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I have basically left the house about 15 times in the last year due to my herniated disc , various spinal degeneration rubbish, I have lupus, fibromyalgia, and various other
autoimmune
diseases
that I can’t spell 🤣.
I have basically left the house about 15 times in the last year due to my herniated disc , various spinal degeneration rubbish, I have lupus, fibromyalgia, and various other
autoimmune
diseases
that I can’t spell 🤣.
M0wnt
in
Fibromyalgia Action UK
6 months ago
New papers on PA
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
There are often new interesting papers on pernicious anemia. I will add them to this thread to keep them all in one place. I'll try to the pick the ones I think are most novel & relevant, but plenty are published every month. To see more, check Google Scholar https://scholar.google.com/scholar?start=
jade_s
in
Pernicious Anaemia Society
11 months ago
Paper preprint: Transcobalamin Receptor Autoantibodies in Central Vitamin B12 Deficiency
The following paper is a preprint, which means it has not been peer reviewed yet. https://www.medrxiv.org/content/10.1101/2023.08.21.23294253v1.full Pluvinage et al, "Transcobalamin Receptor Autoantibodies in Central Vitamin B12 Deficiency" medRxiv 2023.08.21.23294253; doi: https://doi.org/10.1101/
The following paper is a preprint, which means it has not been peer reviewed yet. https://www.medrxiv.org/content/10.1101/2023.08.21.23294253v1.full Pluvinage et al, "Transcobalamin Receptor Autoantibodies in Central Vitamin B12 Deficiency" medRxiv 2023.08.21.23294253; doi: https://doi.org/10.1101/
jade_s
in
Pernicious Anaemia Society
11 months ago
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Severe Degenerative Arthritis and Osteoporosis
I have had osteoarthritis for many years, both knees and hips have been replaced and I have degeneration in other joints. Nearly four years ago I had a spinal collapse with the vertabrae in most of my back tumbling like dominoes, caused by osteoporosis. A recent xray has now confirmed severe degenerative
I have had osteoarthritis for many years, both knees and hips have been replaced and I have degeneration in other joints. Nearly four years ago I had a spinal collapse with the vertabrae in most of my back tumbling like dominoes, caused by osteoporosis. A recent xray has now confirmed severe degenerative
Bluebell999
in
Arthritis Action
11 months ago
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 months ago
List of sources supporting that TED occurs with hypothyroid, euthyroid & TRab negative patients.
thyroid
diseases
such as Graves’ disease (90%) or Hashimoto thyroiditis (3%)” =========================================================== University of Iowa https://webeye.ophth.uiowa.edu/eyeforum/tutorials/thyroid-eye-disease/index.htm “More recently, TED has also been noted in Hashimoto's
thyroid
diseases
such as Graves’ disease (90%) or Hashimoto thyroiditis (3%)” =========================================================== University of Iowa https://webeye.ophth.uiowa.edu/eyeforum/tutorials/thyroid-eye-disease/index.htm “More recently, TED has also been noted in Hashimoto's
PurpleNails
Administrator
in
Thyroid UK
11 months ago
New here
Hi everyone, I am new here. I have had rheumatoid arthritis for a long time but was diagnosed more recently with fibromyalgia as my consultant explained to me that a lot of my pain is not consistent with rheumatoid arthritis but is consistent with fibromyalgia as are other symptoms I have. The pain
Hi everyone, I am new here. I have had rheumatoid arthritis for a long time but was diagnosed more recently with fibromyalgia as my consultant explained to me that a lot of my pain is not consistent with rheumatoid arthritis but is consistent with fibromyalgia as are other symptoms I have. The pain
ma73jon
in
Fibromyalgia Action UK
11 months ago
buprenorphine is not that harmless: sum
. ## KOR and Remyelination In the context of
autoimmune
diseases
like multiple sclerosis, KOR activation has been shown to promote oligodendrocyte-mediated remyelination, alleviating symptoms of experimental autoimmune encephalomyelitis (EAE). ## Conclusion In summary, KOR blockers enhance microglia-mediated
. ## KOR and Remyelination In the context of
autoimmune
diseases
like multiple sclerosis, KOR activation has been shown to promote oligodendrocyte-mediated remyelination, alleviating symptoms of experimental autoimmune encephalomyelitis (EAE). ## Conclusion In summary, KOR blockers enhance microglia-mediated
snoemata
in
Restless Legs Syndrome
3 months ago
dizziness recently diagnosed coeliac
My daughter ,18, was recently diagnosed as a coeliac. She had very low iron levels for 6/9 months before her diagnosis. She has been gluten free since her diagnosis 3 months ago. There have been slip ups but only by mistake and only on 3/4 occasions . She was having dizziness regularly before diagnosis
My daughter ,18, was recently diagnosed as a coeliac. She had very low iron levels for 6/9 months before her diagnosis. She has been gluten free since her diagnosis 3 months ago. There have been slip ups but only by mistake and only on 3/4 occasions . She was having dizziness regularly before diagnosis
Mst27
in
Gluten Free Guerrillas
11 months ago
Lupus rash/spots spread to scalp.
