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Starting Third Month of Orgovyx--Update
Blood test after two months shows PSA of 1.45, down from 16.5--over a 90% drop. So, the medication is working as advertised. I believe their own stats indicate an approx. 98% drop in 90 days. This week's visit with my new MO nurse practitioner went well. She was very happy with the PSA results and
Blood test after two months shows PSA of 1.45, down from 16.5--over a 90% drop. So, the medication is working as advertised. I believe their own stats indicate an approx. 98% drop in 90 days. This week's visit with my new MO nurse practitioner went well. She was very happy with the PSA results and
mababa
in
Advanced Prostate Cancer
3 months ago
Clarity Pharmaceuticals achieves recruitment target for phase II SAR-Bombesin prostate cancer trial
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
Maxone73
in
Advanced Prostate Cancer
8 months ago
Quite happy with ADT
Almost 83 years old, living presently in Germany, RT and PT not possible, ADT during the last 9 months (Lupron quarterly), PSA down to undetectable, quite happy with that.
Almost 83 years old, living presently in Germany, RT and PT not possible, ADT during the last 9 months (Lupron quarterly), PSA down to undetectable, quite happy with that.
EBBEFLUT
in
Advanced Prostate Cancer
8 months ago
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Thinking of taking an ADT vacation
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
John347
in
Advanced Prostate Cancer
8 months ago
Appropriate Treatment
I was diagnosed with stage 4 prostate cancer PSA 29.1 which had metastatised to lymph nodes, ribs & spine after a few months on Abiraterone and Prednisone my PSA count dropped to 0.06 After 30 months my PSA started to rise at 10.2 my treatment was declared ineffective Lutetium 177 treatment was recommended
I was diagnosed with stage 4 prostate cancer PSA 29.1 which had metastatised to lymph nodes, ribs & spine after a few months on Abiraterone and Prednisone my PSA count dropped to 0.06 After 30 months my PSA started to rise at 10.2 my treatment was declared ineffective Lutetium 177 treatment was recommended
154Eleventh
in
Advanced Prostate Cancer
3 months ago
What to do ?
Hi All , I wonder if you have any any insight to this ? my husband started chemo (Docetaxel on the 9/10/23 and is coming up to his 3rd treatment due on 20/11/23 he has tolerated the chemo well and is still working which is great . he was dehydrated and his haemoglobin was quite low so they gave him a
Hi All , I wonder if you have any any insight to this ? my husband started chemo (Docetaxel on the 9/10/23 and is coming up to his 3rd treatment due on 20/11/23 he has tolerated the chemo well and is still working which is great . he was dehydrated and his haemoglobin was quite low so they gave him a
palser1
in
Advanced Prostate Cancer
8 months ago
Seal49
Started with pmr diagnosed and Rheumatologist decided it is PsA. HD it since April. Started prednisone at 25 mg and reducing. Now at 10 mg and started on methotrexate to speed up the prednisone reduction. Rheumatologist wants it done asap. Most days ok but still some leg thighs, neck and shoulders
Started with pmr diagnosed and Rheumatologist decided it is PsA. HD it since April. Started prednisone at 25 mg and reducing. Now at 10 mg and started on methotrexate to speed up the prednisone reduction. Rheumatologist wants it done asap. Most days ok but still some leg thighs, neck and shoulders
Seal49
in
NRAS
8 months ago
ADT for almost 2 years
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Hi everyone, It is the first time I post in this network and I still feel a bit strange and with my heart beating stronger ... sorry for this! Well, I have gone through surgery, radiotherapy, ADT, since my diagnosis in February 2018. It will be 2 years in February next since I started ADT and PSA has
Paulo1968
in
Advanced Prostate Cancer
8 months ago
QoLmost like being in Love. PSA steady at 2.9!
What a day it has been... https://youtu.be/DRVpLut8oCw?si=if9UYuzKJRuOTtdW Busy QoLing weekend😂 Friday night in Bakersfield went to the Bakersfield Fox Theater to see the World Ballet Series performance of Cinderella. What an exquisite performance with sumptuous costumes, athletic dancers, and the
What a day it has been... https://youtu.be/DRVpLut8oCw?si=if9UYuzKJRuOTtdW Busy QoLing weekend😂 Friday night in Bakersfield went to the Bakersfield Fox Theater to see the World Ballet Series performance of Cinderella. What an exquisite performance with sumptuous costumes, athletic dancers, and the
dockam
in
Advanced Prostate Cancer
8 months ago
Things I Like About ADT
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
I know that no one, like NO ONE, actually wants to be on ADT. There are a lot of downsides to it, and complaints about the fatigue, lack of sex drive, etc. are a common theme on this forum. I'm about a year out now from starting on Zoladex shots (a drug that works in the same way as Lupron), and I
32Percenter
in
Advanced Prostate Cancer
8 months ago
History of my cancer becoming castrate resistant
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
Thinking that some people might be interested to know how my metastatic cancer became castrate resistant I posting a brief history. When on Lupron break, my PSA reached 1.1 on June 1, 2022. I had a CT scan which found a new lymph node enlargement [Retrocaval lymph node measures 0.5 x 1.1 cm (series
dac500
in
Advanced Prostate Cancer
8 months ago
5 months after stopping the 4 mos of taking orgovyx still very symptomatic of low t (miserable)..told t may never recover (79),take trt? ?
