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Ring the bell day tomorrow!!
35 rounds of IMRT and in month 3 of 6 ADT after failed RALP. Glad to put the daily trips in the rear view mirror. Head to Mexico in a couple months to celebrate. Fingers crossed for a long time to any new BCR. My hats off to all you warriors enduring your journey.
35 rounds of IMRT and in month 3 of 6 ADT after failed RALP. Glad to put the daily trips in the rear view mirror. Head to Mexico in a couple months to celebrate. Fingers crossed for a long time to any new BCR. My hats off to all you warriors enduring your journey.
runtrails
in
Advanced Prostate Cancer
2 years ago
Radiation and Large Median Lobe
I went to my first Urologist appointment because of urinary problems. A DRE discovered a lump that was diagnosed as Gleason 7 (3+4). It was also discovered that I had a large median lobe that was likely the cause of my slow stream and urgency. There was a discussion between my Urologist (wanted to
I went to my first Urologist appointment because of urinary problems. A DRE discovered a lump that was diagnosed as Gleason 7 (3+4). It was also discovered that I had a large median lobe that was likely the cause of my slow stream and urgency. There was a discussion between my Urologist (wanted to
BanjoPicker
in
Prostate Cancer Network
2 years ago
First Post
I have been reading everything I can here, but still feel a little terminology and technically lacking. What would be helpful in helping new members is very very basic terms until they get up to speed. I have several questions. I am gleason 8, de novo, lymph node involvement in pelvic region, and one
I have been reading everything I can here, but still feel a little terminology and technically lacking. What would be helpful in helping new members is very very basic terms until they get up to speed. I have several questions. I am gleason 8, de novo, lymph node involvement in pelvic region, and one
Sam2346
in
Advanced Prostate Cancer
2 years ago
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IMRT WITHOUT SPACEOAR PROTECTION (EPE) WORRIED ABOUT RECTUM PROBLEMS (PROCTITIS) & IMRT (20x,28x,???) vs SBRT
I am going to have to have IMRT for 20 treatments at UCLA as opposed to the 5 Sbrt treatments as the EPE on reread on my Biopsy identified the extracapsular extension. My Ro thinks that: Not to have spaceoar as it may trap the Extracapsular extension microscopic cancer cells . IMRT has more data than
I am going to have to have IMRT for 20 treatments at UCLA as opposed to the 5 Sbrt treatments as the EPE on reread on my Biopsy identified the extracapsular extension. My Ro thinks that: Not to have spaceoar as it may trap the Extracapsular extension microscopic cancer cells . IMRT has more data than
JWS13
in
Prostate Cancer Network
2 years ago
Father’s MO now recommending adding Zytiga
Hi all, my dad is nearly three years from diagnosis of Gleason 9 with evidence of spread to local lymph nodes (see profile). Has had IMRT concurrent with 3 years of lupron. Latest PSA 0.03, <0.02 6 months prior. Original plan from MO was to do Lupron for 3 years which would end 2/23. His recent appointment
Hi all, my dad is nearly three years from diagnosis of Gleason 9 with evidence of spread to local lymph nodes (see profile). Has had IMRT concurrent with 3 years of lupron. Latest PSA 0.03, <0.02 6 months prior. Original plan from MO was to do Lupron for 3 years which would end 2/23. His recent appointment
mooman80
in
Advanced Prostate Cancer
2 years ago
Radiation a second time? Recurrent PC
I recently had a PSMA scan done that showed my recurrence is in the prostate and three Iliac nodes ( none enlarged). I had IMRT done 17 years ago, my question is anyone familiar with doing a targeted course of radiation a second time? I will be doing Provenge after the first of the year then researching
I recently had a PSMA scan done that showed my recurrence is in the prostate and three Iliac nodes ( none enlarged). I had IMRT done 17 years ago, my question is anyone familiar with doing a targeted course of radiation a second time? I will be doing Provenge after the first of the year then researching
wat380bjw
in
Advanced Prostate Cancer
2 years ago
Stuck between deciding on IMRT CONDENSED and SBRT with 4 months ORGOVXY- Have Jan 12th date to make decision for UCLA (meet with Dr. Kishan)
I will give you the facts as I know them and who recommends each therapy:
1. I live near UCLA so convenience is not a factor ,however 20 IMRT treatments is more than 5 SBRT Treatments.
2.
Dr. Howard Sandler, (Cedars -Sinai) -RO,
Dr. Rana McKAY
-
UCSD -MO ,
Dr.
