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Charity request for help: GCA patients in England
Dear members with GCA, as you may be aware, NICE and NHS England don't currently allow repeat treatment with tocilizumab for GCA patients who relapse. This means that if you live in England and you've had a year's treatment with tocilizumab, you won't be prescribed it again. However, a recent study
Dear members with GCA, as you may be aware, NICE and NHS England don't currently allow repeat treatment with tocilizumab for GCA patients who relapse. This means that if you live in England and you've had a year's treatment with tocilizumab, you won't be prescribed it again. However, a recent study
Fran_Benson
Partner
in
PMRGCAuk
5 months ago
Is inflammatory arthritis affecting your daily life?
Researchers led by Dr Sam Norton at King's College London would like to invite you to take part in research exploring the impact of inflammatory arthritis on daily life. People with inflammatory arthritis (such as rheumatoid arthritis, psoriatic arthritis, and spondylarthritis) typically experience
Researchers led by Dr Sam Norton at King's College London would like to invite you to take part in research exploring the impact of inflammatory arthritis on daily life. People with inflammatory arthritis (such as rheumatoid arthritis, psoriatic arthritis, and spondylarthritis) typically experience
Aribah-NRAS
NRAS
in
NRAS
2 months ago
Methotrexate
Been on methotrexate 15mg for 16 wks have psoriatic arthritis, rheumatoid arthritis helps my nails n skin but my joint feel worse now was out on another 5 mg from last Monday fell dreadfully n breathless n more pain n my feet and feel my blood vessels all tight n pulling any body else have this
Been on methotrexate 15mg for 16 wks have psoriatic arthritis, rheumatoid arthritis helps my nails n skin but my joint feel worse now was out on another 5 mg from last Monday fell dreadfully n breathless n more pain n my feet and feel my blood vessels all tight n pulling any body else have this
Teddie111
in
NRAS
3 months ago
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Tai Chi
just signed up for free eight week course starting in October run by Versus Arthritis for people with RA It’s to help balance and muscle strength. I’ll let you know how it is when I start on 7th October. It’s s social group also with tea and biscuits after 😋
just signed up for free eight week course starting in October run by Versus Arthritis for people with RA It’s to help balance and muscle strength. I’ll let you know how it is when I start on 7th October. It’s s social group also with tea and biscuits after 😋
Pulfs
in
NRAS
8 months ago
PMR or PsA or both
My Rheumatologist left the practice and I meet with a new one last week. He says that he is not sure I have PsA but maybe only PMR. Wants me to stop methotrexate immediately and try reducing prednisone my 1 mg a month. Currently are 12.0 mg. Happy about this nut scared too. If he is wrong, when and
My Rheumatologist left the practice and I meet with a new one last week. He says that he is not sure I have PsA but maybe only PMR. Wants me to stop methotrexate immediately and try reducing prednisone my 1 mg a month. Currently are 12.0 mg. Happy about this nut scared too. If he is wrong, when and
Seal49
in
Beyond Psoriasis
3 months ago
Fibromyalgia and Osteoarthritis
Good morning, hope you are all as well as can be. Can anyone tell me if they suffer from both fibromyalgia and osteoarthritis? I was diagnosed fibromyalgia early this year but have now been referred back to Rheumatology due to swelling and ongoing stiffness in my joints. I also suffer with groin pain
Good morning, hope you are all as well as can be. Can anyone tell me if they suffer from both fibromyalgia and osteoarthritis? I was diagnosed fibromyalgia early this year but have now been referred back to Rheumatology due to swelling and ongoing stiffness in my joints. I also suffer with groin pain
Marieg1270
in
Fibromyalgia Action UK
8 months ago
Jean Jackson
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
jeanjack
in
Lung Conditions Community Forum
3 months ago
Cbd oil/cream
Has anyone found cbd oil or cream to be helpful in easing SI joint arthritis pain?
Has anyone found cbd oil or cream to be helpful in easing SI joint arthritis pain?
Jeaniem130
in
Pain Concern
8 months ago
Myositis - been wondering for a while if I’m experiencing symptoms of this
Hello everyone I’m having a PJ day today. Had a UTI come on yesterday that I’m trying to shake off myself. Plenty of experience with that over the years. Plus I woke with a headache, Very lethargic. I have been wondering for sometime if I’m having symptoms that could be Myositis. I’ve struggled with
Hello everyone I’m having a PJ day today. Had a UTI come on yesterday that I’m trying to shake off myself. Plenty of experience with that over the years. Plus I woke with a headache, Very lethargic. I have been wondering for sometime if I’m having symptoms that could be Myositis. I’ve struggled with
Wendy39
in
LUPUS UK
8 months ago
Mextrate
Hi, I am on max dose for sulfasalazine, but still having flare ups and very stiff painful arthritis . My consultant has suggested mextrate along side to try . If in a couple of months has not got better. Can anyone let me know if it helps .
Hi, I am on max dose for sulfasalazine, but still having flare ups and very stiff painful arthritis . My consultant has suggested mextrate along side to try . If in a couple of months has not got better. Can anyone let me know if it helps .
1whitestar
in
Fibromyalgia Action UK
8 months ago
Tocilizumab
I have had a BCC removed from the side of my nose. One of my rheumatology nurses told me that there is an incidence of Tocilizumab causing cancerous growths. It did pop up out of nowhere and I was shocked when the dermatologist told me that it was a slow growing cancer. Has anyone heard of this link?
I have had a BCC removed from the side of my nose. One of my rheumatology nurses told me that there is an incidence of Tocilizumab causing cancerous growths. It did pop up out of nowhere and I was shocked when the dermatologist told me that it was a slow growing cancer. Has anyone heard of this link?
