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Atrial myxoma
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Persistent Afib
Thank you all for your encouraging replies to my post yesterday. Yes unless I have something wrong with me or I over exercise my heart rate does not go above 100. The only worrying concern is the Kardia readings which consistently show a variation of between 2.5 and 6.5 squares in one reading. If you
Thank you all for your encouraging replies to my post yesterday. Yes unless I have something wrong with me or I over exercise my heart rate does not go above 100. The only worrying concern is the Kardia readings which consistently show a variation of between 2.5 and 6.5 squares in one reading. If you
Swimsyroke
in
AF Association
1 year ago
Gca Flare after 5 years ?
I was diagnosed GCA by biopsy in December 2017 and had all the classic symptoms, one was migraine aura which stopped once on 60mg. I've been tapering very slowly and got to 1 mg in September this year. Two weeks ago I had a migraine aura, my first since 2018. The only other symptom is some scalp tenderness
I was diagnosed GCA by biopsy in December 2017 and had all the classic symptoms, one was migraine aura which stopped once on 60mg. I've been tapering very slowly and got to 1 mg in September this year. Two weeks ago I had a migraine aura, my first since 2018. The only other symptom is some scalp tenderness
Abbeys
in
PMRGCAuk
1 year ago
AV Node ablation.
I have a meeting with my EP in 3 weeks time to discuss my ongoing afib issues. I'm assuming he will be advising me to go ahead with an AV node ablation to help control my afib, which l now get every other day lasting on average for 4/5 hours. Although there are lots of positive stories here regarding
I have a meeting with my EP in 3 weeks time to discuss my ongoing afib issues. I'm assuming he will be advising me to go ahead with an AV node ablation to help control my afib, which l now get every other day lasting on average for 4/5 hours. Although there are lots of positive stories here regarding
Tenshun
in
AF Association
1 year ago
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Lupron+docetaxel+Abiraterone
First time posting. I have stage IVB PC, which was discovered via a hernia procedure in November 2022. I completed 1 month of ADT with no side effects and my PSA dropped to 1.0. Met with my Oncologist today and he proposed changing my treatment to mirror the CHAARTED clinical trial (Lupron+Docetaxel
First time posting. I have stage IVB PC, which was discovered via a hernia procedure in November 2022. I completed 1 month of ADT with no side effects and my PSA dropped to 1.0. Met with my Oncologist today and he proposed changing my treatment to mirror the CHAARTED clinical trial (Lupron+Docetaxel
TMcgee
in
Advanced Prostate Cancer
1 year ago
Next NoSilverBullet Zoom session Monday 6th of Feb. Dr Matthew Phillips: "Fasting & Dietary Strategies as Therapies in Parkinson’s".
I am delighted to announce that our next NoSilverBullet Zoom session will be taking place at 7.30pm London time on Monday, the 6th of February. Dr Matthew Phillips will be talking to us about “Fasting & Dietary Strategies as Therapies in Parkinson’s Disease”. Matt is well known to many of you and
I am delighted to announce that our next NoSilverBullet Zoom session will be taking place at 7.30pm London time on Monday, the 6th of February. Dr Matthew Phillips will be talking to us about “Fasting & Dietary Strategies as Therapies in Parkinson’s Disease”. Matt is well known to many of you and
Michel0220
in
Cure Parkinson's
1 year ago
Age, cycling (ebikes) and afib.
