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Nintedanib
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
8 months ago
Hi... was blessed to have a kidney transplant 6 weeks ago... anyone eve struggle with the meds?
So thankful for a working kidney and the blessing of a Living donor.... but the meds have been almost more than I can handle. And the toll they are taking on my body is immense. Can anyone tell me their experience with all these meds and how they worked through and held on through recovery. I am 6
So thankful for a working kidney and the blessing of a Living donor.... but the meds have been almost more than I can handle. And the toll they are taking on my body is immense. Can anyone tell me their experience with all these meds and how they worked through and held on through recovery. I am 6
Highgfr
in
Kidney Disease
8 months ago
Shingrix vaccine for immunosuppressed people aged 50+
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
I thought I would just post this from the gov.uk website because I have just a bit of struggle convincing our surgery that I was eligible, so maybe other people haven't been invited either. The full list is on chrome-extension://efaidnbmnnnibpcajpcglclefindmkaj/https://assets.publishing.service.gov.uk
Sharitone
in
PMRGCAuk
8 months ago
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liver gal
I have had a liver transplant June 29, 2023 and the hair loss won’t stop? And info on will it stop?!
I have had a liver transplant June 29, 2023 and the hair loss won’t stop? And info on will it stop?!
Livergal
in
British Liver Trust
8 months ago
Dilated Cardiomyopathy/ Heart Transplant
I was diagnosed with Dilated Cardiomyopathy in November 2022 after suffering shortness of breath and always being tired and breathless. I quickly deteriorated and when I went back to see my Cardiologist in January I was told I was now critical and needed to be admitted and put on the urgent transplant
I was diagnosed with Dilated Cardiomyopathy in November 2022 after suffering shortness of breath and always being tired and breathless. I quickly deteriorated and when I went back to see my Cardiologist in January I was told I was now critical and needed to be admitted and put on the urgent transplant
Jobby85
in
British Heart Foundation
8 months ago
Diagnosis at last! Haemochromotosis?
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
I've posted a few times on this forum but a bit of backstory - hubby, 43 had sudden onset of upper right quadrant pain last December, has some tests for gallstones, found nothing, immediately stopped drinking (had drunk heavily for around 15 years), and after a lot of back and forward was found to have
RugbyMama
in
British Liver Trust
8 months ago
just advice support
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
Helpplease_
in
ICUsteps
8 months ago
Lympahdinitis
Lymphdinitis in neck in kidney transplant patient..in FAnc reporr No TB detected or cancer only it says
Necrotizing Lympahdinitis
.. .after taking antibiotic and antinflameter ..for 8 days it reduce ..the size of lymph node ..but no it again increased and further on e another arise up..plz
Lymphdinitis in neck in kidney transplant patient..in FAnc reporr No TB detected or cancer only it says
Necrotizing Lympahdinitis
.. .after taking antibiotic and antinflameter ..for 8 days it reduce ..the size of lymph node ..but no it again increased and further on e another arise up..plz
bal_123
in
Kidney Transplant Patient Support
8 months ago
Lee75glom
I currently am undergoing evaluation for a kidney transplant a major transplantation center, Perelman Center for Advanced Medicine. I passed the first stage by the transplant committee. I am wondering about how patients who have received a kidney transplant deal with transportation to their center
I currently am undergoing evaluation for a kidney transplant a major transplantation center, Perelman Center for Advanced Medicine. I passed the first stage by the transplant committee. I am wondering about how patients who have received a kidney transplant deal with transportation to their center
Lee75glom
in
Kidney Transplant
9 months ago
October 15, 1999 - 2023
I am now 24 years out from my kidney transplant. I remember it as if it were yesterday! Getting the "call" at 2:30 AM and having to be at transplant center by 5:30...and then not taken to surgery till 3:00 PM. Had a lot of time to "stress out". Picture is of me hiking in Arches National Park in September
I am now 24 years out from my kidney transplant. I remember it as if it were yesterday! Getting the "call" at 2:30 AM and having to be at transplant center by 5:30...and then not taken to surgery till 3:00 PM. Had a lot of time to "stress out". Picture is of me hiking in Arches National Park in September
WYOAnne
NKF Ambassador
in
Kidney Disease
9 months ago
new transplant
I am new to this sight. Just want to say I am feeling incredibly grateful for my kidney transplant that occurred on Oct 4. My daughter was my donor and we were both released 2 days later. I was the first robot assisted kidney transplant at Mayo Clinic. I have to say it was fantastic. I have about a 2
I am new to this sight. Just want to say I am feeling incredibly grateful for my kidney transplant that occurred on Oct 4. My daughter was my donor and we were both released 2 days later. I was the first robot assisted kidney transplant at Mayo Clinic. I have to say it was fantastic. I have about a 2
Pjpanning
in
Kidney Transplant
9 months ago
Likelihood of liver transplantation
Hello everyone, hoping you can provide your experience and knowledge to help guide us. Our dad (57) has been a heavy drinker for the past 25 years, was always in denial and refused any help until he became hospitalised at the start of this year. He had developed severe ascites requiring drainage, has
Hello everyone, hoping you can provide your experience and knowledge to help guide us. Our dad (57) has been a heavy drinker for the past 25 years, was always in denial and refused any help until he became hospitalised at the start of this year. He had developed severe ascites requiring drainage, has
GranolaLover87
in
British Liver Trust
9 months ago
Kidney transplant
Hi Everyone, I just joined. My kidneys are at 10-12 EGFR and I am striving to find a living donor. I have some resources to do so, but I am wondering what others have done to search for a living donor. I also wonder what others in this situation have done for transportation to a major transplant
Hi Everyone, I just joined. My kidneys are at 10-12 EGFR and I am striving to find a living donor. I have some resources to do so, but I am wondering what others have done to search for a living donor. I also wonder what others in this situation have done for transportation to a major transplant
Lee75glom
in
Kidney Disease
9 months ago
Just saying hello
Good morning. I have just joined and wanted to say hello and let you all know how appreciative I am that there is a forum for kidney transplant recipients.
