Search
Search
About
Log in
Join
Experiences with
Appendix cancer
Posts
Communities
30,383 public posts
Filter results
Your thoughts on next course of action
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
First, I'd like to thank the many good folks that contribute this forum. Your inputs have been a life send to me over the past several years, especially Tall Allen who recommended UW Medicine where my MO and RO are located. They have been fantastic to work with. The short story - Diagnosed in 2018.
GBMV
in
Advanced Prostate Cancer
8 months ago
PLUVICTO
I finished 6 treatments of Pluvicto in May 2023 with negligible PSA readings. In August of 23 my PSA jumped to 2.3, my September 14 PSA is 16.8. It seems like Pluvicto is losing it's grip. I have an appointment with my oncologist on September 25. I am sure he will order a PSMA scan. I am curious as to
I finished 6 treatments of Pluvicto in May 2023 with negligible PSA readings. In August of 23 my PSA jumped to 2.3, my September 14 PSA is 16.8. It seems like Pluvicto is losing it's grip. I have an appointment with my oncologist on September 25. I am sure he will order a PSMA scan. I am curious as to
Jrb12
in
Advanced Prostate Cancer
8 months ago
Gleason 10 Stage 4 Metastatic Responding Well to Treatment
At this time I feel well with minimal side effects. Feel free to ask questions. Here's a time line of my experience this summer: Investigative Procedures: 22-Mar - PSA test: 26.5 ng/mL 18-Apr - Repeat PSA test: 25.0 ng/mL 1-May - MRI scan of pelvic region for biopsy planning 19-Mar - Transperineal
At this time I feel well with minimal side effects. Feel free to ask questions. Here's a time line of my experience this summer: Investigative Procedures: 22-Mar - PSA test: 26.5 ng/mL 18-Apr - Repeat PSA test: 25.0 ng/mL 1-May - MRI scan of pelvic region for biopsy planning 19-Mar - Transperineal
Brad70
in
Advanced Prostate Cancer
8 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Update on Prostate Cancer Vaccines that I follow... another year is gone...
Greetings FPC forum, It has been another year... and I would love to have better news... there is a new vaccine candidate to monitor, but the reality is that the system takes time... The system needs a revision in my opinion, but I digress... As I reviewed the last time, the vaccine trial for RhoVac's
Greetings FPC forum, It has been another year... and I would love to have better news... there is a new vaccine candidate to monitor, but the reality is that the system takes time... The system needs a revision in my opinion, but I digress... As I reviewed the last time, the vaccine trial for RhoVac's
NPfisherman
in
Fight Prostate Cancer
7 months ago
Capecitabine (Xeloda)
I have for the past 2 and a half years been taking Ibrance and letrozole. Unfortunately my last two scans have shown that they are no longer working and the cancer cells have started to grow. Tomorrow I start taking Capecitabine ( Xeloda) a chemo drug. 3 x 150 twice a day. 2 weeks on 1 week off. I
I have for the past 2 and a half years been taking Ibrance and letrozole. Unfortunately my last two scans have shown that they are no longer working and the cancer cells have started to grow. Tomorrow I start taking Capecitabine ( Xeloda) a chemo drug. 3 x 150 twice a day. 2 weeks on 1 week off. I
LorryLou
in
SHARE Metastatic Breast Cancer
8 months ago
PSA rising after my 4th chemo
I am quite mad (not with anyone in particular). I had a steady decrease in PSA during my first 3 round of docetaxel. It was 15 before starting, 3 after the first infusion, 1.5 after the second, 1.01 after the third. Each time it was measure 3 weeks from the infusion (on the day before the next infusion
I am quite mad (not with anyone in particular). I had a steady decrease in PSA during my first 3 round of docetaxel. It was 15 before starting, 3 after the first infusion, 1.5 after the second, 1.01 after the third. Each time it was measure 3 weeks from the infusion (on the day before the next infusion
Maxone73
in
Advanced Prostate Cancer
6 months ago
Polyneuropathy.
