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Questions for those currently on or have tried Olaparib or Rucaparib PARP inhibitors. Recently published study on Rucaparib.
For those of you who have tried or are on PARP inhibitors, which one did you use and at what point did you use them? Was it before chemo or after chemo? Did insurance cover the cost? Looking at the NCCN guidelines, which my husband's MO refers to often, they suggest Olaparib (Lynparrza) before chemo
For those of you who have tried or are on PARP inhibitors, which one did you use and at what point did you use them? Was it before chemo or after chemo? Did insurance cover the cost? Looking at the NCCN guidelines, which my husband's MO refers to often, they suggest Olaparib (Lynparrza) before chemo
mrssnappy
in
Advanced Prostate Cancer
5 months ago
The saga of faints and Afib
Many thanks to all those who gave advice. Yesterdays 'attack' of faints and afib was pretty dire. So I called 111 and the clinician I spoke to advised I go,by appointmnet...yes, that is what I said, to A. and E. Mine is the John Radcliffe Oxford. I was recieved and put immediately into an area where
Many thanks to all those who gave advice. Yesterdays 'attack' of faints and afib was pretty dire. So I called 111 and the clinician I spoke to advised I go,by appointmnet...yes, that is what I said, to A. and E. Mine is the John Radcliffe Oxford. I was recieved and put immediately into an area where
10gingercats
in
AF Association
10 months ago
Glaucoma, OCT showing deterioration since starting Pred for PMR
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
Sillydogsmum
in
PMRGCAuk
10 months ago
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Vyalev, steady levodopa/carbidopa infusion, now available in Canada
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Advanced Parkinson's treatment for severe motor symptoms despite oral meds Margarida Maia, PhD avatar by Margarida Maia, PhD | February 12, 2024 A person wearing a baseball cap uses a megaphone cone to make an announcement. Vyalev, a brand name for AbbVie’s ABBV-951 (foslevodopa/foscarbidopa), is
Thal
in
Cure Parkinson's
5 months ago
Long Journey
Hey Guys, I don’t post on here often and I’m afraid this will be a long post. I have had PCa over 18 years. Started with casodex, Lupron. A few months later, brachytherapy then 42 sessions of EBRT. Over the years PSA would rise, and I would be put on Lupron for 18-24 months. In 2017, PSA started rising
Hey Guys, I don’t post on here often and I’m afraid this will be a long post. I have had PCa over 18 years. Started with casodex, Lupron. A few months later, brachytherapy then 42 sessions of EBRT. Over the years PSA would rise, and I would be put on Lupron for 18-24 months. In 2017, PSA started rising
MJCA
in
Prostate Cancer And Gay Men
5 months ago
Hip Replacement while on treatment??
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
My husband, who is in a Clinical Trial at MDA for Richter's, needs a hip replacement badly - such that his severe arthritis is a bigger deal to his quality of life than the Richter's. He saw an orthopedic pain management specialist last week who had nothing to offer, stating that a steroid injection
laurieq
in
CLL Support
5 months ago
Nuclear Stress Test in Chair was so easy.
Had the Nuclear Stress test in the apparatus similar to a dentist chair. It was a Lexi Scan with injection but did not have to lay flat and was less than half the time of the round donut looking machine. My cardiologist did not have the newer technology he wrote me a referral to go to a cardiologist
Had the Nuclear Stress test in the apparatus similar to a dentist chair. It was a Lexi Scan with injection but did not have to lay flat and was less than half the time of the round donut looking machine. My cardiologist did not have the newer technology he wrote me a referral to go to a cardiologist
Strawberryfields1
in
AF Association
10 months ago
Still preclinical so don't get too excited: Lu-177 Lu-lbu-DAB-PSMA works better than Lu-177-PSMA-617
From Sweden with love...and hopefully with a clinical trial soon "The data of this study demonstrated a significant therapeutic advantage of [Lu-177]Lu-Ibu-DAB-PSMA over [Lu-177]Lu-PSMA-617 and a more favorable safety profile as compared to that of [Lu-177]Lu-PSMA-ALB-56. Based on these results, [Lu
From Sweden with love...and hopefully with a clinical trial soon "The data of this study demonstrated a significant therapeutic advantage of [Lu-177]Lu-Ibu-DAB-PSMA over [Lu-177]Lu-PSMA-617 and a more favorable safety profile as compared to that of [Lu-177]Lu-PSMA-ALB-56. Based on these results, [Lu
Maxone73
in
Advanced Prostate Cancer
5 months ago
Can Anyone On This Forum Please Explain
I just got back a little ago from a few hours visit at my local VA Hospital. While I was there I went into AFIB and had an ekg done. The Dr. came in and said my heart rate was high but it's coming down. I told her I know because I have paroxysmal AFIB and she said you have Chronic AFIB. I told her I
I just got back a little ago from a few hours visit at my local VA Hospital. While I was there I went into AFIB and had an ekg done. The Dr. came in and said my heart rate was high but it's coming down. I told her I know because I have paroxysmal AFIB and she said you have Chronic AFIB. I told her I
kocoach
in
Atrial Fibrillation Support
10 months ago
Treating PVCS on a virtual ward
I have posted on here a number of times about the burden of persistent PVCs. Anyway, after 5 days of feeling very dizzy and nauseous, I went to see my GP. She sent me straight to my local hospital which is a big teaching hospital. I was seen in the Same Day Emergency Medicine unit who were thorough and
I have posted on here a number of times about the burden of persistent PVCs. Anyway, after 5 days of feeling very dizzy and nauseous, I went to see my GP. She sent me straight to my local hospital which is a big teaching hospital. I was seen in the Same Day Emergency Medicine unit who were thorough and
Norfolk_spaniel
in
AF Association
10 months ago