Good morning. I have just joined and wanted to say hello and let you all know how appreciative I am that there is a forum for kidney transplant recipients.
4Evergrateful2God
in
Kidney Transplant
9 months ago
Biopsy and Fibroscan
Hello I was diagnosed with PBC in May after they removed my gallbladder and took a liver biopsy. My questions is...the biopsy state I was Stage 1 but I received a phone call from my gastro yesterday who told me I am at Stage 3 and probable Stage 4 according to the fibroscan. I'm not sure why the discrepancy
Hello I was diagnosed with PBC in May after they removed my gallbladder and took a liver biopsy. My questions is...the biopsy state I was Stage 1 but I received a phone call from my gastro yesterday who told me I am at Stage 3 and probable Stage 4 according to the fibroscan. I'm not sure why the discrepancy
suz56
in
PBCers Organization
9 months ago
Time flies... when you're having babies!
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
Afternoon all, Apologies for the radio silence for the best part of six months. I never intended to leave it this long before updating you all but life (and a certain little miss) got in the way! Cassie Jean Jackson came kicking and screaming in to the world at 8.28 am on Monday 16th October last
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
5 months ago
Medical breakthrough
Hi everyone just wanted to share this video about a possible breaththrough about an 8 year old girl. Who after a kidney transplant doesn't have to take an immunosuppressant drugs after reviewing a special type of kidney. https://youtu.be/OWbdArmDJOI?si=tD0l1yNFz20kav3I 🌹
Hi everyone just wanted to share this video about a possible breaththrough about an 8 year old girl. Who after a kidney transplant doesn't have to take an immunosuppressant drugs after reviewing a special type of kidney. https://youtu.be/OWbdArmDJOI?si=tD0l1yNFz20kav3I 🌹
bbeba103
in
Kidney Disease
9 months ago
Intense pruritus following liver transplant - diagnosed with hepatic cholestatic. Any help please?
Hi, I received a liver transplant back in December 2022 and recovery was well for the first four months however around end of April I started suffering with pruritus amongst other symptoms i.e. acid reflux, fatigue etc. and following x rays and scans, the Consultants advised it was due to strictures
Hi, I received a liver transplant back in December 2022 and recovery was well for the first four months however around end of April I started suffering with pruritus amongst other symptoms i.e. acid reflux, fatigue etc. and following x rays and scans, the Consultants advised it was due to strictures
KateG94
in
British Liver Trust
9 months ago
Cirrhosis
I have told I can't have a Liver transplant.My Liver has gone to decompensated with portal hypertension. Does anybody know what stage I am and what will happen
I have told I can't have a Liver transplant.My Liver has gone to decompensated with portal hypertension. Does anybody know what stage I am and what will happen
Williamsbluefamily
in
British Liver Trust
9 months ago
Does anyone get these symptoms and have answers of cause ??
Hi, I had a liver transplant back in March 2022. I had a condition called ‘PSC’ since my op my recovery was and is a slow one involving a few complications, but the one I’m struggling with at the minute is a sort of heat rash all over my body - hot itchy and very uncomfortable. Tonight it seems to
Hi, I had a liver transplant back in March 2022. I had a condition called ‘PSC’ since my op my recovery was and is a slow one involving a few complications, but the one I’m struggling with at the minute is a sort of heat rash all over my body - hot itchy and very uncomfortable. Tonight it seems to
NicharrisonMarch2022
in
British Liver Trust
9 months ago
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