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Pain everywhere.
I've been 10+ yrs searching for answers. I had some bladder problems in 2013. Doctors did surgery. I almost died. Apparently they told me my blood vessels looked funny. They didn't know if they "knicked " me or what but I lost 8 pints of blood very quickly. They barely got me transfusion in time. I chalked
I've been 10+ yrs searching for answers. I had some bladder problems in 2013. Doctors did surgery. I almost died. Apparently they told me my blood vessels looked funny. They didn't know if they "knicked " me or what but I lost 8 pints of blood very quickly. They barely got me transfusion in time. I chalked
CountryGirl9636
in
Partners for Behcet's
8 months ago
Finding the Right Treatment
I have been really depressed for the last two years. I have been diagnosed with treatment resistant depression. I have tried 10 different medications, I do weekly therapy, see a psychiatric NP and I have finally resorted to ECT until my insurance company stopped paying for anesthesia. I can't afford
I have been really depressed for the last two years. I have been diagnosed with treatment resistant depression. I have tried 10 different medications, I do weekly therapy, see a psychiatric NP and I have finally resorted to ECT until my insurance company stopped paying for anesthesia. I can't afford
sunshinefan
in
Anxiety and Depression Support
4 months ago
Blood results interpretation required
Hi there, I need help interpreting my results. My symptoms are brain fog, joint aches, lack of energy and anxiety. These have been with me all my life. They got better in 2022 when I started combination therapy. However, I do not think I have reached my optimum (whatever that is) because these symptoms
Hi there, I need help interpreting my results. My symptoms are brain fog, joint aches, lack of energy and anxiety. These have been with me all my life. They got better in 2022 when I started combination therapy. However, I do not think I have reached my optimum (whatever that is) because these symptoms
Carlax
in
Thyroid UK
5 months ago
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How you can help make ibrutinib plus venetoclax fixed duration therapy a reality for Australians with previously untreated CLL
In Australia, no new medicine can be listed on the Pharmaceutical Benefits Scheme (PBS) unless it has first been recommended by the Pharmaceutical Benefits Advisory Committee (PBAC). In March 2024, PBAC will again consider a submission to recommend a 15-month combination therapy of ibrutinib plus venetoclax
In Australia, no new medicine can be listed on the Pharmaceutical Benefits Scheme (PBS) unless it has first been recommended by the Pharmaceutical Benefits Advisory Committee (PBAC). In March 2024, PBAC will again consider a submission to recommend a 15-month combination therapy of ibrutinib plus venetoclax
CLLerinOz
Administrator
in
CLL Support
8 months ago
New to this group
Hi all. I am new to this group. I am not new to mental illness having been diagnosed since 2006, but in the last two year, my depression has gotten much worse and landed me in the hospital 5 times. It also has me having a new diagnosis of treatment resistant depression. I have tried many medications,
Hi all. I am new to this group. I am not new to mental illness having been diagnosed since 2006, but in the last two year, my depression has gotten much worse and landed me in the hospital 5 times. It also has me having a new diagnosis of treatment resistant depression. I have tried many medications,
sunshinefan
in
Anxiety and Depression Support
4 months ago
Studies comparing Levo mono vs Levo/Lio combo T4/T3 treatment
Batty1shared an article here https://healthunlocked.com/thyroiduk/posts/150566060/why-don’t-doctors-know-deal-with-this-hypothyroid-issue That lead me to a rabbit hole on the American Thyroid Association website. Sharing a summary of what I found to be a very comprehensive presentation of studies
Batty1shared an article here https://healthunlocked.com/thyroiduk/posts/150566060/why-don’t-doctors-know-deal-with-this-hypothyroid-issue That lead me to a rabbit hole on the American Thyroid Association website. Sharing a summary of what I found to be a very comprehensive presentation of studies
FallingInReverse
in
Thyroid UK
5 months ago
PSA rising on Triplet Therapy after <18m
