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Atrial myxoma
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A Wish Fulfilled, and a Legacy
A few months ago I posted about entering hospice and received many precious notes from well-wishers across the world. Your kind words mean so much to me that I’ve placed them in a document to look at whenever I need a lift! Words indeed support the healing process, and I am very grateful for being
A few months ago I posted about entering hospice and received many precious notes from well-wishers across the world. Your kind words mean so much to me that I’ve placed them in a document to look at whenever I need a lift! Words indeed support the healing process, and I am very grateful for being
Bestbird
in
SHARE Metastatic Breast Cancer
11 months ago
Lung nodule biopsy.
Hi, I'm new to this forum but I am on the COPD forum. I have asthma, chronic bronchitis & severe emphysema. I've been really lucky to have been referred for several clinical trials for the above. My recent visit to the hospital for testing showed a lung nodule had almost doubled in size. I had a contrast
Hi, I'm new to this forum but I am on the COPD forum. I have asthma, chronic bronchitis & severe emphysema. I've been really lucky to have been referred for several clinical trials for the above. My recent visit to the hospital for testing showed a lung nodule had almost doubled in size. I had a contrast
jacic64
in
The Roy Castle Lung Cancer Foundation
11 months ago
Just got my updated blood results
Hi all, I have had a partial thyroidectomy, this is my results. My ferretin is severely low and I wanted to ask does low iron <15 cause severe fatigue and tiredness and joint pain as that's what I've been feeling. Not sure if I should take thyroid medication as my iron dropped after the surgery. Please
Hi all, I have had a partial thyroidectomy, this is my results. My ferretin is severely low and I wanted to ask does low iron <15 cause severe fatigue and tiredness and joint pain as that's what I've been feeling. Not sure if I should take thyroid medication as my iron dropped after the surgery. Please
haychhaz
in
Thyroid UK
11 months ago
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Clinical Physiologist
Please can any of you explain to me what exactly is a Clinical Physiologist ? I usually see my cardiologist once a year, along with a routine echocardiogram and ecg. This year, I saw my GP because I have been getting a lot of palpitations which Kardia diagnose as PVCs and SVEs ) He said he would contact
Please can any of you explain to me what exactly is a Clinical Physiologist ? I usually see my cardiologist once a year, along with a routine echocardiogram and ecg. This year, I saw my GP because I have been getting a lot of palpitations which Kardia diagnose as PVCs and SVEs ) He said he would contact
Tellingfibs
in
Atrial Fibrillation Support
1 year ago
A Good Day's Night
AFib status: Permanent for at least the past two years. 75 years old. Medication: Apixaban, 5mg Bisoprolol, Amlodipine, 5mg Ramipril, Atorvastatin. No offers by my doctor of a cardioversion or an ablation. I have been fairly stable on those meds since it was confirmed that I had Permanent Afib.
AFib status: Permanent for at least the past two years. 75 years old. Medication: Apixaban, 5mg Bisoprolol, Amlodipine, 5mg Ramipril, Atorvastatin. No offers by my doctor of a cardioversion or an ablation. I have been fairly stable on those meds since it was confirmed that I had Permanent Afib.
BobbyGee
in
AF Association
1 year ago
A guide to Fall vaccine options - USA by Your Local Epidemiologist
A guide to Fall vaccine options - by KATELYN JETELINA AND CAITLIN RIVERS AUG 17 https://yourlocalepidemiologist.substack.com/p/a-guide-to-fall-vaccine-options?utm_source=substack&utm_medium=email It’s the first time we have vaccines for all three fall respiratory viruses that hospitalize and kill hundreds
A guide to Fall vaccine options - by KATELYN JETELINA AND CAITLIN RIVERS AUG 17 https://yourlocalepidemiologist.substack.com/p/a-guide-to-fall-vaccine-options?utm_source=substack&utm_medium=email It’s the first time we have vaccines for all three fall respiratory viruses that hospitalize and kill hundreds
lankisterguy
Volunteer
in
CLL Support
11 months ago
The NIR project, a neuro-illumination technology to combat PD
A demonstration model shows the position of an experimental brain implant for treating Parkinson’s disease using near-infrared light, developed by the Grenoble-based research institute CEA-Leti and its partners. There have been many posts about red light therapies, but this was new to me. Others have
A demonstration model shows the position of an experimental brain implant for treating Parkinson’s disease using near-infrared light, developed by the Grenoble-based research institute CEA-Leti and its partners. There have been many posts about red light therapies, but this was new to me. Others have
Esperanto
in
Cure Parkinson's
11 months ago
Red blood cells
My red blood cell count increased from 133 in September 2022 to 151 in March 2023. The haemocrit count went up from 4.43 to 4.96, both outside the normal range. These were both marked with an asterisk on my blood test sheet but that was all. I went into persistent afib in August 2022. I am worried
My red blood cell count increased from 133 in September 2022 to 151 in March 2023. The haemocrit count went up from 4.43 to 4.96, both outside the normal range. These were both marked with an asterisk on my blood test sheet but that was all. I went into persistent afib in August 2022. I am worried
Swimsyroke
in
AF Association
1 year ago
Do I need to be concerned? UPDATE!
