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Atimos Modulite
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Story of PC
I am 80 years and never had health problem....last time I saw GP was in 2008. I was joking with GP of my wife and asked him to give me blood test prescription Just to give him consulting fees Surprise on may 15 2019 PSA 30...did not know what it means... No symptoms whatsoever Active physically mountain
I am 80 years and never had health problem....last time I saw GP was in 2008. I was joking with GP of my wife and asked him to give me blood test prescription Just to give him consulting fees Surprise on may 15 2019 PSA 30...did not know what it means... No symptoms whatsoever Active physically mountain
Karmaji
in
Advanced Prostate Cancer
5 years ago
ADT, Zytiga and Fitness
I'd like to hear from anyone who is trying hard to keep fitness up wile on ADT and Zytiga. I've been on ADT for 16 months now and close to a year on Zytiga. In between I've done the six cycles of Taxotere and 26 sessions of IMRT. Do you plateau on strength and endurance losses after a year or so of ADT
I'd like to hear from anyone who is trying hard to keep fitness up wile on ADT and Zytiga. I've been on ADT for 16 months now and close to a year on Zytiga. In between I've done the six cycles of Taxotere and 26 sessions of IMRT. Do you plateau on strength and endurance losses after a year or so of ADT
StePeteMN
in
Advanced Prostate Cancer
5 years ago
Finished HDR-BT and IMRT
It's been a long haul, started in March with neoadjunctive ADT, Lupron+Zytiga, for PCa diagnosed at t3bN1M0 +SV +/mesorectal lymph node, and PSA 33. By June, PSA had dropped to 1.0 just before going into HDR-BT with Dr Chang at UCLA. He did a great job, the procedure was smooth, drove home the next
It's been a long haul, started in March with neoadjunctive ADT, Lupron+Zytiga, for PCa diagnosed at t3bN1M0 +SV +/mesorectal lymph node, and PSA 33. By June, PSA had dropped to 1.0 just before going into HDR-BT with Dr Chang at UCLA. He did a great job, the procedure was smooth, drove home the next
timotur
in
Prostate Cancer Network
5 years ago
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SIGNIFICANT METS PROGRESSION DESPITE LOW PSA, LOW ALP, LOW CALCIUM WITH LUPRON/ZYTIGA TREATMENT
My husband and I are in shock after our visit to Mass General where my husband got bone and CT scans last week. (Due to pacemaker, he can’t get an MRI) From just a 4-5 mets last year, he now has many mets up and down his spine, in ribs, shoulders, pelvic bones. As you can see from signature below, he
My husband and I are in shock after our visit to Mass General where my husband got bone and CT scans last week. (Due to pacemaker, he can’t get an MRI) From just a 4-5 mets last year, he now has many mets up and down his spine, in ribs, shoulders, pelvic bones. As you can see from signature below, he
spouse21
in
Advanced Prostate Cancer
5 years ago
Lupron side effects - recovery?
IMRT + brachyboost + 9 mos of Lupron here. Numerous side effects - from wt gain, hot flashes, emotional roller coaster to genital shrinkage, higher BP and bone density issues - poster child for side effects. Ugh. Anyhoo, I've been told that it may take 6+ mos or more to "recover" from the Lupron side
IMRT + brachyboost + 9 mos of Lupron here. Numerous side effects - from wt gain, hot flashes, emotional roller coaster to genital shrinkage, higher BP and bone density issues - poster child for side effects. Ugh. Anyhoo, I've been told that it may take 6+ mos or more to "recover" from the Lupron side
EdinBmore
in
Prostate Cancer And Gay Men
5 years ago
Asthma inhaler?
