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No PA or B12 deficiency but I am still going to supplement with oral B12 - should i get any other tests before this to rule out for sure?
As part of my wider investigations, Ive been looking at possibility of PA but from most of my results, i dont think I have this. Tests done incl. Active B12, Folate, Intrinsic Factor, Methylmalonic Acid (urine). All acceptable results but B12 on the low side, so i think i might as well supplement. The
As part of my wider investigations, Ive been looking at possibility of PA but from most of my results, i dont think I have this. Tests done incl. Active B12, Folate, Intrinsic Factor, Methylmalonic Acid (urine). All acceptable results but B12 on the low side, so i think i might as well supplement. The
GoingthruTreacle
in
Pernicious Anaemia Society
6 years ago
Follow up from Dr Hughes appointment
Well I must say I had a very successful appointment yesterday with Rod Hughes. A long way to travel from Edinburgh but well worth it. Summarised my symptoms to date and he explained in comprehensible language where he thinks I am at and suggested a plan for me to hopefully move forward. He noted my regularly
Well I must say I had a very successful appointment yesterday with Rod Hughes. A long way to travel from Edinburgh but well worth it. Summarised my symptoms to date and he explained in comprehensible language where he thinks I am at and suggested a plan for me to hopefully move forward. He noted my regularly
Lochy
in
PMRGCAuk
6 years ago
Blood test results and some folate advice needed!
Hello! I've got some blood test results and I'm hoping you guys can make some suggestions on the direction I should be looking to go in now. I'm currently taking 100mcg and 75mcg Levothyroxine on alternate days. I take 20,000 D3 once a week, magnesium oil every night and for the last month have been
Hello! I've got some blood test results and I'm hoping you guys can make some suggestions on the direction I should be looking to go in now. I'm currently taking 100mcg and 75mcg Levothyroxine on alternate days. I take 20,000 D3 once a week, magnesium oil every night and for the last month have been
Sick-and-Tired
in
Thyroid UK
6 years ago
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Severe Calf Pain after loading B12
Hi I'm new here (posting) reading for months. Back in June I was tested for B12 due to extreme fatigue and tiredness. Results were as follows. B12 : 90 ng/L Folate: 3.6 ng/L Ferritin: 112 ng/L Intrinsic factor: negative I was put on loading doses of b12 injections and have had
Hi I'm new here (posting) reading for months. Back in June I was tested for B12 due to extreme fatigue and tiredness. Results were as follows. B12 : 90 ng/L Folate: 3.6 ng/L Ferritin: 112 ng/L Intrinsic factor: negative I was put on loading doses of b12 injections and have had
dda123
in
Pernicious Anaemia Society
6 years ago
Does low b12 mean I have Pernicious Anemia ?
Hi everyone, I visited my GP after suffering for along time with symptoms of constant Nausea , fatigue , swollen fingers and weight loss (10lb in 6 weeks) I had put all this down to IBS / Psoriasis but after a blood test was told my b12 was 154 even though I have a good diet and have taken b12 in
Hi everyone, I visited my GP after suffering for along time with symptoms of constant Nausea , fatigue , swollen fingers and weight loss (10lb in 6 weeks) I had put all this down to IBS / Psoriasis but after a blood test was told my b12 was 154 even though I have a good diet and have taken b12 in
Angelic82
in
Pernicious Anaemia Society
6 years ago
Lucentis injection but no bleed?
Hello! I received a Lucentis injection in August, but have held off on any additional injections because I was no longer bleeding and I am breastfeeding. I am in the process of weaning now, and my retina specialist has discussed getting another injection just for additional protection. Has anyone else
Hello! I received a Lucentis injection in August, but have held off on any additional injections because I was no longer bleeding and I am breastfeeding. I am in the process of weaning now, and my retina specialist has discussed getting another injection just for additional protection. Has anyone else
besottedblue
in
Macular Society
6 years ago
Advice on active B12 levels and symptoms please
Hello I’ve been suffering with many of the symptoms associated with anaemia for at least a year now (extreme tiredness, aches and pains, dizziness, nausea, tingling legs etc). I’ve recently found out that my active b12 levels are slightly low: 34.7 pmol/l (reference range 37.5 - 188) but I’m not sure
Hello I’ve been suffering with many of the symptoms associated with anaemia for at least a year now (extreme tiredness, aches and pains, dizziness, nausea, tingling legs etc). I’ve recently found out that my active b12 levels are slightly low: 34.7 pmol/l (reference range 37.5 - 188) but I’m not sure
Piperh
in
Pernicious Anaemia Society
6 years ago
Confused after conflicting tests, diagnoses, etc.?