Hi fellow AFibbers. Further to my post below; Firstly, may I take this opportunity to thank each and every one of you who have kindly taken the time to reply with support and advice. Too many to thank you or reply to you all individually! So, as wisely advised by many of you, I took myself to A
Hi fellow AFibbers. Further to my post below; Firstly, may I take this opportunity to thank each and every one of you who have kindly taken the time to reply with support and advice. Too many to thank you or reply to you all individually! So, as wisely advised by many of you, I took myself to A
Dippy22
in
AF Association
1 year ago
Excess Iron In The Brain Of PwP And The Role Of Thiamine, Melatonin And Hesperidin In Alleviating This Issue
Excess iron in the brain is thought to be a contributing factor to PD and is known to damage the brain. Iron increases in the brain with age, but even more so in PD. Symptoms of too much iron in the brain include progressive dystonia (a movement disorder resulting in muscular spasms, twisting, and repetitive
Excess iron in the brain is thought to be a contributing factor to PD and is known to damage the brain. Iron increases in the brain with age, but even more so in PD. Symptoms of too much iron in the brain include progressive dystonia (a movement disorder resulting in muscular spasms, twisting, and repetitive
chartist
in
Cure Parkinson's
11 months ago
Feels worse than Ectopics
7 years of this feeling, think of rolling you tongue irregulrly heart feeling, my heart at times does that but, then feels like an engine trying to start Bing Bing bang and hate them so much. Just be relaxed talking and it happens, lay down feels like not enough blood is being pumped and heart struggles
7 years of this feeling, think of rolling you tongue irregulrly heart feeling, my heart at times does that but, then feels like an engine trying to start Bing Bing bang and hate them so much. Just be relaxed talking and it happens, lay down feels like not enough blood is being pumped and heart struggles
Contra21
in
Arrhythmia Alliance
1 year ago
RLS & BURPRENORPHINE
Hello everyone, I had been on Oxy for the past couple of years for pain. Recently I switched pain doctors and he switched the Oxy to Buprenorphine 8mg (film). The Buprenorphine, like a miracle, stopped my RLS immediately and it also controlled my pain so much better than the Oxy. In the past couple
Hello everyone, I had been on Oxy for the past couple of years for pain. Recently I switched pain doctors and he switched the Oxy to Buprenorphine 8mg (film). The Buprenorphine, like a miracle, stopped my RLS immediately and it also controlled my pain so much better than the Oxy. In the past couple
Josana13
in
Restless Legs Syndrome
1 year ago
MRI guided Stereotactic Body Radiotherapy (SBRT) for favorable intermediate recurrence?
65 years old. PSA below 3 then 4.35, 3.06, 4.93, and 4.52. Had MRI and then biopsy Diagnosed 19 months ago with PCa localized on left side with 3+4 on one core and 4+3 in second core, all confined to prostate. Joined NanoKnife (Irreversible Electroporation (IRE)) focal ablation clinical trial.
65 years old. PSA below 3 then 4.35, 3.06, 4.93, and 4.52. Had MRI and then biopsy Diagnosed 19 months ago with PCa localized on left side with 3+4 on one core and 4+3 in second core, all confined to prostate. Joined NanoKnife (Irreversible Electroporation (IRE)) focal ablation clinical trial.
Piano777
in
Prostate Cancer Network
11 months ago
Eliquis Dosages???
