Search
Search
About
Log in
Join
Experiences with
Beckwith-Wiedemann Syndrome
Posts
Communities
3,352 public posts
Filter results
Zinc
Since being diagnosed with macular degeneration recently I have been taking a supplement containing lutein. It also contains zinc. I seem to remember hearing/seeing something about zinc being contraindicated for taking when using predisolone for pmr. I have pmrgca, into third year, down, at second attempt
Since being diagnosed with macular degeneration recently I have been taking a supplement containing lutein. It also contains zinc. I seem to remember hearing/seeing something about zinc being contraindicated for taking when using predisolone for pmr. I have pmrgca, into third year, down, at second attempt
DDKRM
in
PMRGCAuk
6 years ago
DAs addicting?
I am currently not on anything for RLS. Still struggling with withdrawal from pramipexole. It’s been going on for months. I went to a sleep specialist who’s only plan would include a DA. I told him I cannot take DAs since I get terrible side effects, both while on the drug and after withdrawal. He
I am currently not on anything for RLS. Still struggling with withdrawal from pramipexole. It’s been going on for months. I went to a sleep specialist who’s only plan would include a DA. I told him I cannot take DAs since I get terrible side effects, both while on the drug and after withdrawal. He
Yakester
in
Restless Legs Syndrome
6 years ago
Newly Diagnosed
After suffering with Raynaud’s for a couple of years I finally saw a rheumatologist about 6 weeks ago. Blood tests reveal that I am anticentromere antibody positive with Systemic Sclerosis, which I understand used to be called CREST Syndrome. She has organised a whole host of further tests, bloods, X-rays
After suffering with Raynaud’s for a couple of years I finally saw a rheumatologist about 6 weeks ago. Blood tests reveal that I am anticentromere antibody positive with Systemic Sclerosis, which I understand used to be called CREST Syndrome. She has organised a whole host of further tests, bloods, X-rays
Cubbikins
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Tramadol withdrawal
I have mentioned previously that my neurologist wanted me to come off Tramadol. I was uncertain about this but I have had a go. Starting with 200mg I took 0.25 less the first week and I was relatively ok. The second week was a different story! Poor sleep, pain and legs on the go. Suffice to say I am
I have mentioned previously that my neurologist wanted me to come off Tramadol. I was uncertain about this but I have had a go. Starting with 200mg I took 0.25 less the first week and I was relatively ok. The second week was a different story! Poor sleep, pain and legs on the go. Suffice to say I am
martino
in
Restless Legs Syndrome
6 years ago
My RLS Story
Hello, my RLS started 4years go after taking a course of antidepressants'. I took myself of them but unfortunately, my RLS stayed with me. I also get it on my arms and chest. Never have it in both legs or arms at the same time but it can easily switch from limb to limb on one day. I lost alot of sleep
Hello, my RLS started 4years go after taking a course of antidepressants'. I took myself of them but unfortunately, my RLS stayed with me. I also get it on my arms and chest. Never have it in both legs or arms at the same time but it can easily switch from limb to limb on one day. I lost alot of sleep
markren
in
Restless Legs Syndrome
6 years ago
Qutenza patch
Has anyone tried this? It contains capsaicin. I use lidocaine patches to numb my sesamoiditis. I am awaiting referal to get the qutenza patch be put on.
Has anyone tried this? It contains capsaicin. I use lidocaine patches to numb my sesamoiditis. I am awaiting referal to get the qutenza patch be put on.