Hi, I have Lupus and Sjogrens . This year has been difficult with increased photosensitivity. Skin rash has spread to my scalp. Red spots and flaky and itchy. Scalp can feel very sensitive at times. Just wondering if any one has had the same problem and what treatment was used? I am on 6 monthly
Hi, I have Lupus and Sjogrens . This year has been difficult with increased photosensitivity. Skin rash has spread to my scalp. Red spots and flaky and itchy. Scalp can feel very sensitive at times. Just wondering if any one has had the same problem and what treatment was used? I am on 6 monthly
Haired
in
LUPUS UK
11 months ago
eating gluten prior to biopsy
Hi, I was diagnosed with coeliac disease a few years ago during covid. At that time (lockdown), the second stage of diagnosis was suspended. In my case, my blood results and the fact that I have first degree relatives with coeliac disease and I also have thyroid disease all combined to mean there was
Hi, I was diagnosed with coeliac disease a few years ago during covid. At that time (lockdown), the second stage of diagnosis was suspended. In my case, my blood results and the fact that I have first degree relatives with coeliac disease and I also have thyroid disease all combined to mean there was
lauram1978
in
Gluten Free Guerrillas
7 months ago
Memory loss and autoimmune thyroiditis
Hi, DH has autoimmune thyroiditis and has been under investigation for possible Hashimoto’s encephalopathy as his long term memory loss equates to amnesia. It seems to flare up after infections like food poisoning or cold viruses and he gets reduced mental processing and a host of hypothyroid-type
Hi, DH has autoimmune thyroiditis and has been under investigation for possible Hashimoto’s encephalopathy as his long term memory loss equates to amnesia. It seems to flare up after infections like food poisoning or cold viruses and he gets reduced mental processing and a host of hypothyroid-type
Zmalp
in
Thyroid UK
11 months ago
Pernicious Anaemia Society - communications team
We have set up this "user" as the communications team from the Pernicious Anaemia Society. We are not moderators on this forum and will not be answering any questions or commenting on specific circumstances or posts for individuals. This is a forum for discussion amongst users and a community for
We have set up this "user" as the communications team from the Pernicious Anaemia Society. We are not moderators on this forum and will not be answering any questions or commenting on specific circumstances or posts for individuals. This is a forum for discussion amongst users and a community for
PAScomms
in
Pernicious Anaemia Society
11 months ago
Lupkynis protects kidneys in lupus nephritis patients for up to 3 years
“We are proud of our sustained research in
autoimmune
diseases
like lupus and remain committed to helping improve kidney health for people living with lupus nephritis,” Keenan said.
https://lupusnewstoday.com/news/lupkynis-protects-kidneys-lupus-nephritis-patients-up-3-years/?
“We are proud of our sustained research in
autoimmune
diseases
like lupus and remain committed to helping improve kidney health for people living with lupus nephritis,” Keenan said.
https://lupusnewstoday.com/news/lupkynis-protects-kidneys-lupus-nephritis-patients-up-3-years/?
