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I had an appointment yesterday to discuss results of recent echo. Was seen by a specialist (can’t remember official title) who is a level below cardiologist - apparently does all the ground work and liases with cardiologist. He advised that as well as afib, I now have 2 slightly leaky valves and also
I had an appointment yesterday to discuss results of recent echo. Was seen by a specialist (can’t remember official title) who is a level below cardiologist - apparently does all the ground work and liases with cardiologist. He advised that as well as afib, I now have 2 slightly leaky valves and also
Puzzled8
in
Atrial Fibrillation Support
1 month ago
Flare or Adrenal Crisis
During the Christmas period I had a series of very stressful situations , including transatlantic travel. Upon returning I experienced extreme burning pain in my neck, arms, shoulders and groin. I could barely get out of bed. It was the same pain I experienced when I was first diagnosed with PMR 2 1
During the Christmas period I had a series of very stressful situations , including transatlantic travel. Upon returning I experienced extreme burning pain in my neck, arms, shoulders and groin. I could barely get out of bed. It was the same pain I experienced when I was first diagnosed with PMR 2 1
Belfastman
in
PMRGCAuk
6 months ago
cardiologist appointment
hello I went to see cardiologist today , was told no af , have tachycardia sinus rhythm , realy wanted some help with my meds as making me unwell , I’m now on bisop 2.5 twice per day , and can take flec if I want to I realy would like to take it but makes me feel very unwell , said I could take 50
hello I went to see cardiologist today , was told no af , have tachycardia sinus rhythm , realy wanted some help with my meds as making me unwell , I’m now on bisop 2.5 twice per day , and can take flec if I want to I realy would like to take it but makes me feel very unwell , said I could take 50
Prosecco1997
in
Atrial Fibrillation Support
2 months ago
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APS and Panic Attacks
Hi, I have been living with the diagnosis of APS since 2017 after a mini-stroke in my left eye, which fortunately left no damage. Recently, I switched from aspirin to warfarin after possibly experiencing another mini-stroke, though this hasn't been confirmed by tests. Sometimes, I feel dizzy, short
Hi, I have been living with the diagnosis of APS since 2017 after a mini-stroke in my left eye, which fortunately left no damage. Recently, I switched from aspirin to warfarin after possibly experiencing another mini-stroke, though this hasn't been confirmed by tests. Sometimes, I feel dizzy, short
Alessandra001
in
Hughes Syndrome APS Forum
2 months ago
Holidays
Hi all I'm going away for 6 weeks to france so I'm stocking up on meds. My question is how long can you go without apixaban in an emergency as I'm on 2 a day. Also on a small dose of bisop once a day. This is my first time away in a year since my stroke last July and a bit nervous 😓 Thank you
Hi all I'm going away for 6 weeks to france so I'm stocking up on meds. My question is how long can you go without apixaban in an emergency as I'm on 2 a day. Also on a small dose of bisop once a day. This is my first time away in a year since my stroke last July and a bit nervous 😓 Thank you
TillyBoss
in
Atrial Fibrillation Support
2 months ago
new members
I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
I know all too well how overwhelming this diagnosis can be to anyone. All of the emotions that can follow are hard to deal with for sure. If any new member doesn't feel comfortable posting anything here initially, please feel free to send me a message via 'chat'. We have all been exactly where you
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
my story
I’m 74 yrs old and have some other autoimmune conditions with arthritis. I have Kyphosis and thoracic spine degeneration. Up until a year ago I didn’t have much pain or much restriction. That has changed and now my right side of chest aches a lot up into my shoulder. I am restricted in what I can do
I’m 74 yrs old and have some other autoimmune conditions with arthritis. I have Kyphosis and thoracic spine degeneration. Up until a year ago I didn’t have much pain or much restriction. That has changed and now my right side of chest aches a lot up into my shoulder. I am restricted in what I can do
Gwelos
in
Cure Arthritis Community
1 year ago
Full circle with this disease
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Diagnosed 2017 PSA 105 started ADT, 6 rounds Docetaxel and radiation PSA drops to undetectable. Castrate resistant 2022 started Abiraterone and prednisone this failed after 3 months. Start Xgeva and Xofigo 2023. PSA back at 105 November 2023. Start 10 rounds of Docetaxel and PSA starts dropping again
Islandboy2021
in
Advanced Prostate Cancer
6 months ago
Top tips for driving with rheumatoid arthritis
Driving is something many of us take for granted, but imagine driving with swollen joints and pains in your hands. 😣 Read about some of our top tips to manage driving for someoone living with rheumatoid arthritis. Read the full article here 👉 https://nras.org.uk/resource/tips-for-driving-rheumatoid-arthritis
Driving is something many of us take for granted, but imagine driving with swollen joints and pains in your hands. 😣 Read about some of our top tips to manage driving for someoone living with rheumatoid arthritis. Read the full article here 👉 https://nras.org.uk/resource/tips-for-driving-rheumatoid-arthritis
Aribah-NRAS
NRAS
in
NRAS
1 year ago
AbbVie announces EU availability of Parkinson's therapy
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
A cutting-edge skin patch, equipped with a miniature pump, administers a continuous 24-hour subcutaneous infusion of a therapy based on levodopa. My neurologist recommended this innovative approach as a more convenient alternative to managing our medication, eliminating the need for multiple pills throughout
LuckyLuke
in
Cure Parkinson's
6 months ago
2nd Ablation woes
Hi I had a second ablation 2 weeks ago today. Everything went well and I felt happy and optimistic. Then a few days ago I went back into Af with an erractic heartbeat that is still continuing. Spoke to Arrythmia nurse and she advised this is quite common and I might need a cardioversion in 6 weeks after
