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To Trial or not to Trial?
I have decided not to trial. Going to just do the Venetaclax & Obin protocol. I’m just not in the mood for the extra appointments and brain damage that invariably comes with them. I’m waiting for a start date. Had the bone marrow biopsy and endless other tests this week - decided not to peek at the
I have decided not to trial. Going to just do the Venetaclax & Obin protocol. I’m just not in the mood for the extra appointments and brain damage that invariably comes with them. I’m waiting for a start date. Had the bone marrow biopsy and endless other tests this week - decided not to peek at the
SunnyCA
in
CLL Support
4 months ago
Day 2 or Day 5 transfer? Help!!!
Hi Guys!!! I need to hear from anyone that had experience with a day 2 transfer. Im definitely not new to ivf, I have had 3 egg retrievals ( the last one was yesterday) and 5 embryo transfers so far in the space of 4 yrs, all unsuccessful..... I have actually never seen a positive pregnancy test 😩 I
Hi Guys!!! I need to hear from anyone that had experience with a day 2 transfer. Im definitely not new to ivf, I have had 3 egg retrievals ( the last one was yesterday) and 5 embryo transfers so far in the space of 4 yrs, all unsuccessful..... I have actually never seen a positive pregnancy test 😩 I
Islandgrl
in
Fertility Network UK
4 months ago
Interesting article about the effects of Covid19 on your blood
Having caught Covid19 a short time after my allo SCT and with my anaemia ongoing, I was interested to see this article. This is not CLL specific but worth a read. "[i]Several studies have reported, in COVID-19 patients, hematological abnormalities. Most of these alterations are associated with a higher
Having caught Covid19 a short time after my allo SCT and with my anaemia ongoing, I was interested to see this article. This is not CLL specific but worth a read. "[i]Several studies have reported, in COVID-19 patients, hematological abnormalities. Most of these alterations are associated with a higher
Jm954
Administrator
in
CLL Support
4 months ago
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recommendations for nhs endo please?
Hi forum friends I went to my gp Friday to see what help I might get re my thyroid now and also if I might see a haematologist re high serum iron but low ferritin (28 …5-204) I didnt get many answers as he concentrated on a current kidney issue I have so he’s booked me another face to face 30/1 to
Hi forum friends I went to my gp Friday to see what help I might get re my thyroid now and also if I might see a haematologist re high serum iron but low ferritin (28 …5-204) I didnt get many answers as he concentrated on a current kidney issue I have so he’s booked me another face to face 30/1 to
Starseed56
in
Thyroid UK
4 months ago
Secondary hypothyroidism
Can anyone please tell me where free t4 should be at for secondary hypothyroidism. Should it be in mid range to upper third? Mine was 1.01 in a range of 0.76 to 1.46. I feel very hypo.
Can anyone please tell me where free t4 should be at for secondary hypothyroidism. Should it be in mid range to upper third? Mine was 1.01 in a range of 0.76 to 1.46. I feel very hypo.
Dryski
in
Thyroid UK
4 months ago
live blood analysis …migraines
Around 7 years ago following blood tests for TATT and various other ailments, it was found that I had a low B12 (156) and GP agreed to prescribe the usual injections… loading dose and then 3 monthly. After lots of research on this site and through trial and error I finally settled on SE every 2 weeks
Around 7 years ago following blood tests for TATT and various other ailments, it was found that I had a low B12 (156) and GP agreed to prescribe the usual injections… loading dose and then 3 monthly. After lots of research on this site and through trial and error I finally settled on SE every 2 weeks
Countrylou
in
Pernicious Anaemia Society
4 months ago
Is this classed as low folate?