I will give you the facts as I know them and who recommends each therapy:
1. I live near UCLA so convenience is not a factor ,however 20 IMRT treatments is more than 5 SBRT Treatments.
2.
Dr. Howard Sandler, (Cedars -Sinai) -RO,
Dr. Rana McKAY
-
UCSD -MO ,
Dr.
JWS13
in
Prostate Cancer Network
2 years ago
IMRT CONDENSED -4 Months ADT VS SBRT -4 Months ADT
The finding of the ECE after review by MSK increased my cancer to higher risk by my RO's. They are split , one recommending IMRT with 4 months rather than SBRT alone. The other recommending SBRT with 4 months ADT.
RO says their is more long term data with IMRT Condensed (20 treatments)
The finding of the ECE after review by MSK increased my cancer to higher risk by my RO's. They are split , one recommending IMRT with 4 months rather than SBRT alone. The other recommending SBRT with 4 months ADT.
RO says their is more long term data with IMRT Condensed (20 treatments)
JWS13
in
Prostate Cancer Network
2 years ago
Sacrum tumors grown after IMRT.
This is the wife. He has advanced PC with mets to bones, had Orch last year and been stable until Feb 22. All other bone mets still stable. Recently went from castrate sensitive to castrate resistant. Finished 5 days IMRT Nov 11. Sacrum tumors has actually grown according to scans. RO said on
This is the wife. He has advanced PC with mets to bones, had Orch last year and been stable until Feb 22. All other bone mets still stable. Recently went from castrate sensitive to castrate resistant. Finished 5 days IMRT Nov 11. Sacrum tumors has actually grown according to scans. RO said on
Pops78
in
Advanced Prostate Cancer
2 years ago
ECE and CRIBRIFORM FOUND IN PATH REVIEW OF MSK BIOPSY BY UCSF
I am scheduled for SBRT at UCLA for 1/12/ 2023. However , UCSF did a path review of MSK's Biopsy report, and indicated that UCSF found additionally : 1
. the presence of "expansile cribriform subtype"
2. the "possible identification of extracapsular extension" described below:
I am scheduled for SBRT at UCLA for 1/12/ 2023. However , UCSF did a path review of MSK's Biopsy report, and indicated that UCSF found additionally : 1
. the presence of "expansile cribriform subtype"
2. the "possible identification of extracapsular extension" described below:
JWS13
in
Prostate Cancer Network
2 years ago
Proctitis from Radiation
I had 27 sessions of IMRT in 2019 for prostate cancer. Even though I had the SpaceOAR procedure, I believe I have some rectal damage. Every now and then when I wipe after a bowel movement, there will be a bit of raw blood. I did have hemorrhoid surgery in 2008 but didn't see any blood through the years
I had 27 sessions of IMRT in 2019 for prostate cancer. Even though I had the SpaceOAR procedure, I believe I have some rectal damage. Every now and then when I wipe after a bowel movement, there will be a bit of raw blood. I did have hemorrhoid surgery in 2008 but didn't see any blood through the years
Hidden
in
Prostate Cancer Network
2 years ago
Probiotics for Radiation Associated GI Side Effects ?
I’m on round 4 / 28 of IMRT to my prostate, pelvic lymph nodes and right hip. Things are generally going well except for some mild nausea and abdominal cramping. Some have suggested taking probiotics. I’m not a yogurt fan so don’t want to try that. Other suggestions for brands I might try? TIA
I’m on round 4 / 28 of IMRT to my prostate, pelvic lymph nodes and right hip. Things are generally going well except for some mild nausea and abdominal cramping. Some have suggested taking probiotics. I’m not a yogurt fan so don’t want to try that. Other suggestions for brands I might try? TIA
AlvinSD
in
Advanced Prostate Cancer
2 years ago
Any Miracles out there ?