Hi all. Hope you are keeping your spirits high. This is a follow up to a post I made in 2022 about my father. I haven't posted since, which reflects the period of relative normalcy that followed the commencement of ADT (triplet therapy) at MSK. I want to pause to appreciate that since I know most of
Hi all. Hope you are keeping your spirits high. This is a follow up to a post I made in 2022 about my father. I haven't posted since, which reflects the period of relative normalcy that followed the commencement of ADT (triplet therapy) at MSK. I want to pause to appreciate that since I know most of
nyc_son
in
Advanced Prostate Cancer
5 months ago
support groups/meetings
good morning , hope all are as well as can be, I’m wondering if anyone knows of any support groups coffee mornings ect for people with fibro and other chronic health conditions in the south east wales area of uk ,thanks for reading 🙏
good morning , hope all are as well as can be, I’m wondering if anyone knows of any support groups coffee mornings ect for people with fibro and other chronic health conditions in the south east wales area of uk ,thanks for reading 🙏
Nevercansleep
in
Fibromyalgia Action UK
5 months ago
Depression
I am really struggling with depression. I am antidepressant resistent. I have tried everything. Tried ECT and magnetic therapy. Had 32 trans magnetic stimulation txs Mon-Fri in Oct and Nov. I know I will hang in there. I hang in there and then I go into a deep depression when it gets harder and harder
I am really struggling with depression. I am antidepressant resistent. I have tried everything. Tried ECT and magnetic therapy. Had 32 trans magnetic stimulation txs Mon-Fri in Oct and Nov. I know I will hang in there. I hang in there and then I go into a deep depression when it gets harder and harder
mauv
in
Anxiety and Depression Support
5 months ago
My Story
Hello all! I've never really shared my story.. If you can relate, have suggestions or anything feel free to comment or message me. Thanks in advance. My first panic attack and anxiety started when I was 10. I developed a fear of elevators. It made going to places, like doctors, hotels, ect. very difficult
Hello all! I've never really shared my story.. If you can relate, have suggestions or anything feel free to comment or message me. Thanks in advance. My first panic attack and anxiety started when I was 10. I developed a fear of elevators. It made going to places, like doctors, hotels, ect. very difficult
DogLover91
in
Anxiety and Depression Support
5 months ago
confused
i drink quite a bit. went in for my blood work about 2 months ago, liver stuff was high. DR sent me to get a sonogram. they came back and said i had a fatty liver and should cut back on my drinking. i went in this week to DR because my lower legs were swollen. no clots but when the nurse called me she
i drink quite a bit. went in for my blood work about 2 months ago, liver stuff was high. DR sent me to get a sonogram. they came back and said i had a fatty liver and should cut back on my drinking. i went in this week to DR because my lower legs were swollen. no clots but when the nurse called me she
hopingnottoolate
in
British Liver Trust
5 months ago
Diverticulitis &Severe Pain.
Hi all,Hope you’re all as good as you can be. I have Diverticulitis,now this is the 4th time in about the last 6mths. Now it’s quite new to me so I’m finding it difficult to understand about diet Ect. All I get from my GP is low fibre during a flare up,high fibre when I’m not. Well I have pain
Hi all,Hope you’re all as good as you can be. I have Diverticulitis,now this is the 4th time in about the last 6mths. Now it’s quite new to me so I’m finding it difficult to understand about diet Ect. All I get from my GP is low fibre during a flare up,high fibre when I’m not. Well I have pain
Breathless1943
in
Bowel Disease Support
5 months ago
Private Blood Test Results
Hello, Diagnosed with Hashimoto’s 2019, it was a long and sickly road to diagnosis and treatment. Levothyroxine only didn’t work for me and after a couple of not so great endo appointments I finally found a really good endocrinologist who agreed to add in liothyronine and commenced me on 20mcg
Hello, Diagnosed with Hashimoto’s 2019, it was a long and sickly road to diagnosis and treatment. Levothyroxine only didn’t work for me and after a couple of not so great endo appointments I finally found a really good endocrinologist who agreed to add in liothyronine and commenced me on 20mcg
Lassithi
in
Thyroid UK
5 months ago
Webinar: What is Gut-Directed CBT and how can Mahana IBS Help?