Khae
in
Fibromyalgia Action UK
6 years ago
Restless Toes syndrome
It seems like most people have restless legs syndrome, I have restless syndrome. Every night I take Requip 3, and during the day I take requip 1 of my toes twitching. when I go somewhere overnight and forget to put my requip in, that night my toes do their twitching and then they start hurting
It seems like most people have restless legs syndrome, I have restless syndrome. Every night I take Requip 3, and during the day I take requip 1 of my toes twitching. when I go somewhere overnight and forget to put my requip in, that night my toes do their twitching and then they start hurting
bauerannec
in
Restless Legs Syndrome
6 years ago
Dealing with the loss in memory
Hi, I was diagnosed with TLE when I was 18. The thing that I battle with the most is the mood disturbances, crippling depression and severe anxiety. After 4 years of trying to find the right treatment to manage my moods, I was eventually put on a high dose of 500mg Lamictin and 50mg Topalex. Since then
Hi, I was diagnosed with TLE when I was 18. The thing that I battle with the most is the mood disturbances, crippling depression and severe anxiety. After 4 years of trying to find the right treatment to manage my moods, I was eventually put on a high dose of 500mg Lamictin and 50mg Topalex. Since then
Clo_clo
in
Epilepsy South Africa
6 years ago
Pneumococcal Immunisation
Morning all, has anybody had Pneumococcal Immunisation whilst on steroids? I've been offered this as a precaution against pneumonia, septicaemia and meningitis. I'm slightly concerned about its interaction with GCA/PMR and/or steroids.
Morning all, has anybody had Pneumococcal Immunisation whilst on steroids? I've been offered this as a precaution against pneumonia, septicaemia and meningitis. I'm slightly concerned about its interaction with GCA/PMR and/or steroids.
Ronnie101
in
PMRGCAuk
6 years ago
First IVF appt - what to expect?!
Hi everyone, Apologies if this is already discussed elsewhere...I’ve just had my NHS IVF referral appt at the hospital confirmed by my GP for next month and wondering what to expect. From what I can gather this will be with a specialist/consultant at the hospital that provides the treatment to check
Hi everyone, Apologies if this is already discussed elsewhere...I’ve just had my NHS IVF referral appt at the hospital confirmed by my GP for next month and wondering what to expect. From what I can gather this will be with a specialist/consultant at the hospital that provides the treatment to check
threesthemagicnumber
in
Fertility Network UK
6 years ago
Has anyone successfully weaned off DA meds and feeling ok
As I awaken every morning around 4am I immediately go to this site in an attempt to read everything and anything I can to help me with this awful disorder. Thank you so much for all the helpful info. It has given me some tools to hopefully get a few hours of sleep here and there. I thought things were
As I awaken every morning around 4am I immediately go to this site in an attempt to read everything and anything I can to help me with this awful disorder. Thank you so much for all the helpful info. It has given me some tools to hopefully get a few hours of sleep here and there. I thought things were
mmb8083
in
Restless Legs Syndrome
6 years ago
Second opinion outcome
Hi everyone, As promised an update on my second opinion. In case you didn’t see it on the original thread, my GP was more than happy to do a second referral, she said she would have suggested it if I hadn’t of done anyway. So I decided to go private as I wanted to make sure I saw the right person and
Hi everyone, As promised an update on my second opinion. In case you didn’t see it on the original thread, my GP was more than happy to do a second referral, she said she would have suggested it if I hadn’t of done anyway. So I decided to go private as I wanted to make sure I saw the right person and
Littlemisssunshine87
in
LUPUS UK
6 years ago
Withdrawal symptoms rls
Just wondered if someone can give me some advice, I have rls and have been usi g pramipexole 88 mg tabs since 2013, I am upto 4 tabs a night, the drug hasn't really worked for a while, so went to go, advised too come off them and reduce my dosage over several days, which I have, I've now been prescribed
Just wondered if someone can give me some advice, I have rls and have been usi g pramipexole 88 mg tabs since 2013, I am upto 4 tabs a night, the drug hasn't really worked for a while, so went to go, advised too come off them and reduce my dosage over several days, which I have, I've now been prescribed
BLUES60
in
Restless Legs Syndrome
6 years ago
RLS SEVERE
Hi there, I have recently started a medication called citalpram(celexa) and I noticed a few months ago I started getting signs of rls. It’s making me go crazy!! I try everything from warm baths, magnesium, massage my legs and I even take a sleeping pill or Ativan sometimes and I still can’t go to sleep
Hi there, I have recently started a medication called citalpram(celexa) and I noticed a few months ago I started getting signs of rls. It’s making me go crazy!! I try everything from warm baths, magnesium, massage my legs and I even take a sleeping pill or Ativan sometimes and I still can’t go to sleep
Kittykat1234
in
Restless Legs Syndrome
6 years ago
Questions about transitioning to lower doses of Tramadol while on Pregablin (Lyrica)?
