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A Correction
A few weeks ago I mentioned that Dr Ohtsuka will be a panellist in an online (Zoom) discussion about AFib and the mini-maze procedure. The WO-MM (Wolf-Ohtsuka Mini Maze) is an adaptation of the Wolf Mini Mazem as performed at the NewHeart Watanabe hospital in Tokyo. Dr Wolf, who is a surgeon at Debakey
A few weeks ago I mentioned that Dr Ohtsuka will be a panellist in an online (Zoom) discussion about AFib and the mini-maze procedure. The WO-MM (Wolf-Ohtsuka Mini Maze) is an adaptation of the Wolf Mini Mazem as performed at the NewHeart Watanabe hospital in Tokyo. Dr Wolf, who is a surgeon at Debakey
saulger
in
AF Association
1 year ago
Update on Annovis Buntanetap
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Imaparky
in
Cure Parkinson's
11 months ago
Slow irregular heartbeat?
Was diagnosed with arrhythmia last autumn, currently on edoxaban, flecanide and bisoprolol. About 20 hours ago my heart started beating irregularly, it is still slow (about 50 bpm) and seems to be missing a beat every 3/4 beats. NHS111 yesterday advised going to A&E where they did ECG and blood
Was diagnosed with arrhythmia last autumn, currently on edoxaban, flecanide and bisoprolol. About 20 hours ago my heart started beating irregularly, it is still slow (about 50 bpm) and seems to be missing a beat every 3/4 beats. NHS111 yesterday advised going to A&E where they did ECG and blood
Afib12345
in
AF Association
1 year ago
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Where to go after Lutetium 177?
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Biobro
in
Advanced Prostate Cancer
11 months ago
next treatment Doxil
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
Lna21
in
SHARE Metastatic Breast Cancer
11 months ago
Running out of road....
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
CrocodileShoes
in
Advanced Prostate Cancer
11 months ago
INTERCEPT IS ENDING CLINICAL TRIAL
I have been participating in Intercept's clinical trial for Ocaliva's use for the improvement of liver fibrosis. When the FDA voted against the approval of the drug last week, Intercept announced it will be discontinuing all R&D for NASH treatment. This is a grave disappointment.
I have been participating in Intercept's clinical trial for Ocaliva's use for the improvement of liver fibrosis. When the FDA voted against the approval of the drug last week, Intercept announced it will be discontinuing all R&D for NASH treatment. This is a grave disappointment.
NYLassie
in
Living with Fatty Liver and NASH
11 months ago
Migraine on tapering
Just a quick question - I began DL's slow taper from 9mg to 8.5mg on Saturday 18/3/23 and suffered a migraine aura so took a sumatriptans tablet. Gradually recovered over the next couple of days. The second reduction to 8.5mg is today (22/3/23) and, again, I have had a migraine aura and taken sumatriptans
Just a quick question - I began DL's slow taper from 9mg to 8.5mg on Saturday 18/3/23 and suffered a migraine aura so took a sumatriptans tablet. Gradually recovered over the next couple of days. The second reduction to 8.5mg is today (22/3/23) and, again, I have had a migraine aura and taken sumatriptans
Miserere
in
PMRGCAuk
1 year ago
AFIB ATTACK TRIGGER???
Has anyone been AFIB free for several months on Flecainide, but then get an attack when you have a 100.5 fever and cold sweats (not feeling well)??? Just wondering if anyone has had an experience similar to mine? Thank you for any and all replies as I love you all!!!!!!!
Has anyone been AFIB free for several months on Flecainide, but then get an attack when you have a 100.5 fever and cold sweats (not feeling well)??? Just wondering if anyone has had an experience similar to mine? Thank you for any and all replies as I love you all!!!!!!!
Jpot34
in
AF Association
1 year ago
Advice please
Went to see my EP last night and he gave me news I didn't want to hear.I am on sotalol 40mg X3 per day plus apixaban. I have been having episodes about every 4 months but this time I have had 3 episodes, I believe triggered by the covid vaccine and the other time when I was away eating rich food, not
Went to see my EP last night and he gave me news I didn't want to hear.I am on sotalol 40mg X3 per day plus apixaban. I have been having episodes about every 4 months but this time I have had 3 episodes, I believe triggered by the covid vaccine and the other time when I was away eating rich food, not
Karendeena
in
AF Association
1 year ago
Sister likely has endometrial cancer
Hello everyone, I have been a member of healthunlocked since 2014 when I was diagnosed with CLL. I noticed that my sister's belly was getting quite big so I made her get an ultrasound. She had a CT scan on Thursday night and although we haven't received the results yet, it is more than likely that
Hello everyone, I have been a member of healthunlocked since 2014 when I was diagnosed with CLL. I noticed that my sister's belly was getting quite big so I made her get an ultrasound. She had a CT scan on Thursday night and although we haven't received the results yet, it is more than likely that
fell
in
SHARE Uterine Cancer Support
11 months ago
Berberine - does anyone have experience of taking this for PAF?