Join us at 6pm on Monday 23 January 2023 for a webinar on IBS and cognitive
behavioural
therapy
with experts and patients from Mahana IBS. Mahana IBS is a new app that provides gut-directed CBT.
Join us at 6pm on Monday 23 January 2023 for a webinar on IBS and cognitive
behavioural
therapy
with experts and patients from Mahana IBS. Mahana IBS is a new app that provides gut-directed CBT.
IBSNetwork
IBS Network
in
IBS Network
2 years ago
Still depressed after ECT
I recently had ECT done (14treatments) I was feeling like it had changed my life and I was able to live again. But now I am back to feeling low moods, no motivation, and all the other symptoms associated with depression and anxiety. I was in a treatement facility and recently came back home, so maybe
I recently had ECT done (14treatments) I was feeling like it had changed my life and I was able to live again. But now I am back to feeling low moods, no motivation, and all the other symptoms associated with depression and anxiety. I was in a treatement facility and recently came back home, so maybe
Jersey24
in
Anxiety and Depression Support
5 months ago
Memory issues ??
Hi 👋 I havnt posted in a while ,however I have had long standing JCA/RA among the rest that goes with it like MCTD . So after years of intense treatment from the age of 11 . I now find myself at the age of 60 with memory issues. To start it was around a year ago ,my gp thought I'd had a stroke as I
Hi 👋 I havnt posted in a while ,however I have had long standing JCA/RA among the rest that goes with it like MCTD . So after years of intense treatment from the age of 11 . I now find myself at the age of 60 with memory issues. To start it was around a year ago ,my gp thought I'd had a stroke as I
Weemillie
in
NRAS
5 months ago
positive thinking
chris turner here 65 yr old male married over 40 yrs to cindy who has done so much as have her family to help me battle with liver disease/fibromyalgia/pht/enlarged spleen/liver diabetet type 2.other bits and bobs to deal with .ex butcher of 40 yrs ex biker 40yrs too ,no longer able to ride anymore and
chris turner here 65 yr old male married over 40 yrs to cindy who has done so much as have her family to help me battle with liver disease/fibromyalgia/pht/enlarged spleen/liver diabetet type 2.other bits and bobs to deal with .ex butcher of 40 yrs ex biker 40yrs too ,no longer able to ride anymore and
chrisuk
in
British Liver Trust
5 months ago
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
From MedPage Today, by Charles Bankhead, Senior Editor, MedPage Today November 28, 2023, Last Updated November 29, 2023. Posted FYI without comment: [i]
FDA Investigating 'Serious Risk' of Malignancy After CAR-T Therapy - Applies to all approved therapies, but benefits still outweigh risks, agency
cujoe
in
CLL Support
8 months ago
Genetic therapy: for solid malignancy hopefully soon
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
ok, I post them also because they are fellow Italians! But the platform is very promising even if clinical use has been approved only for glioma and glioblastoma at the moment. But there are clinical trials going on for solid tumors, prostate included. https://www.genenta.com/wp-content/uploads/2021
Maxone73
in
Advanced Prostate Cancer
8 months ago
coming off rotigotine patches
Hello, First post… Could someone please share their experience coming off rotigotine patches, and what helped you throughout this experience? Been on rotigotine for 4 or so years, and more recently started experiencing augmentation. Was on 2mg, in August GP suggested increasing to 3mg but that hardly
Hello, First post… Could someone please share their experience coming off rotigotine patches, and what helped you throughout this experience? Been on rotigotine for 4 or so years, and more recently started experiencing augmentation. Was on 2mg, in August GP suggested increasing to 3mg but that hardly
Artifcial
in
Restless Legs Syndrome
8 months ago
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