I'm a little confused about my blood test results. I'm not sure if I am posting in the right group! MCH and MCHC were slightly high which can indicate macrolytic anaemia. GP said I don't have that because my B12 and folate levels are fine (which are the usual causes). However, I posted the results
I'm a little confused about my blood test results. I'm not sure if I am posting in the right group! MCH and MCHC were slightly high which can indicate macrolytic anaemia. GP said I don't have that because my B12 and folate levels are fine (which are the usual causes). However, I posted the results
tnefeh
in
Pernicious Anaemia Society
4 months ago
Blood test results
please can I have your advice on my blood test results. I take 75 mcg thyroxine for 4 days a week and 100 for 3 days. Have been on it since July 2023. I am not sure whether I am on the correct dosage as I have now started suffering from palpitations and high blood pressure. I would be grateful for any
please can I have your advice on my blood test results. I take 75 mcg thyroxine for 4 days a week and 100 for 3 days. Have been on it since July 2023. I am not sure whether I am on the correct dosage as I have now started suffering from palpitations and high blood pressure. I would be grateful for any
Munp
in
Thyroid UK
4 months ago
Started Testosterone, already on T4/T3 combo - getting side effects 😳
Hi all. I’ve been stable on 75mcg levo and x3 doses of 5mcg lio for some time. 11 days ago I started testosterone for menopause taking Testogel 1/8th of a packet daily. Been feeling better but the last couple of nights have struggled with insomnia - sleeping fitfully and not to very long at all! (I
Hi all. I’ve been stable on 75mcg levo and x3 doses of 5mcg lio for some time. 11 days ago I started testosterone for menopause taking Testogel 1/8th of a packet daily. Been feeling better but the last couple of nights have struggled with insomnia - sleeping fitfully and not to very long at all! (I
KillashandraRee
in
Thyroid UK
4 months ago
Various questions, sorry 🥹
I hope you’re all doing as well as you can be 💜 this is going to be a long post so firstly I just want to apologise but any advice would be massively appreciated. I have also, attached a photo of my kitten to put a smile on all your faces, as she does mine on a daily basis 🥹 (scroll to the bottom for
I hope you’re all doing as well as you can be 💜 this is going to be a long post so firstly I just want to apologise but any advice would be massively appreciated. I have also, attached a photo of my kitten to put a smile on all your faces, as she does mine on a daily basis 🥹 (scroll to the bottom for
JLAR01
in
LUPUS UK
4 months ago
Endocrinologist
If anyone has a recommendation for an endo at Southampton Hospital can you dm me please? I have been on T3/levothyroxine combination for quite a while as I do not convert sufficiently on Levothyroxine alone. I recently increased my levothyroxine by 25mg a day following my last blood results and
If anyone has a recommendation for an endo at Southampton Hospital can you dm me please? I have been on T3/levothyroxine combination for quite a while as I do not convert sufficiently on Levothyroxine alone. I recently increased my levothyroxine by 25mg a day following my last blood results and
Ireness
in
Thyroid UK
4 months ago
Beware of Lansoprazole
I have taken this drug for years for acid reflux. Last year, during a medical check, it was found that my blood count was so low it was almost at needing a transfusion level. I was put on Ferrous Fumarate which brought my level up but my ferritin level is still low. I had an endoscopy and it was discovered
I have taken this drug for years for acid reflux. Last year, during a medical check, it was found that my blood count was so low it was almost at needing a transfusion level. I was put on Ferrous Fumarate which brought my level up but my ferritin level is still low. I had an endoscopy and it was discovered
Hidden
in
Acid Reflux Support
4 months ago
Does anyone have any direct experience of Targinact?
Hi Everyone, this is my first post but I've been reading everything on this forum for a while now. I'm in real trouble with augmentation after taking ropinirole for 11 years. I successfully tapered off and was completely free of it by April 2023, however the RLS remained severe, and in October I decided
Hi Everyone, this is my first post but I've been reading everything on this forum for a while now. I'm in real trouble with augmentation after taking ropinirole for 11 years. I successfully tapered off and was completely free of it by April 2023, however the RLS remained severe, and in October I decided
Claire_lc
in
Restless Legs Syndrome
4 months ago
Cholesterol
How many have high cholesterol 300 plus but LDL is also high and HDL is so high can't be calculated. Triglycerides are normal. Had genetic testing all normal. Calcium CT scan is 0. High Lipoprotein A and B. Where can I find info to give to my cardiologist. He is lost!!