I’m going to have a pace and ablate in a few weeks time, so I started watching videos about it by the York Cadiologist (great guy!). On one of the videos I tripped across a comment where a chap said he had to stop taking Flecainide because of the adverse side effects (that’s me too!) and had started
I’m going to have a pace and ablate in a few weeks time, so I started watching videos about it by the York Cadiologist (great guy!). On one of the videos I tripped across a comment where a chap said he had to stop taking Flecainide because of the adverse side effects (that’s me too!) and had started
Dippy22
in
AF Association
1 year ago
Oral NT-0796 for Parkinson’s shows promise in early clinical trials
https://parkinsonsnewstoday.com/news/nodthera-nt-0796-shows-promise-early-parkinsons-clinical-trials/
https://parkinsonsnewstoday.com/news/nodthera-nt-0796-shows-promise-early-parkinsons-clinical-trials/
Farooqji
in
Cure Parkinson's
11 months ago
Amazing
I just want to say that yesterday was an amazing day. We all have good and bad. My pacemaker was done on the 27th and I have had some good days and not so good. Yesterday I woke up really early and had energy all day. I walked with my dog around our property of almost an acre. A few weeks ago I could
I just want to say that yesterday was an amazing day. We all have good and bad. My pacemaker was done on the 27th and I have had some good days and not so good. Yesterday I woke up really early and had energy all day. I walked with my dog around our property of almost an acre. A few weeks ago I could
DawnTX
in
AF Association
1 year ago
First afib incident since dx 3 years ago
Have been taking Diltiazem 180 mg daily for 3 years without having any tachycardia till now. Days with HR 130-140 bpm. I think that it was caused by the stress due to the severe storm that caused many blowdowns (one on my house) loss of power, internet, and downed phone lines. Lots of worry, shoveling
Have been taking Diltiazem 180 mg daily for 3 years without having any tachycardia till now. Days with HR 130-140 bpm. I think that it was caused by the stress due to the severe storm that caused many blowdowns (one on my house) loss of power, internet, and downed phone lines. Lots of worry, shoveling
Bikedennis
in
AF Association
1 year ago
My Home ECG reading? AF or Ectopics
As you may know from my recent posts Ive been having aweful time past 5 days with ectopics and palpitations. Ive been recording them and the photo attached is the typical of what Im having every minute of the day. I think overnight I went into sinus rhythm - I found a 2mg of Diazepam from years ago
As you may know from my recent posts Ive been having aweful time past 5 days with ectopics and palpitations. Ive been recording them and the photo attached is the typical of what Im having every minute of the day. I think overnight I went into sinus rhythm - I found a 2mg of Diazepam from years ago
wendy6
in
AF Association
1 year ago
OVM 200 clinical trial on TV
https://www.newscientist.com/article/2375922-advancing-immunology-the-future-of-vaccine-innovations/ at 6.25 mins is a bit of info about the trial I volunteered for. The ‘shout out’ is for ovarian cancers so I may not have had an immune response but I have heard nothing formally except last weeks scans
https://www.newscientist.com/article/2375922-advancing-immunology-the-future-of-vaccine-innovations/ at 6.25 mins is a bit of info about the trial I volunteered for. The ‘shout out’ is for ovarian cancers so I may not have had an immune response but I have heard nothing formally except last weeks scans
Brysonal
in
Fight Prostate Cancer
11 months ago
Whatever happened to the pill in the pocket?
I have had paroxysmal AF for 10 years. When it happens I never know what to do, especially as I live alone. If it goes on for more than about 12 hours I seek help from 111, they send the paramedics who do an ECG and confirm the problem, but by the time I get to A&E it stops! I have asked for advice on
I have had paroxysmal AF for 10 years. When it happens I never know what to do, especially as I live alone. If it goes on for more than about 12 hours I seek help from 111, they send the paramedics who do an ECG and confirm the problem, but by the time I get to A&E it stops! I have asked for advice on
Singingforever
in
Atrial Fibrillation Support
1 year ago
My brother has advanced Prostate cancer
Hi everyone, I attached previous post about my brother. Since then he had one more PSA test which came back at 17! He has CT scan and bone scan, he had some new mets on his bones(spine) and they are suspected to some lymph nodes of chest. Currently he has hormone therapy every 3 months and Nubeqa
Hi everyone, I attached previous post about my brother. Since then he had one more PSA test which came back at 17! He has CT scan and bone scan, he had some new mets on his bones(spine) and they are suspected to some lymph nodes of chest. Currently he has hormone therapy every 3 months and Nubeqa
rasher1
in
Advanced Prostate Cancer
11 months ago
Reminder: The virtual LiveLung SCLC group meeting is TONIGHT, June 20th at 7 pm ET.
This month's expert speaker is Fox Chase Cancer Center Chief of Thoracic Oncology, Dr. Hossein Borghaei. Dr. Borghaei will discuss immunotherapy and SCLC. Attendees will receive a $15 Grubhub credit.
Register HERE:
https://us02web.zoom.us/meeting/register/tZcoceqtqTsuGtQLZRWg56NWyuLdozBKybPJ
This month's expert speaker is Fox Chase Cancer Center Chief of Thoracic Oncology, Dr. Hossein Borghaei. Dr. Borghaei will discuss immunotherapy and SCLC. Attendees will receive a $15 Grubhub credit.
Register HERE:
https://us02web.zoom.us/meeting/register/tZcoceqtqTsuGtQLZRWg56NWyuLdozBKybPJ
AmyKamp
Partner
in
Small Cell Lung Cancer Support
11 months ago
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