Can anyone tell me what the doses are when you are just going to start them.. Never been on any med for blood thinners but since I got a afib 2 times and tachycardia 2-3 times and I am 72 Dr. says I must start. He gave me for the tachycardia a med. called Cardizem 180 mg ER to take instead of the a
Can anyone tell me what the doses are when you are just going to start them.. Never been on any med for blood thinners but since I got a afib 2 times and tachycardia 2-3 times and I am 72 Dr. says I must start. He gave me for the tachycardia a med. called Cardizem 180 mg ER to take instead of the a
scardycat
in
AF Association
1 year ago
We are incredibly excited to see you in-person at this year’s AF Association Patients Day!
You can expect a jam-packed agenda, with a wide range of topics from anticoagulants, pacemakers, AF ablation and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers alike to hear about
You can expect a jam-packed agenda, with a wide range of topics from anticoagulants, pacemakers, AF ablation and more! Patients Day 2023 will take place at the Hyatt Hotel, Birmingham, UK on Sunday 8th October. Our annual event is a fantastic opportunity for patients and caregivers alike to hear about
Hidden
Partner
in
AF Association
1 year ago
Moving to Australia from NZ
Here’s one for our Aussie members. I am considering ‘a shift across the ditch’ probably to Victoria because I have immediate family there. I have been on W&W for 5 years and have a pretty good prognosis although I guess if I live long enough I will need treatment (76 now) eventually. I am wondering
Here’s one for our Aussie members. I am considering ‘a shift across the ditch’ probably to Victoria because I have immediate family there. I have been on W&W for 5 years and have a pretty good prognosis although I guess if I live long enough I will need treatment (76 now) eventually. I am wondering
Kiwidi
in
CLL Support
11 months ago
Persistent Afib - next stop Amiodorone
Following a short-lived success with cardioversion, my EP has prescribed Amiodarone 200mg daily. So not a massive dose. The waiting list for ablation is long, so this is a stop gap. And a lot of the drugs prescribed for paroxysmal AF are not much help for persistent AF - at least not as an antiarythmic
Following a short-lived success with cardioversion, my EP has prescribed Amiodarone 200mg daily. So not a massive dose. The waiting list for ablation is long, so this is a stop gap. And a lot of the drugs prescribed for paroxysmal AF are not much help for persistent AF - at least not as an antiarythmic
Rainfern
in
AF Association
1 year ago
Stopping Firmagon if castration resistant
The cocktail of painkillers plus Radium 223 is making me very tired at the moment. This may seem like a daft question but what is the position with continuing or stopping Firmagon when you're castration resistant? Is its purpose to control the spread of testosterone that would otherwise make the cancer
The cocktail of painkillers plus Radium 223 is making me very tired at the moment. This may seem like a daft question but what is the position with continuing or stopping Firmagon when you're castration resistant? Is its purpose to control the spread of testosterone that would otherwise make the cancer
Finlay66
in
Advanced Prostate Cancer
1 year ago
Atrial Fibrillation
Hello All , Ive been on Eligard , Zytiga , 250 mg , Abiraterone 5mg for 14 months , Just found out from a EKG I have paroxysmal A-Fib and PVC (premature ventricular contraction ) . The Dr. gave me a monitor to wear on my chest for 2 weeks . This was done at U of Chicago 2 days ago . I saw my V. A. MO
Hello All , Ive been on Eligard , Zytiga , 250 mg , Abiraterone 5mg for 14 months , Just found out from a EKG I have paroxysmal A-Fib and PVC (premature ventricular contraction ) . The Dr. gave me a monitor to wear on my chest for 2 weeks . This was done at U of Chicago 2 days ago . I saw my V. A. MO
reconjj
in
Advanced Prostate Cancer
1 year ago
Abaltion over with
Had the cryo ablation in James Cook in Middlesborough on Tuesday. Was a bit anxious but went OK. It lasted 2 hours but now I cant remember much about it other than them pacing my heart a little and the ice cream headache Discharge letter states PVI x4 and no return after 15mins - not sure what the last
Had the cryo ablation in James Cook in Middlesborough on Tuesday. Was a bit anxious but went OK. It lasted 2 hours but now I cant remember much about it other than them pacing my heart a little and the ice cream headache Discharge letter states PVI x4 and no return after 15mins - not sure what the last
ian16527
in
AF Association
1 year ago
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