Noni71
in
PMRGCAuk
5 months ago
NRAS BBC Radio 4 Appeal - Kirsty Young
Dear All, If you are not aware Kirsty Young did a Radio 4 Appeal for NRAS on Sunday. Please click on the link to listen. https://www.bbc.co.uk/sounds/play/m001qdfr To Give: - UK Freephone 0800 404 8144 -You can donate online at bbc.co.uk/appeal/radio4 - Freepost BBC Radio 4 Appeal. (That’s the
Dear All, If you are not aware Kirsty Young did a Radio 4 Appeal for NRAS on Sunday. Please click on the link to listen. https://www.bbc.co.uk/sounds/play/m001qdfr To Give: - UK Freephone 0800 404 8144 -You can donate online at bbc.co.uk/appeal/radio4 - Freepost BBC Radio 4 Appeal. (That’s the
Hidden
in
NRAS
8 months ago
RA in jaw
hi,has anyone experienced stiffness in their jaw when you open and close your mouth that a bit painful? I have rheumatoid arthritis and I think it keeps going into my jaw!!has anyone got any advice? Thanks!!👍
hi,has anyone experienced stiffness in their jaw when you open and close your mouth that a bit painful? I have rheumatoid arthritis and I think it keeps going into my jaw!!has anyone got any advice? Thanks!!👍
Mybirthday1975
in
NRAS
4 months ago
chryotherapy
My local spa offers cryotherapy for arthritis. Has anyone tried this for RA and had any effect? I tried having a full body massage to help ease my aches but ended up hurting all over! A cold shower helps but I can’t spend all day in there. Does anyone have some good tips please ?
My local spa offers cryotherapy for arthritis. Has anyone tried this for RA and had any effect? I tried having a full body massage to help ease my aches but ended up hurting all over! A cold shower helps but I can’t spend all day in there. Does anyone have some good tips please ?
Spin1959
in
NRAS
8 months ago
Good morning. Could anyone help? Thank you
Posting on behalf of 65_women has anyone had an operation for their elbow with rheumatoid arthritis. Did it help or not?
Posting on behalf of 65_women has anyone had an operation for their elbow with rheumatoid arthritis. Did it help or not?
Helen-NRAS
Moderator
in
NRAS
4 months ago
NRAS BBC Radio 4 Appeal - This Sunday
NRAS is delighted to announce that we have been selected to take part in the BBC Radio 4 Appeal this month. Tune in to hear our charity appeal with Rheumatoid Arthritis (RA) advocate, Kirsty Young, on Sunday 10th September at 07:54 and 21:25 and on Thursday 14th Sept at 15:27. https://nras.org.uk/bbcappeal
NRAS is delighted to announce that we have been selected to take part in the BBC Radio 4 Appeal this month. Tune in to hear our charity appeal with Rheumatoid Arthritis (RA) advocate, Kirsty Young, on Sunday 10th September at 07:54 and 21:25 and on Thursday 14th Sept at 15:27. https://nras.org.uk/bbcappeal
Anita-NRAS
Partner
in
NRAS
8 months ago
Calcinosis
I was diagnosed with scleroderma in 1998. I had been diagnosed with Raynauds before that and Rheumatoid Arthritis. Lucky me! My hands give me the most bother nowadays. Lots of pain and loss of dexterity. Does anyone have any tips to soften Calcinosis lumps? I have one on the inside of each thumb
I was diagnosed with scleroderma in 1998. I had been diagnosed with Raynauds before that and Rheumatoid Arthritis. Lucky me! My hands give me the most bother nowadays. Lots of pain and loss of dexterity. Does anyone have any tips to soften Calcinosis lumps? I have one on the inside of each thumb
SheenaC
in
Scleroderma & Raynaud's UK (SRUK)
8 months ago
worse discomfort on edoxaban
Hi , I'm new to forum and AF, I'm about 3 weeks into my first box og Edoxaban and I also have been wondering whether its causing my discomfort to be worse. I've had both osteoarthritis and inflammatory arthritis for more than 10 years and am feeling more uncomfortable, paticularly at night which
Hi , I'm new to forum and AF, I'm about 3 weeks into my first box og Edoxaban and I also have been wondering whether its causing my discomfort to be worse. I've had both osteoarthritis and inflammatory arthritis for more than 10 years and am feeling more uncomfortable, paticularly at night which
femalegannet
in
AF Association
8 months ago
W4 Run1
So Week 4 started. I am so proud of myself for getting this far, I have managed 2x5mins and 2x3min runs.I never thought I would by about to run again when I was told I had osteoarthritis and needed a new hip and here I am running. Never give up.
So Week 4 started. I am so proud of myself for getting this far, I have managed 2x5mins and 2x3min runs.I never thought I would by about to run again when I was told I had osteoarthritis and needed a new hip and here I am running. Never give up.
GM11
in
Couch to 5K
8 months ago
advice re knee pain.
hi, I’m a 58yr old, who suffers from an inflammatory arthritis, called ankylosing spondylitis, and mainly affects the spine but also peripheral joints. 10 weeks ago, I was on holiday in Devon, and suddenly noticed my left knee was buckling. A week later it gave way in the shower and I fell and gashed
hi, I’m a 58yr old, who suffers from an inflammatory arthritis, called ankylosing spondylitis, and mainly affects the spine but also peripheral joints. 10 weeks ago, I was on holiday in Devon, and suddenly noticed my left knee was buckling. A week later it gave way in the shower and I fell and gashed
Runrig01
in
Arthritis Action
8 months ago
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