Search
Search
About
Log in
Join
Experiences with
Autologous stem cell transplant
Posts
Communities
3,320 public posts
Filter results
hematology oncology appointment tomorrow-stressed
Good evening, Tomorrow is my 15 month kidney transplant anniversary (transplant Nov 16. 2022). My battle with CMV appears to be resolved. My CMV data consistently tests “not detected” now and has for the past 3 months. This has been a major battle. I was CMV- pre transplant but the donor kidney was
Good evening, Tomorrow is my 15 month kidney transplant anniversary (transplant Nov 16. 2022). My battle with CMV appears to be resolved. My CMV data consistently tests “not detected” now and has for the past 3 months. This has been a major battle. I was CMV- pre transplant but the donor kidney was
Jayhawker
in
Kidney Transplant
4 months ago
Kidney transplant assessment
Hi I have stage 5 failure. My GFR IS 10. I had my first kidney transplant in May 1995. This will be my second. I am meeting the transplant surgeon, nephrologist and anaesthetist this Wednesday. They will let me know if I am suitable to go back on the transplant list. I am really really nervous and scared
Hi I have stage 5 failure. My GFR IS 10. I had my first kidney transplant in May 1995. This will be my second. I am meeting the transplant surgeon, nephrologist and anaesthetist this Wednesday. They will let me know if I am suitable to go back on the transplant list. I am really really nervous and scared
DoylerOz
in
Kidney Transplant
4 months ago
taking Urso
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
I know some of you have already read the comments on the FB page. The subject of taking Urso, even though it causes so many side effects and ‘doesn’t keep me from dying’, has been brought up. I feel in my heart I need to offer my thoughts. I have been taking Urso for over 35 years. I had PBC for 20
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Life insurance
Hi everyone I had a single lung transplant 7 years ago . I am really struggling to get some form of life insurance to protect my family , has anyone had any success in finding cover ?
Hi everyone I had a single lung transplant 7 years ago . I am really struggling to get some form of life insurance to protect my family , has anyone had any success in finding cover ?
Hidden
in
Lung Conditions Community Forum
4 months ago
Counsellor with transplant patient experience
My husband had successful liver transplant surgery 6 months ago. At the same time he was battling liver ill health, he lost the sight in his dominant eye due to a retinal detachment. He now has better vision in his other eye, and is hoping to be able to drive again (he has been off the road for over
My husband had successful liver transplant surgery 6 months ago. At the same time he was battling liver ill health, he lost the sight in his dominant eye due to a retinal detachment. He now has better vision in his other eye, and is hoping to be able to drive again (he has been off the road for over
ScruffyRosie
in
British Liver Trust
5 months ago
transplant
Hi I’m currently going through the process of assessment for liver transplant , I feel like I have done all the appointments. My bilirubin was 180 in 2022 November yes scary it’s now 52 I’m wondering will I not be accepted for a transplant or what happens. I know we can ask our consultants etc but I
Hi I’m currently going through the process of assessment for liver transplant , I feel like I have done all the appointments. My bilirubin was 180 in 2022 November yes scary it’s now 52 I’m wondering will I not be accepted for a transplant or what happens. I know we can ask our consultants etc but I
Meanies
in
National Foundation for Transplants
5 months ago
Post Transplant Fatigue
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic
Dawnejoy
in
British Liver Trust
5 months ago
previous question
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
an introduction...
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
If you get sick...cold, flu, Covid...what did you do?
I'm just over 9 months kidney transplant from a living donor. I've felt great but I do worry, since it is cold and flu season, about getting sick. Probably my biggest worry at this point. I try to wear masks when I am out and take all precautions. I just wondered though if I should get sick what are
I'm just over 9 months kidney transplant from a living donor. I've felt great but I do worry, since it is cold and flu season, about getting sick. Probably my biggest worry at this point. I try to wear masks when I am out and take all precautions. I just wondered though if I should get sick what are
Tankjsl
in
Kidney Transplant
5 months ago
Transplant Assessment - Day Three
[u]
DAY THREE
[/u] Well, here is my nightly rambling report from Edinburgh. Hubby was admitted onto the liver transplant / kidney ward yesterday evening and later on after i'd come back to the caravan they inserted his nasal gastric feeding tube - it was a bit of an ordeal for him as they allowed
[u]
DAY THREE
[/u] Well, here is my nightly rambling report from Edinburgh. Hubby was admitted onto the liver transplant / kidney ward yesterday evening and later on after i'd come back to the caravan they inserted his nasal gastric feeding tube - it was a bit of an ordeal for him as they allowed
AyrshireK
in
British Liver Trust
5 months ago
Choosing your own in-center doctor?