Hello , Christmas time around the corner . Anyone here have similar to my cancer . Oligo-metatastic to 1 pelvic lymph node . Had 3 fractions SBRT to the tumor , then 25 imrt to the entire pelvic field . . Tall Allen sent me a link in the past that there is hope for a cure in this situation . I would
Hello , Christmas time around the corner . Anyone here have similar to my cancer . Oligo-metatastic to 1 pelvic lymph node . Had 3 fractions SBRT to the tumor , then 25 imrt to the entire pelvic field . . Tall Allen sent me a link in the past that there is hope for a cure in this situation . I would
reconjj
in
Advanced Prostate Cancer
2 years ago
Oral Thrush from Inhaler use
so I was only diagnosed with asthma last year, and I started using a clenil modulite inhaler. It was all good and fine for the first year, and then I got my first bout of oral thrush :( I have been using the max dose of my inhaler a lot and assumed that that was likely a part of the problem. I got daktarin
so I was only diagnosed with asthma last year, and I started using a clenil modulite inhaler. It was all good and fine for the first year, and then I got my first bout of oral thrush :( I have been using the max dose of my inhaler a lot and assumed that that was likely a part of the problem. I got daktarin
Kirsty979
in
Asthma Community Forum
2 years ago
Undetectable PSA
Yesterday I received my 3rd Eligard (3 month) injection. I'm also on Zytiga and finished 44 IMRT 5 weeks ago. The cancer center is attached to a large hospital and they test the blood work in house. MO says everything looked great and that my PSA is now undetectable. The lab report says <0.0 ng/ml
Yesterday I received my 3rd Eligard (3 month) injection. I'm also on Zytiga and finished 44 IMRT 5 weeks ago. The cancer center is attached to a large hospital and they test the blood work in house. MO says everything looked great and that my PSA is now undetectable. The lab report says <0.0 ng/ml
Huzzah1
in
Advanced Prostate Cancer
2 years ago
Nubeqa failing onto C-94676 clinical trial
I just thought I would update my latest progression, scan findings, and plan of care established. You can view my profile but in a nutshell went to a free screening in the fall of 2012 but they never contacted me until early 2013 where 12 core biopsy revealed Stage IV M1b with extensive lymph node and
I just thought I would update my latest progression, scan findings, and plan of care established. You can view my profile but in a nutshell went to a free screening in the fall of 2012 but they never contacted me until early 2013 where 12 core biopsy revealed Stage IV M1b with extensive lymph node and
wagscure259
in
Advanced Prostate Cancer
2 years ago
IMRT sessions
Besides a full bladder and empty colon, what things can make radiation treatment more effective for short and long term. S.E. and outcomes?Have 4 down, 31 to go. (Had 30 days Casodex and on Lupron)
Besides a full bladder and empty colon, what things can make radiation treatment more effective for short and long term. S.E. and outcomes?Have 4 down, 31 to go. (Had 30 days Casodex and on Lupron)
runtrails
in
Advanced Prostate Cancer
2 years ago
PSA Test Frequency After Extended ADT
I'm curious what PSA testing frequency others have had following long ADT treatments. A little background on me: - Diagnosed summer 2019 w/G9 at age 56 - RP Aug 2019 confirmed G9, ECE, SVI+, LN+ so stage T3cN1 - Decipher score was 0.71 - Had 35 sessions of IMRT in summer 2020 along with 24 mths
I'm curious what PSA testing frequency others have had following long ADT treatments. A little background on me: - Diagnosed summer 2019 w/G9 at age 56 - RP Aug 2019 confirmed G9, ECE, SVI+, LN+ so stage T3cN1 - Decipher score was 0.71 - Had 35 sessions of IMRT in summer 2020 along with 24 mths
DJBUNK
in
Advanced Prostate Cancer
2 years ago
39th and probs last Chemo💙
Fifteen Taxoteres in 2015 Six more in 2020 18th Cabazitazel right now Brought a lil Chandon to celebrate Also Chocolate covered Macadamia nuts for the staff at AIS Cancer Center. MRI on 12/09 Biopsy on 12/23 Then MRI guided IMRT prolly 2023 Up and dancing in the chemo bay to this: https://youtu.be
Fifteen Taxoteres in 2015 Six more in 2020 18th Cabazitazel right now Brought a lil Chandon to celebrate Also Chocolate covered Macadamia nuts for the staff at AIS Cancer Center. MRI on 12/09 Biopsy on 12/23 Then MRI guided IMRT prolly 2023 Up and dancing in the chemo bay to this: https://youtu.be
dockam
in
Advanced Prostate Cancer
2 years ago
New standard on IMRT number of sessions?
My younger brother is currently undergoing IMRT sessions at 2Gy per session. Can anyone here show a clinical study report that shows the efficacy of less sessions? He was told that the new IMRT machine they are using only needed 28 sessions. I can understand it if it was hypofractionated, but he was
My younger brother is currently undergoing IMRT sessions at 2Gy per session. Can anyone here show a clinical study report that shows the efficacy of less sessions? He was told that the new IMRT machine they are using only needed 28 sessions. I can understand it if it was hypofractionated, but he was
Cmdrdata
in
Advanced Prostate Cancer
2 years ago
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