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still confused!
Except for this overwhelming tiredness, feeling unwell most of the time and joint
pain
, which could be
arthritis
but I don’t know. My latest rheumatologist letter stated that at 3mg (which should be next week) I should request another synacthan test.
Except for this overwhelming tiredness, feeling unwell most of the time and joint
pain
, which could be
arthritis
but I don’t know. My latest rheumatologist letter stated that at 3mg (which should be next week) I should request another synacthan test.
AnniesRyder5
in
PMRGCAuk
11 months ago
Itching with RLS
I am now on 1500mg of Gabapentin but not seeing much relief. At my next MD appointment I will be asking for an iron infusion as my iron levels are just barely at 100. The biggest problem I still have is the itching that I get all over my body with it most active towards evening. Analgesic creams have
I am now on 1500mg of Gabapentin but not seeing much relief. At my next MD appointment I will be asking for an iron infusion as my iron levels are just barely at 100. The biggest problem I still have is the itching that I get all over my body with it most active towards evening. Analgesic creams have
jinolke
in
Restless Legs Syndrome
1 year ago
Sudden severe back pain
I am seeing a neuro physio. I have explained that I am experiencing an increase in body pain over last eighteen months. She has given me exercises. On Thursday, I experienced sudden severe back pain, so severe that I couldn't walk. I was crying out when I moved. I have no recollection of injuring myself
I am seeing a neuro physio. I have explained that I am experiencing an increase in body pain over last eighteen months. She has given me exercises. On Thursday, I experienced sudden severe back pain, so severe that I couldn't walk. I was crying out when I moved. I have no recollection of injuring myself
deborah27
in
Headway
1 year ago
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22 going on 90
Hi, this is very random but I’ve been suffering from leg pain and weakness for a couple days now. My work involves standing all day and I’m usually exhausted every day but recently the last few days my legs have been killing. I’ve tried different pain killers and they only provide very small relief
Hi, this is very random but I’ve been suffering from leg pain and weakness for a couple days now. My work involves standing all day and I’m usually exhausted every day but recently the last few days my legs have been killing. I’ve tried different pain killers and they only provide very small relief
sparkle557
in
Pain Concern
2 years ago
B96 Trial and will I get there?
hello everyone I was diagnosed 3C HGSOC in Nov 2021. After 6 rounds Carbo:taxol and debulking surgery I was NED in June 2022. By end Oct I had recurred only 4 months later, Niraparib not doing its job. I’m platinum resistant, BRCA neg. HRD =30 I was advised to wait to get onto a treatment plan and
hello everyone I was diagnosed 3C HGSOC in Nov 2021. After 6 rounds Carbo:taxol and debulking surgery I was NED in June 2022. By end Oct I had recurred only 4 months later, Niraparib not doing its job. I’m platinum resistant, BRCA neg. HRD =30 I was advised to wait to get onto a treatment plan and
Narna1
in
My Ovacome
1 year ago
sciatica
Hi I suffer from arthritis but for the last 4 weeks I've been unable to stand for more than 4 mins at a time before the pain in my leg is so excruciatingly painful that I have to lie down with my legs up. I have diagnosed this as sciatica and when I spoke to my doctor she agrees with me but as I have
Hi I suffer from arthritis but for the last 4 weeks I've been unable to stand for more than 4 mins at a time before the pain in my leg is so excruciatingly painful that I have to lie down with my legs up. I have diagnosed this as sciatica and when I spoke to my doctor she agrees with me but as I have
Cutoff
in
Arthritis Action
2 years ago
HIP REPLACEMENT SURGERY
Hello, Am booked for a hip replacement operation on 1st February. I had 2 knee replacement operations in 2017 and 2018. Although a hip replacement is supposed to be somewhat less painful and easier to recover from, I am dreading it for the simple reasons I have severe rheumatoid arthritis - so stopping
Hello, Am booked for a hip replacement operation on 1st February. I had 2 knee replacement operations in 2017 and 2018. Although a hip replacement is supposed to be somewhat less painful and easier to recover from, I am dreading it for the simple reasons I have severe rheumatoid arthritis - so stopping
JGBH
in
NRAS
1 year ago
Neck & Head Pain - MSA-C
Hi everyone. My Sister has MSA-C and her illness has progressed rapidly over the past few weeks and months. She is experiencing severe neck pain and headaches. Her neurological doctor has given her botox in her neck which has helped slightly but her headache does not seem to go away. I was wondering
Hi everyone. My Sister has MSA-C and her illness has progressed rapidly over the past few weeks and months. She is experiencing severe neck pain and headaches. Her neurological doctor has given her botox in her neck which has helped slightly but her headache does not seem to go away. I was wondering
HOL69
in
Multiple System Atrophy Trust
1 year ago
rheumatoid arthritis question
how do they test to know if the medication is working or if the disease has gone into remission or getting worse, is the only way MRI…thanks
how do they test to know if the medication is working or if the disease has gone into remission or getting worse, is the only way MRI…thanks
remission
in
NRAS
2 years ago
Migraines & Triptans
I am a 70 year old female.from the East Midlands. Had childhood migraine, but , wrongly diagnosed with petite mal epilepsy, and prescribed phenobarbitone. Late teens early adult hood, not too bad, started nursing, weaned myself of medication. 2 chronic migraines per month. Analgesics useless, dark room
I am a 70 year old female.from the East Midlands. Had childhood migraine, but , wrongly diagnosed with petite mal epilepsy, and prescribed phenobarbitone. Late teens early adult hood, not too bad, started nursing, weaned myself of medication. 2 chronic migraines per month. Analgesics useless, dark room
Pippa-Dippa-Doo23
in
Migraine Support
1 year ago
FORESTIER’S DISEASE / DISH
hi I’m just wondering if anyone has been diagnosed with this condition it is a type of arthritis of the tendons and ligaments.
hi I’m just wondering if anyone has been diagnosed with this condition it is a type of arthritis of the tendons and ligaments.
