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PAP
Well I had a single lung transplant 2.5 years ago and doing great .... I went for my check up at newcastle and they say my lung disease has returned š„ I have pulmonary alveolar proteinosis... it's in my genes which therefore it will progress , we dont know how long it will take but the option of re
Well I had a single lung transplant 2.5 years ago and doing great .... I went for my check up at newcastle and they say my lung disease has returned š„ I have pulmonary alveolar proteinosis... it's in my genes which therefore it will progress , we dont know how long it will take but the option of re
Hidden
in
Lung Conditions Community Forum
5 years ago
Polycystic Kidney disease & receiving a Kidney transplant
If you had a transplant and it was due to polycystic kidney disease (PKD), I would like to know if you had the first year low white blood counts and low hemoglobin. 7 mos post transplant my spouse that found out he had PKD at age 30 (now 59), is having since mid March major hemoglobin low numbers. I
If you had a transplant and it was due to polycystic kidney disease (PKD), I would like to know if you had the first year low white blood counts and low hemoglobin. 7 mos post transplant my spouse that found out he had PKD at age 30 (now 59), is having since mid March major hemoglobin low numbers. I
Gardner-NY
in
Kidney Transplant
5 years ago
How exciting.....
Morning everyone, I was wondering if any of my Royal Free transplant buddies are attending the celebration event on 12th July at the Emirates stadium? My wonderful hospital completed their 2000th Liver Transplant (yes 2000th) in December 2018 š. Royal Free transplant recipients have been invited to
Morning everyone, I was wondering if any of my Royal Free transplant buddies are attending the celebration event on 12th July at the Emirates stadium? My wonderful hospital completed their 2000th Liver Transplant (yes 2000th) in December 2018 š. Royal Free transplant recipients have been invited to
nickiwj
in
British Liver Trust
5 years ago
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Cardiomyopathy
Hi everyone, I am new here, been following peopleās journeys since Feb and not yet commented. I suffer from severe anxiety and heart palpitations. around 2 years ago we found out that my dad has heart failure, his mum had cardiomyopathy which runs through the family and also 2/3of his uncles have died
Hi everyone, I am new here, been following peopleās journeys since Feb and not yet commented. I suffer from severe anxiety and heart palpitations. around 2 years ago we found out that my dad has heart failure, his mum had cardiomyopathy which runs through the family and also 2/3of his uncles have died
Fiona1989
in
British Heart Foundation
5 years ago
Stem Cell Transplant That didnāt put cancer in remission
Has anyone gone through a stem cell transplant that did not put the cancer in remission? What medications did they suggest for you?
Has anyone gone through a stem cell transplant that did not put the cancer in remission? What medications did they suggest for you?
seaturtle2
in
Myeloma America Support
5 years ago
Leg, Feet pains
I had a Liver Transplant Oct 2016 due to Liver Cancer. A few months after, I experienced horrendous pains in my legs and feet, in particular my right. The QE, Birmingham dismiss my medication is the cause. I am on Tacrolimus and Mycrophenolate. I have developed a dropped foot, swollen foot, constant
I had a Liver Transplant Oct 2016 due to Liver Cancer. A few months after, I experienced horrendous pains in my legs and feet, in particular my right. The QE, Birmingham dismiss my medication is the cause. I am on Tacrolimus and Mycrophenolate. I have developed a dropped foot, swollen foot, constant
DENRO
in
British Liver Trust
5 years ago
Who I am
I lived with severe COPD for 10 years with16% lung capacity. Almost seven years ago I received a double lung transplant. I am now An activist for COPD, the American Lung Association, smoking cessation,and organ donation.
I lived with severe COPD for 10 years with16% lung capacity. Almost seven years ago I received a double lung transplant. I am now An activist for COPD, the American Lung Association, smoking cessation,and organ donation.
orlanw
in
Lung Conditions Community Forum
5 years ago
Should I ask for more tests or being assessed for a transplant?
I am a woman, not yet 62. Though diagnosed about 7y ago, when I was told I probably have a liver transplant in my future, I have always been pretty much asymptomatic. I now have NASH cirrohosis, end stage-- had a variceal bleed over the new year, they did an endoscopy, found three varices, but because
I am a woman, not yet 62. Though diagnosed about 7y ago, when I was told I probably have a liver transplant in my future, I have always been pretty much asymptomatic. I now have NASH cirrohosis, end stage-- had a variceal bleed over the new year, they did an endoscopy, found three varices, but because
taar
in
British Liver Trust
5 years ago
Test to be done to check further working of kidney and how to lessen immunosupperants??
My father is 64 years of age and underwent kidney transplant 4 years ago now the creatine level has up to 1.5 what are the precaution that i must take to avoid any further damage to kidneys and also is there any way to lessen immunosuppressants.
My father is 64 years of age and underwent kidney transplant 4 years ago now the creatine level has up to 1.5 what are the precaution that i must take to avoid any further damage to kidneys and also is there any way to lessen immunosuppressants.
Bagweaniket
in
Kidney Transplant
5 years ago
Hi!