Interesting article in one of my subscriptions...about how ebikes have made a difference in the lives of cyclists (like me) who are past their *best before date* on 2 wheels lol. One of the guys has afib, so thought I'd share; "The benefits of riding an electric bike also rang true in our chat with
Interesting article in one of my subscriptions...about how ebikes have made a difference in the lives of cyclists (like me) who are past their *best before date* on 2 wheels lol. One of the guys has afib, so thought I'd share; "The benefits of riding an electric bike also rang true in our chat with
beach_bum
in
AF Association
1 year ago
Persistent atrial fibrillation
I have now been in persistent afib for almost 3 months and have yet to receive a consultants appointment though have received an appointment with a cardionurse on the 28th December!!! I have been self administering (what alternative) and apart from Edoxaban 30mg which I was prescribed by my GP in February
I have now been in persistent afib for almost 3 months and have yet to receive a consultants appointment though have received an appointment with a cardionurse on the 28th December!!! I have been self administering (what alternative) and apart from Edoxaban 30mg which I was prescribed by my GP in February
Swimsyroke
in
AF Association
1 year ago
raising the topic of a hormone holiday after July
visit to London MO today for more hormones ( switched to 3 month Zolodex because last months Degarelix injection is still a nasty swollen red lump on my stomach) I picked up my Apalutamide and had blood tests as ever with a face to face consult. I decided to ‘soft land’ the subject of a hormone holiday
visit to London MO today for more hormones ( switched to 3 month Zolodex because last months Degarelix injection is still a nasty swollen red lump on my stomach) I picked up my Apalutamide and had blood tests as ever with a face to face consult. I decided to ‘soft land’ the subject of a hormone holiday
Brysonal
in
Fight Prostate Cancer
1 year ago
Erratic Heart Rate - Afib or Tachycardia 24 hour heart monitor.
Since my Open Heart Surgery's twice in April 2019 for an Ascending Thoracic Aortic Aneurysm I've had Afib and Tachycardia issues and was on Amiodarone for a few and months and now on bisoprolol. It settled for a while but its gradually came back and more recently its gotten more frequent. My heart
Since my Open Heart Surgery's twice in April 2019 for an Ascending Thoracic Aortic Aneurysm I've had Afib and Tachycardia issues and was on Amiodarone for a few and months and now on bisoprolol. It settled for a while but its gradually came back and more recently its gotten more frequent. My heart
cjbroon
in
AF Association
1 year ago
ASH 2022 | Key highlights in CLL: clinical trial updates combination therapies novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
ASH 2022 | Key highlights in CLL: clinical trial updates & the role of combination therapies and novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022 https://www.vjhemonc.com/video/m1hovnhu05w-key-highlights-in-cll-clinical-trial-updates-the-role-of-combination-therapies-and-novel-btkis/ https
lankisterguy
Volunteer
in
CLL Support
1 year ago
Information please on next treatment options
My husband was diagnosed in Jan 2020 with stage 4 prostate cancer with bone metastasis. He is castrate-resistant. He is on Lupron every three months. Zytiga failed after about a year. He is now on his fourth chemo (cab) which the doctor thinks is not working. He mentioned four options that he thinks
My husband was diagnosed in Jan 2020 with stage 4 prostate cancer with bone metastasis. He is castrate-resistant. He is on Lupron every three months. Zytiga failed after about a year. He is now on his fourth chemo (cab) which the doctor thinks is not working. He mentioned four options that he thinks
margretrburns
in
Advanced Prostate Cancer
1 year ago
polycystic liver disease
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
I’ve just been diagnosed. I would like to hear of others experience living with this. To operate or not?
Sep9
in
British Liver Trust
1 year ago
Fitbit for a fib?
hi all. My husband has had paroxysmal a fib for last 4 years and takes digoxin. We use the Kardia mobile with great success. I’m wondering whether to get him either a Fitbit or more expensive Apple Watch so he can keep an eye on how high his rate goes while out on his daily walk. I don’t think it’s
hi all. My husband has had paroxysmal a fib for last 4 years and takes digoxin. We use the Kardia mobile with great success. I’m wondering whether to get him either a Fitbit or more expensive Apple Watch so he can keep an eye on how high his rate goes while out on his daily walk. I don’t think it’s
Janau
in
AF Association
1 year ago
Berberine Is a Promising Alkaloid to Attenuate Iron Toxicity Efficiently in Iron-Overloaded Mice
Update: Please see the replies below on the disastrous Deferiprone trial.
Berberine Is a Promising Alkaloid to Attenuate Iron Toxicity Efficiently in Iron-Overloaded Mice
2022 https://journals.sagepub.com/doi/full/10.1177/1934578X211029522 "The results of this study show that the natural
Update: Please see the replies below on the disastrous Deferiprone trial.
