Thank you everybody

[skiingfiend]

Thank you everybody for bearing with me as I poured out my frustrations and anxieties with my current treatment plan over my last several posts, and for all your comments and advice.

I called my MO's office this morning and left a voice mail detailing my declining status and the fact that I was done with eligard and wanted to be reinstated on firmagon. So a nurse got back to me at 11:00 am and I'm scheduled to go get my shot at 1:00 pm.

I hope this works 😰

This is why I don't want to be my own MO. Now I am anxious about what happens if it doesn't work after I put my foot down demanding it.

--------------

I did get some good news.

Last week I got a bunch of xrays and it showed my existing lesions had shrunk and there was no evidence of new lesions. Obviously take that with a grain of salt since xray is not very sensitive compared to CT or MRI.

[JohnInTheMiddle]

Fight, Fight, Fight.

Remind me again, you did the Docetaxel, now you're switching ADT's to go back to the GnRH antagonist Firmagon (which I'm on). I read your bio but I can't figure out what second generation hormone thing you're on. (Would make it a triplet.)

I call this whole thing a "tightrope". I only came up with this in the past few months. I'm coming up with my 2-year diagnosis anniversary. When we were young we have lots of reserves and can stay up all night. Now I find that you have to be careful and if you fall off the tightrope then it's a cascade of bad things. Some of this we can't control. I'm trying to exercise but I fell off the tightrope several times and over-trained and my blood sugar went up a bit. And behind the scenes that's feeding the PCa. Fatigue is my fight now. Oh and this Friday I have my first PSA test in 3 months. More anxious than usual.

Big thing for me terms of what I can do now is seeing if I can get on Estradiol transdermal patches. And trying to maintain my exercise program. Also I think I'll add K2 pills as well as my Jarlsberg cheese which have lots of K2. I think you take K2 for the bones?

Big success with your ADT switch.

[skiingfiend in reply to JohnInTheMiddle]

Nope, I'm just on hormonal - firmagon + appalutamide.

Triplet was not offered to me or even talked about even though I was a prime candidate: de novo high volume mHSPC. This is another thing that keeps gnawing at me sustaining a constant low level of pissed off.

[JohnInTheMiddle in reply to skiingfiend]

There's a lot of mystery in how cancer therapies are decided it seems. I wonder if there's any debate on the question of transparency.

[cancerfox in reply to JohnInTheMiddle]

No mystery, there are a lot of options for treating PC and which one to use is mostly a matter of opinion. It's just one big trial and error approach. 🦊

[JohnInTheMiddle in reply to cancerfox]

That's not a comforting thought 😂

[cancerfox in reply to JohnInTheMiddle]

No, but it's the reality of the situation. Medicine isn't an exact science like physics or chemistry, it's more like economics, where there are almost as many economic theories as there are economists. When humans are involved things get complicated. 😀 🦊

[Proflac in reply to JohnInTheMiddle]

The bio mentions apalutamide - which would make sense.

[j-o-h-n]

Hang in there.......... take a deep breath... followed by another one and another one and another one.....etc. and that should keep you on the mowing side of the lawn......

Regards from your competitor....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 01/17/2024 7:15 PM EST

[skiingfiend in reply to j-o-h-n]

Thanks buddy.

I don't consider you my competitor, I consider you one of my trash talking buddies.

[j-o-h-n]

I'm honored.......

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 01/17/2024 7:52 PM EST