I've posted on here a few other times and have honestly felt like the advice I've received here has been more helpful than many of my doctors' appointments! Quick summary: Went to a new GP in a new city in July with immense fatigue, joint pain, difficulty concentrating, etc. As I am a vegetarian, I
I've posted on here a few other times and have honestly felt like the advice I've received here has been more helpful than many of my doctors' appointments! Quick summary: Went to a new GP in a new city in July with immense fatigue, joint pain, difficulty concentrating, etc. As I am a vegetarian, I
hummingbird88
in
Pernicious Anaemia Society
6 years ago
IF high values
Hi. I have been diagnosed with pernicious anaemia in February 2018. I receive injection every 3 months, although i feel i need them monthly. Just tested my Intrinsic Factor and the results are 38.5 , and normal is <6 can't seem to find anything online about what these results, so if anyone knows anything
Hi. I have been diagnosed with pernicious anaemia in February 2018. I receive injection every 3 months, although i feel i need them monthly. Just tested my Intrinsic Factor and the results are 38.5 , and normal is <6 can't seem to find anything online about what these results, so if anyone knows anything
Gumball77
in
Pernicious Anaemia Society
6 years ago
Prednisolone
Hi Went back to GP as still having joint pain. My rheumatologist thought it was OA but when I went for ultrasound nothing was found. My GP has now put me on prednisolone 6 a day for 3 days to see if this helps. I'm still awaiting a diagnosis. My inflammatory markers were normal last time apart from the
Hi Went back to GP as still having joint pain. My rheumatologist thought it was OA but when I went for ultrasound nothing was found. My GP has now put me on prednisolone 6 a day for 3 days to see if this helps. I'm still awaiting a diagnosis. My inflammatory markers were normal last time apart from the
Nomoney2018
in
NRAS
6 years ago
PLEASE HELP WITH SUSPECTED B12 FUNCTIONAL DEFICIENCY
I have been very ill with all the signs of B12 deficiency and not getting any help from doctors as my B12 level is 1,100mg although prior to testing i had NEVER taken a B12 supplement, not even a multi vitamin. Four months ago I began taking large doses of sublingual B12, 5,000 mg tablets, 8 a day, and
I have been very ill with all the signs of B12 deficiency and not getting any help from doctors as my B12 level is 1,100mg although prior to testing i had NEVER taken a B12 supplement, not even a multi vitamin. Four months ago I began taking large doses of sublingual B12, 5,000 mg tablets, 8 a day, and
jarlethblue
in
Pernicious Anaemia Society
6 years ago
My doctor is listening!