How many have high cholesterol 300 plus but LDL is also high and HDL is so high can't be calculated. Triglycerides are normal. Had genetic testing all normal. Calcium CT scan is 0. High Lipoprotein A and B. Where can I find info to give to my cardiologist. He is lost!!
Lawyers
in
PBCers Organization
4 months ago
Effect of thyroid meds on adrenals
I have been on levothyroxine for 2 years, numbers were good but wasn't converting well so I added a bit of Cytomel, 3 mcg. I felt ok, but not great. I tried to increase the Cytomel dose to 5 mcg but it made me sleepy all day. I finally lost weight and my face looked really good. Maybe I should have continued
I have been on levothyroxine for 2 years, numbers were good but wasn't converting well so I added a bit of Cytomel, 3 mcg. I felt ok, but not great. I tried to increase the Cytomel dose to 5 mcg but it made me sleepy all day. I finally lost weight and my face looked really good. Maybe I should have continued
Sofie007
in
Thyroid UK
4 months ago
Elvanse Vyvanse for ADHD & anxiety - Are these side effects normal or is it the wrong med?
Days 1, 2, 3 of Elvanse felt INCREDIBLE. Like a fog lifted - happier than i remember being in yeaaars with so much motivation and energy to get stuff done. Also waayy more sociable. ...but weeks later I don't feel nearly that amount of stimulation and I'm trying to navigate side effects/increased anxiety
Days 1, 2, 3 of Elvanse felt INCREDIBLE. Like a fog lifted - happier than i remember being in yeaaars with so much motivation and energy to get stuff done. Also waayy more sociable. ...but weeks later I don't feel nearly that amount of stimulation and I'm trying to navigate side effects/increased anxiety
hyperfocusaficionado
in
CHADD's Adult ADHD Support
4 months ago
T3 upped
Hi lovely people. Just had my T3 upped from 5mcgs twice a day to 5mcgs 3x a day. How should I time these T3 now,? Thanks v much.🤔
Hi lovely people. Just had my T3 upped from 5mcgs twice a day to 5mcgs 3x a day. How should I time these T3 now,? Thanks v much.🤔
Lottyplum
in
Thyroid UK
4 months ago
Dosage Amounts on Combi Therapy
Hope no one minds sharing, I started on self sourced T3 in December, adding it to my Levo. I'm due to run my first blood test on this new regime in a week on two. I'm curious about the dosages other members who take Combi thyroid meds are on, how much T3 and T4 they take daily, and do you split doses
Hope no one minds sharing, I started on self sourced T3 in December, adding it to my Levo. I'm due to run my first blood test on this new regime in a week on two. I'm curious about the dosages other members who take Combi thyroid meds are on, how much T3 and T4 they take daily, and do you split doses
Sparklingsunshine
in
Thyroid UK
4 months ago
Just recived letter of endo appointment 🤔
Hi everyone ❤️... Just recived the letter that tells you the surgery are referring you to an endocrinologist at Newcastle, no idea at the moment who that is.But I've popped a few pointers to discuss with them, mainly the awful symptoms on both the T4, T3. We I hope, will probably discuss alternative
Hi everyone ❤️... Just recived the letter that tells you the surgery are referring you to an endocrinologist at Newcastle, no idea at the moment who that is.But I've popped a few pointers to discuss with them, mainly the awful symptoms on both the T4, T3. We I hope, will probably discuss alternative
birkie
in
Thyroid UK
4 months ago
Taking Biotin prior to full Blood count
Good morning all. Should I stop taking B complex prior to having a Full Blood Count, I have been screened for bowel cancer and am having further tests. I always stop B complex when I have Advanced Thyroid (via medichecks) my recent test shows low ferritin and a higher inflammation I wonder if this
Good morning all. Should I stop taking B complex prior to having a Full Blood Count, I have been screened for bowel cancer and am having further tests. I always stop B complex when I have Advanced Thyroid (via medichecks) my recent test shows low ferritin and a higher inflammation I wonder if this
dipsyqueen
in
Thyroid UK
4 months ago
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