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Autologous stem cell transplant
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Itch and spots post liver transplant
hi this may be mote if a kidney group question than the than liver, but i am post-liver transplant 22 months but unfortunately sustained some kidney damage, i am left with a symptom of skin itching all over. i wonder how common this is, what causes it and if there is anything effective to stop it. the
hi this may be mote if a kidney group question than the than liver, but i am post-liver transplant 22 months but unfortunately sustained some kidney damage, i am left with a symptom of skin itching all over. i wonder how common this is, what causes it and if there is anything effective to stop it. the
Vargula
in
British Liver Trust
7 months ago
What does having a NEW KIDNEY feel like?
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Imaanforever
in
Kidney Dialysis
7 months ago
Protein in my urine
Hi there! I am 6 months post kidney transplant. First I'd like to say that I was very blessed, I was approved and put on the list May 3, 2023 and I received my new kidney from a perfect match deceased donor June 13, 2023. My transplant team said that is very rare and very lucky. I have had some challenges
Hi there! I am 6 months post kidney transplant. First I'd like to say that I was very blessed, I was approved and put on the list May 3, 2023 and I received my new kidney from a perfect match deceased donor June 13, 2023. My transplant team said that is very rare and very lucky. I have had some challenges
SweetTexas75
in
Kidney Transplant
7 months ago
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Transplant Question
I’ve been wondering for awhile if kidney transplants are given once a person is past a certain age? I’m in the U.S. and I have a cousin who had severe liver disease. She was 75 & the state she lived in didn’t perform liver transplants on anyone over 68. I checked with my state, & liver transplants
I’ve been wondering for awhile if kidney transplants are given once a person is past a certain age? I’m in the U.S. and I have a cousin who had severe liver disease. She was 75 & the state she lived in didn’t perform liver transplants on anyone over 68. I checked with my state, & liver transplants
Halebopp
in
Kidney Disease
7 months ago
Desperately trying to save my partner.
Hello all,I am desperately trying to get the surgeons to overturn their decision to not give my partner a liver transplant. He has Autoimmune Hepatitis with the complication of Hepatopulmonary Syndrome and the only way to cure Hps is with transplantation but they refuse. He had an assessment at the
Hello all,I am desperately trying to get the surgeons to overturn their decision to not give my partner a liver transplant. He has Autoimmune Hepatitis with the complication of Hepatopulmonary Syndrome and the only way to cure Hps is with transplantation but they refuse. He had an assessment at the
Ffof6
in
British Liver Trust
7 months ago
Re Introduction Hi everyone
Hi everyone My name is sara brown.I joined this community a long time ago because I was diagnosed with ILD in 2019 but havent posted for years so I thought Id better re-introduce myself A lot has happened to me -I have been put on Oxygen 24/7 at home which does limit my going out for example
Hi everyone My name is sara brown.I joined this community a long time ago because I was diagnosed with ILD in 2019 but havent posted for years so I thought Id better re-introduce myself A lot has happened to me -I have been put on Oxygen 24/7 at home which does limit my going out for example
horseygirl_0103
in
Living with Interstitial Lung Disease (ILD)
7 months ago
Lung Transplant appointment 28/11/23 Cancellled for the 2nd time due to Failure of Patient Transport
I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me. We had to explain we were waiting for the ambulance - he then cancelled the
I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me. We had to explain we were waiting for the ambulance - he then cancelled the
Sara_2611
in
Lung Conditions Community Forum
7 months ago
Fairly new to all this...
In need of Kidneys and Liver transplant, I reside in El Paso, TX. and need to travel to Dallas, TX. for treatment at Dallas Methodist Hospital. It's been rough these past two years, I thought I could do this alone. But I am wrong, lost all my friends, family is trying but it's not easy and cheap. I can
In need of Kidneys and Liver transplant, I reside in El Paso, TX. and need to travel to Dallas, TX. for treatment at Dallas Methodist Hospital. It's been rough these past two years, I thought I could do this alone. But I am wrong, lost all my friends, family is trying but it's not easy and cheap. I can
MajorBC81
in
Kidney Transplant
7 months ago
Kidney transplant stage 4 20 percent kidney function but don't have symptoms.