Anyone know the standard dose of Tramadol that works well with Lyrica to eliminate RLS symptoms? I’m on 100 mgs Lyrica and 100 mgs of Tramadol 3 x a day. With that I am RLS free, but my doctor wants me to cut back to 50, 50 and 100. I started titrating down last week to just 50 mgs with my morning
Anyone know the standard dose of Tramadol that works well with Lyrica to eliminate RLS symptoms? I’m on 100 mgs Lyrica and 100 mgs of Tramadol 3 x a day. With that I am RLS free, but my doctor wants me to cut back to 50, 50 and 100. I started titrating down last week to just 50 mgs with my morning
Bganim1947
in
Restless Legs Syndrome
6 years ago
Confused about buserelin spray- starting today!
Hi all I’m having a FET cycle and as it’s day 21 of my cycle, starting buserelin/suprefact nasal spray (100mg spray) Having a mental block and can’t work out what to do. My instructions say one spray four times a day. Does that mean in one nostril (so 4 sprays in total) or in each nostril (so 8 sprays
Hi all I’m having a FET cycle and as it’s day 21 of my cycle, starting buserelin/suprefact nasal spray (100mg spray) Having a mental block and can’t work out what to do. My instructions say one spray four times a day. Does that mean in one nostril (so 4 sprays in total) or in each nostril (so 8 sprays
MissyR
in
Fertility Network UK
6 years ago
Postpartum Thyroiditis
Hi all! I have a baby girl who is 4.5months old. A couple of months ago I started to get classic hyper symptoms and got myself checked out (I’d seen them before in my sister who was hyper/Graves but is now in remission). My thyroid levels were high and postpartum thyroiditis was suspected as the cause
Hi all! I have a baby girl who is 4.5months old. A couple of months ago I started to get classic hyper symptoms and got myself checked out (I’d seen them before in my sister who was hyper/Graves but is now in remission). My thyroid levels were high and postpartum thyroiditis was suspected as the cause
EvaNik
in
Thyroid UK
6 years ago
Malt Lymphoma caused by Rheumatoid Arthritis
I have RA and Crohns and have now been diagnosed with a type of rare non Hodgkin so lymphoma called MALT Lymphoma, they say it’s a rare side affect of RA has anyone else ever been diagnosed with this
I have RA and Crohns and have now been diagnosed with a type of rare non Hodgkin so lymphoma called MALT Lymphoma, they say it’s a rare side affect of RA has anyone else ever been diagnosed with this
LesleyH
in
NRAS
6 years ago
Embarking on the IVF road.
So after 4 years and multiple attempts with gonal f, an operation and a misscarraige we had a consultation today with the Dr after I over responded (again) this round. The Dr said we could either try a couple more rounds of ovulation induction seeing as it has worked once or we could start the IVF journey
So after 4 years and multiple attempts with gonal f, an operation and a misscarraige we had a consultation today with the Dr after I over responded (again) this round. The Dr said we could either try a couple more rounds of ovulation induction seeing as it has worked once or we could start the IVF journey
bms12
in
Fertility Network UK
6 years ago
He, Dic Carlson, Another suggestion...
Have you tried or looked into info on Lithium orotate? (This is the mineral form of lithium, not the drug form of lithium carbonate.) Dr. Jonathan Wright has written about it, and here are a few others. There is a lot of info on using lithium orotate, and of course, there is always what people say
Have you tried or looked into info on Lithium orotate? (This is the mineral form of lithium, not the drug form of lithium carbonate.) Dr. Jonathan Wright has written about it, and here are a few others. There is a lot of info on using lithium orotate, and of course, there is always what people say
lauraflora
in
Restless Legs Syndrome
6 years ago
1
...
95
96
97
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1497 results
Fertility Network UK
360 results
PMRGCAuk
137 results
View top 10 communities
Sort by
Most Relevant
Newest