clinical trial still recruiting: JNJ-78278343 immunotherapy targeting KLK2-CD3
https://classic.clinicaltrials.gov/ct2/show/NCT06095089 Conceptually promising but still phase 1/2
https://classic.clinicaltrials.gov/ct2/show/NCT06095089 Conceptually promising but still phase 1/2
Maxone73
in
Advanced Prostate Cancer
5 months ago
Chip implantation
Guys, a man in China had a chip implanted in his head, will anyone then go there to try out the invention?Or will you wait for Neurаlink Musk? “The next stage of the research will be the development of a new protocol for active rehabilitation using a neuro-computer interface to accelerate the growth
Guys, a man in China had a chip implanted in his head, will anyone then go there to try out the invention?Or will you wait for Neurаlink Musk? “The next stage of the research will be the development of a new protocol for active rehabilitation using a neuro-computer interface to accelerate the growth
Intensor
in
AMN EASIER
5 months ago
Insulin resistant & query about blood results
Good afternoon, Please can someone advise if my bloods are acceptable. I had to nag doctor to increase my dose from 125 to 150mg and now fear although I am starting to feel better in myself that they will reduce dose down again when I see them my blood sugars are also out of range - a clinical trial
Good afternoon, Please can someone advise if my bloods are acceptable. I had to nag doctor to increase my dose from 125 to 150mg and now fear although I am starting to feel better in myself that they will reduce dose down again when I see them my blood sugars are also out of range - a clinical trial
littlerobot
in
Thyroid UK
5 months ago
Benefits of Sacc. Boulardii probiotic
Just wondering whether to reorder my sacc. boulardii which I bought originally to combat candida, and on googling saw it's also relevant to PD - thought I'd share for those who missed this July study: https://pubmed.ncbi.nlm.nih.gov/36708254/ 'Mitochondrial impairment is a hallmark feature of neurodegenerative
Just wondering whether to reorder my sacc. boulardii which I bought originally to combat candida, and on googling saw it's also relevant to PD - thought I'd share for those who missed this July study: https://pubmed.ncbi.nlm.nih.gov/36708254/ 'Mitochondrial impairment is a hallmark feature of neurodegenerative
Reetpetitio
in
Cure Parkinson's
5 months ago
U.S. Gov't to Negotiate Prices for Ibrutinib
https://www.cnn.com/2023/08/29/politics/medicare-drug-price-negotiations/index.html#:~:text=Medicare%20will%20soon%20start%20negotiating%20the%20prices%20of%2010%20drugs%20with%20manufacturers.&text=The%20Biden%20administration%20unveiled%20Tuesday,blood%20thinners%20and%20diabetes%20medications.
https://www.cnn.com/2023/08/29/politics/medicare-drug-price-negotiations/index.html#:~:text=Medicare%20will%20soon%20start%20negotiating%20the%20prices%20of%2010%20drugs%20with%20manufacturers.&text=The%20Biden%20administration%20unveiled%20Tuesday,blood%20thinners%20and%20diabetes%20medications.
michaeledward
in
CLL Support
10 months ago
Surgical Castration ?
I have been on Eligard for two months. Prior to starting ADT my Triglycerides were 100 (May 2023). After only two months of Eligard they are thru the roof (495). Since I have metastatic PC they tell me that I will be on ADT for life. I am considering surgical orchiectomy since there are fewer metabolic
I have been on Eligard for two months. Prior to starting ADT my Triglycerides were 100 (May 2023). After only two months of Eligard they are thru the roof (495). Since I have metastatic PC they tell me that I will be on ADT for life. I am considering surgical orchiectomy since there are fewer metabolic
Bigmaristuff
in
Advanced Prostate Cancer
10 months ago
Is anyone in the group interested in genetic research about NASH?
We are working with Sano Genetics to encourage more research into the genetics that predispose someone to liver disease. As part of that they are convening a focus group to gather patient perspectives. We want to encourage the adoption of genetic testing as part of normal patient care. If you have
We are working with Sano Genetics to encourage more research into the genetics that predispose someone to liver disease. As part of that they are convening a focus group to gather patient perspectives. We want to encourage the adoption of genetic testing as part of normal patient care. If you have
nash2
Partner
in
Living with Fatty Liver and NASH
5 months ago
University of Freiburg KMI 169
https://kommunikation.uni-freiburg.de/pm-en/press-releases-2024/prostate-cancer-newly-developed-inhibitor-shows-massive-potential I saw this recently has anyone heard of this and if clinical trials are proposed or???
https://kommunikation.uni-freiburg.de/pm-en/press-releases-2024/prostate-cancer-newly-developed-inhibitor-shows-massive-potential I saw this recently has anyone heard of this and if clinical trials are proposed or???
Peppertree602
in
Advanced Prostate Cancer
5 months ago
Clinical trials
As I posted before, this was one of the most exciting parts of my attending The PBC Summit last May. So many pharmaceutical companies are working on drugs/research for finding the overall cause of PBC, the itch, and the fatigue. Several of you have posted about participating in clinical trials. First
As I posted before, this was one of the most exciting parts of my attending The PBC Summit last May. So many pharmaceutical companies are working on drugs/research for finding the overall cause of PBC, the itch, and the fatigue. Several of you have posted about participating in clinical trials. First
DonnaBoll
Administrator
in
PBC Foundation
5 months ago
Erleada or Xtandi vs Seizure Risk
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
I have had 3 unobserved and undiagnosed seizures, and want to add an ARI to my Orgovyx. My conservative MO says I do not need an ARI. My aggressive urologist has prescribed Erleada as the best ARI, and is against Xtandi. I am in a quandary over what to do. I am afraid of Erleada because "patients
vintage42
in
Advanced Prostate Cancer
5 months ago
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