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Provenge criteria necessary for acceptance.
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
SViking
in
Advanced Prostate Cancer
9 months ago
Emotional lability and LT ADT
At certain times of extra stress, like awaiting a PSA test result, I have gotten into wrist-slap trouble by making awkward humor and remarks to Clinic staff. They get PO'ed and tattle to my MO. It's really not like me and the latest incident prompted me to look into ADT and emotional SE's. Bingo!
At certain times of extra stress, like awaiting a PSA test result, I have gotten into wrist-slap trouble by making awkward humor and remarks to Clinic staff. They get PO'ed and tattle to my MO. It's really not like me and the latest incident prompted me to look into ADT and emotional SE's. Bingo!
Derf4223
in
Advanced Prostate Cancer
9 months ago
Possible Cure
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
Hi, I was diagnosed initially 2 years ago as Stage 4 with mets to the bones. Low volume. Gleason 8-9, PSA less than 2 from the onset. I had radiation to the prostate only. After 2 years of Lupron/Zytiga, everything has shrunk or disappeared via PSMA PET. Everything has been good,(but with med
groth12345
in
Advanced Prostate Cancer
9 months ago
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GS8 in one core Brachy boost and no HT
Six years ago I was diagnosed with PC. Only one core of 13 showed GS8 ie. 4mm in a 10mm core. I wasn't willing to undergo HT and fortunately that was optional at BCCA with my PSA of 5.2 and only one core with cancer. I had all the side effects like fatigue, frequent urinating and the worst being the
Six years ago I was diagnosed with PC. Only one core of 13 showed GS8 ie. 4mm in a 10mm core. I wasn't willing to undergo HT and fortunately that was optional at BCCA with my PSA of 5.2 and only one core with cancer. I had all the side effects like fatigue, frequent urinating and the worst being the
deMarco
in
Prostate Cancer Network
9 months ago
Feeling very hopeless at this point.
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
My husband was diagnosed in 2011 at age 52, gleason 8, 11 of 12 cores positive. We went for many many 2nd opinions, surgery or radiation? finally chose radiation as all doctors said it had spread already and would need radiation anyway after surgery. Treated with Snuffy Myers in Virginia until his
Judymin
in
Advanced Prostate Cancer
9 months ago
Helpful group
Hello All, This group has been very helpful in providing information and suggestions on PC. I was diagnosed in Sept. 23 as Stage 4, Gleason 7 with all core samples testing positive and one met to the sacrum. Just completed 28 rounds of IMRT and have been on Lupron, Xtandi and Zometa for the last two
Hello All, This group has been very helpful in providing information and suggestions on PC. I was diagnosed in Sept. 23 as Stage 4, Gleason 7 with all core samples testing positive and one met to the sacrum. Just completed 28 rounds of IMRT and have been on Lupron, Xtandi and Zometa for the last two
Jeffdanger
in
Advanced Prostate Cancer
5 months ago
CHAMP Trial/Small Cell Chemo Update
If you don’t feel like reading my bio, I’ll give a synopsis: My dad is only 53 with advanced metastatic PC that spread to his liver earlier this year. His PSA had been undetectable so it really threw us for a loop. My dad finished 6 sessions of carbo & etoposide chemo about 3 weeks ago. He is still randomly
If you don’t feel like reading my bio, I’ll give a synopsis: My dad is only 53 with advanced metastatic PC that spread to his liver earlier this year. His PSA had been undetectable so it really threw us for a loop. My dad finished 6 sessions of carbo & etoposide chemo about 3 weeks ago. He is still randomly
antisocialsocialwrkr
in
Advanced Prostate Cancer
9 months ago
Need Help with Next Gen ADT
I haven't updated my bio for awhile but I am still hormone sensitive MPCA. My PSA last month was undetectable. I had a bilateral orchiectomy in February but was also on Erleada which I stayed on until recently. So what's changed is that I also have Stage I Multiple Myeloma. Erleada and Xandti are
I haven't updated my bio for awhile but I am still hormone sensitive MPCA. My PSA last month was undetectable. I had a bilateral orchiectomy in February but was also on Erleada which I stayed on until recently. So what's changed is that I also have Stage I Multiple Myeloma. Erleada and Xandti are
swwags
in
Advanced Prostate Cancer
9 months ago
So unsure what to do...
Hello all. I am a 53 year old gay man and I have had raised PSA since 2020. My urologist performed a DRE and felt nothing and decided that we should watch the number and see what happens. 1 year later, the urologist decided to send me for an MRI and it showed no signs of cancer. Feeling relieved, I
Hello all. I am a 53 year old gay man and I have had raised PSA since 2020. My urologist performed a DRE and felt nothing and decided that we should watch the number and see what happens. 1 year later, the urologist decided to send me for an MRI and it showed no signs of cancer. Feeling relieved, I
SadandScared
in
Prostate Cancer And Gay Men
9 months ago
Latest T4 just under upper limit is 50mcg per week enough?
Hey guys my latest T4 was just under the upper limit 20.9 (11.9-21.6) ..I take 135mcg a day, 5 days 150 and 2 days 100..shall I drop down to 4 days 150 and 3 days 100 would that be about right? Thank you.