Hi I had a second ablation 2 weeks ago today. Everything went well and I felt happy and optimistic. Then a few days ago I went back into Af with an erractic heartbeat that is still continuing. Spoke to Arrythmia nurse and she advised this is quite common and I might need a cardioversion in 6 weeks after
Twizzle1962
in
Atrial Fibrillation Support
2 months ago
Electric shock treatment
I was diagnosed with AF Nov 2022 but have beeb pretty good since then with no further arrhythmia (as far as I am aware). Recently had echocardiogram and the technician thought everything looked fine. Now had letter saying I would be given an appointment for electric shock treatment to improve my energy
I was diagnosed with AF Nov 2022 but have beeb pretty good since then with no further arrhythmia (as far as I am aware). Recently had echocardiogram and the technician thought everything looked fine. Now had letter saying I would be given an appointment for electric shock treatment to improve my energy
Lynthebin
in
AF Association
5 months ago
Supplements to help liver
I had a blood test that showed raised ALT and then stopped drinking for 3 months and the repeat test had gone down to normal levels. I have heard that various things can help the liver, milk thistle, artichoke, dandelion etc. Is there any merit in any of these. I do not drink a lot but the occasional
I had a blood test that showed raised ALT and then stopped drinking for 3 months and the repeat test had gone down to normal levels. I have heard that various things can help the liver, milk thistle, artichoke, dandelion etc. Is there any merit in any of these. I do not drink a lot but the occasional
Catsaresocute
in
British Liver Trust
6 months ago
Flecainide before Cardioversion
My EP's plan was to have me start on Flecainide and then have Cardioversion in hopes that my heart would keep rhythm. EP changed his mind because my INR was below threshold and told me to not take it until AFTER the CV in case the med converted my heart. I was instructed to have an ECG done 2 days
My EP's plan was to have me start on Flecainide and then have Cardioversion in hopes that my heart would keep rhythm. EP changed his mind because my INR was below threshold and told me to not take it until AFTER the CV in case the med converted my heart. I was instructed to have an ECG done 2 days
Siebertgirl
in
Atrial Fibrillation Support
2 months ago
Fibroscan
My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t seem concerned as my blood results are normal and a recent ultrasound on my liver hasn’t changed apparently the size is the same. 🤷♀️I also have fatty liver. I was carrying a bit of extra weight but not overly big but
My Fibroscan score has increased from 5.9 to 7.9 in a year my consultant doesn’t seem concerned as my blood results are normal and a recent ultrasound on my liver hasn’t changed apparently the size is the same. 🤷♀️I also have fatty liver. I was carrying a bit of extra weight but not overly big but
kingsnorth
in
PBC Foundation
6 months ago
Excruciating jaw pain
Over the past week, pain in my jaw has been getting worse. It’s now excruciating at times. It’s not there all the time but does often coincide with eating. Had a thorough dental examination and no sign of infection or necrosis (from Zometa). I’m taking cocodamol but it’s not enough. Any similar experiences
Over the past week, pain in my jaw has been getting worse. It’s now excruciating at times. It’s not there all the time but does often coincide with eating. Had a thorough dental examination and no sign of infection or necrosis (from Zometa). I’m taking cocodamol but it’s not enough. Any similar experiences
FortyWinks
in
Advanced Prostate Cancer
2 months ago
Vasculitis (especially CNS/cerebral) and incontinence
I was helping another cerebral/CNS vasculitis patient tonight about incontinence. Which can be a common symptom of brain vasculitis, whether a primary CNS/cerebral vasculitis, or secondary brain involvement from a systemic vasculitis like GPA. But vasculitis medics frequently under recognise incontinence
I was helping another cerebral/CNS vasculitis patient tonight about incontinence. Which can be a common symptom of brain vasculitis, whether a primary CNS/cerebral vasculitis, or secondary brain involvement from a systemic vasculitis like GPA. But vasculitis medics frequently under recognise incontinence
vivdunstan
Volunteer
in
Vasculitis UK
2 months ago
Thankyou
Thankyou to everyone for all the replies to my previous post. I have felt anxious because of being newly diagnosed and new to the meds so the replies have helped me greatly. I've still got an echo to come and 48hr ecg and I have the date for the ecg now. Thankyou once again.
Thankyou to everyone for all the replies to my previous post. I have felt anxious because of being newly diagnosed and new to the meds so the replies have helped me greatly. I've still got an echo to come and 48hr ecg and I have the date for the ecg now. Thankyou once again.
Exhiker
in
Atrial Fibrillation Support
2 months ago
iwatch setting - AF history or AF alert?
Prior to my ablation last October I had persistent Afib. Since then I have been in NSR. I have kept my iwatch monitor set to record “AF history” and it has consistently shown AF load to be 2% or under on the weekly notifications. Should I stay on this setting or should I now set it to show alerts the
Prior to my ablation last October I had persistent Afib. Since then I have been in NSR. I have kept my iwatch monitor set to record “AF history” and it has consistently shown AF load to be 2% or under on the weekly notifications. Should I stay on this setting or should I now set it to show alerts the
Rainfern
in
Atrial Fibrillation Support
2 months ago
Weird leg pain
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Hi everyone, I'm hoping someone can shed some light on this weird symptom! For almost 10 years now I have had pain in my outer calf about two inches up from my ankle on both sides. It comes on with the slightest exertion but is not there all the time. The achy pain builds and builds until I feel like
Womble84
in
Endometriosis UK
2 months ago
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