Hi everyone I hope everyone is doing well . Well it's been 22 years years with my kidney transplant and unfortunately I'm already at stage 4 20 percent kidney function. I have was hoping that this second time going to the dr my percent will be a little higher but no 😔. I'm so worried and scare I don't
Hi everyone I hope everyone is doing well . Well it's been 22 years years with my kidney transplant and unfortunately I'm already at stage 4 20 percent kidney function. I have was hoping that this second time going to the dr my percent will be a little higher but no 😔. I'm so worried and scare I don't
jennifer24
in
Kidney Transplant
7 months ago
OK - got another question -
Again, I'm 7 months post kidney transplant. My GFR is all over the place. Just. checked today and it is the lowest it has been since 2 months ago. During this first year of transplant, is that normal. Has anyone else experienced this? If you have, what did you do to raise it. I try to eat healthy
Again, I'm 7 months post kidney transplant. My GFR is all over the place. Just. checked today and it is the lowest it has been since 2 months ago. During this first year of transplant, is that normal. Has anyone else experienced this? If you have, what did you do to raise it. I try to eat healthy
Tankjsl
in
Kidney Transplant
7 months ago
Bad news
Hi all, as some of you know I had a successful heart transplant in July 2020 and so far all has been good, more trouble from the rest of the old body but on Friday I received the devastating news that I have bowel cancer. It was picked up through the routine testing another thing I have to thank the
Hi all, as some of you know I had a successful heart transplant in July 2020 and so far all has been good, more trouble from the rest of the old body but on Friday I received the devastating news that I have bowel cancer. It was picked up through the routine testing another thing I have to thank the
Thanksnhs
in
British Heart Foundation
7 months ago
1 Year Anniversary (Nov 16)
Good evening, Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very
Good evening, Yesterday, Nov 16, 2023, was the one year anniversary for my kidney transplant. Cindy (my donor kidney named after my good friend who helped me decide to pursue transplant eligibility testing) has been a trooper this year. She has soldiered forward without faltering as we’ve battled very
Jayhawker
in
Kidney Dialysis
7 months ago
GI issues post transplant
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
Tankjsl
in
Kidney Transplant
7 months ago
CMV Update
Kidney transplant: Nov 16, 2022 ( donor kidney CMV+, recipient CMV-) kidney (I’ve named Cindy): Doing very well (creatinine .81, eGFR 78) Struggles: very low white blood cell count from Feb through July & CMV from May to date CMV: 4 flare-ups to date I was referred out to see an infectious disease
Kidney transplant: Nov 16, 2022 ( donor kidney CMV+, recipient CMV-) kidney (I’ve named Cindy): Doing very well (creatinine .81, eGFR 78) Struggles: very low white blood cell count from Feb through July & CMV from May to date CMV: 4 flare-ups to date I was referred out to see an infectious disease
Jayhawker
in
Kidney Transplant
8 months ago
PBC - liver transplant donors and blood group questions
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a liver transplant is needed, that being a specific blood group type can limit the number of potential donors you may have? I am the blood group Rhesus Negative and wondered
Cascade35
in
PBC Foundation
8 months ago
CR Advanced Prostrate Ca, and start of chemotherapy after PSMA
Dear All, I am posting my message with a hope to have better insight into my father's condition of Castrate resistant Advanced Prostrate Cancer and also seek the help of your experience.My father has had his cadaveric liver transplantation from Mayo Clinic, Jacksonville, Fl in 2001. We went from India
Dear All, I am posting my message with a hope to have better insight into my father's condition of Castrate resistant Advanced Prostrate Cancer and also seek the help of your experience.My father has had his cadaveric liver transplantation from Mayo Clinic, Jacksonville, Fl in 2001. We went from India
Ij2023
in
Advanced Prostate Cancer
8 months ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center!
Have questions about kidney disease or kidney failure?
Sign up for our NEW, self-paced education program to learn more about your kidneys and what
Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center!
Have questions about kidney disease or kidney failure?
Sign up for our NEW, self-paced education program to learn more about your kidneys and what
KateyC_NKF
Partner
in
Parents of Children with Kidney Disease
8 months ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center!
Have questions about kidney disease or kidney failure?
Sign up for our NEW, self-paced education program to learn more about your kidneys and what
Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center!
Have questions about kidney disease or kidney failure?
Sign up for our NEW, self-paced education program to learn more about your kidneys and what
KateyC_NKF
Partner
in
Kidney Disease
8 months ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
KateyC_NKF
Partner
in
Kidney Dialysis
8 months ago
zookeeper54
I am 69 years old, i have polycystic disease and I received a kidney transplant in July of this year, 2023. I want to talk to others who have shared this journey. I am only 4 months post transplant.
I am 69 years old, i have polycystic disease and I received a kidney transplant in July of this year, 2023. I want to talk to others who have shared this journey. I am only 4 months post transplant.
zookeeper54
in
Kidney Transplant
8 months ago
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