Hy i am Pam - a newbie. I would like to know what people think of the preventer inhaler Clenil Modulite 200 please as i have been instructed to use for the rest of my life! My asthma is mainly predominant in oppressive warm weather. Winter time i am mostly fine. From a personal point of view (although
Hy i am Pam - a newbie. I would like to know what people think of the preventer inhaler Clenil Modulite 200 please as i have been instructed to use for the rest of my life! My asthma is mainly predominant in oppressive warm weather. Winter time i am mostly fine. From a personal point of view (although
Pam6
in
Asthma Community Forum
5 years ago
Zytiga dosage
I'm on Lupron/Zytiga and am wonderfully covered by my company insurance - but i'm planning on retiring the first of next year and need to transfer to medicare that isn't so wonderful. I've had IMRT in December/Jan - and have been on Lupron since October - i added Zytiga in March because i wanted to be
I'm on Lupron/Zytiga and am wonderfully covered by my company insurance - but i'm planning on retiring the first of next year and need to transfer to medicare that isn't so wonderful. I've had IMRT in December/Jan - and have been on Lupron since October - i added Zytiga in March because i wanted to be
PabloK
in
Advanced Prostate Cancer
5 years ago
State of the Art Radiation Therapy Equipment
I just attended at talk by a Radiation Oncologist talking about: (a) Intensity-modulated radiation therapy (IMRT) (b) Image Guided Radiation Therapy (IGRT) (c) Stereotactic body radiation therapy (SBRT) (d) Cyberknife (with is just one type of SBRT) (e) Proton Therapy What
I just attended at talk by a Radiation Oncologist talking about: (a) Intensity-modulated radiation therapy (IMRT) (b) Image Guided Radiation Therapy (IGRT) (c) Stereotactic body radiation therapy (SBRT) (d) Cyberknife (with is just one type of SBRT) (e) Proton Therapy What
cesanon
in
Advanced Prostate Cancer
5 years ago
Fish or Cut Bait with Zytiga?
Some of you know my story; RP on January 4th, IMRT starting June 1st just ended last week. 5 Firmagon shots going to Lupron on September 1st. Dr. Richard Lam of Prostate Oncologists in Marina del Ray absolutely wants me on Zytiga starting now for 12 months. Says it will increase likelihood of permanent
Some of you know my story; RP on January 4th, IMRT starting June 1st just ended last week. 5 Firmagon shots going to Lupron on September 1st. Dr. Richard Lam of Prostate Oncologists in Marina del Ray absolutely wants me on Zytiga starting now for 12 months. Says it will increase likelihood of permanent
TEBozo
in
Advanced Prostate Cancer
5 years ago
Sinus Rinses
Hi! So I suffer from severe hay fever and asthma which is mainly triggered from allergies. I currently take Acrivastine antihistamines 3x a day, and Dymista 2x a day, as well as eye drops as needed and Clenil Modulite 2x a day and ventolin if needed. I am suffering quite badly with my sinuses at the
Hi! So I suffer from severe hay fever and asthma which is mainly triggered from allergies. I currently take Acrivastine antihistamines 3x a day, and Dymista 2x a day, as well as eye drops as needed and Clenil Modulite 2x a day and ventolin if needed. I am suffering quite badly with my sinuses at the
Hidden
in
Asthma Community Forum
5 years ago
mCSPC vs mCRPC? Does my MO have it right?
My MO says I'm mCRPC and I think my PSA elevation is due to radiation bounce. I'm Oligo and 75 YO and questioning his assessment. PSA 34 6-2017 started casodex 20 11-2017 started Lupron (still on Lupron) 3.5 1-2018 started zytiga .7 8-2018 level for 3 months .9 10
My MO says I'm mCRPC and I think my PSA elevation is due to radiation bounce. I'm Oligo and 75 YO and questioning his assessment. PSA 34 6-2017 started casodex 20 11-2017 started Lupron (still on Lupron) 3.5 1-2018 started zytiga .7 8-2018 level for 3 months .9 10
ctflatlander
in
Advanced Prostate Cancer
5 years ago
Nano knife for locally advanced prostate cancer
Like to know about Nano knife therapy for APC... Any experience and how it is done... Is it better than IMRT Thanks
Like to know about Nano knife therapy for APC... Any experience and how it is done... Is it better than IMRT Thanks
Karmaji
in
Advanced Prostate Cancer
5 years ago
Wet weather!
