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Darolutimide as monotherapy
I know there has been a phase 2 trial (EORTC-GUCG 1532 trial) testing the efficacy of Darolutimide as monotherapy and was wondering if anyone outside of the trial has done this. The phase 2 triall seemed to show that it could be very effective in lowering PSA. Since it doesn't actually stop testosterone
I know there has been a phase 2 trial (EORTC-GUCG 1532 trial) testing the efficacy of Darolutimide as monotherapy and was wondering if anyone outside of the trial has done this. The phase 2 triall seemed to show that it could be very effective in lowering PSA. Since it doesn't actually stop testosterone
RugbyVLS
in
Advanced Prostate Cancer
1 year ago
On vacation!
Didn't think I would ever go on an ADT vacation. My new urologist thinks it would be a good idea since I have several SE from my MDS-RS with the worst being fatigue added to my ADT fatigue. Have been on Eligard after radiation for 3 yrs. with PSA undetectable. Am sure in my mind that the radiation
Didn't think I would ever go on an ADT vacation. My new urologist thinks it would be a good idea since I have several SE from my MDS-RS with the worst being fatigue added to my ADT fatigue. Have been on Eligard after radiation for 3 yrs. with PSA undetectable. Am sure in my mind that the radiation
SpencerBoy11
in
Advanced Prostate Cancer
1 year ago
Anomaly PSA jump of more than 25%?
Have any of you had a PSA jump (NOT 'bounce' following treatment) that was NOT a sign of recurrence after later having a PSMA-PET to verify? I am not happy with husband's doctor as I pushed to have PSMA-PET done after this jump (before this last PSA there was 6 years of stable PSA following RT w/o ADT
Have any of you had a PSA jump (NOT 'bounce' following treatment) that was NOT a sign of recurrence after later having a PSMA-PET to verify? I am not happy with husband's doctor as I pushed to have PSMA-PET done after this jump (before this last PSA there was 6 years of stable PSA following RT w/o ADT
Researcher50
in
Prostate Cancer Network
1 year ago
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Alive at Five
Dx Stage IV metastatic PCa with distant metastices to bones and para-aortic lymph node string on July 2, 2018. Still HS and on a year + medication holiday, PSA undetectable. Initially told I had 18 months to live! 🙏
Dx Stage IV metastatic PCa with distant metastices to bones and para-aortic lymph node string on July 2, 2018. Still HS and on a year + medication holiday, PSA undetectable. Initially told I had 18 months to live! 🙏
6357axbz
in
Advanced Prostate Cancer
1 year ago
Docetaxel Update
Hi Gents, I assume this is SOC. I always have a blood draw one day prior to my chemo infusion. Prior to starting Docetaxel, my PSA was 23.6; after 3 rounds, my PSA is 10.7; a decline of 12.9! Yes, the SE are BAD. I have lost all of my hair. My fingernails are discolored, lifting off and sore. I have
Hi Gents, I assume this is SOC. I always have a blood draw one day prior to my chemo infusion. Prior to starting Docetaxel, my PSA was 23.6; after 3 rounds, my PSA is 10.7; a decline of 12.9! Yes, the SE are BAD. I have lost all of my hair. My fingernails are discolored, lifting off and sore. I have
MJCA
in
Advanced Prostate Cancer
1 year ago
Dose titration for CRPC
Hi For those of us who question why we should recieve the Maximum Tolerated Dose as opposed to a Minimum Effective Dose, the work of the Moffitt among others is of great interest. In the following paper upward dose titration is of particular interest to me as I try to workout how to navigate my CRPC
Hi For those of us who question why we should recieve the Maximum Tolerated Dose as opposed to a Minimum Effective Dose, the work of the Moffitt among others is of great interest. In the following paper upward dose titration is of particular interest to me as I try to workout how to navigate my CRPC
Rickytarr
in
Fight Prostate Cancer
1 year ago
Lupron only after 4.5+ years
I was diagnosed with multiple Mets in August 2018. Started Lupron Nov. 2018. Over the years PSA has bounced up and down from low of 0.5 in March 2021 to high of 1.4 in June 2020. Mostly stayed 0.6 to 0.9. Ended 2022 at .67, but last two readings were 1.01 in March and .98 two days ago. Never had RP,
I was diagnosed with multiple Mets in August 2018. Started Lupron Nov. 2018. Over the years PSA has bounced up and down from low of 0.5 in March 2021 to high of 1.4 in June 2020. Mostly stayed 0.6 to 0.9. Ended 2022 at .67, but last two readings were 1.01 in March and .98 two days ago. Never had RP,
dhccpa
in
Advanced Prostate Cancer
1 year ago
Oncologist and prostate surgeon conflicting treatment
Dad 73yrs has recurrent PC. 5 pelvic lymph nodes with hormone sensitive PC detected via rising PSA after 1.5yrs at undetectable then psma scan confirmed it was now in pelvic lymph nodes. He had his prostate removed a few years before, negative margins and just unlucky. In September last year Oncologist
Dad 73yrs has recurrent PC. 5 pelvic lymph nodes with hormone sensitive PC detected via rising PSA after 1.5yrs at undetectable then psma scan confirmed it was now in pelvic lymph nodes. He had his prostate removed a few years before, negative margins and just unlucky. In September last year Oncologist
Jbooopin
in
Advanced Prostate Cancer
1 year ago
Are PSMA negative mets usually castrate resistant?
