If you had a transplant and it was due to polycystic kidney disease (PKD), I would like to know if you had the first year low white blood counts and low hemoglobin. 7 mos post transplant my spouse that found out he had PKD at age 30 (now 59), is having since mid March major hemoglobin low numbers. I give him 3X week an injection of Procrit (not retacrit) and the numbers are going down still. His energy has been low since February and he does little around the house (he's retired) and I work full time. He has no energy and it drives him nuts. He shakes badly from medications too. Thanks for writing me back. I have not found anyone with these issues since joining early May to this group. the doctors say it may take a year before the hormone from kidney to bone marrow to make more hemoglobin functions fully. I would like to hear your comments. thanks.
Polycystic Kidney disease & receiving a ... - Kidney Transplant
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