Hello everyone! I recently received a kidney transplant this past weekend and I was just curious about how many of you who had also received one have been feeling the first couple days/weeks. Iām terribly bloated and this pain is crazy. Thank god for painkillers right? lol. Has anyone had the stent
Hello everyone! I recently received a kidney transplant this past weekend and I was just curious about how many of you who had also received one have been feeling the first couple days/weeks. Iām terribly bloated and this pain is crazy. Thank god for painkillers right? lol. Has anyone had the stent
Hidden
in
Kidney Disease
5 years ago
does enalapril reduce kidney function
does enalapril medication make ur kidney function or gfr decrease . very concern my gfr when from being normal for my kidney transplant to one point 6 gfr really worried but at the same time in hope that the reason it decrease because of this medication and because i didnt drink enough water was feeling
does enalapril medication make ur kidney function or gfr decrease . very concern my gfr when from being normal for my kidney transplant to one point 6 gfr really worried but at the same time in hope that the reason it decrease because of this medication and because i didnt drink enough water was feeling
jennifer24
in
Early CKD Support
5 years ago
Steroids and BK virus
Six months after my 2nd kidney transplant I started rejecting and they discovered I had the BK virus so they took mr off MMF and kept me on Adoport and added Prednisolone which is now at 10mg per day and have been on this now for 18 months and have been told I will have to stay on this dose always .
Six months after my 2nd kidney transplant I started rejecting and they discovered I had the BK virus so they took mr off MMF and kept me on Adoport and added Prednisolone which is now at 10mg per day and have been on this now for 18 months and have been told I will have to stay on this dose always .
smashandgrab
in
Kidney Transplant Patient Support
5 years ago
TigerBalm
Morning All, Just a quick question... I am a kidney transplant patient with painful arthritis. Someone has recomended Tiger Balm.... Does anyone else use this? Is it ok with transplant meds? Thanks Mgt
Morning All, Just a quick question... I am a kidney transplant patient with painful arthritis. Someone has recomended Tiger Balm.... Does anyone else use this? Is it ok with transplant meds? Thanks Mgt
Mgt8
in
Kidney Transplant Patient Support
5 years ago
Devastated is this the end?
My husband has had a cirrhotic liver and alcoholic liver disease for a number of years coupled with all the complications this brings. He has now been abstinent for 4 and a half years, as I write he is spending his 17th night in hospital, this is his 3rd stay this year. In January this year he was told
My husband has had a cirrhotic liver and alcoholic liver disease for a number of years coupled with all the complications this brings. He has now been abstinent for 4 and a half years, as I write he is spending his 17th night in hospital, this is his 3rd stay this year. In January this year he was told
Billfury
in
British Liver Trust
5 years ago
CLL, Bone Marrow Transplant and Hodgkinās Lymphoma
Canāt really answer this as I havenāt had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL ācareerā ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
Canāt really answer this as I havenāt had one for my CLL. Am 76 years old. Issue of bone marrow transplant has been raised several times in my CLL ācareerā ( 16 years ). My specialists have told me that I am too old for such a procedure. In fact one of them said it would probably kill me. And that response
leopardo
in
CLL Support
5 years ago
Major breakthrough in the treatment of leukemia
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
[i]Bone marrow aspirate showing Acute Myeloid Leukaemia (AML). Several blasts have Auer rods. Wikipedia [/i] [i] [/i] This article out of the University of Montreal seems to hold some promise for the treatment of AML. Rather than just posting a link I thought it might be easier for all to read this extract
socrates_8
in
MPN Voice
5 years ago
Update on My Father's Cirrhosis - Seems Stable
Hello, As we found out about my father's Cirrhosis in February after we noticed his swollen stomach. His Ascites of 2.5ltr was drained in on Feb 23, 2019. It was followed by Endoscopy where grade 3 varices were diagnosed. He never had bleeding, but doctors recommended banding, so he had it done in
Hello, As we found out about my father's Cirrhosis in February after we noticed his swollen stomach. His Ascites of 2.5ltr was drained in on Feb 23, 2019. It was followed by Endoscopy where grade 3 varices were diagnosed. He never had bleeding, but doctors recommended banding, so he had it done in
zvhipp
in
British Liver Trust
5 years ago
Ventolin Inhaler -Alternative
Good evening everyone, I have taken my Ventolin Inhaler for many years of me having COPD and Bronchiectasis, I am now stage 4 COPD and awaiting a lung transplant. Although I have to regularly take lots of medication daily as well as nebulisers I have noticed that my Ventolin Inhaler doesnāt seem to work
Good evening everyone, I have taken my Ventolin Inhaler for many years of me having COPD and Bronchiectasis, I am now stage 4 COPD and awaiting a lung transplant. Although I have to regularly take lots of medication daily as well as nebulisers I have noticed that my Ventolin Inhaler doesnāt seem to work
Joseph260268
in
Lung Conditions Community Forum
5 years ago
AmazonSmile - charity donations
There maybe a few people out there who may not be aware of AmazonSmile. I daresay we all buy something from Amazon on a regular bases. (I for one buy my printer ink cartridges from Amazon, and I also got my "Liver Transplant" T-shirt from them). If a person was to register with AmazonSmile and place
There maybe a few people out there who may not be aware of AmazonSmile. I daresay we all buy something from Amazon on a regular bases. (I for one buy my printer ink cartridges from Amazon, and I also got my "Liver Transplant" T-shirt from them). If a person was to register with AmazonSmile and place
Hidden
in
British Liver Trust
5 years ago
Stem Cells!
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
My 22 year old son has Primary MF and one of his sisters is a 10/10 stem cell match for him - a wonderful thing for us all to hear after we discovered that a stem cell transplant is currently his only avenue for cure. My daughter is keen to raise awareness of the need for more people to register as
christiev
in
MPN Voice
5 years ago
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