I had 2 clear PSMA-PETs (at a PSA of 2 & then 4) so Dr. Scholz recommended I get an FDG PET. Low and behold 3 decent sized mets showed up. In my subsequent research it seems like all the published articles describe the PSMA negative mets as being castrate resistant. Zytiga/Lupron was effective before
I had 2 clear PSMA-PETs (at a PSA of 2 & then 4) so Dr. Scholz recommended I get an FDG PET. Low and behold 3 decent sized mets showed up. In my subsequent research it seems like all the published articles describe the PSMA negative mets as being castrate resistant. Zytiga/Lupron was effective before
V10fanatic
in
Advanced Prostate Cancer
1 year ago
Value of LDH
I've been dealing with PCA 11 years and I've seen a number of doctors along the way but never have discussed or had my LDH tested. A young oncologist where I had my PSMA scan requested PSA, testosterone and LDH tests to go along with the scan. My LDH was at the low end of the "range" (but we still didn't
I've been dealing with PCA 11 years and I've seen a number of doctors along the way but never have discussed or had my LDH tested. A young oncologist where I had my PSMA scan requested PSA, testosterone and LDH tests to go along with the scan. My LDH was at the low end of the "range" (but we still didn't
fourputt
in
Advanced Prostate Cancer
1 year ago
Tear in Tendon
hi Has anybody with Psa had any problems with tears in their tendons ? I have just had an ultrasound and found to have a torn tendon in the rotator cuff/bursa area of my shoulder, I have had a pain with trouble sleeping in that area for quite a while so my rheumy decided to send me for the ultrasound
hi Has anybody with Psa had any problems with tears in their tendons ? I have just had an ultrasound and found to have a torn tendon in the rotator cuff/bursa area of my shoulder, I have had a pain with trouble sleeping in that area for quite a while so my rheumy decided to send me for the ultrasound
Shanim
in
NRAS
1 year ago
3 years Post-VRMAT-RT & ADT
After 3 years my PSA went from
20.3 μg/L
down to <
0.01 μg/L
and Testosterone from
438.04ng/dL
down to
60.52 ng/dL
🙈🙉🙊. As of July 07, 2023. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently
After 3 years my PSA went from
20.3 μg/L
down to <
0.01 μg/L
and Testosterone from
438.04ng/dL
down to
60.52 ng/dL
🙈🙉🙊. As of July 07, 2023. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently
doc1947g
in
Advanced Prostate Cancer
1 year ago
Usa62
I have or had stage four prostate cancer in my lungs. PSA at 6.0. Started taking Taxomere and Lupron treatments.. my PSA levels went from 6 to 1 to 0.2. I still have three more treatments to go.. Hope this gives hope to people. The taxomere seems to work fairly well.
I have or had stage four prostate cancer in my lungs. PSA at 6.0. Started taking Taxomere and Lupron treatments.. my PSA levels went from 6 to 1 to 0.2. I still have three more treatments to go.. Hope this gives hope to people. The taxomere seems to work fairly well.
