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Doctor says husband's situation is rare
October 2022 my husband discovered a lump near his ear which turned out to be a tumor in his parotid gland. Grew very quickly in the 2 months before it was removed in December 2022. Biopsy proved it to be adenocarcinoma. Doctors said it was rare to find this type in the parotid gland. He had radiation
October 2022 my husband discovered a lump near his ear which turned out to be a tumor in his parotid gland. Grew very quickly in the 2 months before it was removed in December 2022. Biopsy proved it to be adenocarcinoma. Doctors said it was rare to find this type in the parotid gland. He had radiation
Hidden
in
Advanced Prostate Cancer
9 months ago
Might blood be good news?
I'm now getting ready for my 3rd Docetaxel infusion. My symptoms and side effects have been very mild. Before chemo started, I was getting pains in the rectal wall, sharp bladder discomfort and pain on urination - along with blood in the urine. As of today, I'm waiting for definitive results from
I'm now getting ready for my 3rd Docetaxel infusion. My symptoms and side effects have been very mild. Before chemo started, I was getting pains in the rectal wall, sharp bladder discomfort and pain on urination - along with blood in the urine. As of today, I'm waiting for definitive results from
CrocodileShoes
in
Advanced Prostate Cancer
9 months ago
Hypofractionated SBRT for Prostate,local and distant nodes
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
Hi all I am happy with my MO and treatment at Kaiser, 3 months on Lupron then added abiraterone 1 month ago. Responsive PSA, started at 300, after 1 month 33 after 3 months 1. I’m oligometastatic with local and retropineal lymph nodes. 2nd opinion from UCSF Medical oncologist suggested I do prostate
pj1121
in
Advanced Prostate Cancer
9 months ago
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Scared looking for some advice
I found out ten months ago that I had a PSA of 6.4. It rose to 9.7 and recently has subsided to 8.3. I did a MRI and they said I PI-RADS 4 with a lesion in my transition zone. Seminal vesticles and Neuromuscular bundes are symmetric. However one of my lymph nodes is boderline enlarged at 1.0cm short
I found out ten months ago that I had a PSA of 6.4. It rose to 9.7 and recently has subsided to 8.3. I did a MRI and they said I PI-RADS 4 with a lesion in my transition zone. Seminal vesticles and Neuromuscular bundes are symmetric. However one of my lymph nodes is boderline enlarged at 1.0cm short
RocketTest60
in
Advanced Prostate Cancer
9 months ago
Sex before psa test
Forgot to refrain and had sex 36 hrs before my psa test. Results have increased from 4.2 to 4.8, could sex cause this increase
Forgot to refrain and had sex 36 hrs before my psa test. Results have increased from 4.2 to 4.8, could sex cause this increase
pd63
in
Prostate Cancer Network
9 months ago
Food supplements I hope will help
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
I had: PSA 30, Gleason 10, PCa Stage 4 localized to pelvic region. Treated with IMRT radiation + Eligard + Abiraterone. PSA undetectable. Stopped Abiraterone due liver that hates it (liver is ok). Will try Nubeqa, and may switch to Orgovyx after Eligard runs out in December. While ADT starves the
Brad70
in
Advanced Prostate Cancer
9 months ago
Trying to get to retirement before HT
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
Hi All, I'm currently 65 years old. My PSA level before the biopsy was 8.1, and my Gleason Score was 4+4. Fortunately, there are no signs of metastases. Although my treatment hasn't started yet, it's likely that I'll begin radiation therapy in early December. I'm currently overseas and won't return
CJ1958
in
Prostate Cancer Network
9 months ago
Thinking of Active Surveillance with 3+4
Received my results on Feb 28 that I had 1 core of 3+3, not worried about that one.... But I had two cores of 3+4, 1 core the gleason pattern 4 is 10% and the other core was gleason pattern 4 of 10-20%, these reading were from the City of Hope, which confirmed the original report from my first Dr.
Received my results on Feb 28 that I had 1 core of 3+3, not worried about that one.... But I had two cores of 3+4, 1 core the gleason pattern 4 is 10% and the other core was gleason pattern 4 of 10-20%, these reading were from the City of Hope, which confirmed the original report from my first Dr.
MauiJef
in
Prostate Cancer Network
9 months ago
Asking for best guess info
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
As I've written, my husband stopped all treatment this past July after Lupron/Xtandi were causing worsening SEs while PSA was doubling/tripling from undetectable. He's now receiving palliative care and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered
Shamrock46
in
Advanced Prostate Cancer
9 months ago
ipp and salvage radiation
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Rp on july of 22 for gleason 3+4 with psa of 16. PT3b, pN1 with negative margins and 2 of 11 lymph nodes involved. I took a nomogram online and came out 75% likely for recurrence. My first psa post op was .02, then .03, .04, .04, .05 in late august- so I've crossed line #1. Which is a bummer but not
Katamiran
in
Prostate Cancer Network
9 months ago
Psoriatic arthritis
Hi everyone. So, after a year and a half of worsening joint pain and numerous tests, a rheumatologist has diagnosed me with early psoriatic arthritis and prescribed methotrexate. My concern is that nothing whatsoever has ever shown up on any tests. ESR and CRP are low (lower than normal actually).