Berberine Is a Promising Alkaloid to Attenuate Iron Toxicity Efficiently in Iron-Overloaded Mice
2022 https://journals.sagepub.com/doi/full/10.1177/1934578X211029522 "The results of this study show that the natural
Bolt_Upright
in
Cure Parkinson's
1 year ago
Amiodarone - yes or no ?
Hi all. Just interested to hear from any forum members who have used / or are using Amiodarone to treat their afib. To help with afib it seems to be a last resort medication - I understand that it can and does cause bad side effects. However if you can tolerate these it appears to be the most effective
Hi all. Just interested to hear from any forum members who have used / or are using Amiodarone to treat their afib. To help with afib it seems to be a last resort medication - I understand that it can and does cause bad side effects. However if you can tolerate these it appears to be the most effective
Paulbounce
in
AF Association
1 year ago
Pluvicto increases radiographic progression-free survival (rPFS) before chemo
This is the early topline results from the
PSMAfore
trial. https://clinicaltrials.gov/ct2/show/NCT04689828 It tested whether giving Pluvicto increases radiographic progression-free survival (rPFS) in men who: (1) have failed one of the second-line hormonals (abiraterone, enzalutamide, darolutamide
This is the early topline results from the
PSMAfore
trial. https://clinicaltrials.gov/ct2/show/NCT04689828 It tested whether giving Pluvicto increases radiographic progression-free survival (rPFS) in men who: (1) have failed one of the second-line hormonals (abiraterone, enzalutamide, darolutamide
Tall_Allen
in
Advanced Prostate Cancer
1 year ago
PSA is increasing after 11 cycle of Docetaxel, what should we do now ?
My father has done around 11 cycle of Docetaxel, 5 of them was combined with Cisplatin. First 3 cycles of Docetaxel alone took his PSA from 7 ng/mL down to 3.680. between cycle 4 to the end of cycle 7 his PSA increased to reach 8.03. Adding Cisplatin brought his PSA down to 0.890 after another 4 cycles
My father has done around 11 cycle of Docetaxel, 5 of them was combined with Cisplatin. First 3 cycles of Docetaxel alone took his PSA from 7 ng/mL down to 3.680. between cycle 4 to the end of cycle 7 his PSA increased to reach 8.03. Adding Cisplatin brought his PSA down to 0.890 after another 4 cycles
mgaa
in
Advanced Prostate Cancer
1 year ago
Went castrate resistant after a year of Orgovyx --now PSA still climbing after 30 days of Zytiga. PSMA scan shows two spine mets. Now what?
My cancer seems pretty aggressive. Whenever it starts to rise slowly after one treatment or another, 6 months later PSA starts rising quicker. I'd love to try Lute177 but lack the funds. Are there clinical trials available in the US?
My cancer seems pretty aggressive. Whenever it starts to rise slowly after one treatment or another, 6 months later PSA starts rising quicker. I'd love to try Lute177 but lack the funds. Are there clinical trials available in the US?
SViking
in
Advanced Prostate Cancer
1 year ago
what exercises are you doing?
to those who are still very active, what exercises seem to work best for you? I am in my fifth year now, cast rate resistant, and have had radiation to a few spots in my pelvis, including my prostate. For about four years, I have run a few miles every other day followed by, some bench presses, dumbbell
to those who are still very active, what exercises seem to work best for you? I am in my fifth year now, cast rate resistant, and have had radiation to a few spots in my pelvis, including my prostate. For about four years, I have run a few miles every other day followed by, some bench presses, dumbbell
Oct18
in
Advanced Prostate Cancer
1 year ago
Information please on next treatment options
My husband was diagnosed in Jan 2020 with stage 4 prostate cancer with bone metastasis. He is castrate-resistant. He is on Lupron every three months. Zytiga failed after about a year. He is now on his fourth chemo (cab) which the doctor thinks is not working. He mentioned four options that he thinks
My husband was diagnosed in Jan 2020 with stage 4 prostate cancer with bone metastasis. He is castrate-resistant. He is on Lupron every three months. Zytiga failed after about a year. He is now on his fourth chemo (cab) which the doctor thinks is not working. He mentioned four options that he thinks
margretrburns
in
Fight Prostate Cancer
1 year ago
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