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3 Months post ADT (Orgovyx) Still having hot flashes and fatigue-doing blood test in two weeks..for hopefully nadir..
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
Stopped taking Orgovyx May 30th .... August 30th will be my 90 day blood test I presume to see if my Testosterone is BACK TO NORMAL (I hope) and my PSA is less than .o2 ?? I understand that the Testosterone back to NORMAL is more possible in the short term (90 days) than longer term use of adt? Is
JWS13
in
Prostate Cancer Network
10 months ago
One year in.
Hi all, I’m new to the group, stage 4 met — lymph and bone. Pretty scary stuff. Started with Dox which reduced my PSA from 2200(!) to now around 1200. I’m deep in it. I just had my second pluvocto treatment and hoping for the best. What’s hurting the most is feeling abandoned by my family,
Hi all, I’m new to the group, stage 4 met — lymph and bone. Pretty scary stuff. Started with Dox which reduced my PSA from 2200(!) to now around 1200. I’m deep in it. I just had my second pluvocto treatment and hoping for the best. What’s hurting the most is feeling abandoned by my family,
Arel8
in
Advanced Prostate Cancer
10 months ago
Bicalutamide shortage?
I’ve been on Bicalutamide 50 mg monotherapy for four years . When I received my last refill for 90 tablets, I was given only 14 tablets and told their supplier didn’t know when more would be available. After checking 3 other pharmacies in Florence Oregon , I was able to get 30 more tablets. Next I enrolled
I’ve been on Bicalutamide 50 mg monotherapy for four years . When I received my last refill for 90 tablets, I was given only 14 tablets and told their supplier didn’t know when more would be available. After checking 3 other pharmacies in Florence Oregon , I was able to get 30 more tablets. Next I enrolled
Coastguy
in
Advanced Prostate Cancer
10 months ago
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Looking for advice
Hi I have a PSA of 5.5 and a Gleason score of 4+3 and am looking for advice about treatment options. I was dignosed about 5 months ago. Would like to better understand views on surgery versus other treatment optins. Best
Hi I have a PSA of 5.5 and a Gleason score of 4+3 and am looking for advice about treatment options. I was dignosed about 5 months ago. Would like to better understand views on surgery versus other treatment optins. Best
Scorpio53
in
Prostate Cancer Network
10 months ago
Pluvicto, Not Helping
I just had round 5 of Pluvicto on August 10th. I don't see where is is helping much, if any, at all. My PSA before entering round 5 is now over 400. I'm so anemic I've had two blood transfusions in the past 30 days. When I went in for round 5 I was so weak and frail that I had to be pushed around in
I just had round 5 of Pluvicto on August 10th. I don't see where is is helping much, if any, at all. My PSA before entering round 5 is now over 400. I'm so anemic I've had two blood transfusions in the past 30 days. When I went in for round 5 I was so weak and frail that I had to be pushed around in
bglendi53
in
Advanced Prostate Cancer
10 months ago
Interesting PSA observation
For my prostate cancer journey, please see my bio. In 06/2023 I was also diagnosed with testicle lymphoma, maybe as a side effect of earlier radiation. Testicle has been removed, PET/CT & co showed no other evidence of cancer. So I perform four cycles of R-CHOP chemo regimen. Why I post this here? After
For my prostate cancer journey, please see my bio. In 06/2023 I was also diagnosed with testicle lymphoma, maybe as a side effect of earlier radiation. Testicle has been removed, PET/CT & co showed no other evidence of cancer. So I perform four cycles of R-CHOP chemo regimen. Why I post this here? After
Nusch
in
Advanced Prostate Cancer
10 months ago
Could PSA of 3.0 be a problem?
