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Atrial myxoma
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VIKTORIA-1 CLINICAL TRIAL
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
CTGirl1962
in
SHARE Metastatic Breast Cancer
1 year ago
Severe bruising
I have been taking Acalabrutinib in a clinical trial for three years achieving excellent results. A few days back I tripped over uneven paving while enjoying my daily walk. I hit the concrete hard. Fortunately no broken bones. By that evening a nasty bruise had appeared on my right side and abdomen.
I have been taking Acalabrutinib in a clinical trial for three years achieving excellent results. A few days back I tripped over uneven paving while enjoying my daily walk. I hit the concrete hard. Fortunately no broken bones. By that evening a nasty bruise had appeared on my right side and abdomen.
spanish36
in
CLL Support
1 year ago
Shingrix may be available on Australia's National Immunisation Program for those with CLL from 1 November 2023
The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be included on Australia's National Immunisation Program for some Australians later this year. An announcement by the Victorian Government indicates that Shingrix might be available from the start of November for particular
The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be included on Australia's National Immunisation Program for some Australians later this year. An announcement by the Victorian Government indicates that Shingrix might be available from the start of November for particular
CLLerinOz
Administrator
in
CLL Support
1 year ago
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Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
1 year ago
Do you have persistent or long-standing AF?
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
We are currently recruiting a small number of volunteers to form a panel to discuss your personal experiences of living with the condition. You must be aged 70+, live in the UK, and have received a confirmed diagnosis of persistent or long-standing AF. You may also be taking medications, have previously
TracyAdmin
Partner
in
AF Association
1 year ago
Cost of PSMA scan in US
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
TJGuy
in
Advanced Prostate Cancer
1 year ago
CAR-T Trial Update #3
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
nvp815
in
CLL Support
1 year ago
diagnosed in Feb. with atrial flutter at ED
good morning, My name is Patrick McConnell and I live in Burlington Ontario Canada. I am 79 years old and a very athletic person most of my life. But my main issue is no stamina and always short of breath. I have been on a BTK blocker for 7 years to control my CLL. Chronic lymphocytic leukemia and
good morning, My name is Patrick McConnell and I live in Burlington Ontario Canada. I am 79 years old and a very athletic person most of my life. But my main issue is no stamina and always short of breath. I have been on a BTK blocker for 7 years to control my CLL. Chronic lymphocytic leukemia and
PRM54
in
AF Association
1 year ago
Difficulty turning over in bed
A few years ago l asked if any of you had trouble turning over in bed and got a lot of responses- some compared it to feeling like a beached whale ! Recently l had a shoulder replacement which made it even worse for me so my son came to my rescue. It has helped so much that l thought l would share it
A few years ago l asked if any of you had trouble turning over in bed and got a lot of responses- some compared it to feeling like a beached whale ! Recently l had a shoulder replacement which made it even worse for me so my son came to my rescue. It has helped so much that l thought l would share it
Trulyscrumpious
in
PMRGCAuk
1 year ago
Cancelled Again
Well here I go again, another cancellation, another wait. I have continual AF for just coming up to two years. I’m on 10mg of Bisoprolol and 62.5 digoxin, plus Apixaban. First appointment with Cardio, told to lose weight and get on with it, no medication, oh ok. Went to GP who gave medication and
Well here I go again, another cancellation, another wait. I have continual AF for just coming up to two years. I’m on 10mg of Bisoprolol and 62.5 digoxin, plus Apixaban. First appointment with Cardio, told to lose weight and get on with it, no medication, oh ok. Went to GP who gave medication and
Carnationmac
in
AF Association
1 year ago
Periodic episodes of fluctuating tachycardia while in AFib.
Never had any heart problems until early 2020. I'm a rather robust yet strong guy , late 40s. I suspect COVID may have had something to do with it. Never vaccinated either..went to e.r after having AFib for 16 hrs. Was blacking out at work. Thought I was going to die. Spent 2 days in hospital. Echocardiogram
Never had any heart problems until early 2020. I'm a rather robust yet strong guy , late 40s. I suspect COVID may have had something to do with it. Never vaccinated either..went to e.r after having AFib for 16 hrs. Was blacking out at work. Thought I was going to die. Spent 2 days in hospital. Echocardiogram
Arrythimicaneurysm
in
Arrhythmia Alliance
1 year ago
Update on Annovis Buntanetap
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Imaparky
in
Cure Parkinson's
1 year ago
Hormone video
This may be a useful video from Peter Attia giving a basic explanation of the thyroid, adrenal and sex hormone systems. It is split up into sections.https://m.youtube.com/watch?v=5oxFK6poSXM
This may be a useful video from Peter Attia giving a basic explanation of the thyroid, adrenal and sex hormone systems. It is split up into sections.https://m.youtube.com/watch?v=5oxFK6poSXM
Guineapiggy
in
Thyroid UK
1 year ago
Apixaban and Ablation
Hi everyone, I am currently on a very long waiting list for Ablation. I have PAF with very symptomatic episodes lasting 30 hours approximately every 4 months. I take apixaban and sotalol but do not want to up the dose as suggested by my EP (I currently take 40mg three times daily).At the last visit to
Hi everyone, I am currently on a very long waiting list for Ablation. I have PAF with very symptomatic episodes lasting 30 hours approximately every 4 months. I take apixaban and sotalol but do not want to up the dose as suggested by my EP (I currently take 40mg three times daily).At the last visit to
Karendeena
in
AF Association
1 year ago
Where to go after Lutetium 177?
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Biobro
in
Advanced Prostate Cancer
1 year ago
next treatment Doxil
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
Lna21
in
SHARE Metastatic Breast Cancer
1 year ago
Running out of road....
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
INTERCEPT IS ENDING CLINICAL TRIAL
I have been participating in Intercept's clinical trial for Ocaliva's use for the improvement of liver fibrosis. When the FDA voted against the approval of the drug last week, Intercept announced it will be discontinuing all R&D for NASH treatment. This is a grave disappointment.
I have been participating in Intercept's clinical trial for Ocaliva's use for the improvement of liver fibrosis. When the FDA voted against the approval of the drug last week, Intercept announced it will be discontinuing all R&D for NASH treatment. This is a grave disappointment.
NYLassie
in
Living with Fatty Liver and NASH
1 year ago
Digoxin fears
Hello,am new to this forum, at mo feeling I am in the minority taking digoxin really feeling anxious about having to take prob have read Mr Google far too much I had an episode of AF was taken into a&e tried to right it by high dose of bisoprolol but had no affect, after 20 hrs erratic beats 140 to
Hello,am new to this forum, at mo feeling I am in the minority taking digoxin really feeling anxious about having to take prob have read Mr Google far too much I had an episode of AF was taken into a&e tried to right it by high dose of bisoprolol but had no affect, after 20 hrs erratic beats 140 to
Ssuegos
in
AF Association
1 year ago
What to do?
Hi All, I lost a load of weight last year doing a keto diet. Subsequently I didn't have AFib for 18 months. I have Paroxysmal AFib and usually only have 1 AFib a year. I always cardiovert with Flecanide. My Chadvac is 0. However, this year I've put more weight on and blood pressure has risen and I've
Hi All, I lost a load of weight last year doing a keto diet. Subsequently I didn't have AFib for 18 months. I have Paroxysmal AFib and usually only have 1 AFib a year. I always cardiovert with Flecanide. My Chadvac is 0. However, this year I've put more weight on and blood pressure has risen and I've
CJ1971
in
AF Association
1 year ago
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