Shabear
in
Advanced Prostate Cancer
1 year ago
Tear in Tendon
hi Has anybody with Psa had any problems with torn tendons ? I have just had an ultrasound and found to have a tear in tendon in the rotator cuff/bursa area of my shoulder, I have had a pain with trouble sleeping in that area for quite a while so my rheumy decided to send me for the ultrasound, I
hi Has anybody with Psa had any problems with torn tendons ? I have just had an ultrasound and found to have a tear in tendon in the rotator cuff/bursa area of my shoulder, I have had a pain with trouble sleeping in that area for quite a while so my rheumy decided to send me for the ultrasound, I
Shanim
in
Beyond Psoriasis
1 year ago
Question
Husband had 3-mo. blood work yesterday and I was checking for results on portal when I noticed MO had notation for 7/11 appointment: "Creatine (ISTAT) radiology to draw." Have no idea why it's there, seems like something to do with a scan, but she knows he can't tolerate scans and has refused them lately
Husband had 3-mo. blood work yesterday and I was checking for results on portal when I noticed MO had notation for 7/11 appointment: "Creatine (ISTAT) radiology to draw." Have no idea why it's there, seems like something to do with a scan, but she knows he can't tolerate scans and has refused them lately
Shamrock46
in
Advanced Prostate Cancer
1 year ago
Hello everyone...
It was in August 2022 that my primary care became alarmed after my PSA returned, and it was 77 plus, that I likewise became alarmed by the fact that I must deal with prostate cancer. As a result, I tried hormone therapy for six months and thought about killing myself if I did not die first from the
It was in August 2022 that my primary care became alarmed after my PSA returned, and it was 77 plus, that I likewise became alarmed by the fact that I must deal with prostate cancer. As a result, I tried hormone therapy for six months and thought about killing myself if I did not die first from the
PC-In-NC
in
Prostate Cancer Network
1 year ago
Diagnostic VS Symtomatic PSA Results
Sometimes my PSA results are labeled “Symptomatic” and sometimes “Diagnostic” are the results comparable?
Sometimes my PSA results are labeled “Symptomatic” and sometimes “Diagnostic” are the results comparable?
6357axbz
in
Advanced Prostate Cancer
1 year ago
PSMA PET Scan Question
I heard on a PCa support group call, from a retired MD, that if your PSA is below 0.1 a PSMA PET scan isn’t useful because it requires a certain level of the PSA to find metastases. Does anyone know if that’s true or is it more of a wives tale or just anecdotal? Thanks!
I heard on a PCa support group call, from a retired MD, that if your PSA is below 0.1 a PSMA PET scan isn’t useful because it requires a certain level of the PSA to find metastases. Does anyone know if that’s true or is it more of a wives tale or just anecdotal? Thanks!
Peeffervescence
in
Advanced Prostate Cancer
1 year ago
3 years Post-VRMAT-RT & ADT
After 3 years my PSA went from
20.3 μg/L
down to
0.02 μg/L
and Testosterone from
438.04ng/dL
down to
60.57 ng/dL
🙈🙉🙊. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently I fell and broke
After 3 years my PSA went from
20.3 μg/L
down to
0.02 μg/L
and Testosterone from
438.04ng/dL
down to
60.57 ng/dL
🙈🙉🙊. How much longer do I have to wait for a more normal Testosterone Totale. I like my PSA that low but a little bit higher. Recently I fell and broke
doc1947g
in
Prostate Cancer Network
1 year ago
hip or hernia pain
hello. I have a diagnosis of psa and am prescribed Taltz. I have had right side groin pain for 18 months. Extensive testing has shown mild degenerative changes in my hip joint and an osteophyte. Ortho consultant doesn’t believe this is the source of the pain. An indirect inguinal hernia has been found
hello. I have a diagnosis of psa and am prescribed Taltz. I have had right side groin pain for 18 months. Extensive testing has shown mild degenerative changes in my hip joint and an osteophyte. Ortho consultant doesn’t believe this is the source of the pain. An indirect inguinal hernia has been found
Vespa10
in
Arthritis Action
1 year ago
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