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
I treat my polyneuropathy with B6 and B12. GracePV shared their experience with B6, B12 nd B1. This inspired me to revisit my self treatment of my polyneuropathy. I came across information about Benfotiamine which is similar to Thiamine Hydrochloride and Thiamine Nitrate. There are indications
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
metistatic castrate sensetive bone Marrow prostate cancer
had bone marrow biospsy and the mCSPC has spread bone marrow. They are recommending thaat I stay in hospital replace Abiraterone with Xtnandi. Thoughts? 2nd question my red blood 2,38 and platelets 23. have plummeted, they want me in hospital. How can I manage the red blood and platelets outside the
had bone marrow biospsy and the mCSPC has spread bone marrow. They are recommending thaat I stay in hospital replace Abiraterone with Xtnandi. Thoughts? 2nd question my red blood 2,38 and platelets 23. have plummeted, they want me in hospital. How can I manage the red blood and platelets outside the
TMcgee
in
Advanced Prostate Cancer
6 months ago
For ILC or Lobular ladies
This video was released within the last 10 days from by LBCA (Lobular Breast Cancer Alliance). Highlights of 2023 International ILC Symposium. The video is about 2 hours long with a lot of info. I want to listen again because of all the info. A couple things I initially took away all or almost all
This video was released within the last 10 days from by LBCA (Lobular Breast Cancer Alliance). Highlights of 2023 International ILC Symposium. The video is about 2 hours long with a lot of info. I want to listen again because of all the info. A couple things I initially took away all or almost all
ba5083
in
SHARE Metastatic Breast Cancer
6 months ago
'Headspin'
I'm sure we have all had a 'Spinning Head' at some time or other, especially since being diagnosed with CLL. Many of us soon realise that CLL is soon joined by a host of other Diagnosis and Prognosis, which can overwhelm us at times,, thus the perpetual 'Headspin'. After five years of W&W, I was told
I'm sure we have all had a 'Spinning Head' at some time or other, especially since being diagnosed with CLL. Many of us soon realise that CLL is soon joined by a host of other Diagnosis and Prognosis, which can overwhelm us at times,, thus the perpetual 'Headspin'. After five years of W&W, I was told
Vindicatrix
in
CLL Support
6 months ago
Doctor suggesting HIFU
Hello All, I was diagnosed in Oct. 2017 with Gleason score of 6 and PSA 5.8. PSA was gradually going up and up. Had blood work done June 6th 2023 for a shoulder surgery and PSA was 15.3 had a PSA test done on July 24th 2023 for fusion biopsy on July 31st 2023 and it went up to 18.3 (1 month jumped
Hello All, I was diagnosed in Oct. 2017 with Gleason score of 6 and PSA 5.8. PSA was gradually going up and up. Had blood work done June 6th 2023 for a shoulder surgery and PSA was 15.3 had a PSA test done on July 24th 2023 for fusion biopsy on July 31st 2023 and it went up to 18.3 (1 month jumped
jbsnv
in
Prostate Cancer Network
8 months ago
Is there anyone on this forum on Aromatase Inhibitors?
I am taking AI (letrozole) as adjuvant therapy for last six years . Would like to know protocol for AI, duration and bisphosphonate injections. Thankyou.
I am taking AI (letrozole) as adjuvant therapy for last six years . Would like to know protocol for AI, duration and bisphosphonate injections. Thankyou.
gspsad
in
Breast Cancer India
6 months ago
should I stop Zytiga early?