Hi everyone. So, after a year and a half of worsening joint pain and numerous tests, a rheumatologist has diagnosed me with early psoriatic arthritis and prescribed methotrexate. My concern is that nothing whatsoever has ever shown up on any tests. ESR and CRP are low (lower than normal actually).
Snowy86
in
Beyond Psoriasis
9 months ago
Update on PSA
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Aug 4 - diagnosed PCa, gleason 9 Aug 5 - started casodex Aug 17 - started lupron 3 mth Had my first blood work done yesterday (Oct 5) and PSA is now at 0.56. Was over 9 in June. So, I kind of feel good in knowing that as expected the meds are working and lowering PSA. Meaning I can move forward
Yzinger
in
Advanced Prostate Cancer
9 months ago
Woot💙PSA dropped after being the same for two consecutive months
Hey y'all,#stageIVpca Back story : PSA at 552.2 on 10/13/14 - 15 Taxoteres in 2015, 6 more in 2020, 18 Cabazitaxels in '21/'22. 28 IMRTs Spring 2023 as PSA was rising 50% every month earlier 2023, hitting 34 😳 Still on track for 552.2 miles on 10/13/23 to mark the 9th year with #stageivpca when PSA
Hey y'all,#stageIVpca Back story : PSA at 552.2 on 10/13/14 - 15 Taxoteres in 2015, 6 more in 2020, 18 Cabazitaxels in '21/'22. 28 IMRTs Spring 2023 as PSA was rising 50% every month earlier 2023, hitting 34 😳 Still on track for 552.2 miles on 10/13/23 to mark the 9th year with #stageivpca when PSA
dockam
in
Advanced Prostate Cancer
9 months ago
confused about supplements and certain foods
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
greetings I’m trying to get some clarity on what I can eat and take as supplements. My PSA is currently undetectable but clearly with ADT I’m trying to build or keep as much muscle as possible. I take creatine would like to add bcaa/lucene and glutamine. Any issues here? Also I tend to consume a
SierraSix
in
Advanced Prostate Cancer
9 months ago
Father with Stage 4 prostate cancer in 8 bones.
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
On 10/25/22 I took my dad (79 at the time) to the ER at the VA for escalating back pain and we walked out with a stage 4 prostate cancer diagnosis. When I brought him to the ER I expected them to tell me he had lung cancer as he is a lifelong smoker. Additionally, I had been worried about him all year
lgutman
in
Advanced Prostate Cancer
5 months ago
Castration resistant in just a year? Normal or not? Provenge in my future.
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
I'm already "mildly symptomatic castration resistant." PSA tripled in the last 30 days (but still extremely low), after doubling in the prior 3 months. I was diagnosed with stage 4b (mets in multiple bones and nodes) ductal and started ADT 13 months ago. Nubeqa and Docetaxel (Triplet therapy) started
Gl448
in
Advanced Prostate Cancer
9 months ago
Is HT Treatment necessary after Orchiectomey?
Its been a while since I sent you gentlemen an update. I did go for Keytruda, started it in March of 2022, but stopped in September because of pretty significant skin reaction. My PSA went from 3.31 in February 2022 to 0.09 3 months ago, so it definitely worked. In the meantime I have gone through with
Its been a while since I sent you gentlemen an update. I did go for Keytruda, started it in March of 2022, but stopped in September because of pretty significant skin reaction. My PSA went from 3.31 in February 2022 to 0.09 3 months ago, so it definitely worked. In the meantime I have gone through with
Bdale
in
Advanced Prostate Cancer
9 months ago
Too many vitamins ?
i was diagnosed 8 years ago with prostate cancer. I chose not to do anything until 4 months ago , when i felt in pain everywhere and went for treatment . I am now on Erleada and degarelix feeling much better and with the regular side effect of hot flashes and tireness. I took for 8 years and still
i was diagnosed 8 years ago with prostate cancer. I chose not to do anything until 4 months ago , when i felt in pain everywhere and went for treatment . I am now on Erleada and degarelix feeling much better and with the regular side effect of hot flashes and tireness. I took for 8 years and still
Raminagrobis
in
Advanced Prostate Cancer
9 months ago
How can one person be so Lucky?
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Diagnosed in December 2022 with Stage 4 metastatic PC Gleason 4 + 3, due to a PSMA Pet Scan. Highest my PSA got was 7.4, Pet Scan discovered a small spot on my T2 vertebrae that the MRI and bone scan did not find. I subsequently started on a regimen of Lupron and Erleada, adjusted to the SE and
Condor77
in
Advanced Prostate Cancer
5 months ago
PsA and maybe PMR
Started on methotrexate 3 weeks ago. Did 20 mg first 2 weeks. Did 1 week so far on 15 mg and do to do 15 again this week. Then start 20 mg per week and stay at that. In the meantime my Rheumatologist has me reducing my prednisone 1 mg a week. Started this at 15 mg prednisone and now 13 mg and due
Started on methotrexate 3 weeks ago. Did 20 mg first 2 weeks. Did 1 week so far on 15 mg and do to do 15 again this week. Then start 20 mg per week and stay at that. In the meantime my Rheumatologist has me reducing my prednisone 1 mg a week. Started this at 15 mg prednisone and now 13 mg and due
Seal49
in
PMRGCAuk
9 months ago
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