Hello, everyone! My mom has been at her new dialysis center for about three months, and the doctor and NP assigned to her are pretty terrible. We noticed that a former patient had their own nephrologist who came to the center to go over lab results and handle any dialysis-related issues. That patient
Hello, everyone! My mom has been at her new dialysis center for about three months, and the doctor and NP assigned to her are pretty terrible. We noticed that a former patient had their own nephrologist who came to the center to go over lab results and handle any dialysis-related issues. That patient
Learning_as_we_go
in
Kidney Dialysis
5 months ago
Lung damage, ECMO, time taken to recover.
Hi, my uncle was diagnosed with pnemonia and a 90% lung damage on 18Dec. He was put on ventilator and ECMO on 20th, its been 35 days ans there has been no improvement in the lungs. he took about 20 days to come out of induced coma, doctors are now making him sit occasionally and hoping for some improvement
Hi, my uncle was diagnosed with pnemonia and a 90% lung damage on 18Dec. He was put on ventilator and ECMO on 20th, its been 35 days ans there has been no improvement in the lungs. he took about 20 days to come out of induced coma, doctors are now making him sit occasionally and hoping for some improvement
shivnajain
in
ICUsteps
5 months ago
Possible Kidney Failure
Hello: My husband had a liver transplant many years ago and has done very well, for which we are very grateful. Since October of 2023, his creatinine started rising and his egfr started falling. He had blood work done several times since then. He latest egfr is 45, his creatinine is 1.6 and his BUN
Hello: My husband had a liver transplant many years ago and has done very well, for which we are very grateful. Since October of 2023, his creatinine started rising and his egfr started falling. He had blood work done several times since then. He latest egfr is 45, his creatinine is 1.6 and his BUN
PennyLovas
in
Kidney Disease
5 months ago
Never give up .
Hi all I just want to say what a brilliant site this is and seeing all the different posts with information and experiences people have had is really helpful. I had sort of given up hope of my vision returning in my left eye due to cornea damage after many procedures due to Glaucoma and Uveitis and
Hi all I just want to say what a brilliant site this is and seeing all the different posts with information and experiences people have had is really helpful. I had sort of given up hope of my vision returning in my left eye due to cornea damage after many procedures due to Glaucoma and Uveitis and
LondonStadium
in
Glaucoma UK
5 months ago
Turning Hurdles into Hope: How one Hospital Overcomes Kidney Transplant Obstacles
Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles
Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles
JackieJ_NKF
Partner
in
Kidney Donation
5 months ago
Turning Hurdles into Hope: How one Hospital Overcomes Kidney Transplant Obstacles
Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles
Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles
JackieJ_NKF
Partner
in
Kidney Transplant
5 months ago
Increased Creatinine -
I have a kidney transplant since 2009. I have had 4 ablations on my heart for afib since 2019. It has affected my creatinine adversely at times. I just changed from Flecanide to Propafenone for afib, & we are hoping this will lower my creatinine, which has slowly been increasing since starting the Flecanide
I have a kidney transplant since 2009. I have had 4 ablations on my heart for afib since 2019. It has affected my creatinine adversely at times. I just changed from Flecanide to Propafenone for afib, & we are hoping this will lower my creatinine, which has slowly been increasing since starting the Flecanide
Tashikat
in
Kidney Transplant
5 months ago
Mycophenolate instead of Perfinedine or Nintenanib?
Hi everyone I became breathless suddenly in August 2023. This was initially dismissed by my GP even though O2 was 90% as my chest was clear and I had no cough. A fortnight later I was able to get an appointment with a different GP who sent me for a chest X ray which showed I had pulmonary fibrosis.
Hi everyone I became breathless suddenly in August 2023. This was initially dismissed by my GP even though O2 was 90% as my chest was clear and I had no cough. A fortnight later I was able to get an appointment with a different GP who sent me for a chest X ray which showed I had pulmonary fibrosis.
DaveLister
in
Lung Conditions Community Forum
5 months ago
creatinine levels
I’m 9 months out from my kidney transplant and all is going well except this month my bloods show my creatinine level went up from 121 to 135 and I was getting a few dizzy spells and weak bouts seems that has gone now but this is the first time my level rose sinse transplant
I’m 9 months out from my kidney transplant and all is going well except this month my bloods show my creatinine level went up from 121 to 135 and I was getting a few dizzy spells and weak bouts seems that has gone now but this is the first time my level rose sinse transplant
Bmw520d
in
Kidney Transplant
5 months ago
1
...
3
4
5
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
699 results
Lung Conditions Community Forum
457 results
Kidney Transplant
427 results
View top 10 communities
Sort by
Most Relevant
Newest