My 48 year old son lives in Norway. He was recently contacted by their hereditary cancer clinic and advised that his PSA had increased to 3.0 from from last years 2.5. They felt that's a little high for his age and are going to call him in for an MR and a new PSA test. Is this any cause for concern
My 48 year old son lives in Norway. He was recently contacted by their hereditary cancer clinic and advised that his PSA had increased to 3.0 from from last years 2.5. They felt that's a little high for his age and are going to call him in for an MR and a new PSA test. Is this any cause for concern
Hidden
in
Prostate Cancer Network
10 months ago
BP with abiraterone + prednisone, eplerenone, dexamethasone
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
I have been on Lupron and abiraterone with (initially) prednisone for 4.5 years, which has maintained my PSA at <0.1 since 111 at diagnosis. I have all the usual side effects. One that doesn't bother me day-to-day, but definitely concerns me, is hypertension. Before PCa, I had moderately high BP, which
Gearhead
in
Advanced Prostate Cancer
10 months ago
Declining psa #5
Gm ladies n gentlemen, after a stabilization psa between 1.5-1.7 for the last two months solely on ivermectin, I incorporated cbd, turmeric, zinc a lot of fruits especially cherries 🍒 and the pits (2-5 daily) of cherries, peaches, plums n apricots for the natural amygdalin nutrient and I am happy to
Gm ladies n gentlemen, after a stabilization psa between 1.5-1.7 for the last two months solely on ivermectin, I incorporated cbd, turmeric, zinc a lot of fruits especially cherries 🍒 and the pits (2-5 daily) of cherries, peaches, plums n apricots for the natural amygdalin nutrient and I am happy to
Nfler
in
Advanced Prostate Cancer
10 months ago
ADT before Surgery?
I have a prostatectomy which is probably 6-8 weeks in my future. My outlook is that metastasis in imminent. (T3bM0n0 and no evidence of cancer outside the gland as of May 25 PSMA PET scan, but I am told I am intermediate/unfavorable and my PSA went from 10 to 12 in only a month.) Today is August 18.
I have a prostatectomy which is probably 6-8 weeks in my future. My outlook is that metastasis in imminent. (T3bM0n0 and no evidence of cancer outside the gland as of May 25 PSMA PET scan, but I am told I am intermediate/unfavorable and my PSA went from 10 to 12 in only a month.) Today is August 18.
Lost_Sheep
in
Prostate Cancer Network
10 months ago
Blood in urine and clotting 3 weeks after starting Zytiga
After starting Zytiga I noticed a few drops of blood but only after a bowel motion. Yesterday after a big bowel motion I couldn’t pee and headed for hospital though on getting there I suppose my bladder was full enough it forced the clot out while going to the toilet. I’ve had blockage problems ana
After starting Zytiga I noticed a few drops of blood but only after a bowel motion. Yesterday after a big bowel motion I couldn’t pee and headed for hospital though on getting there I suppose my bladder was full enough it forced the clot out while going to the toilet. I’ve had blockage problems ana
Ausi
in
Advanced Prostate Cancer
10 months ago
FYI: New data on progression of visceral mets without PSA progression (discordance) and ARAT/docetaxel therapy
Interesting study, folks. We know physical progression of PCa (i.e., new metastases) can occur without PSA progression. This is known as a discordance. But we don't know how often it occurs or why it occurs. In these instances, our greatest fear is "therapy-induced neuroendocrine prostate cancer
Interesting study, folks. We know physical progression of PCa (i.e., new metastases) can occur without PSA progression. This is known as a discordance. But we don't know how often it occurs or why it occurs. In these instances, our greatest fear is "therapy-induced neuroendocrine prostate cancer
SeosamhM
in
Advanced Prostate Cancer
10 months ago
Newly detectable PSA after prostatectomy: RT + ADT planned; add Erleada?