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
Stopped taking 4 months of orgovyx may 28th. It is now 5 months after stop taking pills. Still very symptomatic of low t, (i.e. fatigue getting worse,(tired as hell) , cognitive issues getting worse, weight gain, (exercising but still), joint aches, sugars climbing...MISERABLE. need my life back..
JWS13
in
Advanced Prostate Cancer
8 months ago
Metastasized to Bones
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
I have been seeing post saying poeple being diagnosed with metastasized PC. I was diagnosed with PC metastasized to my bones, after being under urologist care for 18 months I am wondering if poeple who get initially diagnosed with metastasized PC, whether it is because they were not under medical care
hopefull99
in
Advanced Prostate Cancer
8 months ago
MOST RECENT PSA and TESTOSTERONE TEST
My PSA and testosterone test results have been PSA .01 and T 11 since July of 2022. I had my quarterly test done yesterday and my PSA is at .02 and T is at 21.5. They are still undetectable, but not sure what caused the rise. I've only been on Firmagon for 1 year and 4 months so I hope it doesn't
My PSA and testosterone test results have been PSA .01 and T 11 since July of 2022. I had my quarterly test done yesterday and my PSA is at .02 and T is at 21.5. They are still undetectable, but not sure what caused the rise. I've only been on Firmagon for 1 year and 4 months so I hope it doesn't
GMan-62
in
Advanced Prostate Cancer
8 months ago
Cancer return alert without scan or PSA ?
I'm more curious than anything to hear if you knew the cancer had returned somehow before any scan or blood test really told you? Pain? Bladder issues? Other signs ??? I'm wondering how many really knew somehow or sensed it and it was later confirmed ? Most people are very in-tuned to their own body
I'm more curious than anything to hear if you knew the cancer had returned somehow before any scan or blood test really told you? Pain? Bladder issues? Other signs ??? I'm wondering how many really knew somehow or sensed it and it was later confirmed ? Most people are very in-tuned to their own body
positive-thinking
in
Advanced Prostate Cancer
3 months ago
seeking feedback on my case
hi, hoping Tall_Allen and anyone else may have some thoughts...... I posted several mos. ago after being diagnosed with distant only metastatic -- GL7, low PSA, thought to be contained and headed for surgery, but asked for a PSMA -- showed 8-10 lesions in ribs and scapula. Mostly low SUV. Diagnosis
hi, hoping Tall_Allen and anyone else may have some thoughts...... I posted several mos. ago after being diagnosed with distant only metastatic -- GL7, low PSA, thought to be contained and headed for surgery, but asked for a PSMA -- showed 8-10 lesions in ribs and scapula. Mostly low SUV. Diagnosis
tmscat
in
Advanced Prostate Cancer
8 months ago
ADT + Zytiga holiday???
I've been on Orgovyx since 8/15/22 and Zytiga since 4/1/23. I'm also suffering from neuropathy from nerve damage that occurred in December 22. The nerve pain has gotten worse and my oncologist and neurologist are wondering if ADT or Zytiga are too blame. Anyone have experience with these drugs and
I've been on Orgovyx since 8/15/22 and Zytiga since 4/1/23. I'm also suffering from neuropathy from nerve damage that occurred in December 22. The nerve pain has gotten worse and my oncologist and neurologist are wondering if ADT or Zytiga are too blame. Anyone have experience with these drugs and
VanHalen84
in
Advanced Prostate Cancer
8 months ago
New meta-analysis shows docetaxel benefits those having high grade/low PSA prostate cancer
Reposting with more specific title - no one had replied to Maxone73's original post. Interesting results for those with a poor-prognosis cancer. https://www.miragenews.com/docetaxel-slashes-prostate-cancer-death-in-high-1115466/
Reposting with more specific title - no one had replied to Maxone73's original post. Interesting results for those with a poor-prognosis cancer. https://www.miragenews.com/docetaxel-slashes-prostate-cancer-death-in-high-1115466/
HikerWife
in
Advanced Prostate Cancer
8 months ago
Docetaxel only partially successful
I had a full body MRI scan this week at Royal Marsden in London. The purpose was to assess the effectiveness of docetaxel after 3 infusions. The results have been very disappointing, and I'm struggling to keep a sense of perspective - not least because I was feeling so good, and had seen all of my previous
I had a full body MRI scan this week at Royal Marsden in London. The purpose was to assess the effectiveness of docetaxel after 3 infusions. The results have been very disappointing, and I'm struggling to keep a sense of perspective - not least because I was feeling so good, and had seen all of my previous
CrocodileShoes
in
Advanced Prostate Cancer
8 months ago
Lynparza - warning!
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation
MyDad76
in
Advanced Prostate Cancer
3 months ago
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