I am newly diagnosed but I just wondered if anyone else is reacting to this terrible UK weather?? I’ve been on Clenil modulite preventer twice a day for 2 weeks now & it seemed to have worked wonderfully at first, I went over a week without needing to use my Ventolin. The last few days have brought torrential
I am newly diagnosed but I just wondered if anyone else is reacting to this terrible UK weather?? I’ve been on Clenil modulite preventer twice a day for 2 weeks now & it seemed to have worked wonderfully at first, I went over a week without needing to use my Ventolin. The last few days have brought torrential
Queenof13
in
Asthma Community Forum
5 years ago
Cabazitaxel,Cytoxan or Comfort Care after dismissal from Lu PSMA Vision Trial
It's been a long journey of mostly ups since my dearest husband was diagnosed with Adv. PC in 2008 at the age of 66. Although hormone therapy was the obvious way to go if PC was outside the capsule at that time, his innovative RO at UTSW Hospital,Dallas noted his great health,diet,supplementation and
It's been a long journey of mostly ups since my dearest husband was diagnosed with Adv. PC in 2008 at the age of 66. Although hormone therapy was the obvious way to go if PC was outside the capsule at that time, his innovative RO at UTSW Hospital,Dallas noted his great health,diet,supplementation and
Jrb70
in
Advanced Prostate Cancer
5 years ago
Unexpected leakage
I thought I was doing well. PSA has been undetectable for over a year. Now, 11 months after I finished 42 sessions of IMRT, I am starting to get more frequent urinary urgency and some leakage if I don’t address the urge promptly. I assume this is secondary to my radiation, but why is there almost a
I thought I was doing well. PSA has been undetectable for over a year. Now, 11 months after I finished 42 sessions of IMRT, I am starting to get more frequent urinary urgency and some leakage if I don’t address the urge promptly. I assume this is secondary to my radiation, but why is there almost a
Canoehead
in
Advanced Prostate Cancer
5 years ago
Advice on an MO at Johns Hopkins?
I am going to be in Baltimore in a couple of weeks and am thinking it might be a good idea to try to schedule a consultation. I live in Utah, am a physician who did pediatric residency at Johns Hopkins long ago, don’t know anyone outside of pediatrics there now. I have CHEK2c1100 deletion (blood test
I am going to be in Baltimore in a couple of weeks and am thinking it might be a good idea to try to schedule a consultation. I live in Utah, am a physician who did pediatric residency at Johns Hopkins long ago, don’t know anyone outside of pediatrics there now. I have CHEK2c1100 deletion (blood test
Milkweed
in
Advanced Prostate Cancer
5 years ago
RP + ADT+ IMRT Report
Jan 4th RP; March 1st Firmagon Shot and each month thereafter; 2 more weeks (of 8) of IMRT/ PSA <0.05. Doc says that is good. I am tired and have had some minor colon irritation but I am working 8 hour days. Libido gone but GF doesn't seem to care? I have zytiga and Prednisone on hand and was prescribed
Jan 4th RP; March 1st Firmagon Shot and each month thereafter; 2 more weeks (of 8) of IMRT/ PSA <0.05. Doc says that is good. I am tired and have had some minor colon irritation but I am working 8 hour days. Libido gone but GF doesn't seem to care? I have zytiga and Prednisone on hand and was prescribed
TEBozo
in
Advanced Prostate Cancer
5 years ago
Thrush using clenil modulite inhaler
Hi all,does anyone have problems using a brown inhaler(clenil modulite) at all,I’m using it as instructed yet keep getting problems,I’m rinsing out my mouth after every use and then using mouthwash with little success,I’ve spoke to my doctor and respiratory nurse and all i keep getting is to keep rinsing
Hi all,does anyone have problems using a brown inhaler(clenil modulite) at all,I’m using it as instructed yet keep getting problems,I’m rinsing out my mouth after every use and then using mouthwash with little success,I’ve spoke to my doctor and respiratory nurse and all i keep getting is to keep rinsing
fenty
in
Lung Conditions Community Forum
5 years ago
daytime nausea
Hello - had SRT that ended 10/31/17 --- PSA low, but not low enough at .38... For the past 2 / 3 months have experienced daytime nausea - no vomiting, blood, etc. Appitite is still good. My question - could the IMRT be causing this or the lupron I took for a year?
Hello - had SRT that ended 10/31/17 --- PSA low, but not low enough at .38... For the past 2 / 3 months have experienced daytime nausea - no vomiting, blood, etc. Appitite is still good. My question - could the IMRT be causing this or the lupron I took for a year?
ken12491
in
Advanced Prostate Cancer
5 years ago
Knowledgeable (Experienced) Opinions Sought
Trial I’m currently participating in includes oligometastatic HSPCa Patient’s on ADT. Control group gets IMRT to zap primary tumor (prostate gland, and in my case seminal vesicles), and ADT. Extra treatment group gets that plus individual Mets zapped. I’m in the former group. From the start I was
Trial I’m currently participating in includes oligometastatic HSPCa Patient’s on ADT. Control group gets IMRT to zap primary tumor (prostate gland, and in my case seminal vesicles), and ADT. Extra treatment group gets that plus individual Mets zapped. I’m in the former group. From the start I was
6357axbz
in
Advanced Prostate Cancer
5 years ago
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