Hey guys my latest T4 was just under the upper limit 20.9 (11.9-21.6) ..I take 135mcg a day, 5 days 150 and 2 days 100..shall I drop down to 4 days 150 and 3 days 100 would that be about right? Thank you.
ockerdoc
in
Thyroid UK
6 hours ago
At A Loss
Hi, I've been Hypo/Hashi's for 20 years now. Completely GF/DF/EF/SF for just about that long. I did so well on NDT until the pig flu debacle years ago, then Armour and the other NDT's stopped working. I currently take only T3 for about 4 years now. I was taking 62.5 mcg split throughout the day. I
Hi, I've been Hypo/Hashi's for 20 years now. Completely GF/DF/EF/SF for just about that long. I did so well on NDT until the pig flu debacle years ago, then Armour and the other NDT's stopped working. I currently take only T3 for about 4 years now. I was taking 62.5 mcg split throughout the day. I
Dottie44
in
Thyroid UK
8 hours ago
what to do now ?
Hi All Confused what to do next ? These are my results after 6 weeks on new regime Bloods taken 8am and 12 hours after last dose of T3 125 mcg Tirosint 2.5 mcg T3 I’m feeling much warmer and brain fog is better although I do feel a little angst and teary at times ? Energy is much better.
Hi All Confused what to do next ? These are my results after 6 weeks on new regime Bloods taken 8am and 12 hours after last dose of T3 125 mcg Tirosint 2.5 mcg T3 I’m feeling much warmer and brain fog is better although I do feel a little angst and teary at times ? Energy is much better.
joskie
in
Thyroid UK
11 hours ago
MMA Urine Result
Good morning! I recently had an MMA Urine Test and the result came back as <30. I thought over 3 was indicative of B12 deficiency. Why is there no specific number? What does less than 30 actually mean? Has anyone else had a result reported like this?
Good morning! I recently had an MMA Urine Test and the result came back as <30. I thought over 3 was indicative of B12 deficiency. Why is there no specific number? What does less than 30 actually mean? Has anyone else had a result reported like this?
Spinach19
in
Pernicious Anaemia Society
11 hours ago
6 month old chronic cough
My 6 month old baby has had a cough on and off for the last 4 months . Back to the gp various times and three courses of antibiotics yet this still has not fully gone! Been referred to pediatrics and gp said this may be the start of asthma but hard to diagnose due to his age. I’m really getting anxious
My 6 month old baby has had a cough on and off for the last 4 months . Back to the gp various times and three courses of antibiotics yet this still has not fully gone! Been referred to pediatrics and gp said this may be the start of asthma but hard to diagnose due to his age. I’m really getting anxious
Hjed
in
Asthma Community Forum
14 hours ago
list of t3 friendly endocrinologist East Anglia
Please can someone help me to find a T3 friendly Endocrinologist.Preferably in East Anglia, Norfolk and Waveney Trust. Many thanks
Please can someone help me to find a T3 friendly Endocrinologist.Preferably in East Anglia, Norfolk and Waveney Trust. Many thanks
Lowestoft
in
Thyroid UK
1 day ago
IBS or something more?
Hi, this is my first post on here, and I'm just wondering if anyone can calm my anxiety and mind...For the past 4 years, I've had what I can only call unusual symptoms...bloating, passing a lot of blood from my back passage (clots included and the amount I'd pass during a heavy period), a lot of mucus
Hi, this is my first post on here, and I'm just wondering if anyone can calm my anxiety and mind...For the past 4 years, I've had what I can only call unusual symptoms...bloating, passing a lot of blood from my back passage (clots included and the amount I'd pass during a heavy period), a lot of mucus
SES05
in
IBS Network
1 day ago
ferritin levels high - abdominal scan booked.
hello concerned about my gp referring me for abdominal and pelvic ultrasound because of my ferritin levels. May 185 June 205 July 191 My Google searching indicates he is looking at potential liver issues. My ALT is under 3 and I drink maybe 2 units per month these days. Are liver issues linked
hello concerned about my gp referring me for abdominal and pelvic ultrasound because of my ferritin levels. May 185 June 205 July 191 My Google searching indicates he is looking at potential liver issues. My ALT is under 3 and I drink maybe 2 units per month these days. Are liver issues linked
NewPMR53
in
PMRGCAuk
1 day ago
Where can I purchase T3 online?
Hello, I have been on T3 successfully for years but my online supplier has suddenly gone offline. Any tips on websites that are legitimate pleasse?
Hello, I have been on T3 successfully for years but my online supplier has suddenly gone offline. Any tips on websites that are legitimate pleasse?
HealthisWealth2023
in
Thyroid UK
2 days ago
Thoughts on bloods please
These are my bloods from Jan past….. (due to get them updated shortly) ….but just wanted to know what your thoughts on these are please? I’m not converting T4 to T3 and really struggling. Your thoughts on iron, ferritin etc please would be greatly appreciated. I was given a trial of low dose T3
These are my bloods from Jan past….. (due to get them updated shortly) ….but just wanted to know what your thoughts on these are please? I’m not converting T4 to T3 and really struggling. Your thoughts on iron, ferritin etc please would be greatly appreciated. I was given a trial of low dose T3
FoxyTed
in
Thyroid UK
2 days ago
New results on a split dose, advice please
Hey everyone, Still on my journey to get better. I've been splitting Armour and t3 doses for the past 10 weeks. I take 1.75 Armour + 10 t3 at 8 am 0.75 Armour + 5 t3 at 2 pm I used to take 2.5 Armour + 5 t3 am and then just 2.5 t3 pm. I'm still looking for a dose that will make me functional
Hey everyone, Still on my journey to get better. I've been splitting Armour and t3 doses for the past 10 weeks. I take 1.75 Armour + 10 t3 at 8 am 0.75 Armour + 5 t3 at 2 pm I used to take 2.5 Armour + 5 t3 am and then just 2.5 t3 pm. I'm still looking for a dose that will make me functional
Incoguto
in
Thyroid UK
2 days ago
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