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Dr. Mark Porter's B12 Times article
Further to deniseinmilden's post I decided to risk my credit card and subscribed to the free trial of The Times to get the article. Here it is, for better or for worse! There are a lot of comments, some of which he replies to, sadly I can't reproduce them here. But I think it's good news in terms of the
Further to deniseinmilden's post I decided to risk my credit card and subscribed to the free trial of The Times to get the article. Here it is, for better or for worse! There are a lot of comments, some of which he replies to, sadly I can't reproduce them here. But I think it's good news in terms of the
Sneedle
in
Pernicious Anaemia Society
11 months ago
b12 deficiency - when to have Pernicious anaemia test?
hi, I am rather new to all this and would be very grateful for some advice. I recently had a blood test as I had moved GP surgeries and it came back with low B12 (70). I am on a course of 6 injections over 2 weeks, just had my 5th today. I have been given a blood form for ‘pernicious anaemia
hi, I am rather new to all this and would be very grateful for some advice. I recently had a blood test as I had moved GP surgeries and it came back with low B12 (70). I am on a course of 6 injections over 2 weeks, just had my 5th today. I have been given a blood form for ‘pernicious anaemia
Digbydog123
in
Pernicious Anaemia Society
11 months ago
LUpus Patients Understanding & Support (LUPUS )
LUpus Patients Understanding & Support (LUPUS ) is a news and information website about Systemic Lupus Erythematosis, lupus variant conditions and the Antiphospholipid Antibody Syndrome (APS) or Hughes Syndrome, also known as “sticky blood.” It does not provide medical advice, diagnosis or treatment.
LUpus Patients Understanding & Support (LUPUS ) is a news and information website about Systemic Lupus Erythematosis, lupus variant conditions and the Antiphospholipid Antibody Syndrome (APS) or Hughes Syndrome, also known as “sticky blood.” It does not provide medical advice, diagnosis or treatment.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 months ago
Can someone help me with my results please
Serum TSH levels 0.9 mU/L 0.35 - 5.00 Serum Free T4 level 21.7 pmo1/L 11.0 - 23.0 I have been diagnosed with underactive thyroid for over 10 years but can’t understand my blood results. Could anyone please translate these for me please. I’m 52 year old female. Always tired. Hair is thinning.
Serum TSH levels 0.9 mU/L 0.35 - 5.00 Serum Free T4 level 21.7 pmo1/L 11.0 - 23.0 I have been diagnosed with underactive thyroid for over 10 years but can’t understand my blood results. Could anyone please translate these for me please. I’m 52 year old female. Always tired. Hair is thinning.
Mickdondan
in
Thyroid UK
11 months ago
Hot flushed Post GNRH analogues
Hi I was on Prostap followed by Zoladex for 2 years. I decided to stop having injections 5.5 months ago. I had a lot of weight gain, other autoimmune conditions and underactive thyroid. I was all medicated up and on too much. So my question....did you have hot flushes after you came off them? Im currently
Hi I was on Prostap followed by Zoladex for 2 years. I decided to stop having injections 5.5 months ago. I had a lot of weight gain, other autoimmune conditions and underactive thyroid. I was all medicated up and on too much. So my question....did you have hot flushes after you came off them? Im currently
Awwy
in
Endometriosis UK
11 months ago
Continuing problems after RAI treatment
Fifteen months ago I had RAI treatment to destroy my thyroid as the Consultant said it could no longer be treated with carbimazole as it was affecting my white blood cell count. So eventually, despite not wanting to, I had the treatment. As I had had an underactive thyroid for 12 years before it changed
Fifteen months ago I had RAI treatment to destroy my thyroid as the Consultant said it could no longer be treated with carbimazole as it was affecting my white blood cell count. So eventually, despite not wanting to, I had the treatment. As I had had an underactive thyroid for 12 years before it changed
Fizz70
in
Thyroid UK
11 months ago
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