop ADT due to SE.
Stevegr
in
Advanced Prostate Cancer
14 days ago
Treatment Recommendation for father with advanced PCA to regional lymph nodes
Hi All, I was hoping for some feedback on the treatment schedule advised for my father. All the details for his diagnosis are in my bio. We met with the radio oncologist last week and he suggested the following 1. Start cosudex tablets now for 28 days and then stop 2. Start Zoladex injection within
Hi All, I was hoping for some feedback on the treatment schedule advised for my father. All the details for his diagnosis are in my bio. We met with the radio oncologist last week and he suggested the following 1. Start cosudex tablets now for 28 days and then stop 2. Start Zoladex injection within
MissMel2024
in
Advanced Prostate Cancer
14 days ago
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