hello everyone, you might remember that I've been suffering from serious digestive problems (probably due to my PA) with no improvement on probiotics or medication. I've also developed problems with shortness of breath, extreme fatigue and depression. I was convinced that my serum blood reading of 790
hello everyone, you might remember that I've been suffering from serious digestive problems (probably due to my PA) with no improvement on probiotics or medication. I've also developed problems with shortness of breath, extreme fatigue and depression. I was convinced that my serum blood reading of 790
expatkerry
in
Pernicious Anaemia Society
6 years ago
Tests after Biotin stopped
SlowDragon suggested I put up a post of my own, so here goes. I have been bugging my PCP for nearly two years about my lingering symptoms of hypothyroidism, despite being on 175 mcg / day of Synthroid. Specifically, going bald, fragile nails, cold intolerance, dry gritty eyes, difficulty losing weight
SlowDragon suggested I put up a post of my own, so here goes. I have been bugging my PCP for nearly two years about my lingering symptoms of hypothyroidism, despite being on 175 mcg / day of Synthroid. Specifically, going bald, fragile nails, cold intolerance, dry gritty eyes, difficulty losing weight
vocalEK
in
Thyroid UK
6 years ago
"Likely peripheral spondyloarthropathy"
Hi all - hope you're having one of the better days today. Just wondering if anyone else has been diagnosed with the above like me, according to the rheumatologist's clinical letters which he's been writing to GP/others for the past two years? I don't really understand what it actually means and googling
Hi all - hope you're having one of the better days today. Just wondering if anyone else has been diagnosed with the above like me, according to the rheumatologist's clinical letters which he's been writing to GP/others for the past two years? I don't really understand what it actually means and googling
nanapat61
in
NRAS
6 years ago
Congenital Deficiency of Intrinsic Factor and Pernicious Anemia
Hello!, New on this site. Is Pernicious Anemia and Congenital Deficiency of Intrinsic Factor the same illness? Thank you in advance for any information provided. Dona Gray
Hello!, New on this site. Is Pernicious Anemia and Congenital Deficiency of Intrinsic Factor the same illness? Thank you in advance for any information provided. Dona Gray
dgnvb21144
in
Pernicious Anaemia Society
6 years ago
Awaiting RA diagnosis
Is rheumatoid factor 30 bad? Also is pain constant or only when you have a flare? Can you have weeks months years without pain
Is rheumatoid factor 30 bad? Also is pain constant or only when you have a flare? Can you have weeks months years without pain
twinks1954
in
NRAS
6 years ago
Recent PA diagnosis, serum levels high from oral cyanocobalamin, symptoms persist
Hi folks, 47-year-old female writing from the US; so glad I found this forum. After 10+ years of trying to get help with what I now realize were B12 deficient symptoms (mainly neurological; brain fog, clumsy, fatigue, low energy, grouchiness, sleep problems, etc.), my GP ordered a B12 test. 7/23:
Hi folks, 47-year-old female writing from the US; so glad I found this forum. After 10+ years of trying to get help with what I now realize were B12 deficient symptoms (mainly neurological; brain fog, clumsy, fatigue, low energy, grouchiness, sleep problems, etc.), my GP ordered a B12 test. 7/23:
Greena51
in
Pernicious Anaemia Society
6 years ago
Pain without obvious inflammation..... confused
Im about 15 years past diagnosis, (I’m aged 49 now) but still don’t properly understand this disease..... at the moment I know my bloods are good (tested last week), only ESR is slightly raised above ‘normal’ at ‘10’. I’m on 20mg methotrexate plus hydroxychloroquine. But I am in so much pain in my
Im about 15 years past diagnosis, (I’m aged 49 now) but still don’t properly understand this disease..... at the moment I know my bloods are good (tested last week), only ESR is slightly raised above ‘normal’ at ‘10’. I’m on 20mg methotrexate plus hydroxychloroquine. But I am in so much pain in my
girli1111
in
NRAS
6 years ago
Antiphospholipid Syndrome: The Risk of Travel at High Altitudes
Antiphospholipid Syndrome: The Risk of Travel at High Altitudes August 16, 2018 • By Vaneet Kaur Sandhu, MD, & Kathleen Teves, MD Antiphospholipid syndrome (APS) is an autoimmune clotting disorder that may present catastrophically with multiple thromboses over a short period of time. In this article
Antiphospholipid Syndrome: The Risk of Travel at High Altitudes August 16, 2018 • By Vaneet Kaur Sandhu, MD, & Kathleen Teves, MD Antiphospholipid syndrome (APS) is an autoimmune clotting disorder that may present catastrophically with multiple thromboses over a short period of time. In this article
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
6 years ago
Hashimotos or Vitamin Deficiency, latest blood results, advice needed please.
I posted 3 months ago and got some very good advice from the community. I am due to see the Endo on Friday concerning the nodules in my thyroid which have grown larger and would like to be armed with as much information as possible before I go. A brief recap. I had a thorough check up whilst in Turkey
I posted 3 months ago and got some very good advice from the community. I am due to see the Endo on Friday concerning the nodules in my thyroid which have grown larger and would like to be armed with as much information as possible before I go. A brief recap. I had a thorough check up whilst in Turkey
Sue394
in
Thyroid UK
6 years ago
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