Gwelos
in
PBC Foundation
2 years ago
Back, Shoulder, Knee & Hand Joint Pain.
Hi, I had an X-Ray on both of my hands last April which confirmed I had Osteoarthritis in all of the joints in both of my hands. I have had shoulder pain in both of my shoulders for many years as my job is working on a computer. I started to have lower back pain in 2020 and always had pain in one knee
Hi, I had an X-Ray on both of my hands last April which confirmed I had Osteoarthritis in all of the joints in both of my hands. I have had shoulder pain in both of my shoulders for many years as my job is working on a computer. I started to have lower back pain in 2020 and always had pain in one knee
Only45
in
Osteoarthritis Action
1 year ago
Cauda Equina Information
Hi I am writing to enquire if anyone can provide advice to my daughter who was recently diagnosed with Cauda Equina and is suffering excruciating pain in her tailbone. She has tried a variety of neuropathic painkillers but nothing has touched the pain so far. She also suffers from fecal impaction- partially
Hi I am writing to enquire if anyone can provide advice to my daughter who was recently diagnosed with Cauda Equina and is suffering excruciating pain in her tailbone. She has tried a variety of neuropathic painkillers but nothing has touched the pain so far. She also suffers from fecal impaction- partially
Mymysonlyone
in
Restless Legs Syndrome
1 year ago
painkillers
I have written about the problems precooked are encountering with pain meds. That was a while ago but I think it does need another piece. I’m RFHunt1 on Twitter- anyone who wants to be involved - get in touch there. It’s something I’ve experienced with my new GP who freaked out re: MST and despite an
I have written about the problems precooked are encountering with pain meds. That was a while ago but I think it does need another piece. I’m RFHunt1 on Twitter- anyone who wants to be involved - get in touch there. It’s something I’ve experienced with my new GP who freaked out re: MST and despite an
MSTKing
in
Pain Concern
1 year ago
shoulder pain PMR or costocondritis?
I recently ranted about having to jump the queue to get a suprascapular nerve block (avoiding a 12 month waiting list ) rather than reverse shoulder surgery which is a massive procedure in comparison . I’m scheduled to go on Monday costing £5k so far which is annoying in itself but Crohn’s and reflux
I recently ranted about having to jump the queue to get a suprascapular nerve block (avoiding a 12 month waiting list ) rather than reverse shoulder surgery which is a massive procedure in comparison . I’m scheduled to go on Monday costing £5k so far which is annoying in itself but Crohn’s and reflux
AnniesRyder5
in
PMRGCAuk
1 year ago
Legs pain 😞
Hi everyone, Tuesday I had one of the worst day in my life, I had legs pain from hips down, I felt my legs are heavy and 1000 needles pricking my skin and burning inside .. I am back an forward to the Gp but is no action taken and I have the feeling that is not believing me.. I am so disappointed
Hi everyone, Tuesday I had one of the worst day in my life, I had legs pain from hips down, I felt my legs are heavy and 1000 needles pricking my skin and burning inside .. I am back an forward to the Gp but is no action taken and I have the feeling that is not believing me.. I am so disappointed
Alice2004
in
Fibromyalgia Action UK
1 year ago
Update & advice needed.
Hi all it's been over 3 months since I've been here. Hope you are all doing well. Since I was last here I have had a camera done with renal clinic they found a hernia that moves from my esophagus into my stomach I've been very unwell with acid backing into my lungs however am working forward on improving
Hi all it's been over 3 months since I've been here. Hope you are all doing well. Since I was last here I have had a camera done with renal clinic they found a hernia that moves from my esophagus into my stomach I've been very unwell with acid backing into my lungs however am working forward on improving
Iamyumyum
in
Endometriosis UK
1 year ago
Is there anything I can take to lower antibodies
hi everyone, is there a way that I can lower my antibodies? Got my results back for kidney doctor (nephrologist) , all my bloods came back better GFR of 85 (so she was happy with that), and scan was good, but she said my antibodies were high which I knew eBay from my thyroid l. So she said she
hi everyone, is there a way that I can lower my antibodies? Got my results back for kidney doctor (nephrologist) , all my bloods came back better GFR of 85 (so she was happy with that), and scan was good, but she said my antibodies were high which I knew eBay from my thyroid l. So she said she
Thyroid36
in
Thyroid UK
1 year ago
Constipation
HiHave been constipated slightly the last couple days due to painkillers because of a migraine I had. Anyway, needed the toilet this morning, couldn't go properly, sat there waiting because I knew I needed to go, then the pains came, omg, so with each pain I did some, then, the pains got worse, I
HiHave been constipated slightly the last couple days due to painkillers because of a migraine I had. Anyway, needed the toilet this morning, couldn't go properly, sat there waiting because I knew I needed to go, then the pains came, omg, so with each pain I did some, then, the pains got worse, I
Bluestones1
in
IBS Network
1 year ago
Sciatica anyone suffer from it
I recently got sciatica, and I've got to say, the pain is absolutely horrendous, it goes from my bum all the way down to my right foot, sometimes it's intermittent, and sometimes their is no letup. I went to see an osteopath on Tuesday, who said it can normally last up to 6 weeks, but at £55 a week could
I recently got sciatica, and I've got to say, the pain is absolutely horrendous, it goes from my bum all the way down to my right foot, sometimes it's intermittent, and sometimes their is no letup. I went to see an osteopath on Tuesday, who said it can normally last up to 6 weeks, but at £55 a week could
TG58
in
Lung Conditions Community Forum
1 year ago
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