hello, i’m new here and encouraged by all the experience and caring nature of the conversations. Would love if anyone has wisdom around a decision to stop Zytiga early? I am 56 and was diagnosed 2/21 with Gleason 9 no lymph nodes invasion, but some vesicle invasion and perhaps a little outside margins
hello, i’m new here and encouraged by all the experience and caring nature of the conversations. Would love if anyone has wisdom around a decision to stop Zytiga early? I am 56 and was diagnosed 2/21 with Gleason 9 no lymph nodes invasion, but some vesicle invasion and perhaps a little outside margins
PaulJR
in
Advanced Prostate Cancer
8 months ago
Lu-177
Hi Everyone , I don’t really come on here much to write or ask questions but I read posts everyday ! My Husband John age 58 was diagnosed in July 2021 Dx PSA 122 Gleason score 9 unfortunately it was already out of his prostate and in surrounding areas they put him straight on Erleada + zoladex + xgeva
Hi Everyone , I don’t really come on here much to write or ask questions but I read posts everyday ! My Husband John age 58 was diagnosed in July 2021 Dx PSA 122 Gleason score 9 unfortunately it was already out of his prostate and in surrounding areas they put him straight on Erleada + zoladex + xgeva
palser1
in
Advanced Prostate Cancer
8 months ago
Starting on Verzenio
Hello all my fellow thrivers! After taking Piqray + monthly shots of Fulvestrant and Zoladex for more than a year, my latest pet scan revealed progression and found new mets in liver, lymph nodes and bone. Therefore, my oncologist is starting me on Verzenio 100mg next week while keeping my Fulvestrant
Hello all my fellow thrivers! After taking Piqray + monthly shots of Fulvestrant and Zoladex for more than a year, my latest pet scan revealed progression and found new mets in liver, lymph nodes and bone. Therefore, my oncologist is starting me on Verzenio 100mg next week while keeping my Fulvestrant
hopeoflife
in
SHARE Metastatic Breast Cancer
6 months ago
Paclitaxel and hair loss
hi everyone, I have just had my 3rd paclitaxel today, I am on weekly doses via IV and have no signs of my hair falling out? Not even a slight bit? I’m concerned that it means it’s not working, has this happened to anyone else or does the hair loss come a little later down the line?
hi everyone, I have just had my 3rd paclitaxel today, I am on weekly doses via IV and have no signs of my hair falling out? Not even a slight bit? I’m concerned that it means it’s not working, has this happened to anyone else or does the hair loss come a little later down the line?
RachH20
in
SHARE Metastatic Breast Cancer
6 months ago
My Cancer and other health issues update.
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
Ern007
in
Lung Conditions Community Forum
6 months ago
Autophagy could be bad for those who have cancer?
I was already aware for a few years that autophagy, which is triggered by intermittent fasting and long fasts, is very useful to prevent cancer as it is recycles old damaged proteins that could otherwise turn into cancer and also because it helps your body produce new cells and refreshes your immune
I was already aware for a few years that autophagy, which is triggered by intermittent fasting and long fasts, is very useful to prevent cancer as it is recycles old damaged proteins that could otherwise turn into cancer and also because it helps your body produce new cells and refreshes your immune
Mascouche
in
Advanced Prostate Cancer
6 months ago
why so much stool?
hello I’m posting to this forum once again as my Ibs symptoms continue to worsen. I don’t know if I’m constipated or have diarrhea but simply put, my colon is always filling up with mushy stool containing food fragments. I have 10 to 15 bowel movements every day but never get any feeling of relief
hello I’m posting to this forum once again as my Ibs symptoms continue to worsen. I don’t know if I’m constipated or have diarrhea but simply put, my colon is always filling up with mushy stool containing food fragments. I have 10 to 15 bowel movements every day but never get any feeling of relief
GKT1969
in
IBS Network
6 months ago
I have questions about Tamoxifen, aka Hormonal Therapy
Hello all, & blessed wishes during the Holiday Season. 🎄 I must admit I haven't been on here for a while, but I hope someone can give me some answers. I was diagnosed with Clear Cell Ovarian Cancer stage 4 in 2021. I have had 6 rounds of Chemo, & a total hysterectomy. I've been doing Avastin since
Hello all, & blessed wishes during the Holiday Season. 🎄 I must admit I haven't been on here for a while, but I hope someone can give me some answers. I was diagnosed with Clear Cell Ovarian Cancer stage 4 in 2021. I have had 6 rounds of Chemo, & a total hysterectomy. I've been doing Avastin since
gta03
in
SHARE Ovarian Cancer Support
6 months ago
1
...
98
99
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
12017 results
My Ovacome
3520 results
SHARE Metastatic Breast Cancer
2163 results
View top 10 communities
Sort by
Most Relevant
Newest