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Diagnosed 12/21, PSA 7, negative PSMA PET. Radical prostatectomy with extended lymph node dissection in Mar 2022. Gleason 4+5, +cribriform, +intraductal, + bilat SVI, +ECE. Margins negative (barely) and 1/34 lymph nodes positive with very small focus of cancer. PSA was undetectable until Jun 2023, then
Brokedown_Palace
in
Advanced Prostate Cancer
10 months ago
Brain metastasis
New (Portuguese) anecdotal case study below. [1] When I began reading PCa studies on PubMed, I saw a lot of cell studies that used LNCaP (from a lymph PCa cell), PC3 (from a bone PCa cell) &/or DU145 (supposedly a brain met cell, but now described as "derived from a central nervous system metastasis
New (Portuguese) anecdotal case study below. [1] When I began reading PCa studies on PubMed, I saw a lot of cell studies that used LNCaP (from a lymph PCa cell), PC3 (from a bone PCa cell) &/or DU145 (supposedly a brain met cell, but now described as "derived from a central nervous system metastasis
pca2004
in
Fight Prostate Cancer
10 months ago
AUA 2023: PSA Response and Time-to-Castration Resistance Among Patients with mCSPCa Initiated on Apalutamide, Enzalutamide, or Abiraterone
The objective of this study was to describe a “real-world” experience of mCSPC patients treated with apalutamide, enzalutamide, and abiraterone acetate, with a focus on PSA response and development of castration resistance outcomes. This study identified patients with mCSPC newly initiated on apalutamide
The objective of this study was to describe a “real-world” experience of mCSPC patients treated with apalutamide, enzalutamide, and abiraterone acetate, with a focus on PSA response and development of castration resistance outcomes. This study identified patients with mCSPC newly initiated on apalutamide
skiingfiend
in
Advanced Prostate Cancer
10 months ago
Bring PSA from 6.7 to 3.1 in 4 weeks by pure water fast (3wks) and vegan diet (1 wk).
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
DADICIDAD
in
Advanced Prostate Cancer
10 months ago
Abiraterone and food
My husband has been on Abiraterone for 2 months, during which time his PSA has doubled. I’ve recently read posts about the advantages of taking Abiraterone with food instead of taking it an hour before eating as recommended. The posts are quite old (5 years) - is taking Abi with food still a consideration
My husband has been on Abiraterone for 2 months, during which time his PSA has doubled. I’ve recently read posts about the advantages of taking Abiraterone with food instead of taking it an hour before eating as recommended. The posts are quite old (5 years) - is taking Abi with food still a consideration
NLondon43
in
Advanced Prostate Cancer
10 months ago
Positive results, Pluvicto
I’m at Mayo for my third Pluvicto (Lutetium-177) treatment. Yesterday, I had a PSMA Pet scan to check on progress. I’m happy to report that it’s all positive at this point in the game. I include below the “findings” on the radiology report from the scan which speaks for itself. I look forward to hearing
I’m at Mayo for my third Pluvicto (Lutetium-177) treatment. Yesterday, I had a PSMA Pet scan to check on progress. I’m happy to report that it’s all positive at this point in the game. I include below the “findings” on the radiology report from the scan which speaks for itself. I look forward to hearing
Skifanatic
in
Advanced Prostate Cancer
10 months ago
PSA Bounce after radiation
Has anyone experienced a PSA rise after SBRT for bone metastasis? If so, would like to hear your story. Thanks.
Has anyone experienced a PSA rise after SBRT for bone metastasis? If so, would like to hear your story. Thanks.
NDJIM
in
Advanced Prostate Cancer
10 months ago
Rapidly Rising PSA
As some of you know, I am now under the care of two excellent oncologists, including Prof. De Bono at Royal Marsden Cancer Centre. I was originally deemed to have a non-aggressive cancer (in 14 years my PSA has never exceeded 4.1) However, over the last 6 weeks (when I have been on no treatment whatsoever
As some of you know, I am now under the care of two excellent oncologists, including Prof. De Bono at Royal Marsden Cancer Centre. I was originally deemed to have a non-aggressive cancer (in 14 years my PSA has never exceeded 4.1) However, over the last 6 weeks (when I have been on no treatment whatsoever
CrocodileShoes
in
Advanced Prostate Cancer
10 months ago
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